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Medical Forum / Diseases and Disorders / Breast Cancer / June 2004question re axillary nodes
I have a question. My first CT scan report stated that 9 of 12 positive lymph nodes were removed. I had been told that level I and II nodes were removed. That report also stated: thre is increased residual soft tissue material in the right axilla compared to the left which are presumed to be matted enlarged lymph nodes." The conclusion stated: "the pertinent findings are the residual abnormal adenopathy in the right axilla." Does that or could that mean that not all the level I and level II lymph nodes were removed. My first CT scan report stated that 9 of 12 positive lymph > nodes were removed. I had been told that level I and II nodes were removed. > That report also stated: thre is increased residual soft tissue material in the [quoted text clipped - 3 lines] > Does that or could that mean that not all the level I and level II lymph nodes > were removed. I know a cat scan can't tell how many lymph nodes one has..and there is no way that an xray can see that you had space for 12 and 9 were removed....that is referencing your clincal history. Any one who had there nodes removed will not have a normal ct scan it is impossible. Your left side would be normal since the nodes are intact. Which side is your lymphedema ? Right or left? In answer to your question, it would impossible to tell from this report, I have been told the they rarely get ALL the nodes anyways. Alex wrote: << Which side is your lymphedema ? Right or left? >><BR><BR> Right side--same side as lymph node removal and malignancy. << I have been told the they rarely get ALL the nodes anyways. >> I thought they get all from levels I and II. And, if what you were told is true--that they rarely get ALL the nodes--and if the description of what I wrote was accurate about remaining skin, tissues, etc., then it was more likely than not (based on that descriptive info--that what appeared left was remaining lymph nodes, matted together, then I would have been more likely to havemore than 9 positive nodes. If that were the case then I would have fit protocol for experimental stem cell transplant. I was recently told by head surgeon of major cancer care org that I wouldn't be considered for such based on fact that only 9 positive nodes had been removed. There wre still some left there, matted together. In addition I have read several path reports and have never run across any description mentioning remaining nodes. The matted area could be scar tissue from the surgery. Pathology reports would never mention remaining nodes...the lab only looks at what is given to them how would they know if you have any nodes remaining. Are there any centers doing BMT? I don't know any centers even when they were popular that would do one for someone diagnosed 3 years ago with a a condition like MS. Furthermore would your NON Profit HMO pay for it? << The matted area could be scar tissue from the surgery.>> Wouldn't it take longer to become scar tissue? This was the first CT scan report. The CT was done six days after the surgery. <<Pathology reports would never mention remaining nodes...the lab only looks at what is given to them how would they know if you have any nodes remaining. >> This was not the pathology report. This was the CT scan report. << Are there any centers doing BMT? >> Yes, the City of Hope in Southern California is still doing clinical trials. << I don't know any centers even when they were popular that would do one for someone diagnosed 3 years ago with a a condition like MS. >> Hmm, don't known about that one. << Furthermore would your NON Profit HMO pay for it?>> Yes, they have a contract with this HMO, and if one fit the clinical trial protocol they would do it. But, I did forget about the M.S. However, the fact that it has been stable and didn't worsen w/chemo may have some clout. And, the private neurologist--M.S. specialist said he saw reversal of m.s. lesions since the chemo and indicated that the chemo may have even cured the M.S. I thought this was a recent scan, could you go to the City of Hope for your oncology care? > The matted area could be scar tissue from the surgery. Pathology reports > would never mention remaining nodes...the lab only looks at what is given to [quoted text clipped - 3 lines] > were popular that would do one for someone diagnosed 3 years ago with a a > condition like MS. Furthermore would your NON Profit HMO pay for it? << I thought this was a recent scan, could you go to the City of Hope for your oncology care? >> I don't think so but unless I switched insurances, but am not sure they are doing the latest, most up-to-date. I was going to go there for a 2nd opinion--even had an appt--but they cancelled it until after my treatment started. By then it wouldn't have done any good. I am not so sure they would have done anything different unless they would have approved the stemcell transplant. |
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