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Medical Forum / Diseases and Disorders / Cancer / March 2004

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Re: first contact

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hans pfarr - 16 Mar 2004 23:10 GMT
"hans pfarr" <ahdpfarr@picknowl.com.au> wrote in message news:...
> Hi there
> My name is hans and in live in south australia.
> I hope to correspont with you to share my experiences with cancer and to
> discover wether someone else has had similar experience to mine.
> I had my primary cancer in '94 (hepato cellular adeno carcinoma). this was
> followed by bone metastasises in '98 on my T1 &T2 vertabraes. Next came 2
> more in my cranium. in '99  2 more in my femur and my pelvis. currently i
> suffer lympho edema and a continiously discharching wound where my hip
used
> to be. hip relacment has resulted in infection, so it had to be removed
> again and i finished up with a shorter left leg . palliative care is
> provided which dislike when it turns me into a zomby from time to time. i
> wonder wether someone has had a similar battle and could advice regarding
> further expectations, treatments or anything relevant.
> i am not quiet sure about the procedures for a news group and would
> appreciate some hints or shortcuts..
>
> sincerly yours
>                             Hans
>
> Peace begins with me.
>
> my e-mail address is : ahdpfarr@picknowl.com.au
>
> ---
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> Checked by AVG anti-virus system (http://www.grisoft.com).
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J - 18 Mar 2004 02:36 GMT
> "hans pfarr" <ahdpfarr@picknowl.com.au> wrote in message news:...
> > Hi there
[quoted text clipped - 18 lines]
> >
> > Peace begins with me.

Hans, Perhaps if you tell us what is being given you for palliative care (that
turns you into a zomby), perhaps Mike would have some suggestions. He's in
palliative care and sometimes answers questions here.
J
Mike Radcliffe - 18 Mar 2004 04:21 GMT
> > Hi there
> > My name is hans and in live in south australia.
[quoted text clipped - 17 lines]
> >
> > Peace begins with me.

Hans,
  Palliative care is a two way thing; the medics provide the answers
(hopefully) and you provide the parameters for them to work within.
  Symptom control is usually quite simple and relatively free of side
effects but occasionally people do have what they consider unacceptable side
effects.....being like a zombie for instance. Sometimes changing to a
different drug regimen settles this, sometimes just persevering for a few
days or a week until your body gets used to the drug is all that is needed
(I had a patient on 2000mg morphine daily still doing intricate beadwork!).
Sometimes, however, the symptoms are so resistant that you end up being very
sedated with all the drugs, then you have to make a decision about which is
worse, the sedation or the symptom and make some sort of compromise. The
decision should always be yours...all the palliative care team do is give
you the choices. Always remenber you should be able to get a second opinion
by a palliative care specialist; just occasionally they come up with
something new or different that the regular nurses and doctors haven't been
aware of.
MIKE
 
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