Medical Forum / Diseases and Disorders / Breast Cancer / March 2005
NORC?
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su-texas@webtv.net - 24 Dec 2003 16:03 GMT http://www.norc.uchicago.edu
Susan, Su_Texas my opinions
PS I'll read about this one later. I'm still groggy, weak & tired, from the bad reactions to Aromasin. And also very frightened, because I still can't find a doctor or cancer center, who'll help me get good bloodwork or care.
Kaye301 - 24 Dec 2003 23:57 GMT Su wrote: << And also very frightened, because I still can't find a doctor or cancer center, who'll help me get good bloodwork or care. >>
What type of bloodwork do you feel that is indicated at this time that you have not gotten?
J - 25 Dec 2003 00:07 GMT > Su wrote: << And also very frightened, because I still can't find a doctor > or cancer center, who'll help me get good > bloodwork or care. >> > > What type of bloodwork do you feel that is indicated at this time that you > have not gotten? spiroplasma & mycoplasma testing, about Gulf War Syndrome etc etc..(from her previous post) J
su-texas@webtv.net - 25 Dec 2003 16:55 GMT Hi J,
What I've been trying for, is any good bloodwork, esp. checking copper/zinc levels.
I've read that high copper levels = mets
The docs keep refusing to order any bloodwork or tests, except for the standard CBC.
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The mycoplasma & spiroplasma tests seem rather exotic, & I'm not seeking them right now.
They can show if the cancer, or other disease you've gotten, ... were govt-engineered/created (bioweapons), & then released into the general population as an experiment, to see how & where they'll spread. [The problem with developing bioweapons, is that moral-idiots like Bush get to control & use them. in any ways they want. And the military does too.] This test is used to detect the Gulf War Syndrome-type stuff, and can detect other diseases/disorders too.
Many months ago, I read about & then wrote some long posts about this subject. It's shocking & amazing stuff. I believe one post was titled: "Prisoners, Ticks, & the Baylor Dogs". ???
This is not the test I'm now seeking.
Susan, Su_Texas my opinions
J - 26 Dec 2003 11:21 GMT > What I've been trying for, is any good bloodwork, esp. checking > copper/zinc levels. I think UPS ships bloodwork to labs...I saw you mention Grand Smokies Labs..(Great Smokies?)
J
su-texas@webtv.net - 26 Dec 2003 16:23 GMT Hi J,
The molecular biology researcher (PhD, MD), whom I paid about $200 in Jan 2003 for a list of the exact bloodwork tests I need, uses http://www.gsdl.com Great Smokies Diagnostic Laboratory.
She only takes cash up-front, which I can't afford.
My insurance will pay for any bloodwork the doctors order, but the doctors won't order it. So far, it's a Catch-22/No-Win situation.
I have hope & will keep trying.
Susan, Su_Texas my opinions
Kris Wales - 26 Dec 2003 17:24 GMT Hi Sue,
Here is an online link that you can order an at-home testing kit. It tests your hair sample for copper levels, I haven't found one that tests your blood. I doubt that insurance will cover it, but perhaps next month you can afford to do it.
http://drguberman.com/athome.cfm
Good luck,
Kris
> Hi J, > [quoted text clipped - 5 lines] > The docs keep refusing to order any bloodwork or tests, except for the > standard CBC. su-texas@webtv.net - 26 Dec 2003 18:02 GMT Hi Kris,
I've read that the hair testing for minerals, isn't very good or reliable.
If I'm going to work very hard (in my current weak & exhausted state), to adjust my diet & take supplements, ... to take back control of my life & health, & to try to win the fight against cancer, ... then I want the very good blood testing, that can show exactly what I'm doing right or wrong.
During the next few weeks, I'm hoping to regain enough of my health, to be able to plan & control my diet now, to take supplements again, & to walk for exercise.
The estrogen-suppressing drugs made me feel deathly ill & weak, destroyed my quality of life & ability to care for myself, etc. These drugs (which I took for over a year) proved an extremely bad experience for me.
If these meds allowed the cancer to spread during this time, ... then I'll be extremely angry at the doctors, PHARMA companies, & govt, for their forcing this cr*p-care onto me, as being my only option for the treatment of cancer, ... for the doctors' repeatedly refusing me, all other options.
Susan, Su_Texas my opinions
Alex - 27 Dec 2003 02:59 GMT http://www.newmediaexplorer.org/chris/2003/11/16/do_your_own_zinc_level_testupda te.htm
From what I can see there is no reliable testing for minerals...Do you take a good multi vitamin...this would correct any defiency you may have. PS hope you had a Merry XMAS and Happy New Year. ALex
su-texas@webtv.net - 27 Dec 2003 17:55 GMT Hi Alex,
Mostly I'm interested in the copper test.
The NP might have given me some bad information, when she said the zinc test would show copper levels. ???
The test I'm interested in, seems to be called "serum copper".
Susan, Su_Texas my opinions
alexk - 28 Dec 2003 00:47 GMT http://www.aruplab.com/guides/clt/tests/clt_alp9.jsp
I had to dig to find this information...I can tell you in all my years of Nursing I can only recall one person being tested for copper so it must be very rare disorder. Alex
> Hi Alex, > [quoted text clipped - 6 lines] > > Susan, Su_Texas my opinions madiba - 28 Dec 2003 18:36 GMT > Hi J, > > What I've been trying for, is any good bloodwork, esp. checking > copper/zinc levels. > > I've read that high copper levels = mets No, high tumor markers = mets. Bet yours are normal..
> The docs keep refusing to order any bloodwork or tests, except for the > standard CBC. The health care system would be broke in 3 months if it complied with all the exotic wishes of its clients. Thats why there are MDs there to decide whats reasonable and whats er..... unusual..
> ----------- > > The mycoplasma & spiroplasma tests seem rather exotic, & I'm not seeking > them right now. <creepy stuff snipped> You need professional help, Susan..
 Signature madiba
J - 28 Dec 2003 20:41 GMT > > What I've been trying for, is any good bloodwork, esp. checking > > copper/zinc levels. > > > > I've read that high copper levels = mets > No, high tumor markers = mets. Bet yours are normal.. Would that be CEA and CA 15-3 ? (or is there a whole collection of markers that would be done?) and compared to each other/together? http://imaginis.com/breasthealth/metastatic.asp
su-texas, susan - 28 Dec 2003 23:02 GMT > > Hi J, > > [quoted text clipped - 15 lines] > <creepy stuff snipped> > You need professional help, Susan.. ============
Hi madiba,
You don't seem to know much about cancer care yet. For example, the tumor marker tests are extremely unreliable, for determining cancer & cancer spread.
If by "need professional help", you mean that I need a good cancer doctor who's into Integrative Medicine, then you're right, ... but I don't think you do.
I think you're trying to be insulting, in your own small, childish, & petty little way.
If you want to be see (& be) ugly, then go play with yourself in your mirror, kid.
Susan, Su_Texas my opinions
J - 29 Dec 2003 01:19 GMT > > > What I've been trying for, is any good bloodwork, esp. checking > > > copper/zinc levels. [quoted text clipped - 17 lines] > tumor marker tests are extremely unreliable, for determining cancer & > cancer spread. madiba is an experienced radiation oncologist who knows more about cancer than you , Sue. Have you always been this way? If not, perhaps both a neurologist and a psychiatrist working together, would be of some assist in sorting out what the problem(s) are. If yes, then a psychiatrist. Unfortunately, the cancer (if applicable) will continue. If you are NED, then get some professional help. If it is covered by your insurance, of course. My opinions. J
madiba - 29 Dec 2003 02:01 GMT > Hi madiba, > You don't seem to know much about cancer care yet. For example, the tumor > marker tests are extremely unreliable, for determining cancer & cancer > spread. They're the best we have and they beat the socks off copper levels in this respect.
> If by "need professional help", you mean that I need a good cancer doctor > who's into Integrative Medicine, then you're right, ... but I don't think > you do. I wonder why..
> I think you're trying to be insulting, in your own small, childish, & > petty little way. Believe me lady I'm being gentle. My professional opinion of your behaviour would leave you red-faced for a month.. Your continuous trashing of all texan MDs is monotonous, and unsettling to others who rely on their advice.
> If you want to be see (& be) ugly, then go play with yourself in your > mirror, kid. You're sick, so I forgive your insults. Yes, you've used up your politeness points too so now you'll have to go back to those horrid texan MDs (some of the best oncologists in the country BTW) for advice. Adios.
 Signature madiba
J - 29 Dec 2003 11:13 GMT > You're sick, so I forgive your insults. Perhaps multiple brain injuries? http://tinyurl.com/24bc3 http://tinyurl.com/345kx If so, here, nothing can be done unless the person seeks help (neurology? neurosurgery?), gets arrested for breaking the law and (in theory) assessed, or someone, who cares, gets them declared "a danger to themselves or to the public". Then they are (in theory) assessed in a psychiatric ward in hospital (for organic and psychiatric/psycological).
I suppose if she still has cancer, she could be declared "a danger to herself".
> Yes, you've used up your politeness points too so now you'll have to go > back to those horrid texan MDs (some of the best oncologists in the > country BTW) for advice. She's probably burned her bridges there, unfortunately. ( either they've not realized the above or gave up out of frustration, because it's not their specialty, because of her multiple problems and because of her bad-mouthing).
She's a "project". Hence why I suggested Dr. Phil. He's a "talk-show" host, in case you don't recognize. Some shows have short segments (with aftercare and followup). He does also "take on" difficult situations and follows them long-term, has access, the power/influence and the $$$ to get the person to the proper specialists, sometimes assists financially with practical issues, even surgeries if they are called for. And he's a Texan ! (but may now be in another State) J
J - 29 Dec 2003 11:14 GMT > She's a "project". Hence why I suggested Dr. Phil. > He's a "talk-show" host, and psychologist
> in case you don't recognize. Some shows have short > segments (with aftercare and followup). He does also "take on" difficult [quoted text clipped - 3 lines] > (but may now be in another State) > J su-texas@webtv.net - 29 Dec 2003 16:33 GMT From: ZitkalaSa@example.org (J)
madiba wrote:
You're sick, so I forgive your insults.
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Perhaps multiple brain injuries? http://tinyurl.com/24bc3 http://tinyurl.com/345kx If so, here, nothing can be done unless the person seeks help (neurology? neurosurgery?), gets arrested for breaking the law and (in theory) assessed, or someone, who cares, gets them declared "a danger to themselves or to the public".
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Su_Texas writes:
J, madiba is way off base, & what you've just written is very cruel & insulting.
You've skipped over the important points of what I've written, & jumped right to: "Let's just negative-label Susan, call her a liar, & harm her all we can too."
Can't you see how wrong this is?
I've seen neurologists. Most refuse to work, refuse to help injured people. One assaulted me. This did Nothing good, but I have kept looking for a good Neurologist. Do you know of one in Texas?
I consulted a neurosurgeon about the injuries. He said that on the MRIs, my brain looked very healthy, & that there was nothing he could do to help with the injuries.
J, I hope that when you're deliberately & severely injured, have third-stage cancer, are living in horrible conditions, & have no enforceable legal rights or protection, ... that no one acts this b*tt-ugly ignorant & arrogant, determinedly-dumb, cold & cruel to you.
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Then they are (in theory) assessed in a psychiatric ward in hospital (for organic and psychiatric/psychological).
I suppose if she still has cancer, she could be declared "a danger to herself".
madiba wrote:
Yes, you've used up your politeness points too so now you'll have to go back to those horrid texan MDs (some of the best oncologists in the country BTW) for advice.
J wrote:
She's probably burned her bridges there, unfortunately. ( either they've not realized the above or gave up out of frustration, because it's not their specialty, because of her multiple problems and because of her bad-mouthing).
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Su_Texas wrote:
I got a psychiatric evaluation in April 1998, which said I have no mental illness, no need for drugs, ... which I already knew.
While I have been in severe abuse, & sought help & counselling for that, .. I've never had a mental illness.
J, what makes you so incapable of facing or dealing with this, with reality & the truth? What is making you act so flighty & flippant? So off-base, off-center? What's wrong with you?
When you (or anyone else) acts ugly to me on newsgroups, I do have the right to confront you & ask why. To tell you "you're full of it", & warn you to back off.
When I'm asking the doctors for help, I'm very nice & polite to them, very respectful, logical & practical. However, weeks or months later, when I recover some from their refusing me care and/or doing harm, then I'll start to scream in writing. It's part of the grieving process. It's a normal reaction to sadistic crimes & meanness, esp. those which threaten my physical health & ability to survive, ... to those which cause me extreme physical pain & suffering, & loss of function.
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J wrote:
She's a "project". Hence why I suggested Dr. Phil. He's a "talk-show" host, in case you don't recognize. Some shows have short segments (with aftercare and followup). He does also "take on" difficult situations and follows them long-term, has access, the power/influence and the $$$ to get the person to the proper specialists, sometimes assists financially with practical issues, even surgeries if they are called for. And he's a Texan ! (but may now be in another State) J
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Su_Texas wrote:
There are so many people here in Texas, that need help in finding medical care for injuries & cancer, ... that I somehow doubt Dr. Phil could help us with this at all. I also doubt he's willing to pay for lawyers to help us.
What you're saying makes no sense, J. What you're choosing to do here, is not only harmful, but very bad/ugly behavior.
While I realize that you have a tendency (at times) to fly off on tangents, ... to be overly-supportive of standard cancer-care, & to reject other forms of cancer care (integrative, alternative), ... & to verbally attack & slander those who disagree with you, ... I'm hoping you will make better choices in the future.
I do not appreciate being verbally-attacked like this by you. I do not appreciate your taking what's happened to me, & applying your sick & twisted fantasies to it.
In the past, I've tried to ignore this, because you do settle down eventually, will post some useful information about cancer care, & will act supportive & caring.
But right now, you're acting very out-of-control & mean. What you're doing is wrong.
Susan, Su_Texas my opinions
PS Integrative Cancer Care
While the chemotherapy & radiation might offer some benefits (I don't know enough to judge this yet), ... the estrogen-blocking drugs super-didn't work for me, & seem to have done a lot of harm.
Now, I need to come up with a good game plan, for fighting this cancer, since the standard cancer-care is over. The standard care has caused some additional health problems, & has Not seemed to work well.
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No matter how many people tell me to "Give up & not try", I refuse to follow this bad advice.
While I understand, that it can seriously upset the medical industry & their backers, ... for people to seek other treatments & care for cancer, after the standard treatments are finished, ... it should be a patient's right to do so.
No matter how many times I'm verbally-attacked, I will keep trying to find ways to better fight this cancer.
I will have hope & keep trying.
shaz - 27 Mar 2005 00:39 GMT Hey Susan, You shouldn't feel the need to justify your illness to anybody. Don't get drawn into slanging matches on here. I would've thought people with genuine illness such as yourself, would have more to worry about than getting involved with this trashy bitchiness? Don't let them get to you! The best way is to ignore them and pretend that they're not even there.
By writing this post, i'm not getting involved with all this silly tit for tat slanging of each other. I am just sticking up for poor Su. As I don't like to see anyone being picked on in this way.
Take care,
Shaz x
> From: ZitkalaSa@example.org (J) > [quoted text clipped - 149 lines] > > I will have hope & keep trying. su-texas@webtv.net - 29 Dec 2003 15:10 GMT Adios to you too, madiba.
What you've shown to me are ignorance & arrogance, a failure to recognize the truth & to deal with reality, ... a need to be ugly to, to negatively label, & try to harm other people, ... & a need to protect the medical industry, of which you're a part.
With verbal attacks, you want to silence any dissenting voices, that is, to silence the bad experiences of others, those who have different views & experiences than your own.
[This is a common bad game, that many people play. It's for self-benefit & protection, & is also indicative of one's having an "undivided mind", ... an inability to hold conflicting ideas, & decide between them, ... that is, the ability to choose the good points in each idea.]
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As far as psychiatrists go, their job is to dispense drugs, ... bad drugs that do serious harm to people, that rob them of the $$$ they need to survive, & that sicken & silence them (aka chemical lobotomies).
Most psychs do Not know about abuse, developing life skills, where the good medical care is, ... what to do when the govt systems fail, when you are being harmed & can't get legal help or protection, ... how to survive in horrible living conditions & in danger, etc.
They're only trained to negatively-label people, & to use this to dispense bad drugs, which rob people of their health & $$$, & which harm.
They don't have anything to offer that I need or want. They drug people down & out, so they'll suffer to death horribly that way.
If You want to be drugged like that, then why don't You see a psychiatrist? Although I doubt they could do you much "good". [Drugs don't work at all, for narcissistic & antisocial moral disorders, because these are a choice.]
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Your advice isn't practical or logical. It makes no sense.
The fact that you're acting determinedly-dumb, saying ugly & harmful things to others, ... refusing to acknowledge their bad experiences with current cancer care, ... helps no one.
Susan, Su_Texas my opinions
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