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Medical Forum / Diseases and Disorders / Cancer / May 2004Port-o-Cath ?
Dear group, My husband began using his port-o-cath of 5-FU yesterday. I'm interested in knowing other people's experiences with this. Have you had any "accidents" with it (e.g., has the line broken, the caps unscrew, occlusion, etc.), or have you found it trouble free? Thanks. Best, Morgs > Dear group, > My husband began using his port-o-cath of 5-FU yesterday. I'm interested in [quoted text clipped - 5 lines] > Best, > Morgs Hello, My 5 month old child has also a port-o-cath. He had surgery one month ago, and things are going fine, at least with this. The port-o-cath surgery is quite simple, we were told. It is very convenience for the chemo dosis, and specially in children, who have small vessels and normal injection may cause problems. We haven?t had it for a long time, but we were advised it is a quite safe and clean method. I will report any changes. Take care, ?. > > Dear group, > > My husband began using his port-o-cath of 5-FU yesterday. I'm interested [quoted text clipped - 18 lines] > > ?. Thank you. I'm happy to hear you're child is doing well after surgery, as well as with the port-o-cath. It makes sense that it's used with children, doesn't it? I hope your child is bearing up with the chemo. The port-o-cath _is_ very convenient; I'm glad to hear your experience has been good. Best wishes to you and your family, Morgs >Dear group, >My husband began using his port-o-cath of 5-FU yesterday. I'm interested in [quoted text clipped - 5 lines] >Best, >Morgs I had some serious problems with mine but I think it was caused by human error. About a week after my port was put in I noticed my arm hurting from armpit to elbow. I thought I'd just sprained it shoveling snow the day before. But after a week it was still there, so I went to my family doc who diagnosed a blood clot and sent me over to the ER immediately. I was hospitalized and they started pumping me with the usual thinners. After a few days I was pronounced OK and put on another thinner called Lovenox. Three days later there was lots of blood in my urine and my onc called me into the ER immediately. Testing showed my blood to be 15X less than it should be and I was nearly isolated to keep me away from any virii or bacteria. After 4 days they got that under control and things returned to normal. I was told that the clot was fairly common, but when I asked about the bloody urine, no one would take responsibility. For me, my shoulder port has made the little hiking I do now very difficult as the backpack strap sits right on top of my port. --Joe _________________________________ "Take a little 5FU, leucovorin and oxaliplatin for thy stomach's sake." -- 1 Timothy 5:23 (adapted) > >Dear group, > >My husband began using his port-o-cath of 5-FU yesterday. I'm interested in [quoted text clipped - 31 lines] > > "Take a little 5FU, leucovorin and oxaliplatin for thy stomach's sake." -- 1 Timothy 5:23 (adapted) My husband had serious pain in his arm also. Infection was to blame. He got his first port 2 years ago and his 3rd one yesterday. Take care, Mary Wife to Darryl, diagnosed adenocarcinoma of the rectum stage III T3N1M0, March 2002. Resection on April 5, 2002. Began 5FU / Leucovorin May 2002. Began radiation June 2002. Tumor markers up March '04, CT shows dime size lesion on liver. April 23 '04 - PET imaging to check for other tumors. April 29 '04 - Peritoneal mets. Surgery not an option. 5FU and Camptosar to begin 05/11/04 via port. > > >Dear group, > > >My husband began using his port-o-cath of 5-FU yesterday. I'm interested in [quoted text clipped - 46 lines] > Surgery not an option. > 5FU and Camptosar to begin 05/11/04 via port. Dear Mary, Thanks for responding. So far there've been no serious problems with the port, but I worry anyway. It's good to know what others' experiences are. I am sorry your husband is on his third port. I read your mini-history; why is surgery not an option (if I can ask)? My husband has rectal cancer, and it looks as though it's T3 with two nodes involved. We won't know for certain until after surgery. Best to you both, Morgs > Dear Mary, > Thanks for responding. So far there've been no serious problems with the [quoted text clipped - 5 lines] > Best to you both, > Morgs The CT scan showed possible liver mets. We were told that surgery could be a treatment for this. Two weeks later, a PET imaging concluded that the mets weren't in or on the liver, but on top and around the liver, I think it's called a peritoneal area (a lining in the abdomen) and since the mets are in a "diffuse" pattern, the surgery could not remove all the cancer. Take care, Mary > >Dear group, > >My husband began using his port-o-cath of 5-FU yesterday. I'm interested in [quoted text clipped - 27 lines] > > --Joe _________________________________ > "Take a little 5FU, leucovorin and oxaliplatin for thy stomach's sake." -- 1 Timothy 5:23 (adapted) Dear Joe, Thank you for your story. I'm so sorry you went through all of that. Is your port high up on your arm? Do you think your clot was due to human error, or do you mean the unresolved issue of blood in your urine? I can imagine how uncomfortable it would be to go hiking with the pack. My husband complains and he only lugs it around the house! Best to you, Morgs |
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