Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Cancer / November 2004

Tip: Looking for answers? Try searching our database.

cramps

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
Socks the white house cat - 29 Oct 2004 09:18 GMT
I had RT on my left hip several weeks ago.  Rad onc was concerned about
potential for bone breaks.

since then, I'vbe been getting cramps in my instep on my left foot, only at
night when trying to sleep.  I stand up, put pressure on it, and it goes
away.

blood tests show no chemical abnormalities like too little salt in the
blood stream

currently taking zometa for bone mets.  Taking extra calcicum to keep
adequate supply in the blood stream.

Primary tumor is NSCLC, left lung.  No evidence that cancer has spread any
further south than the hip.

Any ideas how this could be related to the cancer?

Signature

    I AM SPEWS (SLAPP PREVENTION ELECTRONIC WHITENOISE SYSTEM)
"The day Microsoft makes something that doesn't suck is probably the day
that they start making vacuum cleaners."--Doc in alt.privacy

J - 29 Oct 2004 09:56 GMT
> I had RT on my left hip several weeks ago.  Rad onc was concerned about
> potential for bone breaks.
[quoted text clipped - 5 lines]
> blood tests show no chemical abnormalities like too little salt in the
> blood stream

Calcium citrate?

There's tips here including stretching and pointing, especially before bedtime
http://tinyurl.com/5o6y6
There's other "salts" mentioned there also.
Potassium can be found in cantaloupes, bananas, tomatoes, grapefruits and
orange juice
From the archives, Mike suggested something like Gatorade or "quinine
bisulphate it might be worth a go."
HTH Socks
J
C. Falise - 29 Oct 2004 21:40 GMT
> > I had RT on my left hip several weeks ago.  Rad onc was concerned about
> > potential for bone breaks.
[quoted text clipped - 7 lines]
>
> Calcium citrate?

very important distinction.  calcium citrate absorbs much better than
calcium carbonate.  citracal is what my onc reccomends.  i take citracal
plus - it has vitamin d and magnesium for better absorption.  so far so
good...

> There's tips here including stretching and pointing, especially before bedtime
> http://tinyurl.com/5o6y6
[quoted text clipped - 5 lines]
> HTH Socks
> J

it does sound like it could be a potassium thing.
i used to get awful foot cramps when i was younger - non cancer related.
they're a real bummer.
how's your blood circulation?  maybe try hot foot soak before bed - it helps
loosen things up and get the blood moving better.
i also take zometa but have had no cramping problems from it.
good luck
:)
-c.
J - 29 Oct 2004 22:04 GMT
> how's your blood circulation?

Good point.  Now that, I think, can be related to his cancer.
J

> maybe try hot foot soak before bed - it helps
> loosen things up and get the blood moving better.
Socks the white house cat - 30 Oct 2004 02:20 GMT
Pausing only once for breath, J <antle@invalid.inv>  said:

>> how's your blood circulation?
>
[quoted text clipped - 3 lines]
>> maybe try hot foot soak before bed - it helps
>> loosen things up and get the blood moving better.

thanks all.  i'll try the suggestions.

i'll be off line more than on the next couple of weeks. when I am on, i'll
probably post from google if at all.  tuesday is election day and I'm
working for the local democrats to get out the vote, then plan on hitting
the east coast for a farewell tour starting thursday. I'll be back around
the 16th or so.

Signature

    I AM SPEWS (SLAPP PREVENTION ELECTRONIC WHITENOISE SYSTEM)
"The day Microsoft makes something that doesn't suck is probably the day
that they start making vacuum cleaners."--Doc in alt.privacy

C. Falise - 30 Oct 2004 07:54 GMT
2 things:
-i probably shouldn't say this here but, you go socks!  we dems need all the
help we can get.
- what is farewell tour?
just curioius.
-christina

> Pausing only once for breath, J <antle@invalid.inv>  said:
>
[quoted text clipped - 13 lines]
> the east coast for a farewell tour starting thursday. I'll be back around
> the 16th or so.
Socks the white house cat - 30 Oct 2004 08:19 GMT
Pausing only once for breath, "C. Falise" <cfalisenospam@austin.rr.com>
said:

> 2 things:
> -i probably shouldn't say this here but, you go socks!  we dems need
> all the help we can get.

if everyone delivers a few more votes in their home precinct, we win. I've
been sitting on the phone.

> - what is farewell tour?
> just curioius.
> -christina

Newport RI for a professional conference, then visiting friends in the
vicinity of NYC.  I hope to stay alive through the winter, but dont expect
much beyond that.  I've pretty much run out of treatment options.

Signature

    I AM SPEWS (SLAPP PREVENTION ELECTRONIC WHITENOISE SYSTEM)
"The day Microsoft makes something that doesn't suck is probably the day
that they start making vacuum cleaners."--Doc in alt.privacy

J - 31 Oct 2004 19:10 GMT
> if everyone delivers a few more votes in their home precinct, we win. I've
> been sitting on the phone.

Well, you've sent your cramps up here. I had some the same days that you did.
I wonder if sitting on the phone caused it :-)
But seriously, perhaps the position or sitting too much?
J
C. Falise - 31 Oct 2004 23:55 GMT
> > 2 things:
> > -i probably shouldn't say this here but, you go socks!  we dems need
[quoted text clipped - 10 lines]
> vicinity of NYC.  I hope to stay alive through the winter, but dont expect
> much beyond that.  I've pretty much run out of treatment options.

that's what i suspected.  i did the same thing last winter over the
holidays.  i live in texas but am from nyc originally and all my friends,
family, some people i hadn't even seen since college got together to "see me
off"  i guess.
it was weird, but nice too.  i got alot of closure on some things.  it was
something i needed to do.  and i'm glad i did.

i guess i just wanted to say, you never know.
i'm going back in 3 weeks to visit the same people i said goodbye to last
year when it sure looked like i wasn't going to make it another year.  (it's
funny - i kind of feel dumb about it - who knew i'd be around this long!).
this time i can walk on my own and am not quite ready to throw in the towel
yet.
it's a different trip with different goals.

enjoy your farewell tour - it's a great idea.   and who knows - maybe it
won't be the farewell tour afterall...
:)
-christina
J - 30 Oct 2004 17:35 GMT
> i'll be off line more than on the next couple of weeks. when I am on, i'll
> probably post from google if at all.  tuesday is election day and I'm
> working for the local democrats to get out the vote, then plan on hitting
> the east coast for a farewell tour starting thursday. I'll be back around
> the 16th or so.

Thanks for letting us know, Socks
J
Tm n Kat - 30 Oct 2004 04:00 GMT
>Subject: cramps
>From: Socks the white house cat agent01413@my-deja.com
>Date: 10/29/2004

>since then, I'vbe been getting cramps in my instep on my left foot, only at
>night when trying to sleep.  I stand up, put pressure on it, and it goes
>away.

Have you tried vicks or a sports cream and an ibuprofen tablet at night?  I
have had a similar problem and this seems to bring relief for me.  Also began
wearing the inexpensive brand of insoles in shoes  that did not have much arch.
Kathy J
Socks the white house cat - 30 Oct 2004 05:55 GMT
Pausing only once for breath, tmnkat@aol.com (Tm n Kat)  said:

>>Subject: cramps
>>From: Socks the white house cat agent01413@my-deja.com
[quoted text clipped - 9 lines]
> that did not have much arch.
>  Kathy J

Actually, they've got me taking ibuprofen kind of heavy already for the
bone mets. 3x daily, 400mg at a time.  That plus morphine plus lorazapam at
night.

the calcium tabs are listed as "elemental calcium". No mention of citrate
or anything.

Signature

    I AM SPEWS (SLAPP PREVENTION ELECTRONIC WHITENOISE SYSTEM)
"The day Microsoft makes something that doesn't suck is probably the day
that they start making vacuum cleaners."--Doc in alt.privacy

Mike Radcliffe - 31 Oct 2004 04:51 GMT
>I had RT on my left hip several weeks ago.  Rad onc was concerned about
> potential for bone breaks.
[quoted text clipped - 14 lines]
>
> Any ideas how this could be related to the cancer?

Maybe it's not directly r/t cancer. Possibly some nerve damage from drxt or
just maybe your muscles are so weak they cramp with minimal exercise.
Whatever, quinine bisulphate is often very effective.
MIKE
J - 22 Nov 2004 00:37 GMT
> Primary tumor is NSCLC, left lung.  No evidence that cancer has spread any
> further south than the hip.

Hi Socks,
Was it you who mentioned Iressa?

I wondered if you heard that  Tarceva was just approved for advanced NSCLC ?

there's a bunch of posts on sci.med.diseases.cancer (each show a slightly
different view) and/or various details.
Please have a look.  I don't want to suggest something that might make you
worse, or give you false hope, or adversely affect your health or quality of
life..

Some points.
Claim is 2 months more (in some).
Failed miserable in combo with chemo
Common side effects, rash, diarrhea, liver enzymes..more serious ones listed in
the other posts.
Expensive $2500./month
pill form
Some tumour response, BUT, I don't know if it was those who were positive for
the EGFR (see below)

http://www.fda.gov/bbs/topics/news/2004/NEW01139.html
Safety and efficacy were demonstrated in one randomized trial in 731 patients
comparing Tarceva to
placebo. The primary endpoint in this trial was survival. The median overall
survival was 6.7
months in the Tarceva group compared with 4.7 months in the placebo group.

The mechanism of action by which Tarceva exerts its clinical benefit is not
fully understood.
However, Tarceva was developed to block growth stimulatory signals in cancer
cells. These signals
are mediated in part by enzymes called tyrosine kin sases. Tarceva blocks the
tyrosine kinase
associated with Epidermal Growth Factor Receptor (EGFR).

In about one third of the patients tumor cells were examined to see whether
they had high or low
levels of EGFR. Among the approximately 55% who had high EGFR the effect on
survival was much
greater than it was in people whose EGFR levels were low. The relationship will
be explored further []

Did they live longer because it was a clinical trial or because of the actual
treatment?

http://www.thestreet.com/_tscs/comment/adamfeuerstein/10195267.html
Iressa was approved on the basis of uncontrolled studies that showed the drug
shrank tumors in
about 10% of patients who have failed all other treatments; the studies were
not designed to
determine whether patients lived longer.

FWIW
J
Socks the white house cat - 22 Nov 2004 14:31 GMT
Pausing only once for breath, J <quad@privacy.net>  said:

>> Primary tumor is NSCLC, left lung.  No evidence that cancer has
>> spread any further south than the hip.
[quoted text clipped - 4 lines]
> I wondered if you heard that  Tarceva was just approved for advanced
> NSCLC ?

2 extra months doesnt seem worth it for the side effects.  I start Iressa
in January.

Signature

    I AM SPEWS (SLAPP PREVENTION ELECTRONIC WHITENOISE SYSTEM)
"The day Microsoft makes something that doesn't suck is probably the day
that they start making vacuum cleaners."--Doc in alt.privacy

J - 22 Nov 2004 16:51 GMT
> 2 extra months doesnt seem worth it for the side effects.  I start Iressa
> in January.

Thanks Socks, Just wanted to make you didn't miss the news.
Now that I look at Iressa, it seems similar anyway (some different possible
side effects) even the EGFR
http://www.cancerbacup.org.uk/Treatments/Biologicaltherapies/Cancergrowthinhibit
ors/Gefitinib


J
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.