> > Hi group. It's me again after all this time. Was searching old posts
> > and see that Steph is still here. Also Mike R. Hi guys. And who could
[quoted text clipped - 34 lines]
> I wish you well in your search for answers.
> Elsie's around. She has rectal cancer IIRC
> Yup, my ears perked up when I heard of somebody else with stage III
> rectal cancer. Hi Mary - say hi to Darryl from me...
[quoted text clipped - 9 lines]
>
> Elsie
Hi Elsie, I'm so glad to meet you. We've been ridin' this roller
coaster for 2 years now and we're just about tired of it. Darryl
started chemo today with Camptosar and 5FU and insisted on driving
himself (200 miles roundtrip). It was futile to argue with him, he
doesn't want me to lose my job by taking so much time off, but this
job means diddly if he was to have a bad reaction to the Camptosar and
not be able to drive. I'm sitting on pins and needles waiting to hear
from him. The radiation was the worst in Darryl's case, he tolerated
the chemo must easier. So what's your status? Are you doing okay?
Take care,
Mary
Wife to Darryl, diagnosed adenocarcinoma of the rectum stage III
T3N1M0, March 2002.
Resection on April 5, 2002.
Began 5FU / Leucovorin May 2002.
Began radiation June 2002.
Tumor markers up March '04, CT shows dime size lesion on liver.
April 23 '04 - PET imaging to check for other tumors.
April 29 '04 - Peritoneal mets.
Surgery not an option.
5FU and Camptosar to begin 05/11/04 via port.
Elsie - 14 May 2004 21:17 GMT
> Hi Elsie, I'm so glad to meet you. We've been ridin' this roller
> coaster for 2 years now and we're just about tired of it. Darryl
[quoted text clipped - 17 lines]
> Surgery not an option.
> 5FU and Camptosar to begin 05/11/04 via port.
Hi Mary,
I hope Darryl got back from chemo OK...
I don't think I would have driven myself back and forth 200 miles on
the first day of chemo, but hey, more power to him :-)
My Dad took me the first time, after that I drove myself, but it's
only 5 miles or so round trip.
I've tolerated everything well so far. I worked through the 5 weeks
of radiation and chemo before surgery, then had the surgery that left
me with a j-pouch as well as a temporary ileostomy bag and was off 6
weeks. Started working again qand proceeded to work through the next
4 months of chemo again. I threw up one single time on my very last
chemo session. In March of this year, the ileostomy was reversed and
I'm now getting used to the j-pouch.
It's all right most of the time. I have trouble occasionally because
I insist on eating and drinking whatever I want. Then I often regret
it when it makes its way through. One of the problems is that I have
these cluster BMs (Dr.s term) that are a major pain. It's supposed to
get better with time, though.
My CEA never went up or down with the tumor or with chemo. (I wonder
if that means that the marker will never work as an indicator for me,
or could the counts go up in the future?) I'm supposed to have my
first CAT scan in July. I'm a little nervous about that, but we'll
see - can't do anything about it either way anyway....
I hope that you and Darryl are doing OK,
Elsie