From what the docs told me, few people fit the profile for these tests.
Most people who get breast cancer, don't have the exact family/genetic
genes, for which the docs are looking.
The doctors said that most people who get breast cancer now, have little
or no family history of it.
The genetic stuff seems a very small area of breast cancer research.
The docs said, that if you don't have a strong family background of
breast cancer, then they won't do the genetic testing, because it isn't
relevant, & because the govt & insurance companies won't pay for it.
Susan, Su_Texas my opinions
su-texas@webtv.net - 30 Dec 2003 21:44 GMT
Correction:
Most people who get breast cancer, don't have the exact family/genetic
genes, for which the docs are looking.
Should be: Most people who get breast cancer, don't have the exact
genetics, family genes, for which the docs are looking.
Susan, Su_Texas my opinions
PS I apologize for switching the words around sometimes. [Strokes]
I just had the simple blood test done two weeks ago and waiting for the
results. I have no family history of breast cancer. I was diagnosed in
March of 2000 and again in the other breast in March of 2003. The reason I
chose to pursue the genetic testing is my age and the possibility of ovarian
cancer. I was 29 when I was diagnosed in 2000 and with my age and two
cancers, my oncologist thinks I "may" have one of the BRCA genes. It was a
simple decision for me. If I test positive for one of the genes, I will
have my ovaries removed. The genetic counselor wanted to go deeper in to
having members of my family tested, but at this time they are not
interested. If I wasn't aware of the link between breast and ovarian cancer
and the BRCA genes, it probably would not had made any difference in my life
to know if I carry the gene. As a matter of fact, I struggled with the
decision of knowing because I have a daughter, and knowing that I could have
passed on the mutated gene is hard to live with. What it came down to for
me is the chance of ovarian cancer with my young age; I will do everything
medically possible to stay cancer free.
Amy
> Has anyone with BC had this test without extensive family history? What was
> your thinking in going forward? And if you did not go forward, why not?
>
> Deb
Kaye301 - 05 Jan 2004 21:09 GMT
Amy wrote: <<
decision of knowing because I have a daughter, and knowing that I could have
passed on the mutated gene is hard to live with. >>
Hi Amy, I understand your concern. I come from a very extensive history of
familial breast cancer--which includes not only my father's mother, but my mom
and her sister as well as 3 of their first cousins--all first cousins to each
other--one died at the age of 28, another died at the age of 31 and a male died
in his 40's. In addition, two of the cousins' moms died of breast cancer
(aunts to my mom and her sister). I still tested negative for all the known
breast cancers but all my dr's feel that something genetic is going on--and
that not all genes have yet been identified.
However, had my parents been aware of a gene--and whether or not I had it--I am
still glad I was born. I have 3 daughters. They have even more of an
increased risk because my husband's mom died of breast cancer. His first
cousin was dx'd with breast cancer and 10 years later with pancreatic cancer.
His aunt, also an aunt to above cousin, died of pancreatic cancer.
I would not have done anything differently had I know that I had the gene or
that my husband carried it. Hopefully, they will be careful anyway and take
all necessary precautions. I wouldn't be overly excited to learn that they did
have a positive breast cancer gene. However, at the same time, if one was
found it would diminish some of the guilt that I have regarding being able to
have done something differently. I would not have done anything differently
other than maybe having a prophylactic bilateral mastectomy after I finished
nursing my youngest child.
I did back in August of last year. I had this along with other testing
done for insurance purposes. I was tested at Medical College of Ohio.
The doctor I had is a professor at the facility. She's also head of the
Oncology Dept over there.
There's only a very small percentage that test positive, I think I read
something like 5%. I was told based on the family history of cancer
{none bc} that my chance of testing positive was around 16%. I tested
negative for this testing. I was glad I had it done for the sake of my
little grand daughter and her future health concerns.
Take care there/God bless
annie
Ultimately.....we know deeply that the other side of every fear is a
freedom.
"Courage"...is *fear* that has said it's prayers.