Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Breast Cancer / March 2005

Tip: Looking for answers? Try searching our database.

NORC?

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
su-texas@webtv.net - 24 Dec 2003 16:03 GMT
http://www.norc.uchicago.edu

Susan, Su_Texas  my opinions

PS  I'll read about this one later.  I'm still groggy, weak & tired,
from the bad reactions to Aromasin.  And also very frightened, because I
still can't find a doctor or cancer center, who'll help me get good
bloodwork or care.
Kaye301 - 24 Dec 2003 23:57 GMT
Su wrote: <<  And also very frightened, because I
still can't find a doctor or cancer center, who'll help me get good
bloodwork or care. >>

What  type of bloodwork do you feel that is indicated at this time that you
have not gotten?
J - 25 Dec 2003 00:07 GMT
> Su wrote: <<  And also very frightened, because I still can't find a doctor
> or cancer center, who'll help me get good
> bloodwork or care. >>
>
> What  type of bloodwork do you feel that is indicated at this time that you
> have not gotten?

spiroplasma & mycoplasma testing, about Gulf War Syndrome etc etc..(from her
previous post)
J
su-texas@webtv.net - 25 Dec 2003 16:55 GMT
Hi J,

What I've been trying for, is any good bloodwork, esp. checking
copper/zinc levels.

I've read that high copper levels = mets

The docs keep refusing to order any bloodwork or tests, except for the
standard CBC.

-----------

The mycoplasma & spiroplasma tests seem rather exotic, & I'm not seeking
them right now.  

They can show if the cancer, or other disease you've gotten, ... were
govt-engineered/created (bioweapons), & then released into the general
population as an experiment, to see how & where they'll spread.  [The
problem with developing bioweapons, is that moral-idiots like Bush get
to control & use them. in any ways they want.  And the military does
too.]
 
This test is used to detect the Gulf War Syndrome-type stuff, and can
detect other diseases/disorders too.

Many months ago, I read about & then wrote some long posts about this
subject.  It's shocking & amazing stuff.  I believe one post was titled:
"Prisoners, Ticks, & the Baylor Dogs".  ???

This is not the test I'm now seeking.

Susan, Su_Texas  my opinions
J - 26 Dec 2003 11:21 GMT
> What I've been trying for, is any good bloodwork, esp. checking
> copper/zinc levels.

I think UPS ships bloodwork to labs...I saw you mention Grand Smokies
Labs..(Great Smokies?)

J
su-texas@webtv.net - 26 Dec 2003 16:23 GMT
Hi J,

The molecular biology researcher (PhD, MD), whom I paid about $200 in
Jan 2003 for a list of the exact bloodwork tests I need, uses
http://www.gsdl.com  Great Smokies Diagnostic Laboratory.

She only takes cash up-front, which I can't afford.

My insurance will pay for any bloodwork the doctors order, but the
doctors won't order it.  So far, it's a Catch-22/No-Win situation.

I have hope & will keep trying.

Susan, Su_Texas  my opinions
Kris Wales - 26 Dec 2003 17:24 GMT
Hi Sue,

Here is an online link that you can order an at-home testing kit.  It
tests your hair sample for copper levels, I haven't found one that
tests your blood. I doubt that insurance will cover it, but perhaps
next month you can afford to do it.

http://drguberman.com/athome.cfm

Good luck,

Kris

> Hi J,
>
[quoted text clipped - 5 lines]
> The docs keep refusing to order any bloodwork or tests, except for the
> standard CBC.
su-texas@webtv.net - 26 Dec 2003 18:02 GMT
Hi Kris,

I've read that the hair testing for minerals, isn't very good or
reliable.

If I'm going to work very hard (in my current weak & exhausted state),
to adjust my diet & take supplements, ... to take back control of my
life & health, & to try to win the fight against cancer, ... then I want
the very good blood testing, that can show exactly what I'm doing right
or wrong.

During the next few weeks, I'm hoping to regain enough of my health, to
be able to plan & control my diet now, to take supplements again, & to
walk for exercise.  

The estrogen-suppressing drugs made me feel deathly ill & weak,
destroyed my quality of life & ability to care for myself, etc.  These
drugs (which I took for over a year) proved an extremely bad experience
for me.  

If these meds allowed the cancer to spread during this time, ... then
I'll be extremely angry at the doctors, PHARMA companies, & govt, for
their forcing this cr*p-care onto me, as being my only option for the
treatment of cancer, ... for the doctors' repeatedly refusing me, all
other options.

Susan, Su_Texas  my opinions
Alex - 27 Dec 2003 02:59 GMT
http://www.newmediaexplorer.org/chris/2003/11/16/do_your_own_zinc_level_testupda
te.htm


From what I can see there is no reliable testing for minerals...Do you
take a good multi vitamin...this would correct any defiency you may
have. PS hope you had a Merry XMAS and Happy New Year. ALex
su-texas@webtv.net - 27 Dec 2003 17:55 GMT
Hi Alex,

Mostly I'm interested in the copper test.

The NP might have given me some bad information, when she said the zinc
test would show copper levels.  ???

The test I'm interested in, seems to be called "serum copper".

Susan, Su_Texas  my opinions
alexk - 28 Dec 2003 00:47 GMT
http://www.aruplab.com/guides/clt/tests/clt_alp9.jsp

I had to dig to find this information...I can tell you in all my years of
Nursing I can only recall one person being tested for copper so it must be
very rare disorder.
Alex
> Hi Alex,
>
[quoted text clipped - 6 lines]
>
> Susan, Su_Texas  my opinions
madiba - 28 Dec 2003 18:36 GMT
> Hi J,
>
> What I've been trying for, is any good bloodwork, esp. checking
> copper/zinc levels.
>
> I've read that high copper levels = mets
No, high tumor markers = mets.  Bet yours are normal..

> The docs keep refusing to order any bloodwork or tests, except for the
> standard CBC.
The health care system would be broke in 3 months if it complied with
all the exotic wishes of its clients. Thats why there are MDs there to
decide whats reasonable and whats er..... unusual..
> -----------
>
> The mycoplasma & spiroplasma tests seem rather exotic, & I'm not seeking
> them right now.
<creepy stuff snipped>
You need professional help, Susan..
Signature

madiba

J - 28 Dec 2003 20:41 GMT
> > What I've been trying for, is any good bloodwork, esp. checking
> > copper/zinc levels.
> >
> > I've read that high copper levels = mets
> No, high tumor markers = mets.  Bet yours are normal..

Would that be CEA and CA 15-3 ? (or is there a whole collection of markers
that would be done?) and compared to each other/together?
http://imaginis.com/breasthealth/metastatic.asp
su-texas, susan - 28 Dec 2003 23:02 GMT
> > Hi J,
> >
[quoted text clipped - 15 lines]
> <creepy stuff snipped>
> You need professional help, Susan..

============

Hi madiba,

You don't seem to know much about cancer care yet.  For example, the
tumor marker tests are extremely unreliable, for determining cancer &
cancer spread.

If by "need professional help", you mean that I need a good cancer
doctor who's into Integrative Medicine, then you're right, ... but I
don't think you do.

I think you're trying to be insulting, in your own small, childish, &
petty little way.

If you want to be see (& be) ugly, then go play with yourself in your
mirror, kid.

Susan, Su_Texas  my opinions
J - 29 Dec 2003 01:19 GMT
> > > What I've been trying for, is any good bloodwork, esp. checking
> > > copper/zinc levels.
[quoted text clipped - 17 lines]
> tumor marker tests are extremely unreliable, for determining cancer &
> cancer spread.

madiba is an experienced radiation oncologist who knows more about cancer than you , Sue.
Have you always been this way?
If not, perhaps both a neurologist and a psychiatrist working together, would be of some assist in
sorting out what the problem(s) are. If yes, then a psychiatrist. Unfortunately, the cancer (if
applicable) will continue.
If you are NED, then get some professional help.  If it is covered by your insurance, of course.
My opinions.
J
madiba - 29 Dec 2003 02:01 GMT
> Hi madiba,
> You don't seem to know much about cancer care yet.  For example, the tumor
> marker tests are extremely unreliable, for determining cancer & cancer
> spread.
They're the best we have and they beat the socks off copper levels in
this respect.
> If by "need professional help", you mean that I need a good cancer doctor
> who's into Integrative Medicine, then you're right, ... but I don't think
> you do.
I wonder why..

> I think you're trying to be insulting, in your own small, childish, &
> petty little way.
Believe me lady I'm being gentle. My professional opinion of your
behaviour would leave you red-faced for a month.. Your continuous
trashing of all texan MDs is monotonous, and unsettling to others who
rely on their advice.

> If you want to be see (& be) ugly, then go play with yourself in your
> mirror, kid.
You're sick, so I forgive your insults.
Yes, you've used up your politeness points too so now you'll have to go
back to those horrid texan MDs (some of the best oncologists in the
country BTW) for advice. Adios.
Signature

madiba

J - 29 Dec 2003 11:13 GMT
> You're sick, so I forgive your insults.

Perhaps multiple brain injuries?
http://tinyurl.com/24bc3
http://tinyurl.com/345kx
If so, here, nothing can be done unless the person seeks help (neurology?
neurosurgery?), gets arrested for breaking the law and  (in theory) assessed, or
someone, who cares, gets them declared "a danger to themselves or to the
public".
Then they are (in theory) assessed in a psychiatric ward in hospital (for
organic and psychiatric/psycological).

I suppose if she still has cancer, she could be declared "a danger to herself".

> Yes, you've used up your politeness points too so now you'll have to go
> back to those horrid texan MDs (some of the best oncologists in the
> country BTW) for advice.

She's probably burned her bridges there, unfortunately. ( either they've not
realized the above or gave up out of frustration, because it's not their
specialty, because of her multiple problems and because of her bad-mouthing).

She's a "project". Hence why I suggested Dr. Phil.
He's a "talk-show" host, in case you don't recognize. Some shows have short
segments (with aftercare and followup). He does also "take on" difficult
situations and follows them long-term, has access, the power/influence and the
$$$ to get the person to the proper specialists, sometimes assists financially
with practical issues, even surgeries if they are called for. And he's a Texan !
(but may now be in another State)
J
J - 29 Dec 2003 11:14 GMT
> She's a "project". Hence why I suggested Dr. Phil.
> He's a "talk-show" host,

and psychologist

> in case you don't recognize. Some shows have short
> segments (with aftercare and followup). He does also "take on" difficult
[quoted text clipped - 3 lines]
> (but may now be in another State)
> J
su-texas@webtv.net - 29 Dec 2003 16:33 GMT
From: ZitkalaSa@example.org (J)

madiba wrote:

You're sick, so I forgive your insults.

---------------

Perhaps multiple brain injuries?
http://tinyurl.com/24bc3
http://tinyurl.com/345kx
If so, here, nothing can be done unless the person seeks help
(neurology? neurosurgery?), gets arrested for breaking the law and (in
theory) assessed, or someone, who cares, gets them declared "a danger to
themselves or to the public".

-----------------

Su_Texas writes:

J, madiba is way off base, & what you've just written is very cruel &
insulting.

You've skipped over the important points of what I've written, & jumped
right to:  "Let's just negative-label Susan, call her a liar, & harm her
all we can too."

Can't you see how wrong this is?

I've seen neurologists.  Most refuse to work, refuse to help injured
people.  One assaulted me.  This did Nothing good, but I have kept
looking for a good Neurologist.  Do you know of one in Texas?

I consulted a neurosurgeon about the injuries.  He said that on the
MRIs, my brain looked very healthy, & that there was nothing he could do
to help with the injuries.

J, I hope that when you're deliberately & severely injured, have
third-stage cancer, are living in horrible conditions, & have no
enforceable legal rights or protection, ... that no one acts this
b*tt-ugly ignorant & arrogant, determinedly-dumb, cold & cruel to you.

------------------

Then they are (in theory) assessed in a psychiatric ward in hospital
(for organic and psychiatric/psychological).

I suppose if she still has cancer, she could be declared "a danger to
herself".

madiba wrote:  

Yes, you've used up your politeness points too so now you'll have to go
back to those horrid texan MDs (some of the best oncologists in the
country BTW) for advice.

J wrote:  

She's probably burned her bridges there, unfortunately. ( either they've
not realized the above or gave up out of frustration, because it's not
their specialty, because of her multiple problems and because of her
bad-mouthing).

------------

Su_Texas wrote:

I got a psychiatric evaluation in April 1998, which said I have no
mental illness, no need for drugs, ... which I already knew.

While I have been in severe abuse, & sought help & counselling for that,
.. I've never had a mental illness.  

J, what makes you so incapable of facing or dealing with this, with
reality & the truth?  What is making you act so flighty & flippant?  So
off-base, off-center?  What's wrong with you?

When you (or anyone else) acts ugly to me on newsgroups, I do have the
right to confront you & ask why. To tell you "you're full of it", & warn
you to back off.

When I'm asking the doctors for help, I'm very nice & polite to them,
very respectful, logical & practical.  However, weeks or months later,
when I recover some from their refusing me care and/or doing harm, then
I'll start to scream in writing.  It's part of the grieving process.
It's a normal reaction to sadistic crimes & meanness, esp. those which
threaten my physical health & ability to survive, ... to those which
cause me extreme physical pain & suffering, & loss of function.

------------

J wrote:  

She's a "project". Hence why I suggested Dr. Phil. He's a "talk-show"
host, in case you don't recognize. Some shows have short segments (with
aftercare and followup). He does also "take on" difficult situations and
follows them long-term, has access, the power/influence and the $$$ to
get the person to the proper specialists, sometimes assists financially
with practical issues, even surgeries if they are called for. And he's a
Texan ! (but may now be in another State)
J

--------------

Su_Texas wrote:

There are so many people here in Texas, that need help in finding
medical care for injuries & cancer, ... that I somehow doubt Dr. Phil
could help us with this at all.  I also doubt he's willing to pay for
lawyers to help us.

What you're saying makes no sense, J.  What you're choosing to do here,
is not only harmful, but very bad/ugly behavior.

While I realize that you have a tendency (at times) to fly off on
tangents, ... to be overly-supportive of standard cancer-care, & to
reject other forms of cancer care (integrative, alternative), ... & to
verbally attack & slander those who disagree with you, ... I'm hoping
you will make better choices in the future.

I do not appreciate being verbally-attacked like this by you.  I do not
appreciate your taking what's happened to me, & applying your sick &
twisted fantasies to it.

In the past, I've tried to ignore this, because you do settle down
eventually, will post some useful information about cancer care, & will
act supportive & caring.  

But right now, you're acting very out-of-control & mean.  What you're
doing is wrong.

Susan, Su_Texas  my opinions

PS  Integrative Cancer Care

While the chemotherapy & radiation might offer some benefits (I don't
know enough to judge this yet), ... the estrogen-blocking drugs
super-didn't work for me, & seem to have done a lot of harm.

Now, I need to come up with a good game plan, for fighting this cancer,
since the standard cancer-care is over.  The standard care has caused
some additional health problems, & has Not seemed to work well.

-----------

No matter how many people tell me to "Give up & not try", I refuse to
follow this bad advice.

While I understand, that it can seriously upset the medical industry &
their backers, ... for people to seek other treatments & care for
cancer, after the standard treatments are finished, ... it should be a
patient's right to do so.

No matter how many times I'm verbally-attacked, I will keep trying to
find ways to better fight this cancer.

I will have hope & keep trying.
shaz - 27 Mar 2005 00:39 GMT
Hey Susan,
You shouldn't feel the need to justify your illness to anybody. Don't get
drawn into slanging matches on here. I would've thought people with genuine
illness such as yourself, would have more to worry about than getting
involved with this trashy bitchiness? Don't let them get to you! The best
way is to ignore them and pretend that they're not even there.

By writing this post, i'm not getting involved with all this silly tit for
tat slanging of each other. I am just sticking up for poor Su. As I don't
like to see anyone being picked on in this way.

Take care,

Shaz x
> From: ZitkalaSa@example.org (J)
>
[quoted text clipped - 149 lines]
>
> I will have hope & keep trying.
su-texas@webtv.net - 29 Dec 2003 15:10 GMT
Adios to you too, madiba.

What you've shown to me are ignorance & arrogance, a failure to
recognize the truth & to deal with reality, ... a need to be ugly to, to
negatively label, & try to harm other people, ... & a need to protect
the medical industry, of which you're a part.

With verbal attacks, you want to silence any dissenting voices, that is,
to silence the bad experiences of others, those who have different views
& experiences than your own.  

[This is a common bad game, that many people play.  It's for
self-benefit & protection, & is also indicative of one's having an
"undivided mind", ... an inability to hold conflicting ideas, & decide
between them, ... that is, the ability to choose the good points in each
idea.]

-----------

As far as psychiatrists go, their job is to dispense drugs, ... bad
drugs that do serious harm to people, that rob them of the $$$ they need
to survive, & that sicken & silence them (aka chemical lobotomies).  

Most psychs do Not know about abuse, developing life skills, where the
good medical care is, ... what to do when the govt systems fail, when
you are being harmed & can't get legal help or protection, ... how to
survive in horrible living conditions & in danger, etc.  

They're only trained to negatively-label people, & to use this to
dispense bad drugs, which rob people of their health & $$$, & which
harm.  

They don't have anything to offer that I need or want.  They drug people
down & out, so they'll suffer to death horribly that way.

If You want to be drugged like that, then why don't You see a
psychiatrist?  Although I doubt they could do you much "good".  [Drugs
don't work at all, for narcissistic & antisocial moral disorders,
because these are a choice.]

------------

Your advice isn't practical or logical.  It makes no sense.  

The fact that you're acting determinedly-dumb, saying ugly & harmful
things to others, ... refusing to acknowledge their bad experiences with
current cancer care, ... helps no one.  

Susan, Su_Texas  my opinions
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.