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Medical Forum / Diseases and Disorders / Breast Cancer / February 2004

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Denise - 21 Feb 2004 00:42 GMT
Hi all!  I need advice/support.  I went in a few weeks ago for my
physical (I had Ovarian Cancer type IB back in 2000)- the doctor said
I should get a mammogram since I hadn't had one since 2000 and just
turned 40.  They found a suspicious grouping and told me to come back.
The radiologist told me I need to see a breast specialist as he found
6 calcifications in a ductal node.  I went today to see the
specialist.  She told me that they are "atypical" and between 1 and 2
mm in size.  They grouped close to (but not on) the muscle wall in my
right breast.  Well of course I am scared.  I told her the radiologist
told me and i had read that 80% of the time they are benign. She told
me that was generally true but she said that way they were shaped made
them more suspicious.  Yipes! "Stalagtite" shaped - i think thats what
she said. But I swear - I could hardly hear her at times - my head was
buzzing I suppose from fear. She wants to do a stereoscopic biopsy on
me if they can get to them - it may be too far back. The radiologist
was booked for the next two weeks.  she told me she wanted me to get
it done this next week - she is going to try to get them to squeeze me
in and if she can't she said she would have to do an "open" (?) biopsy
where you take out the suspicious area and surrounding tissue.  I feel
silly for asking but isn't that a lumpectomy?  I was too numb to ask
her at the time.  She was very kind and went through alot of details
on what calcifications were... I suppose I am still numb. And its
still early on.
Denise
WDW1972 - 21 Feb 2004 01:13 GMT
>she is going to try to get them to squeeze me
>in and if she can't she said she would have to do an "open" (?) biopsy
>where you take out the suspicious area and surrounding tissue.  I feel
>silly for asking but isn't that a lumpectomy?

According to my surgeon - yes.  I wasn't a candidate for the stereotactic, so I
had the surgical biopsy.  It was a piece of cake, but mine was closer to the
surface than yours. The doc's right that even tough the calcifications are
grouped in a line they're still 80% likely to be benign, so try not to get too
worked up over it just yet.  In my case they were not benign - too bad I can't
be the exception when buying a lottery ticket <g>.  Mine was caught really
early though, so treatment (radiation after lumpectomy, now 5 years of
tamoxifen) was a breeze.  Breast Cancer is scary, but it's not always a
worst-case scenario.  There are several of us who had it, got rid of it, and
had minimum disruption to our lives in the process (the lucky ones I guess).
So, stay positive until you know for sure!

Sue - DivaofDVC   aka WDW1972
DVC '97   OKW, Beach Club, Vero Beach, & Hilton Head
Tim Jackson - 21 Feb 2004 10:34 GMT
> She wants to do a stereoscopic biopsy on
> me if they can get to them - it may be too far back. The radiologist
[quoted text clipped - 3 lines]
> where you take out the suspicious area and surrounding tissue.  I feel
> silly for asking but isn't that a lumpectomy?

Yes a "surgical biopsy" is essentially the same procedure as a lumpectomy,
the difference is mostly one of attitude.  A surgical biopsy is primarily
exploratory whereas a lumpectomy goes straight to an already identified
volume of tissue.  Of course one hopes that if a surgical biopsy proves
positive, it will have already removed all the cancerous tissue.  As with a
lumpectomy, the "margins" are checked, and if cancer is detected close to
the cut surface, further surgery is performed.

From the patient's point of view there is, as far as I know, no difference.

Good luck with the radiologist.

Tim Jackson
A. P. Thorsen - 23 Feb 2004 17:05 GMT
> Hi all!  I need advice/support.  I went in a few weeks ago for my
> physical (I had Ovarian Cancer type IB back in 2000)- the doctor said
> I should get a mammogram since I hadn't had one since 2000 and just
> turned 40.  They found a suspicious grouping and told me to come back.

Hi, Denise,

Welcome to the group (sorry you need to be here)!  As others have noted,
the odds are on your side -- there's a very good chance the suspicious
areas are benign.  And, even if that proves not to be the case, they
appear quite tiny, so you will have caught them early, with likelihood
of a relatively easy course of treatment and excellent odds of long-term
recovery.

Even for those who, like me, have had locally advanced cancer, the
modern treatments are quite successful.  At age 45, I had 5 tumors
(largest 3.1 cm) in one breast, 1 tumor in the other breast, and cancer
cells in one of my lymph nodes.  Three years later, I'm doing great --
NED (no evidence of disease).  And I'm in better shape than I have been
in 20+ years (thanks to my breast cancer survivors' rowing team).

On my rowing team, there are others with similar stories:  One woman had
breast cancer 17 years ago, when she was about 42.  Another had (early)
*stage 4* breast cancer, the highest stage & usually considered
terminal, about 5 years ago, and is also now NED at age 39.  A third had
a tumor over 7 cm, and is also more than 5 years post-diagnosis and NED
at age 50.

While I always say that chemotherapy and radiation were a rotten hobby,
it was do-able.  The things you read in popular magazines, or anecdotes
from those who went through it several years or more ago when management
of side effects was not as advanced, might lead you to believe it is
worse than it really proves to be for most of us.

Please ask us any questions you may have -- we understand that this is a
scary process, regardless of how well things turn out.  And, if you get
good news, we hope you'll share it . . . this group just *loves* good news.

Take care,

Ann T.
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Mary Rose Sadler - 28 Feb 2004 19:01 GMT
hi denise.  i too am a long timer.   i was diagnosed in feb 2000.  just
hit my 4 yr mark with ned (no evidence of disease).  my cancer was 3.5
cm with 4mm in situ attached,  i had fine needle aspiration (neg) and
then an excisional biopsy.   that's what my doc called the surgical
biopsy.  when i got my diagnosis back and scheduled surgery they went
into the same place to remove my remaining tumor and what clean margins
they could get.  my tumor went deep into my breast and they had to leave
some "dirty" tissue, but have told me 4 yrs ned considers me cured.   i
had 6 rounds of cmf with 30 radiation treatments right smak in the
middle of chemo.  

hen treatment was over it felt like the time had just flown by and it
really was hard to believe it had gone so fast.  

in this forum you will find survivors, caregivers, friends and family of
survivors.  we are here to answer questions and give support.  hope the
responses you've gotten have been helpful.  this is a great supportive
group of people.  most of them were here to help me get through it.  

mary rose
 
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