Since the botched mastectomy in April 2003 (at Baylor/Methodist in
Houston), I've had yeast infection on the skin.
At that time, the yeast & other infections were treated for months. The
yeast infection became less, but never completely cleared up. And now
there's a major flare-up, starting from the surgery site, & going up the
back of my shoulder.
Yesterday, the nurse practitioner prescribed some cream which I bought
from the pharmacy.
ALPHARMA "Nystatin and Triamcinolone crm fou", substituted for Mycolog
II Cream SQU. Each gram contains Nystatin 100,000 units &
Triamcinolone Acetonide 1 mg in an aqueous, perfumed, vanishing cream
base. "to treat certain fungal infections of the skin"
Susan, Su_Texas my opinions
PS The Ongoing Horrors of the Cancer Non-Care System in Texas
For me, cancer "care" is an ongoing nightmare now.
I can't get good bloodwork or good diagnostic testing. All they'll do
is the standard CBC (CVC?) bloodwork & CAT scans, which seem to be of so
little value in treating Cancer.
I can't get care for the lymphedema, because I don't have the $10 or so
gas money that it would cost every day, to drive to Longview or
Shreveport for treatments. [I've excellent insurance that pays 100% for
the treatments, but no way to get there for them.]
Plus, I can't get good medical care or testing for the many spine & body
injuries, ... or for the all additional physical problems, that the
lousy cancer care & botched cancer surgeries, have now caused.
Plus, the anti-estrogen drugs like Arimidex & Femara, are enough to
completely shut your system down for five years. [While you might can
survive during that time (if you work very hard at it), you can't call
it "living", nor is there any quality of life.]
Please choose to avoid Texas & Louisiana, when seeking medical care.
--------------
Bad Appt, Bad Times
Talking to the nurse practitioner yesterday (Wednesday) was very tough,
because she was in her determinedly-dumbed-down mode, & was playing bad
games, ... such as, "why not see a psychiatrist, veg-out, give up on
getting good medical care, ... [& thereby, suffer to death horribly in
that way, ... sickened & weakened by bad drugs, & financially bankrupted
by the expense of them], ... rather than fight & struggle like you are?"
Dumb! So mean, cold, & cruel.
I had to explain it to her repeatedly, that this would be a very dumb &
self-destructive thing to do, ... that I'd already been tricked/conned
into doing this in the past (when I was desperately seeking abuse
counseling only), ... that the results were disastrous & had robbed me
of my health & life for years, ... & that I considered this "treatment"
to be a very ugly form of premeditated, cold-blooded attempted-murder &
murder, on the part of the bad docs & nurses who try to force this
option on their patients, as being the only one.
It's selling bad products, which are not only completely irrelevant to
what the patient has asked for & needs, but which are also very harmful
& destructive.
I explained, that if you don't have a mental illness, then there's no
reason to see a psychiatrist, ... or to take bad, expensive, &
destructive drugs.
I said, that if the psychiatrist had any skills at all, in helping me
find good medical care for injuries & cancer, good legal help, good govt
agencies that work, etc., then I would see one, ... but that I would Not
buy into the bad drugs & vegging-out things.
Still, the nurse played determinedly dumb & kept repeating it, saying
basically: "Cancer patients see psychiatrists. Cancer patients get
drugs. Cancer patients veg-out & die. Why won't you? Abuse victims
see psychiatrists. Abuse victims get drugs. Abuse victims veg-out &
die. Why won't you?" ???
------------
When The Help's Not There
Or she'd say: "there is so much help, but you just can't or won't see
it or find it?"
How dumb! I've worked very hard to find help here, over & over, & there
never is any. None! She refused to hear or remember that. Plus, she
knows of no help herself. ???
---------------
The "Suffer More", "Suffer Some More" Syndrome, "Give Up, Don't Try"
Or "why not just give up whatever you have left (such as the puppies),
give up all you have? why fight? why try?" Basically, you haven't
suffered enough, so suffer some more.
I've been told to "give up & not try" since I was born, ... but I've
refused to hear it.
-------------
Denial & Blame Games
Or "why don't you do more? why don't you try harder?"
Also, she was questioning almost everything I said, & saying it wasn't
so.
Like, I said: "The infections from the surgery still haven't cleared
up, & are now running from the breast area up my shoulder.", ... to
which she replied: "No, that's not right. The puppies are causing the
infections, by scratching you sometimes." ???
While pet scratches might cause some skin infections, these were caused
by the surgery, & have never completely cleared up.
I'd say: "the remaining half or third of the large breast." She'd say:
"the breast isn't there. that's just a little tissue. the surgeon did
a good job." ???
Finally I said: "I plan to put a picture of this on the internet, once
I learn how, & to post the doctor's name with it, ... in order to help
other women avoid being mutilated & harmed like this. Harmed this
badly." At which point, the nurse suddenly looked scared.
----------------
Bad Docs & Medical Propaganda/BS
She also cited that it was OK for doctors Not to work & for them to harm
us, because of all the lawsuits we bring. And she smiled.
So I explained to her again that this is fiction/propaganda, ... because
the legal system has been fixed/rigged for some time, so that we can't
bring lawsuits, no matter how badly the doctors act or how badly they
harm us. And I asked if she saw anyone getting any payouts from
lawsuits. No, she didn't.
Yesterday, she acted liked she'd just re-read & memorized the propaganda
handbook, ... & needed to repeat every line of it, ... to be this
ever-eager-enforcer of harm-filled BS, & to say it was OK. So
determinedly-dumbed-down!
-------------
No Help
She kept saying that even though there was lots of poverty here, the
people were still kind, caring, & helpful, ,,,, & she couldn't
understand why I couldn't find help, couldn't get help from them.
[Denial & Blame game]
I re-explained that even though I helped other people often, that most
people were basically selfish, & would not repay the kindness. They
would stay angry & resentful, greedy & grabbing, & feel entitled to
take, harm, destroy.
The constant, meanness, crimes, poverty, ... the failed legal, medical,
& govt systems here, ... the lack of protection or fairness, ... seem to
have completely overwhelmed almost everyone.
[There seem to be intense efforts to make & keep the people here,
determinedly-dumb & emotional, amoral/criminal & desperate, ... &
thereby, easier for politicians to influence & control. ???]
Many people can't get any medical care, & they are very angry &
resentful that I (or anyone else) get some.
Also, people are angry & resentful that I come from a wealthy family,
.. even though I never got to enjoy the wealth, was treated as the
family's victim, ... was starved, isolated, abused & tortured as a
child.
Some people want to blame & harm the children of the wealthy,
irregardless. They'll look for the "weakest link", the child or adult
with no protection & who's been/being abused, & then they'll attack &
attack.
Also, anyone who helps me, risks facing my family's anger & pay-backs.
They are wealthy & socially powerful.
Also, abuse is a gift that keeps on giving. So, abusers constantly
trigger-on & keep coming after me. [While I've worked hard to develop
many skills for defending myself, it is exhausting & time-consuming to
(verbally, & sometimes physically) fight each of them off, each time].
To which the nurse kept replying: "I can't see why you can't get help
here, why you can't find it."
----------------
She spoke of LSU, & how one child got good care in the burn unit there,
.. & tried to use that to discredit (to not believe) any of the bad
things that happened to me there, ... which is determined-dumbness &
meanness. More bad games.
And she keeps pushing the govt's Sabine Valley MHMR as a good place to
get help, even though she knows for sure that it isn't.
[Even the Crisis Center advises abused women Not to go to the MHMR,
because it's so bad, so harmful.]
Etc.
-------------
The Medical Non-Care System, & the ongoing Determinedly-Dumbness
Syndrome here (on the part of medical professionals), really do s*ck!
I believe that a few significant lawsuits, could go a very long way, in
helping to change these very bad attitudes & mindsets.
----------------
This appt was bad. Usually, she's not like this.
I'm still hopeful that she'll choose to be different, to be a
humanitarian, ... to care about & help the patients here, & to live &
deal in the real world, ... & not just spout the latest medical BS &
propaganda (the corporation & govt-issued kind), ... try to enforce it,
& grin/snicker like a friggin' idiot, a common sociopath.
Kaye301 - 05 Dec 2003 09:39 GMT
Su wrote << Plus, the anti-estrogen drugs like Arimidex & Femara, are enough to
completely shut your system down for five years. [While you might can
survive during that time (if you work very hard at it), you can't call
it "living", nor is there any quality of life.]
Su, sorry you had such difficulty with the aromatase inhibitors, but not
everyone has a problem with them. I have been on Arimidex for 22 mos. with
minimal side effects from the medication, alone, although I am sure reduced or
minimal estrogen, irregardless of how that is caused, results in certain body
changes.
Except for discomfort in one of my upper arms and shoulder on same side, low
back pain, and sciatic pain on one side, and the most recent bouts of dizziness
and vertigo--none of which are related to the Arimidex--I feel great. That
almost sounds 'too weird' but really, I do, and it hasn't shut my 'system'
down. (My concerns/fears re the above symptoms are that they may be related to
mets which none of the dr's have definatively ruled out).
Now I can't say that the lymphedema doesn't have an impact on the quality of my
life--it does--more of an annoyance at this point.
I am able to work--which now requires a minimum drive of 90 min each way if
keeping normal hours (I often stay until sometime between 7 and 9 at night for
that reason), keep late hours, walk 20 miles/day, and 'party'
su-texas@webtv.net - 09 Dec 2003 21:04 GMT
Yeast Infections
The yeast infection continued to spread downwards (from my remaining
breast tissue & shoulder). And yesterday (for the fourth time in my
life), I had one of "those" infections, which so far, I don't know much
about.
After driving back from Longview, I was so miserable (in pain, itching,
burning, & suffering), that I drove straight to the nurse practitioner's
office (about 1 PM). She wasn't in, so I left a message with the
receptionist, begging for help, for some skin cream & a pill.
By about 4 PM, when the script still hadn't come in, the pharmacist
phoned them & got the it. All it was for, was some skin cream, which
wasn't enough.
I drove back to the office, spoke with the nurse this time, bargained
hard for the pill, & got her promise to call in the script. At about 5
PM, when the script still hadn't come, the pharmacist called & got it
from them.
With my insurance, the skin cream costs $3, but that one pill costs $10.
?! [Diflucan 150-mg (fluconazole tablet), "the easy oral cure for most
vaginal yeast infections"]
The NP suggested I get some Monistat cream also, so I got the three-day
generic kind for about $9.
The nurse said that most people just use the Monistat cream, but I felt
that my yeast infection had spread so much now, that I needed the pill
for it.
She said that I wouldn't feel the effects of the pill for about three
days, so I could use the cream. However, the pill had worked good
enough last night, that I collapsed & slept without using the cream.
The NP said that my immune system is probably weak from the cancer
treatments (done last year, 2002) alone, (not to mention my injuries &
the resulting strokes), ... which is probably how the yeast infection
got in.
I eat yogurt, but had run low on funds last month, so I was eating less
of it, & I skipped a few days. This probably gave the yeast infection a
change to develop & start spreading.
As it's spread, the itching has been almost unbearable. [I already have
intense itching associated with the injuries (esp. spine, upper &
mid-back) & with the lymphedema (swelling).]
Today, things are better.
-----------
I'm recording this information here, partly because I can't remember the
names of medicines. And if my immune system is this weak, then I might
get this infection again soon & need the information.
------------
Are there any other treatments for yeast infections?
I saw a box that said "homeopathic" treatment.
???
Susan, Su_Texas my opinions
PS I apologize for the strong emotions expressed in my statements, of a
few days ago. It was wrong of me to rant here. I was tired,
frightened, hurting.
Thank you for caring & sharing, despite my bad mood.
As soon as I get some energy back, & get more organized, I hope to be
able to read & learn, & contribute some again.