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Medical Forum / Diseases and Disorders / Breast Cancer / April 2004Estrogen Negative
Can anyone tell me if there have been any promising studies or advances in treatment for Estrogen negative breast cancer? Anne Bad news I was with estrogen neg in 1997, and little to no results has been done all this time, In the Dana Farber newsletter they are now looking for grant money to start research for ER/PR neg breast cancer therefore no advances or new studies that I have been able to find. I was diagnosed at age 40 which I was told it was common for young women to have aggressive cancer that does not respond to hormone therapy. Sorry to depress you. Alex  SignatureALEXANDRA KOFFMAN > Can anyone tell me if there have been any promising studies or advances in > treatment for Estrogen negative breast cancer? > > Anne Hi Alex, It's not for me. I'm asking for a friend. I get surgery next Thursday. I don't know if I'm pos or negative yet. The odds are negative though. > Bad news I was with estrogen neg in 1997, and little to no results has been > done all this time, In the Dana Farber newsletter they are now looking for [quoted text clipped - 8 lines] > > > > Anne I have Er- I was given Tamoxifen for about 2.5 years but told by my last Onc that I should not have had it in the first place..I since have had a sudden and high rise in my tumor marker blood tests and my Onc only discusses end stage treatment. This tells me that there hasn't been a recent change in treatment options..I am scheduled for bone and CT scans on Monday to see what is happening... Pat from apple Valley, CA >Can anyone tell me if there have been any promising studies or advances in >treatment for Estrogen negative breast cancer? > >Anne > > Pat, Do you have any other symptoms other than rising tumor markers? Could the markers be wrong?No chemo? SignatureALEXANDRA KOFFMAN I have Er- I was given Tamoxifen for about 2.5 years but told by my last Onc that I should not have had it in the first place..I since have had a sudden and high rise in my tumor marker blood tests and my Onc only discusses end stage treatment. This tells me that there hasn't been a recent change in treatment options..I am scheduled for bone and CT scans on Monday to see what is happening... Pat from apple Valley, CA Anne wrote: Can anyone tell me if there have been any promising studies or advances in treatment for Estrogen negative breast cancer? Anne Alex, Well over the past year the markers have gone from 120 to 1300, This is telling me that something is going on..I have for quite awhile had some sore spots on the back of my head, which the Onc said was not causing the rise, I have no symptoms other than MAYBE and that is a BIG maybe, feeling a little more tired at the end of the day... That also just might be my imagination...My onc decided after the markers got to 120 not to give me the test at the 4 month checkup. So it took about 8 months to get to the 1300 mark. He said the tests just worry us. Like I didn't worry about not knowing..So now I am mad at him for not getting started earlier on treatment, Whatever that can be..I finished my chemo regimen in Oct of 2000. A/C, rads, Taxol...Pat > Pat, > Do you have any other symptoms other than rising tumor markers? Could [quoted text clipped - 15 lines] >> >> Pat wrote: << I since have had a sudden and high rise in my tumor marker blood tests and my Onc only discusses end stage treatment. This tells me that there hasn't been a recent change in treatment options..I am scheduled for bone and CT scans on Monday to see what is happening... >> Pat, is there anyway you can get a second opinion? I know the following are not exactly close, but wouldn't think they were that impossible---City of Home in Duarte, Loma Linda University in Loma Linda, or even Norris Cancer Center at USC? Take care and wishing you the best. {{{Hugs}}} I am going to wait to see what is found in the scans. I welcome the hugs, I may need them ...I'll let you know the outcome... I did look up Loma Linda( the closest) online, but didn't find any reference to cancer, such as trials and such..And I passed the City of HOpe on my way to Pasadena to see my Mom, so it isn't that far from here...My results will be known May 4th...Pat >Pat wrote: << I since have had a >sudden and high rise in my tumor marker blood tests and my Onc only [quoted text clipped - 9 lines] > > You can have all the hugs you want . I am assuming you are her/2 neg. Which tumor markers is elevated ? CEA, CA-125 ? They have a history of false positives but with a rise that high sometime is going on ( maybe not breast cancer related). It would be hard to convince an oncologist to give chemo based on this test alone with out some clinical symptoms. The current standard for treating breast cancer is aggressive initial treatment and then only symptomatic treatment if recurrence happens, although more and more women are now looking for treatment of met disease when it is in it's earliest stages. Physicians state there is not an data to support early treatment of met disease since the outcomes are all the same, But with that being said I don't think I could sit passively by knowing I had something going on. I wish you the best. Alex I am going to wait to see what is found in the scans. I welcome the hugs, I may need them ...I'll let you know the outcome... I did look up Loma Linda( the closest) online, but didn't find any reference to cancer, such as trials and such..And I passed the City of HOpe on my way to Pasadena to see my Mom, so it isn't that far from here...My results will be known May 4th...Pat Kaye301 wrote: Pat wrote: << I since have had a sudden and high rise in my tumor marker blood tests and my Onc only discusses end stage treatment. This tells me that there hasn't been a recent change in treatment options..I am scheduled for bone and CT scans on Monday to see what is happening... >> Pat, is there anyway you can get a second opinion? I know the following are not exactly close, but wouldn't think they were that impossible---City of Home in Duarte, Loma Linda University in Loma Linda, or even Norris Cancer Center at USC? Take care and wishing you the best. {{{Hugs}}} That was the CA27.29, or is it 25.29..Can't ever keep it straight. He keeps saying the same things you have said, but did agree that with the big jump that something was going on..We'll See..Tomorrow are the bone and CT scans with results on the 4th..Yes I am er neg..and I had Lobular. I can't guess at what kind of treatment I would want to have. Right now I am just trying to get some sleep at night and not cry everytime I see myself in the mirror..I'll keep you-all posted...Pat > You can have all the hugs you want . > I am assuming you are her/2 neg. [quoted text clipped - 35 lines] >> >> Wishing you the best outcome, hoping the jump is being caused by something stupid. That was the CA27.29, or is it 25.29..Can't ever keep it straight. He keeps saying the same things you have said, but did agree that with the big jump that something was going on..We'll See..Tomorrow are the bone and CT scans with results on the 4th..Yes I am er neg..and I had Lobular. I can't guess at what kind of treatment I would want to have. Right now I am just trying to get some sleep at night and not cry everytime I see myself in the mirror..I'll keep you-all posted...Pat alexk wrote: You can have all the hugs you want . I am assuming you are her/2 neg. Which tumor markers is elevated ? CEA, CA-125 ? They have a history of false positives but with a rise that high sometime is going on ( maybe not breast cancer related). It would be hard to convince an oncologist to give chemo based on this test alone with out some clinical symptoms. The current standard for treating breast cancer is aggressive initial treatment and then only symptomatic treatment if recurrence happens, although more and more women are now looking for treatment of met disease when it is in it's earliest stages. Physicians state there is not an data to support early treatment of met disease since the outcomes are all the same, But with that being said I don't think I could sit passively by knowing I had something going on. I wish you the best. Alex "Pat from Apple Valley, CA" <desertdweller1@verizon.net> wrote in message news:%AFic.35045$Aq.31931@nwrddc03.gnilink.net... I am going to wait to see what is found in the scans. I welcome the hugs, I may need them ...I'll let you know the outcome... I did look up Loma Linda( the closest) online, but didn't find any reference to cancer, such as trials and such..And I passed the City of HOpe on my way to Pasadena to see my Mom, so it isn't that far from here...My results will be known May 4th...Pat Kaye301 wrote: Pat wrote: << I since have had a sudden and high rise in my tumor marker blood tests and my Onc only discusses end stage treatment. This tells me that there hasn't been a recent change in treatment options..I am scheduled for bone and CT scans on Monday to see what is happening... >> Pat, is there anyway you can get a second opinion? I know the following are not exactly close, but wouldn't think they were that impossible---City of Home in Duarte, Loma Linda University in Loma Linda, or even Norris Cancer Center at USC? Take care and wishing you the best. {{{Hugs}}} > That was the CA27.29, or is it 25.29..Can't ever keep it straight. He > keeps saying the same things you have said, but did agree that with the [quoted text clipped - 3 lines] > Right now I am just trying to get some sleep at night and not cry > everytime I see myself in the mirror..I'll keep you-all posted...Pat {{{{{Pat}}}}} Thinking of you...pls let us know what the results of your tests are...Catherine I will, Yesterday as I was watching the bonescan take place I saw a large area of hot spots on the lower back of my head..from ear to ear..Where my Primary said I was probably sleeping wrong on my hair...That was all I could track laying perfectly still as I was...I don't feel good about this. and find myself hyperventilating...alot....Pat > > [quoted text clipped - 11 lines] >Thinking of you...pls let us know what the results of your tests are...Catherine > > I will, Yesterday as I was watching the bonescan take place > I saw a large area of hot spots on the lower back of my head..from ear to ear.. > Where my Primary said I was probably sleeping wrong on my hair... > That was all I could track laying perfectly still as I was... > I don't feel good about this. and find myself hyperventilating...alot.... > Pat That sounds worrying. Let's hope your restricted angle of view etc. gave you a false impression of what was being recorded. I know waiting for the report is absolutely unbearable. Fingers crossed. Tim Jackson PS. Please set your browser to 'plain text' rather than 'html' for news posts. 1. Some news readers can't read html, or not well. 2. Once people start using html, then they start adding sound and stationery and so on, then the volume of data bloats, and then servers decide not to bother carrying this newsgroup any more. > > I will, Yesterday as I was watching the bonescan take place > > I saw a large area of hot spots on the lower back of my head..from ear [quoted text clipped - 9 lines] > I know waiting for the report is absolutely unbearable. > Fingers crossed. Me too > PS. Please set your browser to 'plain text' rather than 'html' for news > posts. > 1. Some news readers can't read html, or not well. > 2. Once people start using html, then they start adding sound and stationery > and so on, then the volume of data bloats, and then servers decide not to > bother carrying this newsgroup any more. I did not know that, thanks Tim. She may be too upset (I think I asked her before). Her headers indicate Netscape 5.0 and Netscape 7.1 So if she's reading, in my Netscape version it's under Edit, Preferences, News (is probably where she is to set the "plain text"), then click ok and/or save. J Ok Tim, Hope this is fixed. I was thinking that if you chose both html and plain text that it would send what was appropriate for the situation...Guess I have to make a decision...Don't want to jeopardize the NG.. I did talk to the operator and she asked me if my head hurt....Said they would put the CT and bone scan together and check it out... Thanks for the thoughts...Pat > > [quoted text clipped - 27 lines] > > Hi Pat, I've just now seen this thread. Just wanted to add that I'm so sorry you are having this rise in CA markers, and all the worry that is connected to waiting for test results. Thinking of you and wishing you well. Barb I have Er- I was given Tamoxifen for about 2.5 years but told by my last Onc that I should not have had it in the first place..I since have had a sudden and high rise in my tumor marker blood tests and my Onc only discusses end stage treatment. This tells me that there hasn't been a recent change in treatment options..I am scheduled for bone and CT scans on Monday to see what is happening... Pat from apple Valley, CA Anne wrote: Can anyone tell me if there have been any promising studies or advances in treatment for Estrogen negative breast cancer? Anne Anne wrote: << Can anyone tell me if there have been any = promising studies or advances in treatment for Estrogen negative breast cancer? >> Yes. Below is an abstract from a recent article which specifically discusses how the following is helpful for ER- breast cancer, although there isn't much info about er- in the abstract. If you would like more info relating to such, email me. > Hi Pat, > I've just now seen this thread. Just wanted to add that I'm so sorry [quoted text clipped - 18 lines] >> >> Thanks Barb. I'll keep posting. I did listen to http://www.cancercare.org/ yesterday. The topic was "Innovations in the Hormonal Treatment of Advanced BC." and there were no new Innovations for Er neg. Tho there may be some trials. You can,listen to the topic online. There have been several of the educational topics on BC..and other types of cancer, also.. on the right hand side of the page is the topic Telephone Education Workshops..check it out....Thanks for your thoughts. Tuesday is the day...Pat |
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