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Medical Forum / Diseases and Disorders / Breast Cancer / November 2003

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Wig stabilizer?

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mypet - 14 Nov 2003 16:54 GMT
I'm taking a friend about to undergo chemo wigshopping this weekend.
Of course she has no idea how much of her hair she will lose, but she
asked me to find out how she will stabilize or connect the wig to her
head if she loses all of her hair.  I do remember another friend
saying that when her hair was thin she was able to attach her wig
nicely, but once she shaved her head she always felt insecure and
afraid of the wig coming off.  Has anyone come up with a good solution
for this problem?  Thanks very much in advance.
SssynSmrt - 14 Nov 2003 19:54 GMT
Your friend will lose all or most of her hair although it depends on the
chemicals in her treatment.

There are products that really cement wigs but that's usually for actors and
other  performers.  Most wigs I've had experience with are kind of elastic in
spots that helps them fit tight to the head.

Racquel Welch has a nice line of synthetic wigs that are reasonably priced.
They're made in such a way that they pretty much stay in place although you
periodically have to straighten them a bit.

I bought a very short one in red and a longer one in strawberry. They both had
great highlights and looked pretty natural.  People would comment that they
hadn't realized I was a red head (I was a blond).
My dad loved the strawberry wig.  He told me I should wear my hair like that
all the time.

However, I only wore them when I got dressed up.  I found wearing a head scarf
was easier and cooler because if you haven't started having hot flashes, you
get them while undergoing chemo.  

My favorite head scarf was a wonderful piece of upholstery or drapery fabric.
It was a decorator sample that I had been given.  I looked at it one day and
thought, why not?

Don't let the wig shop talk your friend into a human hair wig.  They're
expensive and need regular washing and styling just like your own hair.  A
synthetic wig can be swished in the sink.  They dry in no time.

Sassy
Kathleen Langwell - 14 Nov 2003 22:05 GMT
Your friend may not have any problem at all keeping the wig in place if
she loses all her hair. However, I have a smaller head and I found the
wig creeping down too low on my forehead so I solved that by buying one
of those soft, stretchy head bands in black  and put that on my head
under the wig. It kept the wig in place nicely and turned out to make it
quite comfortable. I ended up wearing my wig all the time because I look
real dorky in scarves or hats. If she hasn't gotten her wig yet, I found
that a lighter weight, synthetic one worked out fine. No need for an
expensive real-hair wig. I hope everything goes well for her.

Kathie
mypet - 15 Nov 2003 16:55 GMT
She is a petite person and has beautiful hair which I'm certain will
come back even more beautiful than before.  Several of the girls have
been having conversations on how to be prepared to help out in several
situations in regard to Mary's upcoming treatment and recovery.  This
was one of the questions we wanted to ask as it had come up
previously.  I touched base back with the other lady I mentioned and
she reiterated that she always felt like if she was too free with her
motion that her wig would come off and would have greatly appreciated
something to reassure her that that would not, could not happen.  I'm
still at a loss as to what could give a person the secure feeling they
are looking for!?   It makes sense to me that unless the cap is fitted
to the individual's head that it could easily crawl off with nothing
to hold it.  What do men hold their hairpieces on with?  Maybe that
would do the trick.
Gulffritallary - 15 Nov 2003 18:36 GMT
>I'm
>still at a loss as to what could give a person the secure feeling they
>are looking for!?  

The wig I had had tiny velco tabs so that I could cinch it as tight as I wanted
- however, I never used them as I felt they made the wig too tight.  I went
thru a year of treatment and no hair and never once did the wig come off.  I
think your worry over this is a waste of time.  If it does come off, make a
joke about it:  "this is truly a bad hair day".  When you're going thru chemo,
people are VERY forgiving about all kinds of things - appearance included.
bell-lady - 15 Nov 2003 20:24 GMT
I also had a synthetic wig, free, from American Cancer Society, and it was
very like my hair, no one knew but my husband and children, even people
who'd known me a long time, knew until I told them.

I was worried about losing it, and at first it didn't feel very stable. I
worrdied esepecially in the wind, and around my cat and my grandchildren.
Cat wouldn't mind seeing me bald but I didn't want to really scare the
grandkids!

I used the velcro tabs to keep it snug. In hot weather it wasn't really
comfortable. But I made it!

I do remember seeing in wig catalogs a sort of snug fitting very thin cap to
wear UNDER the wig, to anchor it and protect your head from what can be kind
of scratchy. Anyone have info on that?

Mostly the key to real freedom from worry came from just plain old not beng
worried! If it came off, it came off! Then I had the chance if asked to
explain about breast cancer perhaps to someone who should know.

One humorous note on this topic: One early morning while I was visitng my
far-away grandkids, 5 and 3, I asked them if they wanted to see Grandma with
no hair. They said sure, but looked worried, so I sort of sneaked it off
slowly. They started to cry and ran away, and I felt terrible!  However I
did wear my scarf in their home instead of the wig that day. The next
morning, they woke up before me, came into the room and woke me up! The 5
year old was wearing my wig and grinning ear to ear. I felt SO good!

Ann in PA
Jackie - 15 Nov 2003 22:15 GMT
The wig shops sell a stocking-like cap to go under wigs and make them more
comfortable if your scalp is sore (which sometimes it is).  My wigs were all
synthetic and had elastic/Velcro adjustments.  The first day I wore mine the
wind was *very* strong and it stayed put, so I relaxed about losing it after
that.  If there is a wig shop near you, they have wig shampoos and probably
any supplies to help anchor the wig if needed.  I found my head got cold
with no hair and it never had before (I don't know how you bald guys make
it), so I bought and wore several little soft knit caps around the house.  I
saw many at the cancer center who wore them there, as well as a variety of
caps, hats, and scarves.  No one ever knew I was wearing a wig unless I told
them.  They are very natural looking.

They gave me a catalog for wigs, caps, etc. when I had my first chemo.

My best to your friend in this journey.

God Bless,
Jackie S.
> I also had a synthetic wig, free, from American Cancer Society, and it was
> very like my hair, no one knew but my husband and children, even people
[quoted text clipped - 25 lines]
>
> Ann in PA
SssynSmrt - 17 Nov 2003 21:35 GMT
With regard to wig shampoos...they aren't necessary.  Regular shampoo will
remove odors, dirt, and hairspray.  If the wig is long, you might need a
conditioner but, again, use a regular one.  This applies to both real human
hair and synthetic wigs.  

Why pay 3 or 4 times as much for "wig" shampoo?

Sassy and Smart
Kaye301 - 18 Nov 2003 17:06 GMT
<< Why pay 3 or 4 times as much for "wig" shampoo?>>

I was told that regular shampoo was just fine.  Then again, another advantage
to wigs is that the store I bought it from only charged $15.00 to wash and
restyle it--what a bargain!  I wound up buy two of the same--kept one more
formal looking and brushed the other out.  What I loved best--no more bad hair
days!  I used to hate having to wash and re-style my hair daily.  What a waste
of energy and good time!
gabnet' - 22 Nov 2003 06:00 GMT
Hi:

The wig shampoos are not expensive and they do not contain a high level
of alcohol which can damage and dry the acrylic wig.  I would vote to go
with the wig shampoo and the wig conditioner so it will not dry out.

Human hair wigs are not the same as acrylic.

> With regard to wig shampoos...they aren't necessary.  Regular shampoo will
> remove odors, dirt, and hairspray.  If the wig is long, you might need a
[quoted text clipped - 4 lines]
>
> Sassy and Smart

Signature

Hugs,

Laura K.*
I'm out of estrogen and I have a gun!

Kaye301 - 18 Nov 2003 17:01 GMT
mypet wrote<< Several of the girls have
been having conversations on how to be prepared to help out in several
situations in regard to Mary's upcoming treatment and recovery.  This
was one of the question >>

What helped me the most was coming here and finding out from those who had gone
through it.  I got so many helpful recommendations here---and most all of my
questions were answered.  There are several other online support groups which
are also quite helpful.  
What I think helped me more than anything was taking the initiative to ask
questions and find out as much as I could myself.  I do not think it would have
helped me as much if it had come from others without my asking.  By my taking
that step to ask, I was willing to receive the answers which I may have not
taken as seriously if they had been given to me by others.  Taking the
initiative gives one a sense of control and feelings of increased power over
their life and makes one feel less  like a victim.  I did appreciate all the
support and help I received from all my friends, family, neighbors, and
colleagues.
The idea of losing my hair was the worst part of all this.  However, so many of
the posters here on this group allayed my fears and really helped me through
it.  I can't thank them enough.  It got to a point where I could look at it in
a humorful way.  One of my biggest fears was that I would look 'ugly' not
because of being bald but because of a misshapen head.  Much to my surprise, I
learned that my hairdresser had been 'right' all along. There was absolutely
nothing wrong with the shape of my head--it was flat in the back because of the
way it grew--in one big cowlick.  Just learning hat alone was enought to make
it worth it to lose my hair.  
I also had some humorous times with it--like the time my neurologist pulled it
off during a special treatment.  I will never forget the look on his face.  It
must have startled and/or frightened him out of his wits.  I couldn't stop
laughing--it was quite comical.  I also developed a new empathy for bald-headed
guys--bald is cold in the winter.  It would be very helpful for your friend to
have some nice caps to sleep in.  I found 100% cotton terry cloth to be the
most comfortable.  They usually fell off by morning which wasn't a problem--I
needed the warmth to get to sleep initially.
As far as holding the wig on--there is a special type of glue that can be
used--easily removable--same thing to what I think can be used for breast
prostheses if needed...
Tony Lima - 16 Nov 2003 01:14 GMT
>I'm taking a friend about to undergo chemo wigshopping this weekend.
>Of course she has no idea how much of her hair she will lose, but she
[quoted text clipped - 4 lines]
>afraid of the wig coming off.  Has anyone come up with a good solution
>for this problem?  Thanks very much in advance.

Ask around.  Many others have been through this; some of
them know which wig shops have a handle on
chemotherapy-induced baldness and which don't.

There are a wide variety of wigs available.  Some of the
most reasonably-priced come from the American Cancer Society
catalog -- something else your friend should have.

If she is going to a clinic that specializes in oncology and
chemotherapy, they will probably have a list of wig shops.
Look around.

Without hair her head will get cold.  She'll want some sort
of cap for sleeping and something to wear on her head when
she doesn't feel like putting on the wig.  Scarves are very
popular for this.

Finally, some artificial wigs are sensitive to heat.  That
means if she's wearing the wig and opens the door of a hot
oven the wig will cook.  This causes the worst hair day
imaginable.

I've learned all this by helping my wife shop for wigs,
listening to her and seeing her once cook a wig by opening
the oven.  Best luck. - Tony

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A man - 17 Nov 2003 21:25 GMT
> Without hair her head will get cold.  She'll want some sort
> of cap for sleeping and something to wear on her head when
> she doesn't feel like putting on the wig.  Scarves are very
> popular for this.

I bought my wife a buff from Survivor (cbs.com). She loved it!
It was $26 with shipping. Then she saw a set of 6 for $60, a
better deal. But the buffs on Ebay are even more expensive
becaue they're collectible. You can wear a buff several
different ways on your head. It is a thin, very stretchable
fabric. It's thin but very warm she says.

She also got some large bandannas in various colors.

Signature

"Tis better to be thought a fool than to open your mouth and
remove all doubt."

Laura K.* - 19 Nov 2003 14:58 GMT
Hi Tony:

Wow, I am impressed.  You are correct about heat so when I go to the
pool, I change into an old wig and place a hat on top of my head to
protect my face from the sun.   IT is NOT human hair but synthetic and I
have gotten it wet while in the water.  But all in all, the wig is still
in one piece and none the worse!!! <g>

> >I'm taking a friend about to undergo chemo wigshopping this weekend.
> >Of course she has no idea how much of her hair she will lose, but she
[quoted text clipped - 30 lines]
> listening to her and seeing her once cook a wig by opening
> the oven.  Best luck. - Tony

Signature

Regards,
Laura K.*

I'm out of estrogen and I have a gun!

A man - 17 Nov 2003 21:20 GMT
This may sound simplistic, but I am sincere. How about double
sided tape?

Signature

"Tis better to be thought a fool than to open your mouth and
remove all doubt."

gabnet - 18 Nov 2003 15:56 GMT
Hello Pet:

Allow me to first introduce myself.  I am Laura K.*  From sunny Florida and
I have been dx for two and one half years.  During that time I have been on
some heavy duty chemo in which I lost both my hair and nails.  In the
beginning I bought all types of hats, many styles and shapes, but that was
when I resided in New York and temperatures were low.  While in New York
both my friends and myself searched aimlesslssy for a wig that might look a
bit natural, but to no avail.  Each and every wig looked exactly like a wig!
I remembered a wig store in a local flea market here in Florida.  I must
tell you that all my wigs (I have quite a stash now) look so very natural
and I am always getting asked where I have my hair done!!!  The wig, if done
by a competent person is not only styled, but sewed right in front of you so
it fits your head most properly.  I have never had any problems with being
bald nor an ill fitted wig.

I would be glad to be of assistance  gabnet@adelphia.net

Good Luck.

Laura K.*
I'm out of estrogen and I have a gun
> I'm taking a friend about to undergo chemo wigshopping this weekend.
> Of course she has no idea how much of her hair she will lose, but she
> asked me to find out how she will stabilize or connect the wig to her
> head if she loses all of her hair.
Kaye301 - 18 Nov 2003 16:47 GMT
my pet wrote << but once she shaved her head she always felt insecure and
afraid of the wig coming off.  Has anyone come up with a good solution
for this problem?  >>

I never had a problem with this.  Apparently this is less of a problem than it
was with older style wigs in the past.  The wig is on a stretchy or almost
elastasized fibers that when put on allow it to be breathable-and your scalp is
visible just as it is with your 'real' hair.  They do have a cap that can be
worn under it which is what one generally wears when you try on the wigs at a
store.  I tried several manufacturers and the one I liked best was made by
Rene' of Paris.  Later, the owner said that this had become one of the
preferred manufacturers by her customers.  The hair felt more real-like than
others.  In fact when I wore it for the first time, my very astute and
experienced hairdresser didn't even realize that I had the wig on at first.
She then remembered and couldn't believe how natural looking  it was.  I
actually had brought in two different ones and the one by Rene' of Paris seemed
the most natural.  It cost about $220.00 about 2.5 years ago.  There are less
expensive wigs that can be ordered through the American Cancer Society and are
also quite nice.
Laura K.* - 19 Nov 2003 15:13 GMT
Hi Pet:

I am not certain if I gave this information prior so I will again.  Tell
your friend to go to wig store that makes adjustments and sews it while
you wait.    THis way in case it is not correct, the person will be
there for more adjustments right then and there no need to run back and
forth.  She does not need a real hairawig, but synthetic, as they are
easy to care for.  But the most important is not the stabilizer, but the
FIT.

Good Luck

> I'm taking a friend about to undergo chemo wigshopping this weekend.
> Of course she has no idea how much of her hair she will lose, but she
[quoted text clipped - 4 lines]
> afraid of the wig coming off.  Has anyone come up with a good solution
> for this problem?  Thanks very much in advance.

Signature

Regards,
Laura K.*

I'm out of estrogen and I have a gun!

mypet - 27 Nov 2003 00:01 GMT
Thanks so much for all the help and information you have so graciously
shared.  I also wanted to add a website which is primarily focused on
men's hairpieces, but may have something that would help women as
well.  www.coolpiece.com
I see that they have all sorts of glues and tape if the situation
calls for it.  Which, from what I have read here...it probably won't
with a good wig fit.  Again, thanks and wish us luck!
marvin - 27 Nov 2003 01:48 GMT
> Thanks so much for all the help and information you have so graciously
> shared.  I also wanted to add a website which is primarily focused on
[quoted text clipped - 3 lines]
> calls for it.  Which, from what I have read here...it probably won't
> with a good wig fit.  Again, thanks and wish us luck!

superglue several thumbtacks inside your wig with the points facing down -
will take a very windy day to move it.
 
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