Just when I thought things couldn't get any worse, they do.
Review: Mom had metastatic breast cancer for 11 years with mets to
the bones and Ovarian cancer for 1 year (new primary). She was living
alone independently with daily home care until two weeks ago when she
got dizzy, fell and broke her arm. She's anemic, low platlets, and has
congestive heart failure down to 25% function probably from the
Herceptin. She elected not to have the surgery and was psychologically
evaluated a week ago Saturday as competent to make that decision. The
hospital she was in was terrible, despite the large sign on the wall,
just about every person who came in would pick up her broken arm and
she would scream in pain! My brother and I looked into options and she
wanted to go to a palliative care center that specializes in terminal
cancer patients. She was transferred there last Wednesday. She was
fine Wednesday night.
New developments: Something bad happened. Pretty much overnight, she
has developed some kind of dementia. She's very confused. I am
devastated. Her doctor said that there could be a number of causes,
like a stroke, or infection, but its most likely brain mets. They will
try to treat it with steroids first and if her response is
sufficiently favorable, then they will do a cat scan to see what's
going on. If they elect to go that route, they will have to do the cat
scan in another hospital because the palliative specialty hospital
she's in doesn't have the equipment. It is terribly cold this week in
New York. He said that if they determine that its brain mets, then
radiation may shrink the mets and prolong her life from 3-6 months,
possibly even restoring her mental function. Although she did improve
a litte from the steroids, she was able to ask for milk and apple
sauce, she reconized me, my brother, and a picture of her mother, she
was able to say she was hot, from what he's seen of her, the doctor
does not think its sufficient to warrant any further action. He thinks
that if she doesn't respond sufficiently to the steroids, there is
little hope for a response from radiation, and moving her to do the
cat scan would be traumatic.
My question is why don't they just assume that its brain mets give her
the radiation anyway and see what happens. Why bother with the
expensive cat scan. I didn't think radiation was that expensive. Isn't
it possible that she will respond to radiation when she doesn't
respond to steroids?
I know I'm going to lose her, and she's being kept extremely
comfortable, and she couldn't be in better more caring nursing hands.
But there is no amount I wouldn't give for just one more intelligent
conversation. I don't know if I should force the issue possibly by
moving her again. I don't know if that would be doing her a favor or
should I just let her go.
Kaye301 - 26 Jan 2004 16:56 GMT
<< New developments: Something bad happened. Pretty much overnight, she
has developed some kind of dementia. She's very confused. >>
Is there any possibility that she was given a 'new,' different or 'wrong'
medication?
I am not sure about the radiation but think that there might be possible legal
ramifications if that were done without first determining the need.
Sorry to hear that your mom is having such a tough time. I am not one to
advise on when it is time to 'let go' or if it ever is, being somewhat
ambivalent on that subject as someone who has seen it all (with my mom and
several of her relatives while I was growing up) who has breast cancer myself.
A. P. Thorsen - 26 Jan 2004 17:52 GMT
> Just when I thought things couldn't get any worse, they do.
>
> Review: Mom had metastatic breast cancer for 11 years with mets to
> the bones and Ovarian cancer for 1 year (new primary).
....
> My brother and I looked into options and she
> wanted to go to a palliative care center that specializes in terminal
[quoted text clipped - 5 lines]
> devastated. Her doctor said that there could be a number of causes,
> like a stroke, or infection, but its most likely brain mets.
Has your mother been hospitalized under stressful conditions in the
recent past? I've found that my father (generally very healthy
86-year-old) tends to develop symptoms in the hospital that look like
dementia, but are transitory. I'm not talking mild stuff, here, either
-- it's major hallucinations, needing to be restrained, etc. At first
we thought it was due to meds, but on subsequent go-rounds that hasn't
been a plausible explanation
A nurse practioner in gerontology told me that this isn't too unusual in
the elderly, and it is thought to be triggered basically by the systemic
stress of pain, interrupted sleep, unfamiliar surroundings, unfamiliar
food, etc.
While I understand that your mother's condition is very serious, and
brain mets a very real risk, is it possible that perhaps symptoms due to
her disease processes are being exaggerated by some similar stress effect?
My heart goes out to you, John . . . I know how difficult it can be
(emotionally *and* logistically) dealing with circumstances like this
with an elderly parent!
Ann T.
Remove 'dontsendspam' from address to reply by email
Alexandra Koffman - 27 Jan 2004 01:04 GMT
My Mom who died from lung Cancer had brain mets. She had seizures ( that is
what brought her into the hospital to have her lung mets diagnosed).
She had radiation treatment ( which she never completed) and every treatment
she came home sicker and more confused. But to answer your question they
have to know where to target the radiation before they do it. And believe it
or not the radiation is more expensive then the CT Scan. I am sorry you and
your mother are going through this.