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Medical Forum / Diseases and Disorders / Cancer / March 2004

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TB? or not TB?  Everyone should be VERY cautious!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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auntie_biotic - 20 Mar 2004 04:00 GMT
I have been TWICE WRONGLY diagnosed with tuberculosis.
I was diagnosed with tuberculosis initially, then diagnosed with "atypical
tuberculosis" then diagnosed with mycobacterium chelonae infection. The
treatment was 20 tabs per day made up of tuberculosis meds and oral
chemotherapy.
I was then told part of my lung needed to be removed.
I was then told after CT scan one whole lung needed to be removed.
I was then told disease in BOTH lungs and inoperable.
No mention of lung transplant was made.  I sought second opinion. Told the
side effects was suffering from medication were all in my mind. No both lung
infection, no single lung infection, no part lung infection.  No need for
surgery or medication at all.

Turns out the sputum's I was told were positive were in fact all
negative!!!!!!

No tuberculosis, no infection of any sort.  Also I found out the following.
I was treated for nine months for tuberculosis in 1992.  Found out from my
medical records that all eight sputa at the time had been contaminated in
the laboratory hence tb was never proved then.

No either I have been unlucky twice or ??????????(leave that you all)

After went for counselling and more or less told it was just a mistake, then
told exaggerating, then told perhaps I should voluntarily section myself as
I have a complex about doctors that I have been misdiagnosed twice is
unbelievable and so on........

No apology from anyone.  I am so angry.

So I began my own website, built by myself, my own time and money.  NO
SPONSORS, for built for layman- non doctors.

T B and U (short for tuberculosis and you)
http://www.tbandu.co.uk

Leave a message on my message board to ask any questions.
J - 20 Mar 2004 04:08 GMT
> <snip>No apology from anyone.  I am so angry.

Get over it !
Happened to my friend's father-in-law.

PS to everyone here, someone else to filter
J
pugsley - 20 Mar 2004 10:28 GMT
> I have been TWICE WRONGLY diagnosed with tuberculosis.
> I was diagnosed with tuberculosis initially, then diagnosed with "atypical
> tuberculosis" then diagnosed with mycobacterium chelonae infection. The
[large snip]

It the risk of upsetting you, but something about your post does not ring
true.
TB can be easily tested for nowadays. Especially in the UK.
Also I'm not sure why you developed a site dedicated to TB, where there are
already thousands of sites on the net about TB.
Could it be that you do have serious lung diseases and have difficulty
accepting it. It that is the case, perhaps counselling would be the best way
to go.?

Pugsley
 
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