Medical Forum / Diseases and Disorders / Breast Cancer / November 2003
Chemo therapy and migraines
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darla - 25 Nov 2003 18:14 GMT I have recently been diagnosed with Stage II breast cancer. I am about to start my chemotherapy regimen. I have a history of life-long migraine headaches. However, I have been migraine free for the past two and half years because I found a wonderful product called Hawaiian Noni Juice. I had spent close to $100,000 trying to find a little relief from the chronic pain of the migraines and suddenly found it in a bottle of fruit juice from Hawaii - who would thought it possible! I am very concerned that the chemo therapy may trigger the migraines again. Does anyone have any history or knowledge about this? Is there anything anyone can suggest for pain relief. Quite frankly I'm more apprehensive about the possibility of more migraines than I am about the side effects of the chemo therapy! Any answers will be welcomed. Darla
Jasmine - 25 Nov 2003 18:45 GMT Smells like spam, which I hear is also big in Hawaii ;)
If you are suffering from BC, I am sorry. I just know all too well how desperate for a cure migraineurs are, but I also know migraine is a neurological disease and there isn't a cure at this time. When people swoop into a forum or NG out of the blue to say they've found a cure, it concerns me. I remember being naive and wanting to believe everyone had the answer...no matter the cost. My gut tells me you're pushing snake oil and I don't like it. Of course, I'm not speaking for this whole group. This is just my opinion.
By the way, I read on one site that the juice is also a natural alternative to cancer treatment. Interesting. Jasmine
> I have recently been diagnosed with Stage II breast cancer. I am > about to start my chemotherapy regimen. I have a history of life-long [quoted text clipped - 9 lines] > the side effects of the chemo therapy! Any answers will be welcomed. > Darla Tim Jackson - 25 Nov 2003 19:22 GMT Memorial Sloan-Kettering Cancer Center has a page on Noni http://www.mskcc.org/mskcc/html/11571.cfm?RecordID=469&tab=HC They do mention analgesia in mice.
Tim Jackson
> Smells like spam, which I hear is also big in Hawaii ;) > [quoted text clipped - 24 lines] > > the side effects of the chemo therapy! Any answers will be welcomed. > > Darla Jasmine - 28 Nov 2003 21:45 GMT Interesting. Thanks Tim, Jasmine
> Memorial Sloan-Kettering Cancer Center has a page on Noni > http://www.mskcc.org/mskcc/html/11571.cfm?RecordID=469&tab=HC [quoted text clipped - 34 lines] > > > the side effects of the chemo therapy! Any answers will be welcomed. > > > Darla Lbucc - 25 Nov 2003 19:40 GMT >I just know all too well how >desperate for a cure migraineurs are, but I also know migraine is a >neurological disease Hmmm. An opthamologist diagnosed strange visual problems I was having as migraines. He told me that source of the problem was the fact that oxygen could not get to my brian and that affected the nerves that vision used.
He told me that there wasn't much I could do about it but that when I felt one coming on, I should go lie down in a dark place.
However, the next time I could feel one on the way, I sat down and put my head between my legs. The migraine never materialized and I've not had one since. I figure perhaps by bending over, I loosened up whatever path was prohibiting the oxygen from getting to my brain.
Man, that sure was a lot cheaper than $100,000.
...lisa
PS I agree, this smells like spam...
darla - 25 Nov 2003 21:55 GMT Guys, guys, guys, I'm not trying to swoop in and sell anything to anybody. I'm telling you what has helped me in the past[Noni]for relief of migraine pain. It's affordable and side-effect free.
I am worried about triggering migraines or severe headaches again with the chemo that's all. I'm asking if anyone has any history with having a recurrance of migraines or other headaches while they are undergoing chemo therapy. I have read in some other groups about the controversial medical use of THC for relief of pain and nausea associated with chemo. Is there anything else out there that I might consider?
> >I just know all too well how > >desperate for a cure migraineurs are, but I also know migraine is a [quoted text clipped - 17 lines] > > PS I agree, this smells like spam... Tim Jackson - 25 Nov 2003 22:42 GMT > Hmmm. An opthamologist diagnosed strange visual problems I was having as > migraines. He told me that source of the problem was the fact that oxygen [quoted text clipped - 7 lines] > I figure perhaps by bending over, I loosened up whatever path was prohibiting > the oxygen from getting to my brain. I have also had a strange visual effect which my optician told me was a visual migraine. It has an appearance which I can only describe as a prismatic circular saw, a jagged ring of multicoloured lines. The ring slowly expands over about ten minutes from a point until it disappears off the edges of my vision. It happens about once every year or so, without any obvious rhyme or reason, and without warning. Once started nothing seems to affect its inexorable progress, lying down, shutting eyes, etc. has no effect. I worried about it the first couple of times. Now I just go take a coffee break and wait for it to pass: while it does not appear to affect my vision very much, it seems impossible to read or to examine objects in detail while it is active, so it effectively stops me working..
Tim
Glenfiddich - 26 Nov 2003 00:43 GMT >> Hmmm. An opthamologist diagnosed strange visual problems I was having as >> migraines. He told me that source of the problem was the fact that oxygen >> could not get to my brian and that affected the nerves that vision used. >> He told me that there wasn't much I could do about it but that when I felt >one >> coming on, I should go lie down in a dark place.
>> However, the next time I could feel one on the way, I sat down and put my >head [quoted text clipped - 15 lines] >vision very much, it seems impossible to read or to examine objects in >detail while it is active, so it effectively stops me working.. Tim, you're not alone - that's the same symptom I get. And I, too, didn't find any reliable cure, just had to wait for it to pass.
Played hell with my ability to drive... Thank God we don't get the headaches!
Anthony - 26 Nov 2003 04:16 GMT > Tim, you're not alone - that's the same symptom I get. > And I, too, didn't find any reliable cure, just had to wait > for it to pass. > > Played hell with my ability to drive... > Thank God we don't get the headaches! Very interesting. I had exactly this experience, a jagged edge oblong which gradually expanded and finally went away, a few years ago. Scared me! But I didn't mention it to anyone and it hasn't recurred.
Kaye301 - 26 Nov 2003 04:45 GMT I have had visual migraines since the age of around 11. They start with a visual aura similar to what Tim described, although am not sure, off-hand, if the jagged lines that I visualize are in color or black-and-whie. Afterwards, I have difficulty concentrating and usually don't get a headache. Mine are triggered primarily by certain food additives such as MSG (a given trigger for me) and also sometimes nitrates. Another trigger is 'natural' flavoring such as what is used in French vanilla creamers for coffee. Flavoroed drinks also bring them on. My younest daughter has a hx of migraines which began on the night of her 9th birthday at a time when she was experiencing earlier than ususal signs of pubertal development. In her case, she gets headaches. We figured that the triggers for that night were something in the pizza she ordered (pepperoni--mini pizza) or in tsoemthing else she'd eaten. My dad also got headaches. He passed away before the info. came out re. migraines and use of MSG. He was reluctant to go out for Chinese food. He said he liked it bu that it made him 'sick.' We told him it was all in his head--figuratively. We had no idea that this was reality-based for others, too...
Lbucc - 26 Nov 2003 12:34 GMT Tim wrote:
>I have also had a strange visual effect which my optician told me was a >visual migraine. Yup. That's it! I describe it as a tiny piece of scrunched saran wrap wiggling about. It starts small in the center and expands to fill my visual frame, then departs.
Very disconcerting at first (I was afriad that I had a brain tumor, of course...)
...lisa
darla - 25 Nov 2003 22:53 GMT I have to admit I was somewhat taken aback by the responses I received from my first inquiry. I have since talked with a NG savy friend who tells me that I have made a huge fapaux. I apologize. I have no interest in selling anything, I'm 6 days out from finding out I have Stage II breast cancer and know that my life will change pretty drastically for a bit in a week or so. I'm trying to line up possible alternatives for pain relief before I need them. I remember headaches that kept me immobile for 3-4 days and I have absolutely NO desire to return to that. Quite frankly I simply can't imagine how awful it would be to have even moderate side effects from chemo and the migraines I have suffered in the past.
Please accept my apologies and I look forward to any help you might have.
Darla
> >I just know all too well how > >desperate for a cure migraineurs are, but I also know migraine is a [quoted text clipped - 17 lines] > > PS I agree, this smells like spam... A. P. Thorsen - 26 Nov 2003 15:19 GMT > I have no > interest in selling anything, I'm 6 days out from finding out I have > Stage II breast cancer and know that my life will change pretty > drastically for a bit in a week or so. . . .
> Quite frankly I simply can't imagine how awful it > would be to have even moderate side effects from chemo and the > migraines I have suffered in the past. Hi, Darla,
Welcome to a great group that no one wants to join!
I'm sorry you had to discover so abruptly that "Noni" is "fightin' words" around here. I'm very glad it worked for you for migraines, but most of us are very, very tired of hearing it touted as a cancer cure (with no scientific evidence to support it) by people who hope to profit . . . and who sometimes disguise their profit motives by pretending to be happy consumers.
Maybe we can all just start over?
I can't help much with your specific problem, as I've been fortunate enough not to have migraines. I can't recall any major headache issues as a side effect of Adriamycin/Cytoxan (AC) chemo (except insofar as I sometimes get mild headaches when fatigued or tense). I did have some headaches with Taxol, if I recall, but nothing of extreme intensity.
So, I don't know whether chemo would trigger migraines, but, for what it's worth, I don't remember anyone ever mentioning that in my local support group meetings, where side effects are discussed quite extensively.
You may find that the other side effects of chemo are less severe than popular press reports (or reports by friends who went through it several years ago) might suggest. Most experience some fatigue, mild nausea is common, but many now avoid major nausea/vomiting or other extreme symptoms.
I don't mean to imply that it's a walk in the park -- I always say it was the worst hobby I ever had! -- but it may not be as difficult as you anticipate.
I was sicker than most are nowadays on AC, and it was about like having a 2-3 days' stomach flu on a regularly scheduled basis. Responses to the chemo drugs, and the drugs to prevent side effects, are very individualized. I think someone here said they ate a cheeseburger after chemo, went home & felt fine (!).
If you do have problems with side effects, be sure to let your doctors and chemo nurses know, and ask what they can do about it. Plan to be assertive to get the best results. My AC treatments got easier each time with adjustments in administration and side-effect meds. The last was very much easier than the first.
Good luck with it, and please post if you have other questions. Honest, we can be pretty nice people under most circumstances -- hope you'll be willing to give us another chance.
Ann T. Remove 'dontsendspam' from address to reply by email
darla - 28 Nov 2003 21:11 GMT Maybe we can all just start over?
Great, I'd love that! I haven't found any evidence that chemo triggers migraines so maybe I'll luck out and slide right through. I'm glad to see there are live chat rooms available. Thanks for all your thoughtfulness.
Darla
> > I have no > > interest in selling anything, I'm 6 days out from finding out I have [quoted text clipped - 56 lines] > Ann T. > Remove 'dontsendspam' from address to reply by email J - 28 Nov 2003 22:07 GMT > I haven't found any evidence that chemo triggers > migraines so maybe I'll luck out and slide right through. Hope so. I've found some http://tinyurl.com/wxgc (I know which to look at and which to not bother clicking on) For instance: http://www.oncologychannel.com/chemotherapy/medsideeffects3.shtml
Maybe it's a combo of the person and type of chemo(s)?
I was just rereading Lowkey's first post to asc. http://tinyurl.com/wrim Have a look at how he handled it, in case something there helps and/or you want to be prepared. Vicadin (not sure if that's spelled right)...Vicodin?..don't know. Best, J
Jasmine - 28 Nov 2003 21:48 GMT Darla, thank you for understanding. No need to apologize. I am sorry for jumping to that conclusion. I've just seen it happen too many times.
I am still sorry to hear about your Stage II breast cancer. I can't imagine what you're going through right now. I wish you the best in finding alternative treatments. I hope others here can assist you. I'm new to BC. My mom (49) was diagnosed recently, and it's come as quite a shock. There's no history of BC in our family.
Take care, Jasmine
> I have to admit I was somewhat taken aback by the responses I received > from my first inquiry. I have since talked with a NG savy friend who [quoted text clipped - 34 lines] > > > > PS I agree, this smells like spam... Jasmine - 28 Nov 2003 21:44 GMT Lisa, how interesting. And how great that you figured out the cause so you could save yourself money, energy and time :) Jasmine
> >I just know all too well how > >desperate for a cure migraineurs are, but I also know migraine is a [quoted text clipped - 17 lines] > > PS I agree, this smells like spam... SssynSmrt - 25 Nov 2003 20:09 GMT Hi Darla:
Sorry to hear about the BC. I also had a Stage II cancer and suffered from migraines (caused by hormones and who knows what else).
I did not notice any change in my headaches during chemotherapy.
However, I do have a frequent head pain that began when I started taking Tamoxifen last year. It's at the left temple and usually responds to Fioricet.
Sassy
Sandy L - 25 Nov 2003 20:43 GMT > I have recently been diagnosed with Stage II breast cancer. I am > about to start my chemotherapy regimen. I have a history of life-long [quoted text clipped - 9 lines] > the side effects of the chemo therapy! Any answers will be welcomed. > Darla Do you also visit alt.support.headaches.migraine? There is a list of prophylactic measures that we repost from time to time as well as discussion of the latest in orthodox and some other methods for treating migraine.
gabnet' - 26 Nov 2003 10:58 GMT Hello Darla:
I was on chemo for one and one half years and did not suffer with headaches. I, from time to time do get Migraines from my M S, but definately it is not from chemo as I am now off chemo and on another regiment and the very same still applies.
Hope this helps a bit.
Laura K.*
> I have recently been diagnosed with Stage II breast cancer. I am > about to start my chemotherapy regimen. I have a history of life-long [quoted text clipped - 9 lines] > the side effects of the chemo therapy! Any answers will be welcomed. > Darla
 Signature Hugs,
Laura K.* I'm out of estrogen and I have a gun!
Kaye301 - 26 Nov 2003 15:57 GMT Laura wrote: << I, from time to time do get Migraines from my M S, but definately it is not from chemo as I am now off chemo and on another regiment and the very same still applies >>
Hi Laura--just curious why you think the headaches that you get are related to M.S. I have also had M.S. for over 30 yrs (dx'd in '72 at UCLA which happened to be main research center in the world at that time that was doing any MS research). I don't get headaches often but would get one, once in awhile. (As mentioned in another post I do get visual migraines (mostly without headaches but have concentration problems afterwards) from certain foods, additives, was more likely to occur during time of menstrual periods, and sometimes when out in the sun amongst a few other idiosyncratic triggers... Anyway, just wondering why you feel that M.S. was in any way related to the headache...
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