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Medical Forum / Diseases and Disorders / Cancer / March 2004

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Nephew was Just Diagnosed

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A Hart - 27 Mar 2004 02:24 GMT
Hello,

My nephew has just been diagnosed with stage 4 colon cancer.  He is only 35
and has a 20 month old baby boy at home.  The news has rocked our family and
we are all looking for answers.  He has had surgery but the doctor told him
today that he has at most, 13 months to live.  Of course we do not want to
accept this.  I am looking for people who may have been through something
similar.  Can they still provide radiation and chemotherapy?  Are there web
sites that provide any information on treatment and prognosis?  Thank-you
for taking the time to read this.

Andy
J - 27 Mar 2004 03:38 GMT
> Hello,
>
[quoted text clipped - 8 lines]
>
> Andy

Hello Andy, Welcome to a newsgroup nobody wants to belong to.
I'm sorry to hear about your nephew.
That's rather young for colon cancer.
Options for Stage IV are mentioned here
http://www.nci.nih.gov/cancerinfo/pdq/treatment/colon/patient and of course
include chemotherapy.
You don't mention which organs the cancer has spread to. Sometimes that (and
response to chemotherapy) may be more predictive of prognosis.
His radiation oncologist should be able to advise him of the best treatment
protocol for him.
Of course, the harder one hits it (dose), the more likely side effects.

Is he in Canada?

Keep in touch and let us know how it's going.
J
PS it's wise to put the type of cancer in the subject line, in case others are
watching for posters with same diagnosis.
Holden - 27 Mar 2004 07:05 GMT
>> Hello,
>>
[quoted text clipped - 8 lines]
>>
>> Andy

<snip>

Hi Andy,

I'm very sorry to hear about your nephew.  I hope the doctor has
missed the mark regarding your nephew's survival.  Something to
consider that I found recently while web browsing: "Clinical
prediction of survival has been found to be erroneous  (defined as
more than double or less than half of actual survival) 30% of the time
in expert hands."  I guess the converse of that is that they're not
erroneous 70% of the time.

I was diagnosed myself at 38 with stage 4 rectal cancer.  I've been
through radiation, quite a bit of surgery and a variety of
chemotherapies.  I'm 42 now and still kicking :-) (and still
undergoing treatment).  So it is possible to give this disease a
pretty good run for the money.

I wish you and your family well.  Hang in there.

Best regards,
Holden
Alayne - 27 Mar 2004 10:42 GMT
> Hello,
>
[quoted text clipped - 8 lines]
>
> Andy

Hello Andy

Welcome to the newsgroup.

I am so sorry to hear about the diagnosis of your nephew, there are many
here that totally understand the feelings that you and your family are going
through right now.  I am not a medic (although there are some on the site
here), I was a carer for my husband that passed away last year with a brain
tumour so I can sure emphathise with the shock and numbness that you are
feeling.

I hope that you receive the answers that you are looking for and in the
meantime I offer you and your family hugs.

Alayne
Emily - 27 Mar 2004 12:25 GMT
andy-hart@rogers.com said...
> He has had surgery but the doctor told him
> today that he has at most, 13 months to live.  Of course we do not want to
> accept this.

That's understandable - in your situation I wouldn't want to accept
it either.  How can the doctor be so sure?  I didn't think it was
possible to be precise about these things.  Sounds like you and your
family could use some hugs while you're waiting for someone more
knowledgeable to come along.

{{{{{Andy and family}}}}}
A Hart - 27 Mar 2004 14:34 GMT
Hello again,

Thank you all for responding.  You are correct when you say I am now a
member of a new group that nobody wants to belong to.  This news has come as
a shock to everyone.  A little more detail.  My nephew had been complaining
of sever abdominal pain for about two months.  He finally convinced the
doctors to do a colonoscopy.  They discovered a mass, took a biopsy, and
sent him home.  Two days later he was rushed to the hospital when his
stomach began to distend.  The emergency room doctors put a team together
and rushed him to surgery.  They removed 1/3 of his colon but said the
cancer had already spread to his abdominal cavity.  At this point I am
unsure if any other organs have been affected.  We are giving his father and
mother (my sister) some time to absorb all the news and come to terms.  We
don't want to overwhelm them right now.  As this has all happened in the
last two days, I feel they need some time. (Am I right??????)  Some of the
questions I have you have already answered (thanks).  Such as, can they
still do chemotherapy and radiation.  And yes he is in Canada (Ottawa area).
I will provide more detail as it becomes available.  Again I thank you all
for the information, support, and the hugs.  It means a lot!!

Andy
> Hello,
>
[quoted text clipped - 8 lines]
>
> Andy
Emily - 27 Mar 2004 16:22 GMT
andy-hart@rogers.com said...
> As this has all happened in the
> last two days, I feel they need some time. (Am I right??????)

Yes, you're probably right.  One thing though, it's also important
that your sister and her family don't feel isolated and ignored, so
let them know that you are there and willing to be involved as and
when wanted/needed.  A quick phone call just to ask how they're
doing and is there anything they'd like help with might be helpful
right now; for example your sister may not feel like doing even
routine things like going shopping if she and her family are still
talking and trying to come to terms with what has happened.  Somehow
there has to be a balance between allowing them space and not
allowing them to feel abandoned.

Have some more {{{{{hugs}}}}} to pass around to the family when you
see them next.
Alayne - 27 Mar 2004 19:10 GMT
> Hello again,
>
[quoted text clipped - 17 lines]
>
> Andy

Everyone needs time to absorb the shock and then plan the course of action
to take, remain positive, remain hopeful.

Hugs cost nothing but in times of need mean so so much (and we all know that
so well here!)

Hugs Now

Alayne
J - 28 Mar 2004 13:00 GMT
> Hello again,
>
[quoted text clipped - 17 lines]
>
> Andy

Hello Andy,
Another Canadian. I thought so because I saw "bloor" in your posting headers. I
remember when The Wave changed back to Rogers, people were having trouble with
their settings and it was explained on Rogers cable channel.

Steph's a radiation oncologist (also) in Canada (if you see his posts).

I really do want to help you with information so you know how and when to
discuss things with his mother and father, but there's still so much missing
information. Some of this information will be important when making a decision
about what treatment, if any, to go for. It's my understanding that there's
different strengths -  "high dose" chemo and "palliative chemo" (to help with
symptoms).
I suspect they'll need a strong shoulder to rely on and you sound like "just the
ticket".

The abdominal cavity contains most of the gastrointestinal tract as well as the
kidneys and adrenal glands.
http://training.seer.cancer.gov/module_anatomy/unit1_3_terminology3_cavities.html

I don't know if they drew out fluids during the surgery and found cancer cells
in the fluids, or if they removed lymph nodes or if they saw cancer in one of
the organs there.

Is he still in hospital recovering? Or at home?
Has an appointment been set up to see an oncologist?
Maybe you could arrange to go with him to see his doctor or the oncologist and
take notes and a list of questions to ask.
I think the parents do need some time, but the situation needs a steering
committee and you may be able to play a role in that.

Do let us know as you obtain more informiation.
Since you like hugs, I'll send you some also.
*hugs to Andy and family*
J
Victor Zeng - 28 Mar 2004 03:26 GMT
Faith, Patience and Discipline

> Hello,
>
[quoted text clipped - 8 lines]
>
> Andy
J - 28 Mar 2004 03:39 GMT
> Faith, Patience and Discipline

nice try - spammer - quack !

Another one to filter (Block in your newsreader)

poster name:   Victor Zeng
posting e-mail: vzeng@mywellworks.com
J
 
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