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Medical Forum / Diseases and Disorders / Breast Cancer / January 2004

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Port

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Xiugiami - 05 Jan 2004 23:23 GMT
Can someone help me with this problem?

I am scheduled for surgery for a port on Wednesday.
I'm not happy about it. I wasn't informed, etc.
I've heard that people have lots of problems with it. I had a picc line for
3 weeks and had plenty of problems with it so they won't give me another.

I really don't want a port. And I don't want chemo in my vein again as I'm
still experiencing problems from over 2 months ago.

Can you tell me about the port? Good points and bad?
Thanks :-)
Chris - 06 Jan 2004 00:27 GMT
Hi,

I didnt want a port either at all. I did, and still do have strong
feelings about it. I really pushed to avoid one for a lot longer than
probably made sense. So, given that, it hasnt been as bad as I thought.
For the most part, it is very easy to ignore. There was an initial
adjustment period of getting used to it, but now I ignore it. I found
getting chemo to be easier in some respects, since no one has to go hunt
for a vein. I find the initial stick of the port to be sharper though. I
think the skin there is more sensitive for me than the arm. There is
numbing cream that I need to get. I think it will easy enough to use
since I know exactly where the port it. I am not on chemo at the moment,
so I need to go in once a month to get the port flushed.That is really
about it. The only thing I had any trouble with was initially getting
it. It was unclear who was to check up on the healing, take out the
stitches, etc. I went back and forth between the hospital and the cancer
center.

Oh, and I was informed at by one hospital that it would make scans
easier. The other hospital told me that they would NOT use the port at
all because the CT scan contrast was injected at too high a pressure and
they didnt want anything to potentially hurt the port. I have not used
it for scans. That might be something that you want to get straight
right up front from the people who put it in.

Good luck!

Chris

In article
<YlmKb.4934$1g41.171@twister01.bloor.is.net.cable.rogers.com>,

> Can someone help me with this problem?
>
[quoted text clipped - 8 lines]
> Can you tell me about the port? Good points and bad?
> Thanks :-)
gabnet' - 06 Jan 2004 01:07 GMT
Hi:

I have a port for two and one half years.  IT is actually bet ter then
going through a vein and having arms similar to a druggy!  It is also
easier then having to go through being stabbed repeatedly through your
change of cycles.  I think the advantagae is for the port.  Although I
do not know anyone that wants to have chemo injected into their body, if
it must be, then lets get it the easiest most effecient way.

> Can someone help me with this problem?
>
[quoted text clipped - 8 lines]
> Can you tell me about the port? Good points and bad?
> Thanks :-)

Signature

Hugs,

Laura K.*
I'm out of estrogen and I have a gun!

Kaye301 - 06 Jan 2004 01:26 GMT
<< I really don't want a port. And I don't want chemo in my vein again as I'm
still experiencing problems from over 2 months ago.

Sorry to hear of the difficulties that you have been having.   Have you
explored alternative types of ports and/or pic lines?
Xiugiami - 06 Jan 2004 01:48 GMT
I have only had one Picc line, in the front of my elbow. It was in a small
vein. Apparently, I don't have good veins for them.

What types of Picc lines are there besides that kind?
What kind of ports are there? Can they put it anywhere else besides the pec
area of my chest, on the cancer-free breast?

> << I really don't want a port. And I don't want chemo in my vein again as I'm
> still experiencing problems from over 2 months ago.
>  >>
>
> Sorry to hear of the difficulties that you have been having.   Have you
> explored alternative types of ports and/or pic lines?
Kaye301 - 06 Jan 2004 15:20 GMT
Xiugiami wrote: << What types of Picc lines are there besides that kind?
What kind of ports are there? Can they put it anywhere else besides the pec
area of my chest, on the cancer-free breast?

I knew someone who had a pic line  in their leg--in the thigh  area.
Gulffritallary - 06 Jan 2004 04:16 GMT
>Can you tell me about the port? Good points and bad?
>Thanks :-)

I had a subcutaneous port (under the skin) and think it is better.  You can
take showers, swim without a problem.  Also, no tape, dressings to fool with.
(I'm allergic to a lot of tapes).  You will, however, get "stuck" everytime
they heparinize it, use it for blood draws or receive chemo.  I didn't consider
it to be particularly painful.  If I had to get another port, I would get an
under the skin one again.
Tony Lima - 06 Jan 2004 05:14 GMT
>Can someone help me with this problem?
>
[quoted text clipped - 8 lines]
>Can you tell me about the port? Good points and bad?
>Thanks :-)

My wife loves her port.  It is much more convenient and less
painful than jabbing for a vein.  However, be careful about
who accesses you.  If they don't have any experience with
ports, don't let them touch it.  Infection is a major
concern.  Proper accessing techniques will prevent infection
but it has to be done correctly (lots of betadine for
starters).

Don't fear the port.  From what you've said you should
welcome it! - Tony

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M Andrasco - 06 Jan 2004 06:53 GMT
I've always had problems with my veins and had no hesitation with getting a
port to solve this problem.  Both of the oncology nurses who facilitate my
breast cancer support group highly recommended them for those of us with
problem veins.  Finished with chemo now and until I have it removed I go in
once every 4-6 weeks to have it flushed.  Emla cream used beforehand takes the
sting out of the stick.  

Wouldn't hesitate to have one installed.  My only concern now is whether it
will show up on airport security screens.  Oh well, at least it's in an area
that can be seen modestly (one hopes).

Mary in Maryland
passedpast - 06 Jan 2004 13:02 GMT
> I've always had problems with my veins and had no hesitation with getting a
> port to solve this problem.  Both of the oncology nurses who facilitate my
[quoted text clipped - 8 lines]
>
> Mary in Maryland
After my wife's bc metastasized to her bones, she had a "portacath"
implanted due to having to receive monthly regimens of zometa.  She has had
the port for almost 4 years and it has not failed her.  She puts on a
special cream (I'm sorry for forgetting what it's called) to desensitize the
access area about an hour before her treatment.  She also takes a 1 mg daily
dose of coumadin to help lower the risk of the site of clotting.  Since she
gets a treatment of some sort each month, she does not have to have her's
flushed; you would have to have it flushed monthly if the site was not to be
accessed for a lengthy period of time to keep it patent.
The port has been greatly appreciated by my wife because she has what they
call "small veins" and the constant puncturing caused much pain and
bruising.  The only negative I can say about the port is it's appearance
during the summer months.  My wife is relatively lean and she was very
subconscious of the ports slight protrusion.  As much as I tried to dispel
her embarrassment, she would never wear anything but v-neck tops out of
home.
I vote for the port.  Good luck.
Kaye301 - 06 Jan 2004 15:29 GMT
I never had a port--wasn't offered it, although found I could have requested it
if I had wanted or they felt the need.  I have had 59 IV infusions which
include 4 AC, 4 taxanes along with weekly Herceptin for a year, and 3 Zometa
infusions.
I have found that my veins are now difficult to get blood from and occasionally
difficult to use to put contrast in for a procedure such as a scan with
contrast.  Usually,  my health care facility will call a nurse to come down for
that rather than using the lab tech.  They can only use the veins on my
non-lymphedema (right) side.  My veins didn't get bad until about a year and a
half after I finished chemo.  I am not quite sure why that happened, and from
what I've been told that is not the 'norm.'
I was wondering if anything might be able to be done to help them recover to a
more usable or easily accessible state?
Tony Lima - 06 Jan 2004 16:37 GMT
>  Emla cream used beforehand takes the
>sting out of the stick.  

Where can I buy this stuff?  Thanks! - Tony

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M Andrasco - 07 Jan 2004 06:07 GMT
Tony,

Emla cream is only available (in the US anyway) by prescription.

Mary
Xiugiami - 08 Jan 2004 03:38 GMT
Thanks everyone for your imput.

I get the port tomorrow. Not too happy about it, but I don't have any real
choice.

I also have chemo tomorrow. I usually get bad luck, so I'm imagining that
they won't actually be able to use the port tomorrow.

I bought some Emla cream. I didn't need a prescription here in Canada.

Thanks again!
Kaye301 - 08 Jan 2004 04:06 GMT
Xiugiami wrote: << I get the port tomorrow. Not too happy about it, but I don't
have any real
choice.

I also have chemo tomorrow >>

I hope that your luck is turning around and that tomorrow will be the beginning
of positve changes for you.  My best thoughts and prayers are with you on this
new and unchartered journey that you are about to take.  {{{Hugs}}}
Xiugiami - 08 Jan 2004 04:59 GMT
Thanks Kaye, that's very sweet of you.

It's my fifth chemo, and I've been doing well with that. I have been able to
eat Indian food the same day, and even went out dancing at my favourite
blues club. I've never had any nausea. I find that pretty amazing.

I'm sure it'll go okay. It's the 'not knowing' that gets to me.

> Xiugiami wrote: << I get the port tomorrow. Not too happy about it, but I don't
> have any real
[quoted text clipped - 5 lines]
> of positve changes for you.  My best thoughts and prayers are with you on this
> new and unchartered journey that you are about to take.  {{{Hugs}}}
 
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