Yes   CHOP
But they added an R now something to do with the white blood cells at
least that is what i believe my ONC stated

Frank (aka) "stew"

J,
I'm sorry if I ticked you off with my post.  It wasn't meant to do so.
I was just trying to reply to Stew with a few answers about his
Lymphoma diagnosis and planned treatments.  I shared some of what it
was like for me duing my treatments.  I did post a link to the shirt I
had designed.  I thought it was appropriate - chemo related.  So yean,
the link was promotional, but I didn't think of it as spam.  I thought
Stew might get a kick out of it.  I wanted him to keep his sense of
humor through all of this, because it won't be easy.

I'm no spammer.  I'm no poser either.  I'm just a guy who survived,
who's trying to make a difference.  www.mullhouse.net/bb - that's my
personal website's message board.  Anyone who wants to check me out as
being legit is quite welcome to visit.  You'll find some pictures of a
skinny bald guy up there - posts about my ANC and HGB values - just
how painful a big shot of neupogen can be - pictures from fund raising
events like the Lympoma & Leukemia Society's Light The Night Walk -
how much I hate chemo side-effects - you name it - it's all there.

I'd like to ask a few questions about your reply if you don't mind.
I'm not challenging your post - I'm a straight shooter - I'm just
curious and would like to know more.  If you wish to reply offline via
email, larry@mullhouse.net is my personal email address.

Who is the "team?"  This isn't a moderated newsgroup, so I'm wondering
what that's about.

Can you explain what you mean by this "reposted" statement?  I posted
my original "I laughed in cancer's face" message.  I never saw it
reposted by anyone.  Maybe it's been a while since I've been on
newsgroups and I'm just clueless.

So no URL's to my site in any messages?  Ok.   It'd have been helpful
if you had stated why - as in the FAQ.  I wasn't sure why you were
upset.  I did reload the news group and I found a FAQ posted about 6
wks ago.  I read the "no advertising" stuff there.

Ok, that was my first post here.  I thought I'd share a story of
surviving.  It was how I went from cancer patient to cancer fighter.
I've read plenty of posts on message boards, forums, newsgroups, etc,
of people suffering, dying.  It's damn hard to take sometimes.  Not
long ago, I read a post about a girl who used the id JustSophie.  In
15 minutes, I went from meeting her to her dying.  I cried.  Sixteen
year old girls aren't supposed to die from cancer.  That made me think
- why not post a story that's positive.  People need hope, they need
inspiration.  I kinda thought that a post about a guy who went on the
offensive, after having been put on the defensive just to save his
life, I thought it'd be a good read.  And I wanted people here to see
the site.  Yeah - the cancer community is the target market, but I
just wanted them to see it.  I'm proud of it.  And maybe I can inspire
someone to do something similar, something positive, to be involved in
fighting cancer.  That's better than any sale.

Just curious - where would complaints be sent to?

So it's ok to post, but just not too often???  I posted *just once*
and you "deemed it to be spam."  My second (or maybe my 3rd) post,
which was a reply to Stew - a guy I can relate to because he has a
very similar dx to my own - and you're ready to call the dogs in after
me!   ;-)  

I'm not trying to start a fight - I just want to be clear on what's
what.  The faq states "strictly prohibitive".  Obviously you do not
want me to actively promote, and I can abide by that.  I don't wish to
cause trouble.  I want to help - just like you are.  I just want to do
my part to fight cancer the best I can.  My posts here won't include a
URL to the site, nor will I promote it.  If there's a place for it on
the FAQ, under the resources URLs listed, it'd be cool to have it
included there.  If not, that's fine too.

I guess the raising money thing is just what I do.  Heck, today I
helped Komen w/the Drive for a Cure.  In a month, its the Relay for
Life walk - done it before, but never as a survivor!  Then it's time
for "Larry's Lymphomaniacs" to team up for the Leukemia & Lymphoma
Society.  And I'm sure I'll be running again by the time the Race for
the Cure comes to town again.  So I get it instinctively I suppose!  

Call me "dude for a cure" if you like!  ;-)  

--
Larry
www.gotCancer.org - Laughing in cancer's face!

Yeah - my oncologist was a sneaky one - told me the same thing, until
I was done w/the chemo!  BTW, I did 6 rounds of Rituxan too, along
w/the CHOP.  My CD20 was variable, but slightly positive, so they
figured why not.

Do read this carefully so that it makes sense, because I may not
explain it that well.

My lymph nodes that were hot on the PET scan - just had one cluster to
take care of - they were 2-3x normal size.  At the end of the 4th
round of CHOP-R, another CT showed they were much smaller, but still
slightly abnormal.  After 2 more rounds of CHOP-R, they got a smidge
smaller, but not much.  Now, that was a good sign, as it's seen as
they were almost normal after 4 rounds.  I believe they like to get in
two doses of chemo once everything is back to a normal size, so ti was
felt that rounds 5 & 6 were those.  Had there been a big change
between #4 and #6, I would likely have had two more round of chemo.  

So I was at a point where CHOP-R wasn't making much difference
anymore, but I was still showing as slightly abnormal.

Now he starts talking about radiation - which I wanted no part of once
I read about "radiation enteritis" - a choronic problem of the
digestive tract.  He felt that radiation might be able to shrink the
nodes a bit.  

I met with two radiation oncologists who really broke it down for me.
I was gonna be treated on a top of the line Varian accellerator, using
what's called IMRT - intensity modulated radiation therapy.  They felt
that the dose was low enough and targeted enough that I wouldn't have
any chronic enteritis.  I decided to do the treatments.

They were right on the money too.  I didn't have any enteritis, not
even short term, which was more of a possibility!  That was the
easiest 17 treatments I ever had.  Kinda like getting x-rays at the
dentist, except that it took longer, I was on my back and I got three
little tattoos for the experience!

In the end, my follow up CT showed no change.  That means no cancer -
just some scar tissue left behind.  So, maybe the radiation wasn't
needed, but statistically, it seems to better odds of a having a
"rematch!"

Stew, if you want, I'll be glad to talk to you on the phone - tell you
all I can about what I went through.  Anytime - just let me know.
I've got a gazillion cell phone minutes to burn!  Drop me an email and
we can swap numbers - larry@mullhouse.net.  Or we can just do the
exchange here too.  I'm open to all channels.

--
Larry...the patient formerly known as Lympho Larry!

Some patients get CHOP then radiation