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Medical Forum / Diseases and Disorders / Cancer / February 2005Multiple Myeloma
Hi I lost my husband 10 months ago to lung cancer which pretty much spread every where else. We struggled with it for 18 months. Now I found out yesterday my father has myelome. I not sure I know what kind of path this will take us on. He is 87 years old. Any one have any input on this? Thank's for any help. We took the bone marrow test yesterday so I not sure what stage he has Z. > Hi > I lost my husband 10 months ago to lung cancer which pretty much spread [quoted text clipped - 4 lines] > not sure what stage he has > Z. Hello Z, I am so sorry to hear both of the loss of your husband and now your father has myelome, life has been cruel to you. I am afraid that I am not a medic, but having lost my husband myself 17 months ago to a brain tumour, I would like to offer you a Warm Hug. This is a good supportive newsgroup and I am sure someone will be along soon to provide more information. Warm Hugs Alayne > I lost my husband 10 months ago to lung cancer which pretty much spread > every where else. We struggled with it for 18 months. Now I found out > yesterday my father has myelome. I not sure I know what kind of path > this will take us on. He is 87 years old. Any one have any input on > this? Thank's for any help. We took the bone marrow test yesterday so I > not sure what stage he has Hello, I'm sorry to hear about the loss of your husband. Unless it's discovered after the bone marrrow that he has MGUS (monoclonal gammopathy of unknown significance) which may not need treatment at all, if he has myeloma, this website seems to have a short description of how myeloma is treated in the elderly. <http://www.sghhealth4u.com.sg/health4u/hematology/Multiple_myeloma.htm> Treatment of multiple Myeloma Therapy in elderly patients is usually reserved for patients with symptomatic disease, or for those who may be asymptomatic, but have features suggesting that they may progress and develop complications over a short period of time.<read the rest> Since it's quiet on this newsgroup, especially for myeloma patients, you may find others by subscribing to an ACOR mail list. http://www.acor.org/mailing.html Under M for myeloma Apparently sending an email through the list, can generate quite a few replies, so be forewarned. You may get lots of "welcomes" so replies can be consolidated into one longer reply. I also recommend that one opens a free (throwaway) yahoo or hotmail account. In case, you want to use that one just for the myeloma ACOR group and if you unsubscribe, later abandon the throwaway account. If you find that things aren't going well at all or have questions that Steph may be able to answer, please come posting here. Hopefuly there'll be someone to help you along. Hope this helps. Best wishes, J Re: ACOR Lists I just want to say that the ACOR mailing list for pancreatic cancer has been the best resource I have found so far, and if it is typical, I cannot recommend it highly enough. There are allegedly over 300 subscribers, although only a dozen or two seem to be actively responding...this probably says alot about how deadly the disease is. I get, on the average, 2 or 3 e-mails a day from the list....although sometimes several days will go by without a new message and on other days maybe a dozen new messages will come through. It is a great place for discussing treatment options and side effects of treatments, there are several people on the list that are undergoing the same chemo combo as Chris..there are also people on the list who loved ones took that chemo and did not respond. I would not be too concerned about giving them a "real" e-mail address, the list is for subscribers only and you must join even if you want to browse the archives. The mail volume is not that high, especially in ligt of the fact that most everything is of great interest to PC patients and caregivers....and you can always unsubscribe. And the people are kind and caring, there are patients and caregivers of patients currently undergoing treatment, caregivers that stuck around and remained active on the list after their loved ones passed, and some long term survivors who offer hope and encouragement. It's been a wonderful thing. Barbara > Re: ACOR Lists > [quoted text clipped - 6 lines] > sometimes several days will go by without a new message and on other > days maybe a dozen new messages will come through. Thanks Barbara for your post and information, There's 13XX or so on the myeloma list. It tends to be more of a chronic diseases than pancreatic. Someone else here mentioned "deluged by messages", hence why I feel it's fair to tell people about the consolidation (of messages) feature. Are you allowed to tell us if Stan is on the list ? (yes or no - no other details) I've missed hearing from him for months now here. Thanks, J RE: Stan and ACOR list If Stan is on the list, he hasn't posted anything. I have also explored most of the archives and haven't seen anything from him. I think about him sometimes and I miss hearing from him...If I remember correctly its been about 6 months since he was diagnosed but he was less advanced than most other patients at the time of diagnosis...I hope for the best for him. Barbara > RE: Stan and ACOR list > [quoted text clipped - 6 lines] > > Barbara Hi Barbara, Diagnosed in July. Abandoned Whipple because - they got under the pancreas and found some of the cancer had attached to blood vessels that they couldn't remove it from. For some reason (that I cannot explain), I think that he may be alone. In November, he posted that palliative care was helping him. I hope they still are. Thanks for the information/reply. Hugs to you and Chris. J > Hi > I lost my husband 10 months ago to lung cancer which pretty much spread [quoted text clipped - 4 lines] > not sure what stage he has > Z. Z, I am sorry about the loss of your husband. And the dx of your father. I would like to offer support for you in an ear and a hug. I am not a medical personel, but like you, I lost my husband to cancer. He had bone cancer that had spread to his lungs, so I do know what you have been through. Please know that there are a few of us lurking around who are here to offer our support. Salisha some links im sorry to hear about your father http://www.myeloma.org/myeloma/kb_index.jsp?type=detail&id=735 http://myeloma.org/myeloma/article.jsp?type=detail&articleId=696 http://mm.acor.org/ http://myeloma.med.cornell.edu/Docs/MM-Research_Web_Server/Standard_Treatm ent.html > I would like to offer support for you in an ear and a hug. I am not a medical > > personel, but like you, I lost my husband to cancer. He had bone cancer > that had spread to his lungs, so I do know what you have been through. > Please know that there are a few of us lurking around who are here to offer > our support. How's Salisha? It's been a while.. Taking a breather sometimes helps. J Hi I lost my husband 10 months ago to lung cancer which pretty much spread every where else. We struggled with it for 18 months. Now I found out yesterday my father has myelome. I not sure I know what kind of path this will take us on. He is 87 years old. Any one have any input on this? Thank's for any help. We took the bone marrow test yesterday so I not sure what stage he has Z. From Anna, Hi Z, Did they say it was Multiply Myeloma? > Hi Z, Did they say it was Multiply Myeloma? Hi Anna, I went back up the theards and it seems it's leukemia that her father has (unless new info came in this week). She may be on the ACOR or leukemia lists. We'll have to see what the update is. Hugs J |
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