Hi there,
Michael here, the guy who's taking care of my friend with terminal
Brain Cancer.
I just had some time to come back to say HI.
I didn't even realize that it's been a month since I was here last.
My friend George is doing well, all things considered.
We had some scarry days last week. His vision, balance and speech were
affected by the brain tumor.
After another trip to the hospital and a visit from the GP his meds
were adjusted and he's doing better.
We'll see how long this lasts. He is now already on double the
recommended daily dose of Decadron.
I have adapted a few new routines for my life, just to try to stay
sane. I go swimming at least 5 days a week and try to have dinner with
a friend at least once a week.
I read a lot and spend as much time alone as I can.
I also found a great site for caretakers.
www.caretaker.com
I am learning new lessons every day.
There are good days and bad days, but most of the time I try to
consider it an honour that my friend chose me to take care of him and
his affairs in his last days.
The most frustrating part of this experience is that George doesn't
want to be a burden to me and is worried about me at times and
therefore he sometimes witholds some new symptoms or things going on
in his body.
This of course makes me worried.
I keep having to remind him that everyone (me, the doctors, nurses,
etc) is doing the best we know how and that all of us are only human.
To all of the other caretakers out there: It sometimes seems like a
thankless job and sometimes it seems we're taken for granted, but our
efforts are appreciated, please remember that.
Michael
Until I was
Alayne - 06 Apr 2004 09:21 GMT
> Hi there,
> Michael here, the guy who's taking care of my friend with terminal
[quoted text clipped - 31 lines]
> Michael
> Until I was
Michael,
You are so right, it is tough being a carer, particularly of a person with a
brain tumour (my husband had a GBM). At times, he also with-held some of
his symptoms from me, partly to prevent me from worrying further, but I also
think as a defence mechanism for himself (ie if you don't acknowledge it, it
isn't really happenening).
I am pleased that you are taking some time for yourself, it is a very hard
rollercoaster ride, and takes a very special person to be there for their
friend. You just have to hang in there when it gets tough and treasure the
moments when it's not so bad.
Take care now and keep in touch.
Alayne
J - 06 Apr 2004 10:33 GMT
> Hi there,
> Michael here, the guy who's taking care of my friend with terminal
[quoted text clipped - 31 lines]
> Michael
> Until I was
This is for your area http://www.fcns-caregiving.org/localresources.html
See "Disease Specific Caregiver Support/Information" and/or other
resources/contacts there.
J
Emily - 06 Apr 2004 21:38 GMT
skrammi@hotmail.com said...
> We'll see how long this lasts. He is now already on double the
> recommended daily dose of Decadron.
> I have adapted a few new routines for my life, just to try to stay
> sane. I go swimming at least 5 days a week and try to have dinner with
> a friend at least once a week.
> I read a lot and spend as much time alone as I can.
Sounds like you're doing all the right things for both of you. It's
difficult being a caregiver and taking time to be *you* is often the
hardest thing about it. Your sanity and sense of humour are very
important - try not to lose sight of either.
Tanada - 08 Apr 2004 04:07 GMT
> Hi there,
> Michael here, the guy who's taking care of my friend with terminal
[quoted text clipped - 14 lines]
> I also found a great site for caretakers.
> www.caretaker.com
Hi Michael,
I've been wondering and worrying about how you and George were doing.
It's not easy being a caretaker, and the hardest part is to find some
time for you. I'm glad that you've got a routine that lets you have
some time of your own (I'm still working on that one) and keeps you
physically and mentally active. George is a lucky person to have you to
depend upon. Hang in there, we're all pulling for you.
Pam S. thanking you for the website as well as for letting us know how
you are