Medical Forum / Diseases and Disorders / Breast Cancer / January 2004
What Type of Breast Reconstruction should I choose?
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Xiugiami - 13 Jan 2004 19:11 GMT Ok, so I've got the bad news. Chemo didn't reduce the 6 or 7 tumours well enough to get a lumpectomy or two. I guess I was dreaming in techo-colour.
I agreed to a mastectomy (crossed my fingers behind my back) under the condition that I leave the hospital with another breast. So I'm getting booked now to see a plastic surgeon and they should be able to coordinate the two fairly soon.
What is the best kind of reconstruction that I can get? From what I understand, the following three are the choices? Are there others?
- Implant/Expander
- Pedicled TRAM or latissimus dorsi
- Free TRAM
Lisasbucc - 13 Jan 2004 19:33 GMT >What is the best kind of reconstruction that I can get? First, let me tell you that I'm sorry you're having to go through this.
Second, you might not want to rush into things regarding the reconstruction. When I had my mastectomy about 7 years ago, the general surgeon who did the surgery would not let the plastic surgeon in the OR. He told me that he was going for a cure and did not even want to, even subconsciously, be tempted to leave extra tissue around for the reconstruction.
So I came out a monoboob. I got myself a horrible, heavy, uncomfortable prosthesis and spent a year and a half contemplating reconstruction. Fairly early on, I decided that I hated the prosthesis enough to change things. I also read Dr. Susan Love's book so I was familiar with the options. After choosing the TRAM flap, I worked very hard getting my body in the best physical shape that I could. This surgery is a far cry from a walk in the park.
I also wanted to make sure that I was doing it for the right reasons. No woman certainly wants to believe that a body part defines who they are.
There's no rush to have this done. Take your time and evaluate your options conpletely before you cast things in concrete.
This decision is a very personal one. If I can help in any way in light of what I went through, please feel free to ask me anything. Nothing's out of bounds here!
Take care. ...lisa
Kaye301 - 13 Jan 2004 22:09 GMT Lisa wrote: << First, let me tell you that I'm sorry you're having to go through this.
Second, you might not want to rush into things regarding the reconstruction. When I had my mastectomy about 7 years ago, the general surgeon who did the surgery would not let the plastic surgeon in the OR. He told me that he was going for a cure and did not even want to, even subconsciously, be tempted to leave extra tissue around for the reconstruction.
So I came out a monoboob. I got myself a horrible, heavy, uncomfortable prosthesis and spent a year and a half contemplating reconstruction. Fairly early on, I decided that I hated the prosthesis enough to change things. I also read Dr. Susan Love's book so I was familiar with the options. After choosing the TRAM flap, I worked very hard getting my body in the best physical shape that I could. This surgery is a far cry from a walk in the park.
I also wanted to make sure that I was doing it for the right reasons. No woman certainly wants to believe that a body part defines who they are.
I agree with everything you wrote. I was also wondering whether xiuguiami had any positive lymph nodes involved. If so, and she did not respond to chemo, I also would not recommend immediate reconstruction. The idea of going through this is horrible. We each have different levels of tolerance, though, based on who we are now and our past. What I am trying to say and can't think of an easy way to say it, is that we are so much more than our breasts and that our survival should be top most on our list. I had wanted immediate reconstruction but our non-profit HMO denied it for the wrong reasons which I won't get into now. Although the initial shock of waking up boobless brought a tear or two--just a couple--I was ready to get on with whatever I could do to slay the beast (the cancer). It has been almost 3 years, and I am still boobless--although I don't think of myself that way. Unlike Lisa I was able to find the 'perfect' prostheses--or as good as they can be I suppose. They had just come out at the time of my surgery (after Lisa's). They were lighter in weight and had a silicone backing that molds to the shape of my skin. I wear them in regular bras--similar to what I wore before--soft underwire. I can wear almost anything without a problem--the only thing I am missing is cleavage which might affect some evening gowns if low cut. I have not had a problem finding formal wear that is a bit more conservative. I also need a slightly higher bathing suit (to which these fit in nicely) and that has not been a problem for me. Interestingly, I still experience pleasurable sensations in that area of my chest (without the boobs). I understand that one becomes numb in that area after surgery although don't know if it would be over the whole area. Immediate reconstruction may be a viable option for you but I would carefully discuss it with your oncologist and possibly get a second opinion. One of my colleagues who had been through this a few years earlier really helped me with my ability to accept the situation--"what's more imortant, my breast or my life"? P.S. I had the 'perfect' ones, too--in both shape and size... Interestingly, I lost weight right after my diagnosis---and being thinner made me feel better about my body than losing my breasts...just some food for thought. We are all different. I probably should add that at the time of my dx I had been married for almost 25 years to a great guy. If I were younger and single I don't know if I would have felt the same...
Xiugiami - 13 Jan 2004 22:36 GMT Thanks for your message Lisa.
Which option was the tram flap? Is that the Pedicled Tram or a Free Tram? Why is one better than the other?
How difficult was the tram flap? How long does it all take?
> >What is the best kind of reconstruction that I can get? > [quoted text clipped - 25 lines] > Take care. > ...lisa Lisasbucc - 14 Jan 2004 15:27 GMT Xiugiami asked:
>Which option was the tram flap? Is that the Pedicled Tram or a Free Tram? >Why is one better than the other? > >How difficult was the tram flap? How long does it all take? At the time of my surgery, the free tram flap was the only one available.
The actual surgery took about 10 hours. I was in the hospital for a week. On the third day after the procedure, I thought I was gonna die. I have NEVER experienced anything like that pain. Dr. Susan love says that afterwards you feel like a Mack truck had hit you and that's not far off the mark.
Because I had gotten my body in superior shape, I was back to work in three weeks (my job did not require anything more physical than typing on a keyboard). I think that Dr. Love mentioned that recovery could take a few months, so YMMV.
One interesting upshot is that my naval is no longer in the center of my body. You cannot tell from looking at it unless you're looking straight down as I do. But, yup, it's a bit off. Kind of makes me feel unique ;o)
Take care. ...lisa
Barb - 13 Jan 2004 21:34 GMT Hi, I'm sorry that your efforts to shrink the tumors didn't go as you'd planned, and I understand your desire to have a reconstructed breast at the time of your mastectomy. My experience isn't the same, as I waited about a year and a half to have my expander/saline implant done. I finished a year of chemo first and then did the reconstruction. I've had no particular problem with the implant and am really glad I had it done. Nipple reconstruction was a year after the initial surgery. I teach kindergarten, so I timed the surgeries to coincide with summer breaks. I wish you well with you mastectomy and with your reconstruction.
Best wishes, Barb
> What is the best kind of reconstruction that I can get? From what I > understand, the following three are the choices? Are there others? [quoted text clipped - 4 lines] > > - Free TRAM Kaye301 - 13 Jan 2004 21:51 GMT Xiugiami wrote: << What is the best kind of reconstruction that I can get? From what I understand, the following three are the choices? Are there others?
There is the DIEP tram which appears to be the least invasive in that the stomach muscle is not compromised. Here are some web site for info about it: http://www.diepflap.com/
http://www.google.co.uk/search?hl=en&ie=ISO-8859-1&q=diep+breast&btnG=Goog le+Search&meta=
List of plastic surgeons who do this procedure -- there may be more--this list is from a few mos. ago; it may update itself, though...
http://www.breast-reconstruction-options.com/pages/457664/index.htm
And if you'd like to discuss it with others who have had it here are some more sites:
http://bcsupport.org/ click on Surgery/reconstruction or go directly there: http://members3.boardhost.com/recon/
Alexandra Koffman - 13 Jan 2004 23:01 GMT I had an immediate reconstruction and when I work up it was really nice to wake up with 2 breasts. I was told that there was no reason to wait for immediate reconstruction and for me this was the way to go. I had chemo and no problem with the reconstruction. I am now thinking about have the "good" breast removed for preventive measures and will have an implant put in. I would go to a hospital and surgeon who preforms lots of reconstruction, and they will make recommendations per your body type..Alex
> Ok, so I've got the bad news. Chemo didn't reduce the 6 or 7 tumours well > enough to get a lumpectomy or two. I guess I was dreaming in techo-colour. [quoted text clipped - 12 lines] > > - Free TRAM Tony Lima - 15 Jan 2004 04:19 GMT >Ok, so I've got the bad news. Chemo didn't reduce the 6 or 7 tumours well >enough to get a lumpectomy or two. I guess I was dreaming in techo-colour. [quoted text clipped - 12 lines] > >- Free TRAM My wife was originally going to have a reconstruction. She had her right breast reduced at the same time she had her mastectomy. The plastic surgeon worked with her regular surgeon during the operation.
However, they would not do a reconstruction until they had determined what her next course of therapy would be. Therefore she had an expander put in. The therapy was long, difficult and continues today. The expander broke after about 9 months; we had the plastic surgeon remove it.
One way to make a prosthesis lighter is to have your remaining breast reduced. I have no idea whether this is an issue, but it's something I wanted to mention. My wife has a prosthesis that is not a problem for her. - Tony
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Xiugiami - 21 Jan 2004 01:45 GMT Excuse me for asking, but did she have larger breasts, Tony? I'm an average size, not large and not small. Would this make a difference?
I am pretty dismayed to find out that the most 'natural' looking reconstructions take not a tummy tuck, but muscle from my back or tummy. I thought they took fat, but apparently not. I don't want more scarring so I'm thinking silicone or saline implants. I wish I knew what would be best for me. Least scarring, most natural, less pain and recuperation time, and safest. Money doesn't matter as I'm Canadian. I'm just anxious to get this all over with.
Anne
> >Ok, so I've got the bad news. Chemo didn't reduce the 6 or 7 tumours well > >enough to get a lumpectomy or two. I guess I was dreaming in techo-colour. [quoted text clipped - 28 lines] > issue, but it's something I wanted to mention. My wife has > a prosthesis that is not a problem for her. - Tony Tony Lima - 21 Jan 2004 04:09 GMT Her breasts were large. You may decide a reduction is not for you. - Tony
>Excuse me for asking, but did she have larger breasts, Tony? >I'm an average size, not large and not small. Would this make a difference? [quoted text clipped - 42 lines] >> issue, but it's something I wanted to mention. My wife has >> a prosthesis that is not a problem for her. - Tony
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oxo - 21 Jan 2004 19:09 GMT hiya anne,
very sorry that you are facing such serious decisions at this time. i wish you all the very best in the weeks and months ahead.
fwiw, here's a little about my story: i had TRAM flap surgery in december of 01. the plastic surgery was performed at the same time as the mastectomy. the cancer surgeon used a "skin sparing" method of removing the breast and when i woke up it was just fantastic to look at my breast and see the same old familiar skin. the plastic surgeon spent 15 hours working on the reconstruction to get the best result. he also performed a reduction on the left breast---unfortunately, the healthy breast has to be either reduced or enlarged bec. it's impossible to make the new breast exactly like the old one. recouperating from the surgery took some time but in general was speedy and that winter i walked and walked and walked (first a block, then two, then four, etc.) before long, i was walking four miles a day and was back to work at the beginning of february.
the end result is pretty amazing. my breasts had been pretty big and made lots of things uncomfortable---running, playing tennis, walking past construction sites (in my young days, anyway!). i'm simply delighted with my new breasts now and a flat stomach to boot. yes, i do miss the stomach muscles sometimes (they need to take muscle to give the recon. breast some structure) but have adjusted to the change. perhaps there are one or two yoga poses i can't do (probably couldn't do them *with* the muscles either!) and some risk of hernia exists if you lift too much weight. the large scar that runs from hip to hip is remarkably faint. the bellybutton is a work of art! the reduced breast is fabulous. i understand that you can get some pretty terribly scarring with reduction surgery. the technicians who do my mammograms have all three of them *raved* about the work, saying they rarely see such a fine result.
i'd be more than happy to talk more about this topic, if i can be helpful. do hope i haven't gone on too long and bored you.
cheers and courage from siobhan in new york city
> Excuse me for asking, but did she have larger breasts, Tony? > I'm an average size, not large and not small. Would this make a difference? [quoted text clipped - 42 lines] > > issue, but it's something I wanted to mention. My wife has > > a prosthesis that is not a problem for her. - Tony
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