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Medical Forum / Diseases and Disorders / Cancer / February 2005Travel and cancer
There's an article in our CAA magazine (written by someone who has a disability) about Accessible Cruising. In there, they mention Holland America/Zuiderdam conforms to the American with Disabilities Act, as being one of the best, for accessibility issues. This is not an advert, I have no connection nor experience with them. The article details many things that are not on their website. (and I have no scanner), unfortunately. Cabin accessibility, calling ahead and telling them your potential needs, information is left in the room about accessible public bathrooms, exits for emergency; oxygen supply issues, hearing (devices are installed on the phone) or sight impairments, dietary requirements, guide dog accommodation (Deck 3 - don't know if that's where the dogs "use the facilities" and/or exercise or sleep), wheelchair issues, especially flush floors, storage, having it delivered to the cruise line, (they no longer provide a complimenatory wheelchair apparently); electric wheelchairs and scooters too heavy for tenders. (tenders=small boats used to ferry the passengers from ship to shore, in places where they cannot dock). The electric wheelchairs or scooters might be important at certain ports of call, if there's "hilly" areas. (rather than a pushed or self-propelled wheelchair); Infirmary, Medical facilities and services, Medications and prescriptions. A person must be self-sufficient or accompanied by someone. There's more and/or other issues mentioned here: http://www.cancerbacup.org.uk/Resourcessupport/Practicalissues/Travel/Cancer So if you're planning on travelling for recreation (whatever the means), plan ahead. If anyone has other issues/tips that should be planned for, please add to this post. Thanks J > There's more and/or other issues mentioned here: > http://www.cancerbacup.org.uk/Resourcessupport/Practicalissues/Travel/C > ancer > > So if you're planning on travelling for recreation (whatever the > means), plan ahead. another interesting thing is that staying permanently on a cruise is cheaper than long term care in an assisted living facility. Cabin steward will bring you meds, meals are prepared that are more frequent and higher quality than in a nursing home, you see interesting places, etc.  Signature"Some witty person in rec.arts.sf.composition (I forget who) called them feral apostrophes. Untamed, unregulated, they roam the wastes of the English language and pop up where lea'st expected." > another interesting thing is that staying permanently on a cruise is > cheaper than long term care in an assisted living facility. Cabin steward > will bring you meds, meals are prepared that are more frequent and higher > quality than in a nursing home, you see interesting places, etc. That is true and it is even funny, Alex > another interesting thing is that staying permanently on a cruise is > cheaper than long term care in an assisted living facility. Cabin steward > will bring you meds, meals are prepared that are more frequent and higher > quality than in a nursing home, you see interesting places, etc. Sounds like a great way to go. <pardon the accidental pun> > -- > "Some witty person in rec.arts.sf.composition (I forget who) called them > feral apostrophes. Untamed, unregulated, they roam the wastes of the > English language and pop up where lea'st expected." LOL, got one for unclosed bracket?. It must be a disease.. I do that a lot <smile> J > There's an article in our CAA magazine (written by someone who has a > disability) about Accessible Cruising. [quoted text clipped - 29 lines] > Thanks > J I have just returned from 7 months travelling around Australia and I would encourage all people with cancer to live out their dreams while they can. I have advanced ovarian cancer, but was determined to swim in the great barrier reef, see coral, see rainforests and create some great memories for myself, but also for my husband. So...off we went..caravan in tow, favourite kelpie dog wagging her tail all the way, as we toured, investigated, ate 3 course meals, drank copious amounts of fine Aussie wine out of crystal glasses in the rainforest, swam with turtles on the great barrier reef.... found Nemo!...danced at concerts.... seen Arlo Guthrie, experienced outback Australia... got bogged in bulldust. I required chemo while we were away...No problems... My oncologist contacted one interstate who was happy to fit in with my schedule..in fact encouraged me. (Chemo around Oz...good title for a book! hey?) I am getting frailer now and having more medical problems and would not attempt this again in my present condition for such a long time...<g> though we are planning a weeks houseboat trip on the River Murray with the kids for my birthday from 13 Feb onwards, in a wilderness area. Carpe diem! Make sure you stay well enough to do the houseboat on the Murray. It's fabulous. Then GET BETTER. Marty from Oz >> There's an article in our CAA magazine (written by someone who has a >> disability) about Accessible Cruising. [quoted text clipped - 54 lines] > > Carpe diem! >> I required chemo while we were away...No problems... My oncologist >> contacted [quoted text clipped - 6 lines] > > Carpe diem! Sam I like you attitude! Alex guesswho@guesswho.com said... > > I am getting frailer now and having more medical problems and would not > > attempt this again in my present condition for such a long time...<g> [quoted text clipped - 4 lines] > > Sam I like you attitude! Alex So do I. I like it a /lot/. SignatureIf you can keep your head when all around are losing theirs... then you've failed to grasp some important aspect of the situation. >> There's an article in our CAA magazine (written by someone who has a >> disability) about Accessible Cruising. [quoted text clipped - 49 lines] > >Carpe diem! Great positive outlook. Wow thanks a lot. Gordo > >"J" <plib@anon.anon> wrote in message > ... [quoted text clipped - 19 lines] > >Carpe diem! > Great positive outlook. Wow thanks a lot. Now, I've got a list going and cruise is heading towards the end of my list. Gong to Em's; Backpacking, canoeing and fishing somewhere in Northern Canada, possibly BC; A houseboat trip (anywhere); Caravaning in OZ (always did appeal to me). By far, the most dangerous is going to Em's <smile> Gee, it must be cabin fever here. Note there's no snow mentioned in my list. J plib@anon.anon said... > Now, I've got a list going and cruise is heading towards the end of my list. > Gong to Em's; Backpacking, canoeing and fishing somewhere in Northern Canada, > possibly BC; A houseboat trip (anywhere); > Caravaning in OZ (always did appeal to me). By far, the most dangerous is going to > Em's <smile> *Giggle* You're not wrong... ;-) SignatureIf you can keep your head when all around are losing theirs... then you've failed to grasp some important aspect of the situation. > plib@anon.anon said... > > Now, I've got a list going and cruise is heading towards the end of my list. [quoted text clipped - 4 lines] > > > *Giggle* You're not wrong... ;-) LOL are we creating an urban legend about Em? Your reputation might precede you. (anywhere you go, unless Socks reinstates it after his visit). J >> plib@anon.anon said... >> > Now, I've got a list going and cruise is heading towards the end of [quoted text clipped - 9 lines] > reinstates it after his visit). > J Anyone who freely associates with me has no reason to worry about their reputation. it's already down the tubes. I just finished a nice chat yesterday with Em's dad. They enjoy bow and arrow shooting. He insists though that they have no expectation of a need to fend off invaders anytime soon. I was worried that it was us they were thinking about? Signature"Yesterday was Groundhog Day and the State of the Union Address. As Air America Radio pointed out, it is an ironic juxtaposition: one involves a meaningless ritual in which we look to a creature of little intelligence for prognostication and the other involves a groundhog." agent01413@my-deja.com said... > I just finished a nice chat yesterday with Em's dad. They enjoy bow and > arrow shooting. He insists though that they have no expectation of a need > to fend off invaders anytime soon. I was worried that it was us they were > thinking about? Errm, I think you'll find it was my husband rather than my dad, but never mind... ;-) Shooting - it's different here; we don't hunt and AFAIK it's not allowed even if we wanted to, so it's just a sport. That said, we do enjoy field shoots as well as indoor ones. I don't /think/ anyone's got any current plans to invade Wales - but if Mr Bush has got any intention of bombing the current London parliament he's more than welcome, as long as the politicos are inside it at the time. SignatureEm, from the most recent state of America :-( > They enjoy bow and > arrow shooting. Is that anything like archery? Jerry Thankful that this is not a weather, religion, or political newsgroup. Jerry <spamrecycle@chooseyourmail.com> wrote in news:1w48bdiajqg71 $.l55ybpk30owc.dlg@40tude.net: >> They enjoy bow and >> arrow shooting. [quoted text clipped - 3 lines] > Jerry > Thankful that this is not a weather, religion, or political newsgroup. archery requires skill. i shoot bows and arrows Signature"Some witty person in rec.arts.sf.composition (I forget who) called them feral apostrophes. Untamed, unregulated, they roam the wastes of the English language and pop up where lea'st expected." agent01413@my-deja.com said... > Jerry <spamrecycle@chooseyourmail.com> wrote in news:1w48bdiajqg71 > $.l55ybpk30owc.dlg@40tude.net: [quoted text clipped - 5 lines] > > > archery requires skill. Ah. That'll be where I go wrong then. i shoot bows and arrows I shoot arrows. I try to keep the bow where I can see it. SignatureIf you can keep your head when all around are losing theirs... then you've failed to grasp some important aspect of the situation. > agent01413@my-deja.com said... >> Jerry <spamrecycle@chooseyourmail.com> wrote in news:1w48bdiajqg71 [quoted text clipped - 12 lines] > > I shoot arrows. I try to keep the bow where I can see it. I've had better luck throwing the bow at the target than I have hitting it with an arrow. Sounds like we might be evenly matched when I visit. At the pistol range I have found that I get away cheaper than the others because I am able to reuse the targets for quite some time. My best chance if I ever confront a home burglar is to face one frightened by loud noises. Signature"Some witty person in rec.arts.sf.composition (I forget who) called them feral apostrophes. Untamed, unregulated, they roam the wastes of the English language and pop up where lea'st expected." > I've had better luck throwing the bow at the target than I have hitting it > with an arrow. Sounds like we might be evenly matched when I visit. > > At the pistol range I have found that I get away cheaper than the others > because I am able to reuse the targets for quite some time. My best chance > if I ever confront a home burglar is to face one frightened by loud noises. hehe.. Dare I ask for examples of loud noises? J spamrecycle@chooseyourmail.com said... > > They enjoy bow and > > arrow shooting. > > Is that anything like archery? Occasionally, though if my performance at the club tonight was anything to go by, not very often. SignatureIf you can keep your head when all around are losing theirs... then you've failed to grasp some important aspect of the situation. > Anyone who freely associates with me has no reason to worry about their > reputation. it's already down the tubes. [quoted text clipped - 3 lines] > to fend off invaders anytime soon. I was worried that it was us they were > thinking about? You two crack me up :-) > "Yesterday was Groundhog Day and the State of the Union Address. > > As Air America Radio pointed out, it is an ironic juxtaposition: one > involves a meaningless ritual in which we look to a creature of little > intelligence for prognostication and the other involves a groundhog." And when I saw this post last night, I literally fell on the floor laughing, which freaked my cat, who knocked over my glass of water, so I had to power down and wait for the keyboard to dry off overnight. troublemakers..hrmph... <wink> Thanks for the laughs. J > "Yesterday was Groundhog Day and the State of the Union Address. > > As Air America Radio pointed out, it is an ironic juxtaposition: one > involves a meaningless ritual in which we look to a creature of little > intelligence for prognostication and the other involves a groundhog." I forgot something. Have you ever been to www.jibjab.com ? Apparently it's funny. It was mentioned on TV a few weeks ago, but unfortunately, they seem to charge (I could be wrong) to play the videos.. J > I forgot something. Have you ever been to www.jibjab.com ? > Apparently it's funny. > It was mentioned on TV a few weeks ago, but unfortunately, they seem > to charge (I could be wrong) to play the videos.. > > J I usually get a heads up when they post something new. I've never been charged to visit there. Signature"Some witty person in rec.arts.sf.composition (I forget who) called them feral apostrophes. Untamed, unregulated, they roam the wastes of the English language and pop up where lea'st expected." > > I forgot something. Have you ever been to www.jibjab.com ? > > Apparently it's funny. [quoted text clipped - 3 lines] > I usually get a heads up when they post something new. I've never been > charged to visit there. There's no charge to visit, but it says "download this movie to your desktop for $2.99". Otherwise when I click on "second term", all I get is banjo music, no video. J I have never been charged either, but I haven't tried to download them either. xy123lib@anon.anon said... > > plib@anon.anon said... > > > Now, I've got a list going and cruise is heading towards the end of my list. [quoted text clipped - 8 lines] > Your reputation might precede you. (anywhere you go, unless Socks reinstates it after his > visit). There is going to be *lot* of very panicky tidying up and cleaning going on before he and Figgertoes are allowed in through the door. It'll be worth it though - and after 5 1/2 years it's about time the house was sorted out :-) SignatureIf you can keep your head when all around are losing theirs... then you've failed to grasp some important aspect of the situation. > I have just returned from 7 months travelling around Australia and I would > encourage all people with cancer to live out their dreams while they can. [quoted text clipped - 10 lines] > one interstate who was happy to fit in with my schedule..in fact encouraged > me. (Chemo around Oz...good title for a book! hey?) Sure is, Sam. I just checked and nobody (on the internet) has named one that. Go for it, even if it only gets to the booklet stage. Get the intro and your chapters defined. And some written in each chapter. then expand on each chapter, as timeand the inclination allows. Never know, could be a best-seller or a teaching tool or something to pass on to any of your relatives. You could add photos too..wait a minute, I'm building a project for you <g> > I am getting frailer now and having more medical problems and would not > attempt this again in my present condition for such a long time...<g> > though we are planning a weeks houseboat trip on the River Murray with the > kids for my birthday from 13 Feb onwards, in a wilderness area. > > Carpe diem! Thank you for sharing, Sam. I'm in love with Australia. Arlo Guthrie. I'm jealous ! J- Australia dreaming... (Chemo around Oz...good title for a book! hey?) > Sure is, Sam. I just checked and nobody (on the internet) has named one > that. [quoted text clipped - 23 lines] > > J- Australia dreaming... One thing we have done is burn all our photos to DVD with music and I can re live my trip everyday of the week. Its a fantastic idea for memories. As for writing the book... good idea, but Im not motivated towards writing. I am off to see my oncologist tomorrow (leaving today as its a 7 hour drive). I am sure he will want to put me back of chemo, but I havent got time for that at the moment.... It will just have to wait until after the houseboat holiday. I am so looking forward to that and to kayaking. Ive already told my hubby he will have to do all the paddling...... mummbled something about paddling your own canoe, with a cheeky grin on his face...LOL > Sam:<<< (Chemo around Oz...good title for a book! hey?) > [quoted text clipped - 3 lines] > live my trip everyday of the week. Its a fantastic idea for memories. As for > writing the book... good idea, but Im not motivated towards writing. Please forgive. I'm known to get ideas about projects that creates work for others ;-) The DVD idea sounds wonderful. > I am off to see my oncologist tomorrow (leaving today as its a 7 hour > drive). I am sure he will want to put me back of chemo, but I havent got [quoted text clipped - 3 lines] > something about paddling your own canoe, with a cheeky grin on his > face...LOL <smile> Carpe Diem...seize the moment/seize the day... Oh that reminds me of lots of things. Kayaking, mostly upside down - maybe I should forget about going down rapids eh? <g> We Canadian's don't surf the web, we canoe it <g> Hugs to you, Sam, J > I have just returned from 7 months travelling around Australia and I would > encourage all people with cancer to live out their dreams while they can. [quoted text clipped - 16 lines] > > Carpe diem! Hi Sam, I noticed your helpful posts earlier. I just wanted to come back to this post and say how sorry I am about your cancer and (make it official) welcome to the newsgroup. Many hugs from me to you and an early Happy Birthday to you ! (since you'll be away at the time). J "> Hi Sam, I noticed your helpful posts earlier. > I just wanted to come back to this post and say how sorry I am about your > cancer [quoted text clipped - 3 lines] > away at the time). > J Thanks for the birthday wishes. We arrived home yesterday after a fantastic 5 days on the houseboat. Such a leisurely pace and I enjoyed time with my kids, hubby and the family dog. Lots of laugh therapy was had by all. We all enjoyed swimming and kayaking (including dog). There is nothing nicer than sitting in the Aussie bush sipping a glass of bubbles watching the sun go down through the river red gums with white cockatoos and galahs screecking over head. We didnt catch any fish, but did threw the yabbie pots out and caught 2..... just a tease!! The area we went to was quite remote and we seen lots of bird life and even kangaroos coming down to the river for a drink. J, I must own up that I have been reading this newgroups for over 2 years on a daily basis... actually feel like I'm part of it...even if you didnt know I was!! > Thanks for the birthday wishes. We arrived home yesterday after a fantastic > 5 days on the houseboat. Such a leisurely pace and I enjoyed time with my [quoted text clipped - 7 lines] > just a tease!! The area we went to was quite remote and we seen lots of bird > life and even kangaroos coming down to the river for a drink. Sounds wonderful, Sam. Thanks for sharing. > J, I must own up that I have been reading this newgroups for over 2 years on > a daily basis... actually feel like I'm part of it...even if you didnt know > I was!! And what may I ask, stopped you from posting? <smile> And/or maybe there's more than 100 reading at any given time. And/or I wish we'd met you earlier. I like you. :-) And/or hopefully reading made you not feel so alone out there. And/or I'm glad you finally officially joined the group. Many hugs to you and yours, Sam J >> J, I must own up that I have been reading this newgroups for over 2 years >> on [quoted text clipped - 9 lines] > Many hugs to you and yours, Sam > J Why didnt I speak up sooner?.... I was getting the support I needed without having to. I started reading about the time of PHP....I have never laughed so much in my life. I'm a great believer in the theraputic value of laughter... (followed closely by chocolate, then retail therapy) > Why didnt I speak up sooner?.... I was getting the support I needed without > having to. > I started reading about the time of PHP....I have never laughed so much in > my life. I'm a great believer in the theraputic value of laughter... Me too and I miss it here terribly. It was a special time, with special combinations of people, and special circumstances, yet we've had them since, but there doesn't seem to be "satellite persons" who are here on a regular basis and who are *real*. By that I mean, some days down, some days laughing, some days angry, some days poking fun at trolls, some days speaking about their family members. It doesn't seem like a "home" for cancer patients anymore. And yes, back then patients or loved ones got upset about some of this "fun" was had by some, some got upset with the trolls and altie-arguing and left and some got upset about religious issues and left, so there was always comings and goings, not just recent. There's some posts in part IV of the FAQ about the PHP, but taken out of context, I suppose to most, they seem meaningless. One had to be there to really appreciate the good times. I was just looking back, trying to find a post by Lowkey about he and his daughter going to visit a special place. I found it but don't know if I should post it, because of the paranoia about the Google archives. here's another quote from him Jun 4 2003 (seems to be just after the vote for the FAQ/Charter - which by the way, he didn't vote in - I guess he had a "let's wait and see if it works" and/or was a fence sitter - liked some of it, but not all, or couldn't be bothered) Now all we have to do is sit back and see if ASC is gonna simmer down into that SUPPORT NG we've all come to know and love, or if it has decided to become a home for trolls and jackals, a place marked on the map with 'there be dragons there'. Time will tell. Lowkey the lowly Labrat " Well, IMO, we have what was wished for. Yes, there'll always be trolls and alties, but a bunch have been driven off. So what is the problem now? Steph's still here, I'm sure he hasn't lost his sense of humour. But there doesn't seem to be a group of others who stop to get to know each other. To be sure, some stop to reply to each other, but they (most, not including Socks, Emily, Alayne, pete, me and Jill and Anita) don't seem to form relationships - getting to know each other. Do you understand what I mean? Thoughts about any of this - not specifically about the FAQ/trolls/alties? Are they so focused on their treatment plans and/or not feeling well, that they don't have time to share? Does it take having to fend off trolls and alties to bring out the best in people? ???? J > So what is the problem now?... No problem for me now..... I live in a small country town, pop. less than 600. The local community health service asked for expression of interest in starting a 'cancer support group'. About 12 of us met, all with different types of cancer. What we discovered (after meeting 6 or so times) was that despite having cancer in common, we had nothing in common. All our cancers while treated with surgery, radiation or chemo, they were different and at different stages. The group did advise others about accommodation and other government help available. I think it didnt 'gel' because of everyone expections and what 'support' acutually meant to them. It seems to me that it is very individual and its what works for each person. We had one lady who was quite vocal about her husbands prostate ca, and the group were not impressed with her ideas about a healthy diet maintaining good health for him, rather that having surgery immediately he was diagnosised. Telling other people of their plans was a way of providing her with support. (He since has had radiation therapy and is fit and well) BUT, most of those people in the original 12 visit each other or plan coffee morning or just stop and spend time with each other, and this wouldnt have happened before the group. > I live in a small country town, pop. less than 600. The local community > health service asked for expression of interest in starting a 'cancer [quoted text clipped - 14 lines] > morning or just stop and spend time with each other, and this wouldnt have > happened before the group. It's good to read that there's now local support, Sam. Thanks J > There's more and/or other issues mentioned here: > http://www.cancerbacup.org.uk/Resourcessupport/Practicalissues/Travel/Cancer I forget what's mentioned on that website but see below. > So if you're planning on travelling for recreation (whatever the means), > plan ahead. Check with your doctors before you go. Also those of you with or have had clots, a lady on another newsgroup had had migraines for years. She collapsed and was found (MRI I think) to have a large aneurysm in her temporal lobe area. Why am I bringing this up here? Well aneurysms can hemmorhage. Loki died of a brain hemorrhage. He'd had a history of migraines most of his life. Does that mean everyone with migraines has or will get an aneurysm. I don't think so, but I'm not a doctor. Does that mean everyone with migraines here who are thinking of flying should get an MRI or other scans to look for potential clottling problems; gee, I don't know. Ask your doctor(s). But what prompts me to mention this here, is the lady on the other newsgroup was told by someone not to fly. Must be similar to DVT's (clot in legs I think) where the clot can travel through the system (and for some reason flying is counter-indicated), so when thinking about flying for vacation, check with your doctor(s). J > Check with your doctors before you go. > [quoted text clipped - 25 lines] > thinking about flying for vacation, check with your doctor(s). > J I think most doctors would give you their blessings and encourage it. The doctor I seen in Queensland was telling me he had 2 patients from overseas touring (similar to us). While we were caravanning we stopped every hour or 2 to have a walk around the car, cuppa, dog needed a toilet stop etc. This allow us to exercise legs and give my hubby a rest from driving. Fatigue to a huge factor in MVAs > I think most doctors would give you their blessings and encourage it. The > doctor I seen in Queensland was telling me he had 2 patients from overseas [quoted text clipped - 3 lines] > the car, cuppa, dog needed a toilet stop etc. This allow us to exercise legs > and give my hubby a rest from driving. Fatigue to a huge factor in MVAs Thanks Sam, Good tips there and yes, apparently some patients get their treatments while vacationing. Steph's mentioned that before (Americans usually on vacation in Canada) Oncologists oblige wherever the need. Of course, outside country one must check with their insurance and/or pay themselves (I guess). Thanks again and hugs J When I have traveled and had some active issues, my doctor wrote a Letter of Introduction summarizing my care. Also Names of doctors and hospitals where I was visiting. Never had to use it but felt good having it. Alex >> I think most doctors would give you their blessings and encourage it. The >> doctor I seen in Queensland was telling me he had 2 patients from [quoted text clipped - 17 lines] > Thanks again and hugs > J . Fatigue to a huge factor in MVAs When my kids drive home from college we always remind them to take a break every 2 hours, even if the feel ok, great advice. |
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