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Medical Forum / Diseases and Disorders / Cancer / April 2004

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VAD

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nan - 08 Apr 2004 23:13 GMT
Hello,
   My mother has begun treatment for myeloma, and is on VAD home
chemotherapy. We have already had problems getting the proper supplies for
her "Hickman" catheter. Do any of you have experience with these devices?
Are there any resources and/or stories you can share with us to help us
avoid future obstacles?
Thanks in advance.

jason
J - 09 Apr 2004 01:18 GMT
> Hello,
>     My mother has begun treatment for myeloma, and is on VAD home
[quoted text clipped - 5 lines]
>
> jason

Hello Jason and welcome to alt.support.cancer
I searched the archives of this and the breast cancer newsgroup and did not
find posts mentioning difficulty getting proper supplies. There is a poster
(Alex) who sometimes answers questons about such here or on the other
newsgroup.
What exact supplies are difficult to obtain?

Watch for other replies, it may be quiet since a Holiday is upon us.

If you wish to search the archives, use
http://groups.google.com/advanced_group_search
Sort by date, type in the name of the newsgroup (alt.support.cancer) and type
hickman in the subject line, then you can read some of the prior posts. Do the
same but insert alt.support.cancer.breast in the newsgroup box.

Here's an overview of Intravenous injections
http://www.cancerhelp.org.uk/help/default.asp?page=302
Best,
J
nan - 09 Apr 2004 14:19 GMT
Thanks, J. Those sites were helpful.

We have what we need; I was just wondering if someone else had experience
with this treatment.
We had a "parts problem," since there are several "systems" one can use, and
they all have to fit/work together,
the hosptial gave us one set, and the pharmacy had another. So we had a big
run-around. But everything is fine, now.

Since entering this medical world, we have had to change our mindset.
Instead of trusting the good doctor, and going home all satisifed, we now
document, record, ask, anticipate, check out, verify, re-affirm and research
just about everything.
It is not that we don't trust the good doctor - we do. But we have learned
that this is a business, with lots of people and lots of patients, and even
though good people are helping us, we have to be on top of things, because
reports get lost, people forget, communication lines break down, and then we
are left at the mercy of someone else picking up the pieces.

I guess in a long-winded way, I am saying that one must take charge of their
own treatment, in as many ways as possible.
So I was fishing for some roadblocks or problems we may anticipate that
others may have experienced themselves.

Thanks for your help.

> > Hello,
> >     My mother has begun treatment for myeloma, and is on VAD home
[quoted text clipped - 25 lines]
> Best,
> J
J - 10 Apr 2004 01:23 GMT
> I guess in a long-winded way, I am saying that one must take charge of their
> own treatment, in as many ways as possible.
> So I was fishing for some roadblocks or problems we may anticipate that
> others may have experienced themselves.

Hi Jason, I'm unclear whether you searched the archives as I suggested (below)?
J

> "J" <CatWalk@example.net> wrote in message
> > If you wish to search the archives, use
[quoted text clipped - 4 lines]
> the
> > same but insert alt.support.cancer.breast in the newsgroup box.
nan - 10 Apr 2004 17:36 GMT
> Hi Jason, I'm unclear whether you searched the archives as I suggested (below)?
> J

Yes, I did check them out, thank you. They were helpful.
I also grabbed the URL http://www.cancersupporters.com/asc/index.html .

thanks.

> > I guess in a long-winded way, I am saying that one must take charge of their
> > own treatment, in as many ways as possible.
[quoted text clipped - 12 lines]
> > the
> > > same but insert alt.support.cancer.breast in the newsgroup box.
J - 10 Apr 2004 20:19 GMT
> > Hi Jason, I'm unclear whether you searched the archives as I suggested
> (below)?
[quoted text clipped - 4 lines]
>
> thanks.

That's good jason. Glad the archives were helpful
For future posts, if you want to catch the eye of others who have myeloma, make
sure it's in your subject line.
Ok? or refresh our memories about your mother and her cancer. There's so many
types of cancers on this newsgroup some days, that it's mind-boggling to try to
remember each.

There's also approx 1200 myeloma subscribers on the private ACOR mail list
under M http://www.acor.org/ in case you want to introduce yourself there also.

Best,
J
Christian White - 12 Apr 2004 00:12 GMT
Hi Jason. My mother went through this last year, the diagnosis, the
VAD etc. On thing she had a problem with was the nausea. Make sure to
get the doctor to prescribe something like compazine or phenergren-it
really made a difference. By the way, what type of myeloma is it, IgG,
IgA? Was there any bone involvement? Take care, Chris, care giver to
mother with MM, IgA, IgA at 4623 at diagnosis, now 45, 5 spinal
compression fractures. VAD, then Thalidomide and Dex, now just
Thalidomide and Zometa.

>Hello,
>    My mother has begun treatment for myeloma, and is on VAD home
[quoted text clipped - 5 lines]
>
>jason
Mike Radcliffe - 12 Apr 2004 09:32 GMT
> Hello,
>     My mother has begun treatment for myeloma, and is on VAD home
[quoted text clipped - 7 lines]
>
> Why isn't the hospital giving you all the supplies you need ?
MIKE
 
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