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Medical Forum / Diseases and Disorders / Cancer / April 2004

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I need help urgently!!

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fenix@abest.com - 14 Apr 2004 16:24 GMT
My mom has just been diagnosed with advanced unresectable pancreatic
cancer.
 It appears that the cancer has not spread yet to other organs, but
the  doctors give her very little time to live.

 I  am desperately trying  to  find info  regarding  any available
treatment, whether medical or alternative,that would offer us at least
some hope.
 
 Any  help would be greatly appreciated.

 Peter  
fenix@abest.com
J - 14 Apr 2004 18:22 GMT
> My mom has just been diagnosed with advanced unresectable
> pancreaticcancer.
>   It appears that the cancer has not spread yet to other organs, but
> the  doctors give her very little time to live.

Hi Peter,
As I mentioned (at length) on the other newsgroup, some people try Gemzar
if they have symptoms.
Most get their affairs in order, investigate palliative care locally and
enjoy what's left of their brief time, while they still feel well enough
to do so.

Steph is a radiation oncologist so "listen up", if he replies to your
post.
J
Socks the white house cat - 14 Apr 2004 18:41 GMT
[posted and mailed]

Someday in the distant future, archeologists digging thru the ruins of
alt.support.cancer  will discover that fenix@abest.com had this to say on
14 Apr 2004:

> My mom has just been diagnosed with advanced unresectable pancreatic
> cancer.
[quoted text clipped - 9 lines]
>   Peter  
> fenix@abest.com

National Cancer Institute
http://www.cancer.gov/cancerinfo/pdq/cancerdatabase

You didnt say where you live. If you are in the US, get a second opinion
from the nearest hospital recommended by the NIH.

Also take a look at the pancreatic cancer clinical studies listed in the
url above and be ready to discuss them with the NIH oncologist and
whatever cancer center she's already been seen by.  There are 58 studies
listed. I dont have sufficient info to know which if any might be
appropriate, but NIH hospitals in particular ought to be up to speed on
that.

Ask as many questions as you need to in order to fully understand all
options. Come back and ask them here too if you have to, but engage the
doctors.  Make them answer questions.  People who are active and
aggressive participants in their own treatment tend to do better, for
some reason.

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cycjec - 16 Apr 2004 06:34 GMT
> [posted and mailed]
>
[quoted text clipped - 4 lines]
>> My mom has just been diagnosed with advanced unresectable pancreatic
>> cancer.

> Socks: You didnt say where you live. If you are in the US, get a second
> opinion from the nearest hospital recommended by the NIH.

<snip other suggestions>

> Ask as many questions as you need to in order to fully understand all
> options. Come back and ask them here too if you have to, but engage the
> doctors.  Make them answer questions.  People who are active and
> aggressive participants in their own treatment tend to do better, for
> some reason.

Good advice. Here's some other numbers:

The Bloch Foundation, http://www.blochcancer.org has advice for patients
and supporters on-line and off-line. Dick Bloch is himself a survivor of
lung cancer.

4435 Main Street, Suite 500, Kansas City, MO 64111
816-WE BUILD (816-932-8453), 1-800-433-0464,  Fax 816-931-7486

Cancer Care: http://www.cancercareinc.org/ 
40 plus full-time social workers offer counseling
for psychological and financial issues, and referrals to support
groups.

 http://www.acor.org; ACOR = Association of On-line Cancer
 Resources, which maintains many lists for many kinds of cancer.
 The lists are archived there. NO COMMERCIAL MESSAGES ALLOWED.

 Oncolink at Univ. of Penn. provides an easy way to find and
 subscribe to the ACOR email lists
 http://www.oncolink.upenn.edu/forms/listserv.html
mark - 20 Apr 2004 07:01 GMT
> My mom has just been diagnosed with advanced unresectable pancreatic
> cancer.
[quoted text clipped - 9 lines]
>   Peter  
> fenix@abest.com

I am going through the exact same thing you are, my friend.

My father also has metastatic pancreatic cancer. He is currently
undergoing Gemzar treatments. Four months ago, he was given three
months to live at worst, one year at best. He is still doing
well.

There are some positive stories on pancreatic cancer (1), but I will
be honest with you: they are *very* few and far between. The best
advice I can give is make sure your mother gets adequate pain
management and enjoy the time you have left together.

My Dad has faith in the Lord Jesus Christ, and he doesn't fear
death at all. I have been absolutely astounded at the bravery and
dignity he has shown. The only time he sheds a tear is when he
thinks or talks about his grandchildren.

I will remember you and your mother in prayer. Take care and God
bless you both.

1. http://www.pancan.org/Patient/Inspiration/inspirStories.html
Anon - 21 Apr 2004 03:49 GMT
>My mom has just been diagnosed with advanced unresectable
>pancreatic cancer.
[quoted text clipped - 7 lines]
>
> Any  help would be greatly appreciated.

I'm sorry to hear about your mother. I don't know if it
would be helpful, but a press release was posted today
reporting on a phase I clinical trial of a treatment for
pancreatic cancer. The treatment is NOT a cure, but may
prolong life. Recruiting is underway for a phase II trial.

"Study shows opioid growth factor safe for treatment of
pancreatic cancer
http://www.eurekalert.org/pub_releases/2004-04/ps-
sso042004.php
 
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