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Medical Forum / Diseases and Disorders / Breast Cancer / January 2004Cancer update
http://www.lbbc.org/conferences.html#advances You can listen to a conference call regrading current therapy in Breast cancer. Thanks for sharing that site. However, the news about Femara will not help people like myself who already have bone/joint pain and can't take any of the anti-inflammatory drugs due to stomach problems. They need to find a more useful drug to help stop the bc but which will not trigger off more pain to people like myself. Bea Bea I can understand how you feel since I am ER neg and this doesn't respone to hormones. Alex > Thanks for sharing that site. However, the news about Femara will not > help people like myself who already have bone/joint pain and can't take [quoted text clipped - 3 lines] > > Bea had to join this link Bea and Alex,I too am ER neg,what new things are happening for us ? kathleen > Bea I can understand how you feel since I am ER neg and this doesn't respone > to hormones. Alex [quoted text clipped - 5 lines] > > > > Bea >had to join this link Bea and Alex,I too am ER > neg,what new things are happening for us ? >kathleen Sorry for the misunderstanding, Kathleen but I am not ER neg. I am ER+ and Her2+. What I posted about my problem with the Femara was because although they are finding certain drugs which can help ER+ people, my concern is that my system may not be able to cope with taking the drugs. But at least they are searching for ways to help us and I am thankful for that. I do hope that in the near future research will find some good drugs to help you ER neg folks too. Bea Bea wrote << hey are finding certain drugs which can help ER+ people, my concern is that my system may not be able to cope with taking the drugs. But at least they are searching for ways to help us and I am thankful for that. >> Just wondering would there be anything you might be able to take for your stomach that would alow you to take the Femara? Have you seen a gastroenterologist. I am only suggesting because about 10 years ago my stomach got messed up after taking 6 mos. of antibiotics to try and clear up a very stubborn sinus inf infection. I was finally given steroid inhalers which along with the basics seemed to do the trick but my stomach had been left a mess from all that. Not having any meds orally for awhile helped. Then I started interferon beta for M.S. and am not sure that helped but problem went away. Now, if a medication bothers my stomach I take oral aloe vera gel and it it makes such a difference. The problem area seems to heal quickly and I am able to tolerate whatever drug it might be. I don't know if that would work for you but thought I should at least mention. I listened to the conference, Very interesting, by the way, and there is nothing new for us neg's...You should listen to the conference,. Makes you wnan to go to Sloane Kettering to be taken care of by the principal speaker...Pat from Apple Valley... >had to join this link Bea and Alex,I too am ER neg,what new things are >happening for us ? [quoted text clipped - 23 lines] > > I got a bit depressed after I listened to it. But in confirms what I have been told here in Boston is accurate. Alex I listened to the conference, Very interesting, by the way, and there is nothing new for us neg's...You should listen to the conference,. Makes you wnan to go to Sloane Kettering to be taken care of by the principal speaker...Pat from Apple Valley... Nothing...they are "thinking" of doing some research... how exciting for. I have heard this swan song for the past 7 years since my diagnosis. ALex > had to join this link Bea and Alex,I too am ER neg,what new things are > happening for us ? [quoted text clipped - 9 lines] > > > > > > Bea Have you tried any of the Cox 2 drugs, like celebrex - I found them very easy on my stomach. Alex > Thanks for sharing that site. However, the news about Femara will not > help people like myself who already have bone/joint pain and can't take [quoted text clipped - 3 lines] > > Bea >Have you tried any of the Cox 2 drugs, like > celebrex - I found them very easy on my > stomach. Alex I thought about Celebrex but isn't that the one where they warn you about intestinal bleeding and other gastro problems? I already have GERD and an ulcer so I can't chance any drugs which may irritate my stomach. But, thanks for the suggestion. I'll talk to my doctor about it. Bea Bea wrote << I already have GERD and an ulcer so I can't chance any drugs which may irritate my stomach. But, thanks for the suggestion. I'll talk to my doctor about it.>> Natural aloe vera juice or gel--made for eating can greatly help intestinal irritation and supposedly ulcers. It can be purchased through most health food stores or, in some areas, fresh juice is sold. It's not inexpensive, but it can greatly help. Hi Bea I can't take NSAIDS as they trigger my asthma, so I've been prescribed Indomethacin suppositories which bypass the stomach & help hugs jackie > Thanks for sharing that site. However, the news about Femara will not > help people like myself who already have bone/joint pain and can't take [quoted text clipped - 3 lines] > > Bea We used NSAID suppositories for my wife in the final stages when she could no longer keep pills down. I understand from the literature that the GI problems with NSAIDS are not avoided by using this route, they can still cause intestinal bleeding etc. when used in the long term. Tim Jackson > Hi Bea > [quoted text clipped - 12 lines] > > > > Bea >We used NSAID suppositories for my wife in > the final stages when she could no longer [quoted text clipped - 3 lines] >still cause intestinal bleeding etc. when used > in the long term. >Tim Jackson Well! Aren't "you" the literal "party pooper"! Just when I thought I had my problem resolved you had to post this. Oh well.....it's back to the drawing board for me. But I will still ask my doc about this route in case I do have a need for some NSAID type help. I don't think I would be taking the stuff long term anyway ( I hope!). Seriously, Tim....just kidding with you. I do appreciate, envy, and applaud you for your knowledge of this disease. If all men had your inniative to learn so much to help their wives, maybe we would not have to spend so much time picking the brains of people like yourself.<g Many thanks! Bea Bea wrote: << I thought I had my problem resolved you had to post this. Oh well.....it's back to the drawing board for me. >> You might want to explore possibility of using supplemental consumable aloe vera gel or juice which can greatly help with this difficulty >You might want to explore possibility of using > supplemental consumable aloe vera gel or > juice which can greatly help with this difficulty Kaye Thanks Kaye. I remembered you told me about this earlier. Maybe this week I can find a decent Healthfood Store nearby and get some of that aloe vera get or juice. (That is....unless Tim chimes in with why it won't help me.<g) Bea Bea wrote << Maybe this week I can find a decent Healthfood Store nearby and get some of that aloe vera get or juice. (That is....unless Tim chimes in with why it won't help me.<g) It was the only thing I was allowed to use on my skin during radiation--in fact I was told to get it and use it every few hours except not for a few hours before treatment. I was surprised when I saw it in the store as something that could be taken internally, although it does come from a plant--so shouldn't have been that surprised--just didn't realize. My thoughts were that if it was so helpful for external skin burns--what might it do for internal 'burns' in one's esophagus or stomach? I then did a web search and read some info at a health foods store which said that it could help in these ways. I asked one of the oncologists I saw and he wasn't aware of it, but he was interested in finding out about it. One thing I've learned is that dr's learn very little about nutrition in their medical school training (One of my daughters is in her 3rd year of med school now. She finds that frustrating along with the fact that more of an integrative approach is not taken--although there is a 'new' specialty-- integrative medicine). Anywway, if interested, I typed in "aloe vera juice" on google and came up with the following: http://www.google.co.uk/search?q=%22aloe+vera+juice%22&ie=ISO-8859-1&hl=en &btnG=Google+Search&meta= > Well! Aren't "you" the literal "party pooper"! Just when I thought I > had my problem resolved you had to post this. Oh well.....it's back to > the drawing board for me. But I will still ask my doc about this route > in case I do have a need for some NSAID type help. I don't think I > would be taking the stuff long term anyway ( I hope!). There are other drugs other than NSAIDS, cox 3 inbitors ssuch as Celebrex don't have the GI problems and serve the same antiinflammatory effects as NSAIDS which are cox 2 inhibitors. Also some small studies think these oox2 inhbitors also help to limit the growth of tumor cells. And there are many drugs to help with GI symptoms - tagmet, Pepcid and Proselic also help with GI Symptoms. Alex Alex says..."tagmet, pepcid and Proselic" I add... ..not to mention Nexium, which is touted to 'help heal the esophagus'. I was on Prilosec for years after an ulcer; when it went generic I couldn't afford it and was prescribed Nexium. I had been on Vioxx for arthritis and was told it was less damaging than Celebrex! Now the doctors think jut the opposite. Who knows, do what you can, and if stuff happens, it happens is kind of where I've lived since cancer..treat it and forget it works for me :-)) Ann in PA |
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