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Medical Forum / Diseases and Disorders / Breast Cancer / December 2003

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Increased fatigue...

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Kaye301 - 23 Nov 2003 15:51 GMT
This past week I have been feeling somewhat more tired than usual...enough so
to very briefly fall asleep while driving home from work and also during a
phone conversation/interiew for work.  I did apologize and excuse myself re.
latter.
I am guessing that it is due to decreased exercise after working mysef up from
3-day walk.  The day after  the walk I felt okay and was able to do 30 min on
the treadmill.  The following day, I am not sure I don't remember if I did
treadmill or not but next night was when I fell asleep (for brief instant)
while driving.  I pulled off road, went into Whole Foods store, walked around
and got a light dinner to eat for remainder of drive.
I guess I need to make a decision--commitment--about keeping  up level of
exercise I was doing.  I really have mixed feelings.  My teammates--most of
them--have signed up for the L.A. marathon which is 26 miles.  They are going
to power walk it.  I figure that's a piece-of-cake after doing the 3-day.
What's another 6 miles, if you've already done 20 and you are only doing it for
a day--not 3.  I was lucky--the only difficulty I had was from blisters (after
arch of foot was wrapped).
(Speaking of blisters, after they told me I had the biggest blister they'd
seen--someone took a picture of it and put it on-line.  It looked weird but
really wasn't all that impressive as a photo).  It isn't something I'd offer
around for others to see. either--that would be even more weird).
Anyway, back to the fatigue, I am guessing my body is used to a certain degree
of exercise, and I need to do more to increase the endorphins--again.  I guess
it is a sort of physical addiction.  I am wondering how much I will need to do
to maintain an optimal level of well-being.
Last night, I experienced severe low back pain while standing still--haven't
had that as bad for many months.  Was it a delayed effect from walk?  Was it
mets--that have worsened and that Celebrex which may have helped with it is no
longer helping or need for another Zometa is indicated?
Now, I have not been dx'd with bone mets--but there have been definate changes
in bone scan and MRI (increased uptake) in the areas that are most common for
bone mets to occur since my first scan.  I had previously written that when I
asked my onc. how one differentiated bone mets from arthritic activity, he
didn't answer my question--instead said that it didn't matter in terms of
long-term survival if one treated someone for 3 years or waited a year and
treated for two--(which I think it total b.s.).  However, I do find it
interesting that the increased uptake is only reported in the areas that are
common for bone mets but not in all the areas for which I had been previously
told (i.e. other scans, xrays--taken 10 years ago after car accident) where I
had arthritic activity--such as my knees.  No increased uptake was reported
there; yet, I was told I had arthritic activity there more than 10 years
ago--probably from all the riding I've done on an exercycle.
I guess I should get off my 'duff' and go take a walk...the dog will like
that...
su-texas@webtv.net - 23 Nov 2003 16:35 GMT
Hi Kaye,

I don't know.

Sudden Fatigue:  What I do, is to lie down & rest for a while (5 to 20
minutes) often, whether in the truck or at home, ... & let the blood get
to my head good.  [Plus, I'll eat a small quantity of food first.]  I'll
set a timer to keep track of the time, and/or to wake me.

When at home, I use a massager on my neck, & up & down my spine, ...
before, during, and/or after these brief rests.  

[There are also TENS units, which might help some in keeping you more
alert, during critical times such as work/jobs.  These units are of
varying quality & usefulness, so it's important to research them good,
before getting one.]

Also, you might want to re-check your meds, to see if one of them could
be causing or contributing to this problem.

Susan, Su_Texas  my opinions

PS  Congratulations on your walk.  :)
Kaye301 - 23 Nov 2003 18:14 GMT
Su wrote << Also, you might want to re-check your meds, to see if one of them
could
be causing or contributing to this problem.

Susan, Su_Texas  my opinions

PS  Congratulations on your walk.  :)

I guess my thyroid could be getting a little sluggish.  I have 3 different
strengths of thyroid med.  After the walk I upped it from .75 mg/day to .88.
Since I did that I began having hot flashes--so am guessing it had been
underactive a bit.  Don't get me wrong I prefer not having the hot flashes and
not perspiring but think it is probably better for me to be doing so.
Anyway, I convinced my husband (who really didn't need any convincing) to take
the dog for a walk with me to his favorite coffee bar--a local gas station
about .9 mile from our house--for a mocha latte (for him) and feel alot more
energized.  
When I get really tired I can either lay down and fall right asleep or force
myself to do some type of exercise (i.e. treadmill).  I generally feel better
if I do the latter, but it is quite tempting to do the former.
Kaye301 - 23 Nov 2003 18:40 GMT
Su wrote: << PS  Congratulations on your walk.  :)>>

Thanks, initially I had some doubts  because of the sciatic pain.  However,
after the first mile or two, that went away or was masked by the endorphins.  I
had some doubts about doing it for 3 days but after my two oldest girls ran me
around Italy (Florence) a year and a half ago--at a fairly fast pace--I figured
we most have easily done at least 20 miles in one day.
I am hoping that the Susan G. Komen foundation will be able to contribute to
development of better treatments (and even possibility of 'cure') in the near
future, although am counting more on the former.  I was able to raise over
3600.00 which I was totally amazed by.  I received donations from friends,
doctors, colleagues, and relatives.   I was initially quite  shy about asking
for support--but it was 100% tax deductible and went straignt to the Susan G.
Komen foundation.  85% goes directly to the foundation; the other 15% goes to
the National Philanthropic trust which is in charge of managing/distribution.
The books are open and of there is good monitoring and accountability of funds.
Just wanted to share that info--if anyone is looking for somewhere to donate
towards breast cancer research, they might want to check them out.
gabnet' - 23 Nov 2003 23:15 GMT
Hi Again:

I am so out of it, I forgot where I had posted it but I was admitted to
the hospital last year due to what they thought was an abnormality in my
heart.  A friend of mine and I were out to dinner and I complained about
chest pains since lte that afaternoon.  So she whizzed me off to the
nearest emergency room where they against my screams, admitted me.  I
know that the heart monitor showed something so they were concerned at
the er.  The nextmorning my oncologist (a lady)  came to my bedside and
asked what the hell I was doing there!!!!  I said, they say both my
heart and lungs are congested and flowing with fluid.  She shook her
head and replied, I have to speak t0 them I was on chemo and the name of
the chemo? Yes ma'am I said and t hey refuse to listen!  Anyway to make
it short, they kept me for three days and I had to go further testing
with the heart specialist when I was released.  My oncologist never was
alarmed as she was so positive that all my fluid was coming from my old
chemo.  Finally when I returned to the heart specialist, he checked me
and all testing was normal.  I had  to return months later and ALL fluid
from my heart and lungs had gone!

I was and still am so leary of any doctor that I did not believe my
oncologist.  After all I was misdiagnosed and my mammography was also
misread in NYC so how could I believe.  

Today I am on arimidex and my markers seem to be going down.  I also was
never told in NY that I was hormone positive for estrogen!!!!  So much
for BIG BC specialists in NYC!!

I had all your symptoms wheezing and shortness of breath etc.

Have you discussed this with your oncologist to see if your chemo is the
culpret.

PS.  There is a test for the heart called a mugga (not certain if this
is correctly spelled)  They might wish to check.

> This past week I have been feeling somewhat more tired than usual...enough so
> to very briefly fall asleep while driving home from work and also during a
[quoted text clipped - 40 lines]
> I guess I should get off my 'duff' and go take a walk...the dog will like
> that...

Signature

Hugs,

Laura K.*
I'm out of estrogen and I have a gun!

Kaye301 - 24 Nov 2003 04:05 GMT
gabnet wrote: << Kaye301 wrote:

Hi Again:

I am so out of it, I forgot where I had posted it but I was admitted to
the hospital last year due to what they thought was an abnormality in my
heart... My oncologist never was
alarmed as she was so positive that all my fluid was coming from my old
chemo.  >>>

BUT Kaye did NOT write that.  I think, though, that the quotes were in the
wrong place.

gabnet wrote: << Have you discussed this with your oncologist to see if your
chemo is the
culpret.>>

Yep, I did.  My onc reported that he didn't hear anything.  However, he then
referred me to a pulmonologist, which if nothing were there, he would not have
done.  The pulmonologist thought it may possibly be radiation-related. That
sounds plausible except I didn't feel it after the radiation.  It started about
2 mos. later -- after the last taxane.
A man - 04 Dec 2003 15:46 GMT
> This past week I have been feeling somewhat more tired than usual...enough so
> to very briefly fall asleep while driving home from work and also during a
> phone conversation/interiew for work.  I did apologize and excuse myself re.
> latter.

Kay, In your message it appears you fell asleep at the wheel twice.
Kay, please do not do that. You could seriously hurt yourself,
someone else, or some kid walking down the road. I think you would
feel pretty bad if you killed someone's kid just because you wanted
to "feel independent". Is it worth a person's life to "feel
independent"?

I know it's hard but there comes a point where you have to admit that
you need someone else's help. Not admitting this to yourself could
have very serious repercussions.

Signature

Say no to fixed width tables. They look terrible.

Kaye301 - 05 Dec 2003 09:29 GMT
A man wrote<< Kay, In your message it appears you fell asleep at the wheel
twice.
Kay, please do not do that. You could seriously hurt yourself,
someone else, or some kid walking down the road. I think you would
feel pretty bad if you killed someone's kid just because you wanted
to "feel independent". >>

I very much agree with you.  However, I only almost fell asleep once--not
twice--and when I realized that happened I pulled off the freeway (highway) and
stopped for coffee.  The other time, I was having the balance problem--which
usually didn't affect me if I were sitting down.  This was the first time it
did--like a bad case of the flu for about 3 hours that time.  I wasn't the
usual type of 'dizzy.'  I did okay by focusing with good concentration.  If I
weren't able to do that, there would have been no way I would have driven.  
I think I do know my limits and would not want to jeopardize anyone else's life
ever.
 
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