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Medical Forum / Diseases and Disorders / Breast Cancer / January 2004

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What Type of Breast Reconstruction should I choose?

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Xiugiami - 13 Jan 2004 19:11 GMT
Ok, so I've got the bad news. Chemo didn't reduce the 6 or 7 tumours well
enough to get a lumpectomy or two. I guess I was dreaming in techo-colour.

I agreed to a mastectomy (crossed my fingers behind my back) under the
condition that I leave the hospital with another breast. So I'm getting
booked now to see a plastic surgeon and they should be able to coordinate
the two fairly soon.

What is the best kind of reconstruction that I can get? From what I
understand, the following three are the choices? Are there others?

- Implant/Expander

- Pedicled TRAM or latissimus dorsi

- Free TRAM
Lisasbucc - 13 Jan 2004 19:33 GMT
>What is the best kind of reconstruction that I can get?

First, let me tell you that I'm sorry you're having to go through this.  

Second, you might not want to rush into things regarding the reconstruction.
When I had my mastectomy about 7 years ago, the general surgeon who did the
surgery would not let the plastic surgeon in the OR.  He told me that he was
going for a cure and did not even want to, even subconsciously, be tempted to
leave extra tissue around for the reconstruction.

So I came out a monoboob. I got myself a horrible, heavy, uncomfortable
prosthesis and spent a year and a half contemplating reconstruction. Fairly
early on, I decided that I hated the prosthesis enough to change things.  I
also read Dr. Susan Love's book so I was familiar with the options.  After
choosing the TRAM flap, I worked very hard getting my body in the best physical
shape that I could.  This surgery is a far cry from a walk in the park.

I also wanted to make sure that I was doing it for the right reasons.  No woman
certainly wants to believe that a body part defines who they are.  

There's no rush to have this done.  Take your time and evaluate your options
conpletely before you cast things in concrete.

This decision is a very personal one.  If I can help in any way in light of
what I went through, please feel free to ask me anything.  Nothing's out of
bounds here!

Take care.
...lisa  
Kaye301 - 13 Jan 2004 22:09 GMT
Lisa wrote: << First, let me tell you that I'm sorry you're having to go
through this.  

Second, you might not want to rush into things regarding the reconstruction.
When I had my mastectomy about 7 years ago, the general surgeon who did the
surgery would not let the plastic surgeon in the OR.  He told me that he was
going for a cure and did not even want to, even subconsciously, be tempted to
leave extra tissue around for the reconstruction.

So I came out a monoboob. I got myself a horrible, heavy, uncomfortable
prosthesis and spent a year and a half contemplating reconstruction. Fairly
early on, I decided that I hated the prosthesis enough to change things.  I
also read Dr. Susan Love's book so I was familiar with the options.  After
choosing the TRAM flap, I worked very hard getting my body in the best physical
shape that I could.  This surgery is a far cry from a walk in the park.

I also wanted to make sure that I was doing it for the right reasons.  No woman
certainly wants to believe that a body part defines who they are.  

I agree with everything you wrote.  I was also wondering whether xiuguiami had
any positive lymph nodes involved. If so, and she did not respond to chemo, I
also would not recommend immediate reconstruction.  
The idea of going through this is horrible.   We each have different levels of
tolerance, though, based on who we are now and our past.  What I am trying to
say and can't think of an easy way to say it, is that we are so much more than
our breasts and that our survival should be top most on our list.  
I had wanted immediate reconstruction but our non-profit HMO denied it for the
wrong reasons which I won't get into now.  Although the initial shock of waking
up boobless brought a tear or two--just a couple--I was ready to get on with
whatever I could do to slay the beast (the cancer).  It has been almost 3
years, and I am still boobless--although I don't think of myself that way.
Unlike Lisa I was able to find the 'perfect' prostheses--or as good as they can
be I suppose.  They had just come out at the time of my surgery (after Lisa's).
They were lighter in weight and had a silicone backing that molds to the shape
of my skin.  I wear them in regular bras--similar to what I wore before--soft
underwire.  
I can wear almost anything without a problem--the only thing I am missing is
cleavage which might affect some evening gowns if low cut.  I have not had a
problem finding formal wear that is a bit more conservative.  I also need a
slightly higher bathing suit (to which these fit in nicely) and that has not
been a problem for me.
Interestingly, I still experience pleasurable sensations in that area of my
chest (without the boobs).  I understand that one becomes numb in that area
after surgery although don't know if it would be over the whole area.
Immediate reconstruction may be a viable option for you but I would carefully
discuss it with your oncologist and possibly get a second opinion.  One of my
colleagues who had been through this a few years earlier really helped me with
my ability to accept the situation--"what's more imortant, my breast or my
life"?
P.S.  I had the 'perfect' ones, too--in both shape and size...
Interestingly, I lost weight right after my diagnosis---and being thinner made
me feel better about my body than losing  my breasts...just some food for
thought.   We are all different.  I probably should add that at the time of my
dx I had been married for almost 25 years to a great guy.  If I were younger
and single I don't know if I would have felt the same...
Xiugiami - 13 Jan 2004 22:36 GMT
Thanks for your message Lisa.

Which option was the tram flap? Is that the Pedicled Tram or a Free Tram?
Why is one better than the other?

How difficult was the tram flap? How long does it all take?

> >What is the best kind of reconstruction that I can get?
>
[quoted text clipped - 25 lines]
> Take care.
> ...lisa
Lisasbucc - 14 Jan 2004 15:27 GMT
Xiugiami asked:

>Which option was the tram flap? Is that the Pedicled Tram or a Free Tram?
>Why is one better than the other?
>
>How difficult was the tram flap? How long does it all take?

At the time of my surgery, the free tram flap was the only one available.

The actual surgery took about 10 hours.  I was in the hospital for a week.  On
the third day after the procedure, I thought I was gonna die.  I have NEVER
experienced anything like that pain.  Dr. Susan love says that afterwards you
feel like a Mack truck had hit you and that's not far off the mark.

Because I had gotten my body in superior shape, I was back to work in three
weeks (my job did not require anything more physical than typing on a
keyboard).  I think that Dr. Love mentioned that recovery could take a few
months, so YMMV.

One interesting upshot is that my naval is no longer in the center of my body.
You cannot tell from looking at it unless you're looking straight down as I do.
But, yup, it's a bit off.  Kind of makes me feel unique ;o)

Take care.
...lisa
Barb - 13 Jan 2004 21:34 GMT
Hi,
I'm sorry that your efforts to shrink the tumors didn't go as you'd planned,
and I understand your desire to have a reconstructed breast at the time of
your mastectomy.  My experience isn't the same, as I waited about a year and
a half to have my expander/saline implant done.  I finished a year of chemo
first and then did the reconstruction.  I've had no particular problem with
the implant and am really glad I had it done.  Nipple reconstruction was a
year after the initial surgery.  I teach kindergarten, so I timed the
surgeries to coincide with summer breaks.  I wish you well with you
mastectomy and with your reconstruction.

Best wishes,
Barb

> What is the best kind of reconstruction that I can get? From what I
> understand, the following three are the choices? Are there others?
[quoted text clipped - 4 lines]
>
> - Free TRAM
Kaye301 - 13 Jan 2004 21:51 GMT
Xiugiami wrote: << What is the best kind of reconstruction that I can get? From
what I
understand, the following three are the choices? Are there others?

There is the DIEP tram which appears to be the least invasive in that the
stomach muscle is not compromised.  Here are some web site for info about it:
http://www.diepflap.com/

http://www.google.co.uk/search?hl=en&ie=ISO-8859-1&q=diep+breast&btnG=Goog
le+Search&meta=

List of plastic surgeons who do this procedure -- there may be more--this list
is from a few mos. ago; it may update itself, though...

http://www.breast-reconstruction-options.com/pages/457664/index.htm

And if you'd like to discuss it with others who have had it here are some more
sites:

http://bcsupport.org/
click on Surgery/reconstruction or go directly there:
http://members3.boardhost.com/recon/
Alexandra Koffman - 13 Jan 2004 23:01 GMT
I had an immediate reconstruction and when I work up it was really nice to
wake up with 2 breasts. I was told that there was no reason to wait for
immediate reconstruction and for me this was the way to go. I had chemo and
no problem with the reconstruction. I am now thinking about have the "good"
breast removed for preventive measures and will have an implant put in.  I
would go to a hospital and surgeon who preforms lots  of  reconstruction,
and they will make recommendations per your body type..Alex
> Ok, so I've got the bad news. Chemo didn't reduce the 6 or 7 tumours well
> enough to get a lumpectomy or two. I guess I was dreaming in techo-colour.
[quoted text clipped - 12 lines]
>
> - Free TRAM
Tony Lima - 15 Jan 2004 04:19 GMT
>Ok, so I've got the bad news. Chemo didn't reduce the 6 or 7 tumours well
>enough to get a lumpectomy or two. I guess I was dreaming in techo-colour.
[quoted text clipped - 12 lines]
>
>- Free TRAM

My wife was originally going to have a reconstruction.  She
had her right breast reduced at the same time she had her
mastectomy. The plastic surgeon worked with her regular
surgeon during the operation.

However, they would not do a reconstruction until they had
determined what her next course of therapy would be.
Therefore she had an expander put in.  The therapy was long,
difficult and continues today.  The expander broke after
about 9 months; we had the plastic surgeon remove it.

One way to make a prosthesis lighter is to have your
remaining breast reduced.  I have no idea whether this is an
issue, but it's something I wanted to mention.  My wife has
a prosthesis that is not a problem for her. - Tony

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Xiugiami - 21 Jan 2004 01:45 GMT
Excuse me for asking, but did she have larger breasts, Tony?
I'm an average size, not large and not small. Would this make a difference?

I am pretty dismayed to find out that the most 'natural' looking
reconstructions take not a tummy tuck, but muscle from my back or tummy. I
thought they took fat, but apparently not. I don't want more scarring so I'm
thinking silicone or saline implants. I wish I knew what would be best for
me. Least scarring, most natural, less pain and recuperation time, and
safest. Money doesn't matter as I'm Canadian. I'm just anxious to get this
all over with.

Anne

> >Ok, so I've got the bad news. Chemo didn't reduce the 6 or 7 tumours well
> >enough to get a lumpectomy or two. I guess I was dreaming in techo-colour.
[quoted text clipped - 28 lines]
> issue, but it's something I wanted to mention.  My wife has
> a prosthesis that is not a problem for her. - Tony
Tony Lima - 21 Jan 2004 04:09 GMT
Her breasts were large.  You may decide a reduction is not
for you. - Tony

>Excuse me for asking, but did she have larger breasts, Tony?
>I'm an average size, not large and not small. Would this make a difference?
[quoted text clipped - 42 lines]
>> issue, but it's something I wanted to mention.  My wife has
>> a prosthesis that is not a problem for her. - Tony

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oxo - 21 Jan 2004 19:09 GMT
hiya anne,

very sorry that you are facing such serious decisions at this time.  i
wish you all the very best in the weeks and months ahead.

fwiw, here's a little about my story:  i had TRAM flap surgery in
december of 01.  the plastic surgery was performed at the same time as
the mastectomy.  the cancer surgeon used a "skin sparing" method of
removing the breast and when i woke up it was just fantastic to look
at my breast and see the same old familiar skin.  the plastic surgeon
spent 15 hours working on the reconstruction to get the best result.
he also performed a reduction on the left breast---unfortunately, the
healthy breast has to be either reduced or enlarged bec. it's
impossible to make the new breast exactly like the old one.
recouperating from the surgery took some time but in general was
speedy and that winter i walked and walked and walked (first a block,
then two, then four, etc.)  before long, i was walking four miles a
day and was back to work at the beginning of february.

the end result is pretty amazing.  my breasts had been pretty big and
made lots of things uncomfortable---running, playing tennis, walking
past construction sites (in my young days, anyway!).  i'm simply
delighted with my new breasts now and a flat stomach to boot.  yes, i
do miss the stomach muscles sometimes (they need to take muscle to
give the recon. breast some structure) but have adjusted to the
change.  perhaps there are one or two yoga poses i can't do (probably
couldn't do them *with* the muscles either!) and some risk of hernia
exists if you lift too much weight.  the large scar that runs from hip
to hip is remarkably faint.  the bellybutton is a work of art!  the
reduced breast is fabulous.  i understand that you can get some pretty
terribly scarring with reduction surgery.  the technicians who do my
mammograms have all three of them *raved* about the work, saying they
rarely see such a fine result.

i'd be more than happy to talk more about this topic, if i can be
helpful.  do hope i haven't gone on too long and bored you.

cheers and courage from siobhan in new york city

> Excuse me for asking, but did she have larger breasts, Tony?
> I'm an average size, not large and not small. Would this make a difference?
[quoted text clipped - 42 lines]
> > issue, but it's something I wanted to mention.  My wife has
> > a prosthesis that is not a problem for her. - Tony
 
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