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Medical Forum / Diseases and Disorders / Breast Cancer / March 2004Intraductal papilloma
Hi, I've just been diagnosed with an intraductal papilloma in my right breast for the second time in eight years. I'm 40 years old. The first time I had some nipple discharge and was treated with a microducoctomy. This time a discovered a lump about three weeks ago. I've just had a mammogram, ultrasound, FNA, and thick needle biopsy. Surgeon says the biopsy came out well but he is somewhat concerned about the FNA result. I am now waiting for some cultures (I think) to be done. Results next Tuesday. Surgeon also says that either lump is wholly beingn or there is some malignancy that wd be at the lower end of the danger scale. In the first case, he will just excise the lump, in the second he will take some lymph nodes to see if anything has spread. Apparently, papillomas are one of the rarer kinds of breast disease, he says they belong to a 5% group, so I would be interested to hear from anyone else who has experienced this type breast problem. Mar?a "María" wrote: > Hi, > [quoted text clipped - 16 lines] > > María Hi Maria, My friend might be lurking here. She had mammogram, ultrasound and wire biopsy and the two words she remembers is "atypical" and "papilloma". Now she's being referred to a surgeon for a consult on Wednesday, so your surgery might be before hers. Her family doctor would want her to go to another State to a Univeristy Hospital but we don't know why. Up till now we thought it was just (probably a benign lump). We will see. If it's not I expect she'll be posting here. In the meantime though, I'm confused. In your next post you call it a papillary adenocarcinoma. Did anyone reply to either of your posts? I see no replies and I can't find something specific to the breast under that phrase. Good luck with your surgery. We'll be following your progress. J > > Hi, > > [quoted text clipped - 34 lines] > Good luck with your surgery. We'll be following your progress. > J Hi J I'm just a layperson but perhaps it will help your friend if I attempt to put things more in context. 8 years ago I was diagnosed with an intraductal papilloma (IP) because of a nipple discharge, I was told it was harmless but the milk duct in question was removed. The lump I discovered at the beginning of February was initially found to be the same but, the surgeon explained, the fine needle test indicated that part of its surface may longer be benign, hence the move from IP to papillary adenocarcinoma (PAC). Insofar as I can understand part of it is IP but part has become PAC. I was told that this type of cancer is relatively rare (5%) hence, I believe, the "atypical" label. The good news is apparently that they are less harmful than other types. Please note, I am no expert and what I say above may be completely wrong, everything is happening very fast and this is only what I believe I have gleaned from what I have been told. No-one else has answered my previous posts :-( Hope this helps Mar?a María wrote: > No-one else has answered my previous posts :-( Uh-oh . . . my newsserver must not be Playing Nice with the other newsservers! I tried to respond to your "Name of the Beast" post. Google has it as: http://www.google.com/groups?hl=en&lr=&ie=UTF-8&oe=UTF-8&frame=right&th=c473e549 2bded7f9&seekm=c1lsh9%24114q%241%40msunews.cl.msu.edu#link2 (That will doubtless wrap & need to be cut/pasted into your browser if you want to see it.) Not that I said anything profound or even helpful, but I didn't want you to feel we were ignoring you! Ann T. Remove 'dontsendspam' from address to reply by email > María wrote: > > > > No-one else has answered my previous posts :-( > > Uh-oh . . . uh, oh, for me. I just realized that you did reply and said the pathology report after the surgery will tell her more. Papillary seems to describe the pattern of growth http://www.cancer.gov/dictionary/db_alpha.aspx?expand=p papillary tumor (PAP-ih-lar-ee TOO-mer) A tumor shaped like a small mushroom, with its stem attached to the epithelial layer (inner lining) of an organ and it seems to be ductal http://www.winabc.org/newweb/breast-cancer-basics/understanding-your-pathology-r eport.htm So I guess we'll have to wait until after my friend's surgery. We were trying to sort out whether they mightdo wide margins or lymph nodes. It's 2 cm and deep she says and in the 9 oclock position of the right breast. thank you Ann J > "María" wrote: > [quoted text clipped - 35 lines] > > Good luck with your surgery. We'll be following your progress. Hi J, Your reply to Maria caught my eye. I have recently had a mammogram and ultrsound and will have a wire biopsy done on April 7th. Both the radiologist and surgeon, (who will do the wire biopsy) have already told me that they expect the area of calcification in question to be benign and at worst "pre-cancerous". I can understand why you are confused. Sounds like your friend was expecting a "benign" diagnosis and now is wondering what is really going on...reminds me that even though I've been told that the area in question is most probably benign, that I must remember there is always a chance that it won't be. Is there any chance your friend could schedule another app't with her family doctor to get some more info? Sending healing vibes to your friend, Catherine > Your reply to Maria caught my eye. I have recently had a mammogram > and ultrsound and will have a wire biopsy done on April 7th. Both the [quoted text clipped - 13 lines] > > Catherine Hello Catherine, Thank you for the healing vibes and the reply. When this first started and she mentioned papillomas (after the ultrasound), I e-mailed her http://imaginis.com/breasthealth/benign.asp Hers is not involving the nipple, so we were "sailing along" thinking it was just benign until this "atypical" came up after the "wire biopsy" and the speeding up of the tests and surgery date occurred. I now suspect that her situation is similar to yours (possibly precancerous, but I don't know that for certain). She has Lupus (extreme fatigue and joint pain) and fibro and asthma and allergy to rubber/latex, so she has to take in her own ceramic mask and plastic tubing for the anesthetic or for oxygen because of her asthma? Maybe for the asthma, because it sounds like they will give her a "twilight med" as opposed to general anesthetic. She sees him tomorrow for pre-anesthetic discussion/forms etc and is trying to find a way to back out of this. So she saw the surgeon today and surgery is booked for Monday. She tried to wiggle out of it by asking "since it's thought to be benign and I've had lumps for years, can I just skip this and keep the lump? " and the surgeon replied "certainly not". There's no point (nor time) to go to her family doctor because they've already told her that the biopsy of all the tissue to be removed will tell them whether it's totally benign (or not), so the sooner it is done, the better, so we can all breathe a sigh of relief and move on to healing. I wish you well Catherine, perhaps we'll all be celebrating in a very short time. Hugs J > > Your reply to Maria caught my eye. I have recently had a mammogram > > and ultrsound and will have a wire biopsy done on April 7th. Both the [quoted text clipped - 42 lines] > Hugs > J Thanks for the link and the good wishes, J...pls keep us updated re your friend...I'd definitely like to think we'll all be celebrating soon! Best, Catherine >>>so the sooner it is done, the better, so we can all breathe a sigh of relief and > > move on to healing.<<< Hello J, I'm wondering how your friend is doing and what her diagnosis was...sorry if you've already posted about this and somehow I've missed it...sending healing vibes for your friend... Best, Catherine C. > I'm wondering how your friend is doing and what her diagnosis > was...sorry if you've already posted about this and somehow I've > missed it...sending healing vibes for your friend... Hello Catherine, your healing vibes worked. The procedure went well, but she found it a rather long day. Had to be there at 7:30a.m. and the surgery was at/around 10:30 a.m. and then "waking up" and post-surgery stuff, I don't think she got home until mid-afternoon (but not sure of exact time). They told her she talked the whole time, must have been the medication. Anyhow, I bugged her today (by e-mail) and she just e-mailed that they called her yesterday to say that the biopsy was negative. Her surgery was Monday and she says she's had little pain at all, just slight discomfort if she presses on the area.(that may vary, she says, depending on the location and how long the papilloma has been there). She does have some bruising but expects it to resolve slowly. May yours go as well and have a similar outcome. I will watch for your updates and sending healing vibes to you also. Best, J > > I'm wondering how your friend is doing and what her diagnosis > > was...sorry if you've already posted about this and somehow I've [quoted text clipped - 17 lines] > Best, > J What *wonderful* news, J...so happy to hear it...thanks for your good wishes/vibes...I hope I do have a similar outcome... Best, Catherine C. > What *wonderful* news, J...so happy to hear it...thanks for your good > wishes/vibes...I hope I do have a similar outcome... > > Best, > Catherine C. Hi Catherine, Miscommunication between the surgeon's office and my friend. She just got back from her doctor's and he said that everything was "fine from the POV of the surgeon" removing the tissue, but her doctor doesn't like what's on the pathology report and is referring her to a University Hospital some hours away, so ...to be continued. I will watch for your update. Hugs J |
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