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Medical Forum / Diseases and Disorders / Cancer / April 2004

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Symptoms of What??

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Kevin McClarty - 06 Apr 2004 07:39 GMT
Can anybody tell me what kind of blood test to request for the following
symptoms? Severe itching all over the body, red skin lesions all over the
body, easily fatigued and in need of between 10 to 14 hours sleep at night?

I have gotten nowhere with the doctors who just prescribe things for the
symptoms and do nothing in terms of diagnostic work to see what it is that
is ailing me. I am 49 and not overweight.

How do I get the doctors to test to find out what is wrong? What kind of
blood test or panel should I request? How do I get past the pathetic attempt
by doctors just to treat symptoms and never to look into the matter to see
what is wrong?

The doctors presribed anti-itching meds but did no diagnostic work.

Does anybody know what this illness possibly could be? The itching is so
severe that the body even itches as I scratch the itches. Absolutely nothing
relieves the itching at all, not even the creams prescribed by the doctors.
The lesions have spread all over the body now and the itching is unbearable.
I have been verbally reprimanded twice for falling asleep at work. I seem to
fall asleep almost instantly as soon as I sit in any kind of relaxed
position.

Is there anybody there who can help me? What do you think I have and how can
I get the doctors to do some diagnostic work instead of just treating
symptoms?

Any advice would be appreciated.

Thanks,

Kevin
J - 06 Apr 2004 10:56 GMT
> Can anybody tell me what kind of blood test to request for the following
> symptoms? Severe itching all over the body, red skin lesions all over the
[quoted text clipped - 28 lines]
>
> Kevin

That's a tough one. I see posts like that on the allergy and sci.med newsgroup
It can range from an allergy to soap, not rinsing clothing properly,
"neuropathy", a side effect of meds, or something growing in or near your home
or workplace (mould, plants), sweating and yeast (maybe)
dry skin, lice, foods, right through to Lupus or one type of cancer - assuming
the lesions are occuring from scratching, (I saw itching mentioned with one
yesterday, but I forget which). I think I saw someone on another newsgroup who
was taking something herbal that had stinging nettle in it which can cause
itching in some.

As best I can tell is you have to do a process of elimination (while treating
the symptoms) and keep a diary.
It's work and it's not something that doctors can do for you.

If you want to eliminate dry skin and lice, have a laundered (hot water) set of
clothing in your car, spend a few nights at a motel totally away from home and
make sure you have a non-allergic oil for dry skin like baby oil.  If the
itching stops or starts to abate, then you know the problem is somewhere at your
home.
If the itching stops or is not as bad on weekends or during a week's holiday,
then you have a hint that the problem might be at work.
If you want to rule out Lupus or sun allergy, stay totally covered up (away from
any source of UV rays/lighting) for a few days and see if the itching improves.

You could also consult an allergist and/or dermatolgist, but the more you can do
first, the less frustrating it would be for all parties involved.

You've posted before here, but I can't ascertain what type of cancer you had,
treatments if applicable etc.
J
Kevin McClarty - 06 Apr 2004 20:26 GMT
>> Can anybody tell me what kind of blood test to request for the following
>> symptoms? Severe itching all over the body, red skin lesions all over the
[quoted text clipped - 64 lines]
> treatments if applicable etc.
> J

Thank you so much, J. You have some really good suggestions. I will look
into them.

-Kevin
spam2death - 08 Apr 2004 03:39 GMT
Have you been checked for Sezary Syndrome - the leukemic form of cutaneous
t-cell lymphoma

Call your closest teaching hospital and ask to be evaluated by whomever in
the dermatology or oncology dept. regularly sees Sezary patients. Sezary is
very rare, but if you are a Vietnam era vet, you run a higher than normal
risk of having Sezary. From your brief description, you have all the
symptoms and are the correct age. Sezary is often misdiagnosed. A blood test
for Sezary cells and skin evaluation will tell for sure.              hope
this helps,    s2d

--
"Dissent is the highest form of patriotism"   Thomas Jefferson

"May we never confuse honest dissent with disloyal subversion"     Dwight D.
Eisenhower

> Can anybody tell me what kind of blood test to request for the following
> symptoms? Severe itching all over the body, red skin lesions all over the
[quoted text clipped - 28 lines]
>
> Kevin
J - 08 Apr 2004 11:37 GMT
> Have you been checked for Sezary Syndrome - the leukemic form of cutaneous
> t-cell lymphoma
[quoted text clipped - 6 lines]
> for Sezary cells and skin evaluation will tell for sure.              hope
> this helps,    s2d

Yes I'd seen itching with the lymphomas (but the OP hasn't mentioned lymph
nodes)
http://www.cancer.gov/cancerinfo/pdq/treatment/mycosisfungoides/patient
J
spam2death - 08 Apr 2004 21:13 GMT
> > Have you been checked for Sezary Syndrome - the leukemic form of cutaneous
> > t-cell lymphoma
[quoted text clipped - 11 lines]
> http://www.cancer.gov/cancerinfo/pdq/treatment/mycosisfungoides/patient
> J

Sezary may or may not have lymph node involvement at the time of original
presentation. If Sezary goes untreated, eventually the nodes will usually become
involved. Sezary is characterized by insane itching, all sorts of skin symptoms,
pronounced erythroderma and elevated levels of Sezary cells. Many times Sezary is
misdiagnosed for a year or more until the patient happens onto a smart Dr who
suspects Sezary instead of just treating the itchy rashes. The OP is the right age
group and has all the symptoms including the misdiagnosis.
J - 10 Apr 2004 01:37 GMT
> > > Have you been checked for Sezary Syndrome - the leukemic form of cutaneous
> > > t-cell lymphoma
[quoted text clipped - 19 lines]
> suspects Sezary instead of just treating the itchy rashes. The OP is the right age
> group and has all the symptoms including the misdiagnosis.

There's sample pictures here of the tumors and Erythroderma, if the OP wants to search
the site on "Sezary"
http://www.dermnetnz.org/index.html
J
Steph - 10 Apr 2004 04:44 GMT
> > > > Have you been checked for Sezary Syndrome - the leukemic form of cutaneous
> > > > t-cell lymphoma
[quoted text clipped - 9 lines]
> > > Yes I'd seen itching with the lymphomas (but the OP hasn't mentioned lymph
> > > nodes)

http://www.cancer.gov/cancerinfo/pdq/treatment/mycosisfungoides/patient
> > > J
> >
[quoted text clipped - 10 lines]
> http://www.dermnetnz.org/index.html
> J

He's got a skin rash and needs a dermatologist. It is very unlikely to be
Sezary, which is very rare
spam2death - 10 Apr 2004 07:36 GMT
> He's got a skin rash and needs a dermatologist. It is very unlikely to be
> Sezary, which is very rare

Maybe Steph,  but if I had just a Canadian dollar for every Sezary person I've met or
known who has the same symptoms as the OP and was misdiagnosed as just having a rash,
I'd still have way too much money.

The OP did complain of serious fatigue. Exactly what rash causes significant fatigue?
The OP wanted to know what blood test might help him get a diagnosis. I made a
suggestion. Sorry you two disagree. If the OP can't find what's bothering him, my
recommendation still stands.
J - 10 Apr 2004 09:28 GMT
> > He's got a skin rash and needs a dermatologist. It is very unlikely to be
> > Sezary, which is very rare
[quoted text clipped - 7 lines]
> suggestion. Sorry you two disagree. If the OP can't find what's bothering him, my
> recommendation still stands.

It's the itching (poor sleep) that causes the fatigue in the benign conditions.

I wasn't disagreeing with you, just thinking ruling things out might be more helpful.
J
Steph - 10 Apr 2004 17:55 GMT
> > He's got a skin rash and needs a dermatologist. It is very unlikely to be
> > Sezary, which is very rare
[quoted text clipped - 7 lines]
> suggestion. Sorry you two disagree. If the OP can't find what's bothering him, my
> recommendation still stands.

I didn't say it wasn't Sezary, just that it's unlikely. Everyone seems to be
assuming it is.
J - 10 Apr 2004 20:06 GMT
> I didn't say it wasn't Sezary, just that it's unlikely. Everyone seems to be
> assuming it is.

Not me, I just provided pictures so people out there reading who itchies and a
rash, can rule it out.
J
 
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