My brother was sent to an ENT doctor a few weeks back after losing his
voice. The ENT doctor put a camera down his throat and found a lump that he
said he was certain was cancer.
My brother had a biopsy two weeks ago and was told last week that the lump
was benign.
However today he had an appointment with the ENT doctor who said he wasn't
happy with the result of the biopsy and he has arranged for another biopsy
along with a body scan.
Is this normal?
I find it difficult to understand why the ENT doctor has arranged for
another biopsy, can biopsies be wrong?
Thanks in advance
Tony
Jill - 16 Dec 2004 01:59 GMT
> My brother was sent to an ENT doctor a few weeks back after losing his
> voice. The ENT doctor put a camera down his throat and found a lump that
[quoted text clipped - 15 lines]
> Thanks in advance
> Tony
Tony,
Sorry to hear about your brother. Another biopsy isn't a bad
idea. And a body scan is good. I'm no doctor, just have first
hand experience. So yes I would say it very normal.
And yes biopsies can be wrong.
Jill
J - 16 Dec 2004 02:10 GMT
> My brother was sent to an ENT doctor a few weeks back after losing his
> voice. The ENT doctor put a camera down his throat and found a lump that he
[quoted text clipped - 11 lines]
> I find it difficult to understand why the ENT doctor has arranged for
> another biopsy, can biopsies be wrong?
Needle biopsies can miss the mark. They may do more or do some excisions, under
anesthesia, to get more tissue.
(is my non-expert understanding)
Better safe than sorry.
If it is throat cancer, watch for posts by Willy - he's currently got throat
cancer.
You can find his current/previous posts by using the archive searcher
http://groups-beta.google.com/advanced_search?q=& unless you can find them
currently on the newsgroup.
Keep in touch and let us know.
J
matt weber - 16 Dec 2004 02:18 GMT
>My brother was sent to an ENT doctor a few weeks back after losing his
>voice. The ENT doctor put a camera down his throat and found a lump that he
[quoted text clipped - 11 lines]
>I find it difficult to understand why the ENT doctor has arranged for
>another biopsy, can biopsies be wrong?
No, not exactly, but it wouldn't be the first time that the biospy
needle missed the tumor altogether, or that someone thinks is the most
interesting part of the tumor. Pathologists have also been known to
make mistakes, and so do ENT's. Some tumors that look very ugly and
very aggressive turn out to be benign in spite of appearance to the
contrary. I knew one guy who used to take biopsy samples in pairs, and
send each to a different pathology lab for examination...
>Thanks in advance
>Tony
Blues Ma - 16 Dec 2004 02:40 GMT
> >My brother was sent to an ENT doctor a few weeks back after losing his
> >voice.? The ENT doctor put a camera down his throat and found a lump that he
[quoted text clipped - 19 lines]
> send each to a different pathology lab for examination...
> ?
Forgive the? 'butt in'? here, but i've been the recipient of two incorrect,
positive
biopsies on benign targets.
Just couldn't believe it, so paid for the seconds myself.
Insurance outfit was willing to accept the first? opinions.
Sadly, tissue studies can be wrong in either direction.?? My husband got a
clean bill just six months before he died.
Two may definitely be a good idea.
Dorothy
?
J - 16 Dec 2004 02:24 GMT
> However today he had an appointment with the ENT doctor who said he wasn't
> happy with the result of the biopsy and he has arranged for another biopsy
> along with a body scan.
I'm not sure at all why the body scan, unless he had worrisome signs or
symptoms.
J
Jill - 16 Dec 2004 02:29 GMT
>> However today he had an appointment with the ENT doctor who said he
>> wasn't
[quoted text clipped - 5 lines]
> symptoms.
> J
J,
They did a whole body scan on me. And then I just went
back for a PET & CAT scan.
Hugs,
Jill
J - 16 Dec 2004 08:48 GMT
> >> However today he had an appointment with the ENT doctor who said he
> >> wasn't
[quoted text clipped - 7 lines]
> J,
> They did a whole body scan on me.
You're right, Jill. Thanks for pointing that out.
Hugs
J
J - 17 Dec 2004 10:17 GMT
> They did a whole body scan on me. And then I just went
> back for a PET & CAT scan.
Hugs Jill, I hope you will update us in your thread, when you get the
results.
J - watching out for Jill.
Jill - 16 Dec 2004 02:31 GMT
>> However today he had an appointment with the ENT doctor who said he
>> wasn't
[quoted text clipped - 5 lines]
> symptoms.
> J
J,
They may also want the scan to have something to compare
it to at a later date.
More Hugs,
Jill
bj - 16 Dec 2004 02:36 GMT
As someone mentioned, pathologists can also be wrong. You might see about
getting a second opinion on the original slides. What exactly was the ENT
unhappy about? Did you get a copy of the pathology report?
bj
> My brother was sent to an ENT doctor a few weeks back after losing his
> voice. The ENT doctor put a camera down his throat and found a lump that
[quoted text clipped - 15 lines]
> Thanks in advance
> Tony
Steph - 16 Dec 2004 02:48 GMT
> As someone mentioned, pathologists can also be wrong. You might see about
> getting a second opinion on the original slides. What exactly was the ENT
> unhappy about? Did you get a copy of the pathology report?
> bj
It's pretty uncommon for pathologists to miss cancer on a biopsy. It's much
more likely that the biopsy was "unrepresentative"
bj - 16 Dec 2004 05:03 GMT
>> As someone mentioned, pathologists can also be wrong. You might see about
>> getting a second opinion on the original slides. What exactly was the ENT
[quoted text clipped - 3 lines]
> It's pretty uncommon for pathologists to miss cancer on a biopsy. It's
> much more likely that the biopsy was "unrepresentative"
It may be uncommon, but there are a number of thyroid cancer patients I've
"met" (online, support group) who have had misses that were found positive
when sent to a more expert (at reading thyroid slides & recognizing thyroid
cancer) pathologist. Some have had two or even three opinions before getting
a definite diagnosis.
One doctor (who specializes in thyca) has even found that a patient he
treated actually had a positive result years earlier -- but it wasn't
recognized, so the patient wasn't treated until things got worse & more
obvious -- re-reading the original slides showed the cancer was there at
the original FNA.
My own FNA report was "suspicious". I sometimes wonder if a more expert
pathologist would have read it as "cancer" (which it was).
bj
Steph - 16 Dec 2004 06:15 GMT
>>> As someone mentioned, pathologists can also be wrong. You might see
>>> about
[quoted text clipped - 12 lines]
> cancer) pathologist. Some have had two or even three opinions before
> getting a definite diagnosis.
That's a special situation. The call between well differentiated thyroid
cancer and an adenoma is often a very difficult one, even for the expert.
It's an exception, though.
> One doctor (who specializes in thyca) has even found that a patient he
> treated actually had a positive result years earlier -- but it wasn't
[quoted text clipped - 5 lines]
> pathologist would have read it as "cancer" (which it was).
> bj
FNA is not the same as a formal biopsy. It is often difficult to be dogmatic
about cancer on an FNA. A "real" biopsy is a different issue
eveline - 16 Dec 2004 07:03 GMT
Well since I only had the FNA, that leaves me wondering why my doctor was
satisfied with just doing that only?
I have a large multinodular goiter and antibodies - Hashimoto type. Had the
radioactive iodine scan that showed no hot or cold spots but poor uptake.
And another question: How big a chunk or procedure for a regular biopsy?
eveline
> >>> As someone mentioned, pathologists can also be wrong. You might see
> >>> about
[quoted text clipped - 29 lines]
> FNA is not the same as a formal biopsy. It is often difficult to be dogmatic
> about cancer on an FNA. A "real" biopsy is a different issue
Steph - 16 Dec 2004 07:36 GMT
> Well since I only had the FNA, that leaves me wondering why my doctor was
> satisfied with just doing that only?
[quoted text clipped - 4 lines]
>
> eveline
FNA is only part of the picture.
Nodule in the thyroid needs FNA plus ultrasound plus I131 scan
None of the tests is conclusive.
If any of these are suspicious though, at least a partial thyroidectomy is
in order. That gives a very good sample for pathology. If cancer is
confirmed, a completion thyroidectomy is indicated.
It's not really possible to do a biopsy of the thyroid without doing a
formal thyroid surgery. Cancers in the mouth or throat, however, can
certainly be biopsied readily
eveline - 16 Dec 2004 15:08 GMT
Thanks! Did have the ultrasound also. Evidently no test suspicious enough
so far to indicate a reason for formal throat surgery.
eveline
> > Well since I only had the FNA, that leaves me wondering why my doctor was
> > satisfied with just doing that only?
[quoted text clipped - 14 lines]
> formal thyroid surgery. Cancers in the mouth or throat, however, can
> certainly be biopsied readily
Tony Keen - 16 Dec 2004 23:02 GMT
Thanks for the replies.
You've made things clearer for me.
Regards
Tony