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Medical Forum / Diseases and Disorders / Cancer / August 2004Bone Marroww Transplant
Hi everyone I'm new to this newsgroup but not to cancer. Have beaten it twice now. I'm looking for a website and or newsgroup that deals with Bone Marrow Transplants, since I have had one almost a year and 8 months ago and doing ok. Should I stay here and vent or does anyone know of a specific newsgroup? Yes there is hope for all, I wish everyone all the best and remember it really is ok for big boys to cry. Trust me it helped me allot. > Hi everyone > [quoted text clipped - 4 lines] > Yes there is hope for all, I wish everyone all the best and remember it > really is ok for big boys to cry. Trust me it helped me allot. Hi there, There seems to be a newsgroup called bit.listserv.transplant See if it will come up when you try to subscribe in your newsreader. (same way as you did this newsgroup). I only had a chance at a quick look (through the Google newsgroup archives). There seems to be bone marrow transplant persons posting there, along with many other kinds of transplants. If you decide it's not for you (after looking through some of the posts), it can simply be deleted from your newsgroup list. I did see several, one from Ontario posting there. If you have problems accessing the resources (below), perhaps, if you post, they can help you through it or clarify which resource is for what. The 2 bone marrow websites in our FAQ are http://www.marrow.org/ and http://www.nbmtlink.org/net.asp I haven't had a chance to look through the first web page for "connections" but that latter one has several mail lists or listserv's One is BM-talk which can also be accessed here http://www.acor.org/ (mailing lists, then under B). Hope this helps. J >Hi everyone > [quoted text clipped - 4 lines] >Yes there is hope for all, I wish everyone all the best and remember it >really is ok for big boys to cry. Trust me it helped me allot. I bawled my eyes out at times! Like a big ol baby too! Twice eh? You must be so tough that pitbulls won't even make eye contact with you! ;-) -- "Even as a survivor I'm still fighting cancer!" Larry at gotCancer.org No not tough just extremely lucky to have three excellent Drs.in town and several in Toronto and a wife and family that has been extremely supportive. First cancer was lymphoma about nine years ago, second was leukemia in my bone marrow about 1yr and 8 months ago. My oldest sister was what they deem a perfect match but still fighting with the side effects. All the drugs your on, and the graft vs. host disease that keeps popping up wears me out. However still improving daily. Your right you can survive but your always fighting. > >Hi everyone > > [quoted text clipped - 13 lines] > "Even as a survivor I'm still fighting cancer!" > Larry at gotCancer.org > No not tough just extremely lucky to have three excellent Drs.in town and > several in Toronto and a wife and family that has been extremely supportive. [quoted text clipped - 4 lines] > However still improving daily. Your right you can survive but your always > fighting. It's good to hear that you're improving daily. You are indeed a survivor to have battled two cancers. Which type of lymphoma did you have? A friend in Calgary has CNS lymphoma. If I recall correctly, they used her own stem cells so AFAIK she doesn't have to take the anti-rejection meds. So far, she doesn't post here, but might be reading. She's had some lung and chronic cold problems and I think I just read that, at some point, she may have to redo her immunizations. She had quite a tough time with the chemo, then the stem cell (last Fall), but she's improving now with residual peripheral neuropathy /weakness in one arm. She's in wait mode as to what they'll suggest next, since there was only a partial response. We don't get a lot of survivors here (at least, not on a regular basis). I expect it's because they mostly like to move on with their lives. So, good to hear from you. Best, J > It's good to hear that you're improving daily. You are indeed a survivor to have > battled two cancers. [quoted text clipped - 12 lines] > Best, > J Well the first lymphoma was a stage 3B Hodgkin's, chemo alone got ride of that one; unfortunately the one chemo drugs that was in the protocol I was subjected to, had a nasty little side effect of causing leukemia. My body just went for a trip and I never even left the building! So to make a long story short I had a Bone Marrow Transplant. My eldest sister was a match, however the side effects and the problems that come along with it are a bit tiring. I'm on one hell of a pile of drugs, Adavan to Zanax with about 14 others in-between. I try to inspire others that you have to fight!! I see cancer everyday, not just in my own mind but in my children's lack of a dad for two years, and a wife, whom is a loving caring oncology nurse ( guess where I met her). So that's my story so far; people say I'm tough, no not really just Happy. >Hi everyone > [quoted text clipped - 4 lines] >Yes there is hope for all, I wish everyone all the best and remember it >really is ok for big boys to cry. Trust me it helped me allot. Go ahead vent, You are on tough person, You beat it Twice You must be tougher than shoe leather, Hats off to you vent anytime. Oh yea and in case you forgot (CCKMA) Cancer can Kiss My a.s Frank (aka) "stew" |
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