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Medical Forum / Diseases and Disorders / Breast Cancer / March 2004simulation
hello all linda bliss here remember me had bc 99 invasive ductal carcinoma stage 2 2.9cm ER PR both positive HER2- clear margins 2 out 29 lymph nodes taken were+ had A/C 4 cycles and rads 6 weeks all ended may 2000 i have been NED until agust 2003 when markers ca 27-29 rose to 100 had pet and CT scans and all said mets to chest wall upper mediastinal. had mediastinal biopsy oct 2003 and was on arimdex but since nov been on Femara odd thing: markers have gone from 100 too 200 back down to 100 and most recenly down to 90. not great yet but on the way down Onc has decided i need radiation so today i went for the simulation and tattoing is next week and then radiation will begin march 22nd for 6 weeks ughh so i had 2 MALE techs today that had full view of whats left of the left breast (lumpectomy) and full view of right boob today. i was a little embarassed by the whole thing and started to sob but was quickly calmed down. i wanted to know everyhting they were doing and they had to tell me several time to PLEASE be quiet and lay still. i truly tried to get them to smile but they were all work no smiles. i guess they have their job to do ( sigh ). anyway i dont know if my throat will hurt or what but they gave me stuff to sign of what possibly could be side effects. they did tell me i have to stop taking the COq10 and nothing acidy to drink and maybe soft foods since my throat will be sore. off to radiation land again pooh i just wish i didnt have these yucky mets..really makes me mad that i am being challenged again hope all of you are ok i just needed to vent responses would ne nice i have a new email now lydialady1952@yahoo.com lova ya all linda bliss ps hi tim hi allan how is deborah?? > off to radiation land again pooh i just wish i didnt have these yucky > mets..really makes me mad that i am being challenged again ... > i just needed to vent Hi, Linda, Good to hear from you, but I'm sorry things are so . . . yucky, right now, for you. Encouraging that the markers are dropping though -- hope that means good news. Funny thing, though I am usually a bit shy about undress in front of folks, I was surprisingly unself-conscious during radiation treatment . . . I think maybe the fact that I had bilateral mastectomies made me less sensitive because it was not as if my breasts were showing. How weird is that? I think it's a pain when medical staff people in these circumstances are not willing to unbend a little bit and be sociable or maybe even joke around a little. I guess some people would feel they were taking things too lightly if they were more friendly/jolly. But for me, it kind of defuses the situation. I hope you'll have few side effects from your radiation, and that it will have the desired good result of getting those &*&#$ mets into remission. Warm wishes to you, Ann T. Remove 'dontsendspam' from address to reply by email "A. P. Thorsen" <apt77dontsendspam@hotmail.com> wrote in message > > Funny thing, though I am usually a bit shy about undress in front of > folks, I was surprisingly unself-conscious during radiation treatment . I'm not at all shy about undressing in front of any medical personnel - and I do have breasts. I reckon that when you've have a baby in a hospital in the early 1960s you lose all modesty ... But I'm always amused about the attempts of such staff to preserve modesty even when we say it's not important. This morning I went to the lympho clinic with my husband of 44 years (we've lived together all that time too). The lovely nurse asked me to undress but insisted on putting a bit of paper over my bosom so that I felt protected from her or Spouse's stare. Of course it fell down and she put it back and it fell down and ... I said it didn't matter, Spouse said he wouldn't look if she'd feel better, she insisted on putting it back instead of getting on with whatever process she wanted to do. Would she have bothered if I had a bilateral mastectomy I wonder? I have no complaints about her, just amusement :-) > I think it's a pain when medical staff people in these circumstances are > not willing to unbend a little bit and be sociable or maybe even joke > around a little. I guess some people would feel they were taking things > too lightly if they were more friendly/jolly. But for me, it kind of > defuses the situation. Yes, most are I find. > I hope you'll have few side effects from your radiation, and that it > will have the desired good result of getting those &*&#$ mets into > remission. > > Warm wishes to you, And from me, Mary > Ann T. > Remove 'dontsendspam' from address to reply by email After my daughter's mother-in-law's breasts were removed she pulled her shirt off in front of her sons and my daughter. The sons screamed "Mom, put your shirt back on!" > After my daughter's mother-in-law's breasts were removed she pulled her > shirt off in front of her sons and my daughter. The sons screamed "Mom, > put your shirt back on!" LOL! Mad, innit ... Mary > > After my daughter's mother-in-law's breasts were removed she pulled her > > shirt off in front of her sons and my daughter. The sons screamed "Mom, [quoted text clipped - 3 lines] > > Mary Not really Mary. It works like this. Men's minds connect sexual arousal with breasts, even if they are only Mother's. The connection is pretty much wired in, but it is 'soft', for example in an environment where breasts are commonly exposed it desensitises pretty quickly. When a woman takes her shirt off to expose only scars, this forces a disconnect in the man's mind between the act of stripping and the sexual arousal. I would imagine that subconsciously the boys fear that such exposure will desensitise them and cause them to lose their ability to become aroused by a partner (or a 'professional' for that matter) stripping - for a while in future their minds will connect a girl taking her blouse off with scars and injury rather than sex.. Of course if it -is- your partner, that is different, you need to reprogram how that area works anyway in order to sustain your relationship, so the disconnect is acceptable and part of the process of reconnecting arousal to different cues. Tim Jackson Coming in late - I've been away for a few days > > > After my daughter's mother-in-law's breasts were removed she pulled her > > > shirt off in front of her sons and my daughter. The sons screamed "Mom, [quoted text clipped - 25 lines] > disconnect is acceptable and part of the process of reconnecting arousal to > different cues. COR! But would sons expect sexual arousal from their mother? > Tim Jackson > > Coming in late - I've been away for a few days You've been missed. Mary > > I would imagine that subconsciously the boys fear that such exposure will > > desensitise them and cause them to lose their ability to become aroused by > > a partner (or a 'professional' for that matter) stripping - for a while in > > future their minds will connect a girl taking her blouse off with scars > > and injury rather than sex.. ! > But would sons expect sexual arousal from their mother? Not as such, although it happens. It's embarrassment because the action triggers the connection inappropriately. They would probably have the same embarrassed reaction to an older woman with stretched saggy wrinkly breasts stripping off. Or remember the old guy with breasts on the beach in "Jaws", that does it too. I am reminded of a cartoon drawing I once saw, I think it was a birthday card. A young man and an old woman at a bus stop. The young man is wearing a tee-shirt emblazoned "Show us your tits!" In the second frame the old woman lifts her skirt to reveal dugs hanging around her knees. It's all the same disconnect. Tim > > But would sons expect sexual arousal from their mother? > > [quoted text clipped - 3 lines] > stripping off. Or remember the old guy with breasts on the beach in "Jaws", > that does it too. I didn't see that (you know we live under a stone!) but I do find fat men with breasts, even when they're covered, repulsive ... it's so irrational that I'm ashamed of it. But when I saw such a man who'd had a single mastectomy I didn't mind at all ... it might have been partly because of the context, it was at a lymphoedema training day. It's a puzzle. > I am reminded of a cartoon drawing I once saw, I think it was a birthday > card. A young man and an old woman at a bus stop. The young man is wearing > a tee-shirt emblazoned "Show us your tits!" In the second frame the old > woman lifts her skirt to reveal dugs hanging around her knees. They used me for the model! Mary Tim Jackson wrote: << Coming in late - I've been away for a few days I hope you had an enjoyable time. I thought you might me away--missed your posts! > Tim Jackson wrote: << Coming in late - I've been away for a few days > > I hope you had an enjoyable time. I thought you might me away--missed your > posts! Yes thanks. Once a year I get five consecutive days free from parental duties while Natasha (10) is at a school bunk camp. I took advantage of that break this year to visit a friend. Natasha enjoyed her trip too. Tim << I took advantage of that break this year to visit a friend. Natasha enjoyed her trip too. >> Glad to hear that you were able to get away and both you and Natasha have fun. Sorry to hear you're having tough times, linda. It'll get better, honest ;-) Deborah is doing pretty okay. She's still having weekly Herceptin (and weekly allergic reactions to Herceptin) but this week wasn't too bad. Diseasewise we won't know anything for another couple weeks and will have to make some decisions then on either her cancer treatment or her dental treatment (she's in the middle of dental implants and we put off chemo so she could finish having the work done). Yesterday was my eighth annual 40th birthday and we went out to dinner and had a nice time. I got a nice collection of shaving soap - probably enough to last about 400 years - and a couple shirts and a couple pairs of pants. I love shaving soap - I still use a cup and brush but don't use a straight razor unless I have a lot of time, no caffeine in my system and am feeling particularly adventurous. I've found that if I'm gonna have to shave I might as well enjoy the ritual. > Sorry to hear you're having tough times, linda. It'll get better, > honest ;-) [quoted text clipped - 5 lines] > or her dental treatment (she's in the middle of dental implants and we > put off chemo so she could finish having the work done). Why do they continue with the Herceptin if it causes an allergic rection??? > Yesterday was my eighth annual 40th birthday and we went out to dinner > and had a nice time. I got a nice collection of shaving soap - er ... ??????????? > probably enough to last about 400 years - and a couple shirts and a > couple pairs of pants. Nice. I think. It's my umpty fifth birthday next week. All the best people are born in March. I hope I enjoy mine as much as I hope you enjoyed yours (!) > I love shaving soap - I still use a cup and brush but don't use a > straight razor unless I have a lot of time, no caffeine in my system > and am feeling particularly adventurous. I've found that if I'm gonna > have to shave I might as well enjoy the ritual. Now I'm confused, I thought you were as hirsute as Tim and Spouse. I'll have to look at the picture again. Love to both of you anyway, Mary >Why do they continue with the Herceptin if it causes an allergic rection??? Simply put, it put her in remission last time we used it. The reaction is manageable and the longer we can keep her on it, the longer she'll live. She develops skin rashes and welts under her eyes the day after treatment. Side effects are manageable, though ;-) >Nice. I think. It's my umpty fifth birthday next week. All the best people >are born in March. I hope I enjoy mine as much as I hope you enjoyed yours I did - and an early happy birthday to you. I agree - all the best people are born in March. >Now I'm confused, I thought you were as hirsute as Tim and Spouse. I'll have >to look at the picture again. I switched to a goatee some months ago. I'm back to shaving every day. hugs, allan  Signaturewe see things not as they are, but as we are. -- Anais Nin > >Why do they continue with the Herceptin if it causes an allergic rection??? > > Simply put, it put her in remission last time we used it. The > reaction is manageable and the longer we can keep her on it, the > longer she'll live. She develops skin rashes and welts under her eyes > the day after treatment. Side effects are manageable, though ;-) Ah, I see. Yes, some side effects are worth having :-) > >Nice. I think. It's my umpty fifth birthday next week. All the best people > >are born in March. I hope I enjoy mine as much as I hope you enjoyed yours [quoted text clipped - 7 lines] > I switched to a goatee some months ago. I'm back to shaving every > day. Ah, so I was right! I prefer you with a beard ... men were intended to have beards. Real men don't shave. Waste of life. Etc. What's more, stubble scratches! :-))))))))))))) Mary > hugs, > > allan >Real men don't shave. I think those who use a brush and cup instead of the foamy stuff from a can merit special dispensation. ;-) Signaturewe see things not as they are, but as we are. -- Anais Nin > >Real men don't shave. > > I think those who use a brush and cup instead of the foamy stuff from > a can merit special dispensation. > > ;-) Well, I agree insofar that it's a Manly Thing. My mother gave Spouse my Dad's Remington when he died but it was never used by Spouse. We still have his Old Spice (from his teenage years) brush and mug - the soap is hard and dusty though after goodness knows how many years of disuse. Except once two years ago when he did shave by Special Request. It was awful and I felt so guilty that I'd asked him to do it. Never again! You have more weight on you and won't look so scrawny and old. How about a pic with and without the goatee? Mary Mary >You have more weight on you and won't look so scrawny and old. How about a >pic with and without the goatee? I don't appear in many pictures - but there's one that's about a year old at http://ebassist.com/pix/allan.jpg - it's a bit newer than the wedding picture on cancersupporters.com I haven't been photographed since I went to the goatee - and I sold my old digital camera to purchase a shiny new one that hasn't arrived yet - and won't until Tuesday. Give me a holler after then and I'll ask Deborah to take my picture ;-) Signaturewe see things not as they are, but as we are. -- Anais Nin > >You have more weight on you and won't look so scrawny and old. How about a > >pic with and without the goatee? [quoted text clipped - 10 lines] > - and won't until Tuesday. Give me a holler after then and I'll ask > Deborah to take my picture ;-) Right, I will. Before I got as far as that I was going to say - in my usual-often-getting-me-into-trouble-mode, "Call that a goatee???" :-) XMary > all the best people are born in March. > Real men don't shave. I do agree with both sentiments. Tim > > all the best people are born in March. > > > Real men don't shave. > > I do agree with both sentiments. OH! Happy birthday? For ... when? Mary > Tim > > > all the best people are born in March. > > > [quoted text clipped - 5 lines] > > For ... when? Wednesday, to be sure. Tim who wasn't fishing, honest. And who wishes a Happy Birthday to all Pisceans in the group. > > > > all the best people are born in March. > > > > [quoted text clipped - 7 lines] > > > Wednesday, to be sure. No. > Tim > > who wasn't fishing, honest. > And who wishes a Happy Birthday to all Pisceans in the group. Thank you. Mary The Ultimate Piscean ... :-) >>>>all the best people are born in March. >> [quoted text clipped - 8 lines] > who wasn't fishing, honest. > And who wishes a Happy Birthday to all Pisceans in the group. Wednesday as in today? If so, happy birthday, and many more to come! (If last Wednesday, then all the same, but belatedly.) Similar wishes to all with March birthdays even if <sniff> some of you are getting just a weensy tad parochial about the Goodness of March and the implied inferiority of (say) us Novemberians and others! Ann T. Remove "dontsendspam" from address to reply by email > >>>>all the best people are born in March. > >> [quoted text clipped - 15 lines] > are getting just a weensy tad parochial about the Goodness of March and > the implied inferiority of (say) us Novemberians and others! You can't mean me! I think that Novemberians are wonderful! In fact, although all the best people ARE born in March the ones born between April and February are just as good. And those who row are even better ... Mary > Ann T. > Remove "dontsendspam" from address to reply by email > > Wednesday, to be sure. > > Wednesday as in today? If so, happy birthday, and many more to come! Indeed. St Patrick's Day. Thank you. And may the shamrock of good fortune never give you hayfever. Tim. Someone once gave me a pretty rustic Irish print bearing a poetic caption something like "May the wind be always at your back and may the road rise up to meet you" which I always suspected was doublespeak for too much Guinness. Your birthday? When next week? Had mine this last week on the 11th. Take care there/God bless annie Ultimately.....we know deeply that the other side of every fear is a freedom. "Courage"...is *fear* that has said it's prayers. > Your birthday? When next week? > Had mine this last week on the 11th. > Take care there/God bless > annie Belated greetings. It doesn't really matter when we have them though, does it - just as long as we do keep having them! Mary > Ultimately.....we know deeply that the other side of every fear is a > freedom. > > "Courage"...is *fear* that has said it's prayers. •*•Annie•*• wrote: > Your birthday? When next week? > Had mine this last week on the 11th. Many happy returns to you, Annie! Ann T. Remove 'dontsendspam' from address to reply by email > Yesterday was my eighth annual 40th birthday and we went out to dinner > and had a nice time. Happy belated birthday! I've been 40 (eight) for a few months now, and so far it's been a good year -- hoping it will be for you, also. Best to Deborah, too! Ann T. Remove 'dontsendspam' from address to reply by email >Happy belated birthday! I've been 40 (eight) for a few months now, and >so far it's been a good year -- hoping it will be for you, also. > >Best to Deborah, too! Thanks, Ann - I won't be 40 (eight) until my ninth annual 40th birthday, but a good time was had by all ;-) Signaturewe see things not as they are, but as we are. -- Anais Nin > Thanks, Ann - I won't be 40 (eight) until my ninth annual 40th > birthday, but a good time was had by all ;-) <Mumbles> Never was any doggone good at arithmetic! </mumbles> Best wishes anyway . . . kid! Ann T. Remove 'dontsendspam' from address to reply by email "yesterday was my eigth annual 40th birthday" "Yesterday" as in the the 11th? Mine is March 11th also, if you meant the 11th in your post. I passed 40 ALONG time ago... I've had time to have my 40th about times....lol I've been keeping up on the posts from you about Deb. I was glad to read she's doing okay with her treatments...so sorry she's having the problems she's having. Please let her know she's in my prayers, as you are as well my friend... Take care there and God bless you both annie Ultimately.....we know deeply that the other side of every fear is a freedom. "Courage"...is *fear* that has said it's prayers. Should've read "I've had time to have my 40th birthday -14 times-"...keyboard is gigged and the "14" didn't type out in that post. This has been happening on off and on for a couple weeks...Others on Webtv are having trouble with theirs as well, so annie's not alone this time. I'm having to use the separate number key pad off the the right side of keyboard, unstead of the ones over the letter keys. Scroll key is not working well either, so we having to beat on the arrow keys and just getting to places a little slower. What a bite Take care there/God bless you annie p/s and God bless those who don't mind typos...<g> Ultimately.....we know deeply that the other side of every fear is a freedom. "Courage"...is *fear* that has said it's prayers. >"yesterday was my eigth annual 40th birthday" >"Yesterday" as in the the 11th? >Mine is March 11th also, if you meant the 11th in your post. Yes, my birthday is the 11th. Happy birthday to you as well, Annie - I think Mary's idea that all the best people are born in March must be true ;-) allan Signaturewe see things not as they are, but as we are. -- Anais Nin << I think Mary's idea that all the best people are born in March must be true ;-)>> Hmmm, contemplating that. I was supposed to be born in March--the 20th--but came about a month before that--so does 'supposed to' count <g> Then 2 of my daughters were born in March---one was supposed to be born 5 weeks later in April. The other was also born early--2+ weeks early--but still in March, when the ides have it ;-) > << I think Mary's idea that all the best people are born in March must be > true ;-)>> > > Hmmm, contemplating that. I was supposed to be born in March--the 20th-- That's a good day :-) Mary > On Sun, 14 Mar 2004 03:53:56 -0500 (EST), morning_dove1@webtv.net > (.*.Annie.*.) wrote: [quoted text clipped - 6 lines] > I think Mary's idea that all the best people are born in March must be > true ;-) Oh it's not my idea, I ws told it as a child by a teacher (29 March) and since I believed everything she said I didn't doubt it. Have had no reason to change my opinion either - except that those born in the months between and including April to February come a very close second. Mary > allan |
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