Medical Forum / Diseases and Disorders / Breast Cancer / November 2003
Do people tell you about other people whom have died from cancer?
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Richard Faulkner - 16 Nov 2003 23:48 GMT Hi,
Over the past few months, Janet has become increasingly upset by people, seemingly in all innocence, who tell her about their friend, or mum, or friend of a friend, who had cancer, went into remission, but it came back 5 years, or 10 years, or 15 years later, and they died.
Today, a lady who we like, who is 80 years old, and who is terminally ill with bladder cancer, told Janet that "once you have had cancer cells in your body, you can never get rid of them, and they WILL come back. It is a matter of when, not if".
This woman is the sprightliest, cheeriest 80 year old you could ever wish to meet. She also used to be a nurse at Christies Hospital, (presumably quite some time ago). She is a lovely lady and I am sure that she would not intentionally want to frighten Janet.
This has really worried Janet, even though rationally, it seems more sensible to believe the statistics which say that most people survive breast cancer these days.
So.....
How do you deal with people who insist on telling you things you neither want, nor need, to hear, about people who have died of cancer? particularly when you obviously cannot identify who is going to do it in advance, and therefore warn them off.
Also, how true can it be that once you have had cancer cells, they will always come back - and how can I reassure Janet that this ladys' opinion is wrong, and out of date?
Many Thanks
 Signature Richard Faulkner
WDW1972 - 17 Nov 2003 02:26 GMT >How do you deal with people who insist on telling you things you neither >want, nor need, to hear, about people who have died of cancer? [quoted text clipped - 4 lines] >always come back - and how can I reassure Janet that this ladys' opinion >is wrong, and out of date? I simply ignore them. As for the older lady - I've heard that if you don't die of old age or something else, eventually everyone will end up with cancer. That might be what she's thinking. I figure if I die from cancer when I'm in my late 80's or 90's....I don't have anything to complain about ;-) I'm certainly not going to stop and worry about it now (at age 45) or start picking out a coffin!
Sue - DivaofDVC aka WDW1972 DVC '97 OKW, Beach Club, Vero Beach, & Hilton Head
Katie - 19 Nov 2003 01:23 GMT If I had to vote on "best answer" to Richard's e-mail, I would definitely pick yours- it brightened my day. As one who is coping with the beast (breast cancer) I can use all the lightening up there is out there! And, of course, you made a very valid point wrt the old age. Thanks!!! Kate
> >How do you deal with people who insist on telling you things you neither > >want, nor need, to hear, about people who have died of cancer? [quoted text clipped - 14 lines] > Sue - DivaofDVC aka WDW1972 > DVC '97 OKW, Beach Club, Vero Beach, & Hilton Head Tony Lima - 17 Nov 2003 04:41 GMT >Hi, > >Over the past few months, Janet has become increasingly upset by people, >seemingly in all innocence, who tell her about their friend, or mum, or >friend of a friend, who had cancer, went into remission, but it came >back 5 years, or 10 years, or 15 years later, and they died. [snip]
Richard, I've faced this problem a few times with friends of my wife. If they're also friends of mine I make it a point to let them know that I'm trying to maintain a positive mental outlook around the house and would appreciate their help. If they're mainly friends of Gloria's I stay out of it but let Gloria know her friends are wrong.
Keep reminding yourself that statistics and group averages only apply to the whole group and tell you very little (if anything) about individual cases. Hope this helps a little. - Tony
P.S. If the folks making the comment are mainly friends of mine I don't hesitate to ask them to please refrain in the future.
 Signature Tony Lima /"\ ASCII ribbon campaign \ / against HTML mail X and postings / \
Tim Jackson - 17 Nov 2003 09:26 GMT It seemed to me that as I approached 50, death came into my life. Prior to my wife's illness I had hardly encountered serious illness among my acquaintances. Then a year after my wife died, my best friend died (bowel cancer), and my wife's best friend's mother in law died (breast cancer), and it seems that everyone was telling me about their friends and relatives who had or had died of cancer.
Did I want to know? Of course not, but I'm afraid it comes with the turf. Just the same as everyone wanted to tell my Russian wife whenever there was a documentary about Russia on the television. "Yes" she said, "I've been there, I've seen it."
I'm sorry I can't be more helpful, but I think it is another of the things you have to learn to cope with. Think of it as part of growing up.
As to your 80 year old, I would say that not only is she right but I would go one step further and say you don't even need the cancer cells. I doubt if there is an 80-year-old on the planet who has not got some sort of cancer going on, slowly and quietly in the background, that they never know of. For all of us it is not a matter of "if" we will die but "when", and the same applies to cancer, the only way we escape it is to die of something else first.
So there is no need for her words to frighten Janet unless she thought she was immortal, and I am sure she did not mean to frighten her.
We use words like "survive", "cure", "save" loosely, as if once cured of cancer we can avoid it happening again, as if a life once saved will never be lost. Unlike say, measles, cancer can come to all of us at any time, whether we have had it before or not. And those of us who have had it once, quite apart from possible metastasis, have demonstrated a probable propensity for producing cancers and so are at higher risk of getting it again just for that reason.
Tim Jackson
> Hi, > [quoted text clipped - 32 lines] > -- > Richard Faulkner Kaye301 - 18 Nov 2003 08:52 GMT << How do you deal with people who insist on telling you things you neither want, nor need, to hear, about people who have died of cancer? particularly when you obviously cannot identify who is going to do it in advance, and therefore warn them off.>>
Hmm, that's a tough one and my response is emotionally not always the best. i don't have the nerve to tell them that is not what i want to be hearing---at least most of them. Generally, I listen politely and internally discredit them. There is so much they don't know. Generally, the people who have said these things are not those with the highest SQ or EQ (social quotient or emotional quotient) and have their own emotional baggage--at least the ones that I have encountered. I can't recall the exact figures--but if I remember correctly about 200,000 are dx'd with breast cancer each year (in the U.S., I think--but could be wrong about that) and about 46,000 to 50,000 die from breast cancer each year. However, the %age of those who are not surviving is decreasing, meaning that those more recently dx'd generally have an improved chance for longer term remission. My husband used to do cancer research. His feelings are that once someone has enough cancer cells in their body for cancer to be dx'd then there are always or at least almost always some remaining cancer cells or the propensity for your body to creat more since the mutation is there. From what I gather those who have the best chance for cure are those whose cancer was discovered in its earliest stages. However, that does not mean a bleak or even negative outlook for others. Researchers are working on how to extend remission for different cancers. Hopefully that will include breast cancer. I wish I had some constructive answers but each of us is different along those lines. What has helped me is being proactive--which includes finding out as much as I can about b.c. Other things that have helped have been me is being involved in related, positive activities--i.e. doing the Susan G. Komen 3-day breast cancer walk as well as participating in the American Cancer Society's 'Relay for Life."
Richard Faulkner - 19 Nov 2003 01:40 GMT ><< How do you deal with people who insist on telling you things you neither >want, nor need, to hear, about people who have died of cancer? [quoted text clipped - 8 lines] >emotional quotient) and have their own emotional baggage--at least the ones >that I have encountered. It remains a tough one. Thanks to those who have replied. I guess there is no easy answer.
Janet listens like you do, then gets annoyed, and rants after the event. She usually commits to tearing a strip of the next person to do it - but doesnt.
Where can she go to hear tales of women who have had breast cancer and lived to 100 - or 70, or 80 ??
 Signature Richard Faulkner
Tony Lima - 19 Nov 2003 03:38 GMT >Where can she go to hear tales of women who have had breast cancer and >lived to 100 - or 70, or 80 ?? Here. There are also cancer support groups in most cities and suburbs. However, I'd advise attending a couple of meetings before she makes a commitment to a particular group.
There's a magazine called "Coping With Cancer" that tells many of the stories you want to hear. Give it a try. Best luck. - Tony
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Kaye301 - 19 Nov 2003 03:49 GMT Richard wrote << Where can she go to hear tales of women who have had breast cancer and lived to 100 - or 70, or 80 ??>>
I met several on the 3-day walk who were long-term survivors. My aunt is a 22 year survivor. My friends mother (who is now deceased) was close to a 40 year survivor.
Kaye301 - 19 Nov 2003 03:53 GMT Richard I had another thought re (Richard wrote << Where can she go to hear tales of women who have had breast cancer and lived to 100 - or 70, or 80 ??>>)
What helped me was watching the TV biography of the Lance Armstrong story. That gave me the impetus to sign up for the Susan G. Komen breast cancer 3-day. Another thing that helped me was the book, KITCHEN TABLE WISDOM, by Rachel Komen. Now, believe me--and am sure you may be able to surmise from the many posts re my fears, that I still think breast cancer sucks and am concerned about what is happening to me. I write about it here when it happens. I am able to forget--most times--when I feel good. Getting involved in other things helps, but all the stuff that I have done online has helped even more. Perhaps it would help Janet if she started writing here or to another online support group?
Lbucc - 19 Nov 2003 12:50 GMT Richard wrote:
>Where can she go to hear tales of women who have had breast cancer and >lived to 100 - or 70, or 80 ?? Right here. My mother was diagnosed 17 years ago. She had a lumpectomy and radiation and will celebrate her 81st birthday in February. I'm 7 years out from diagnosis myself.
...lisa
A. P. Thorsen - 19 Nov 2003 15:25 GMT > Richard wrote: > [quoted text clipped - 4 lines] > radiation and will celebrate her 81st birthday in February. I'm 7 years out > from diagnosis myself. My aunt and her daughter were both diagnosed around the same time, now over 9 years ago. Aunt's now in her 70s, and cousin just over 50.
My local support group has several participants who go back to the founding of the group, around 12 years ago, or longer. Most of them were in their 30s when diagnosed, and the usual expectation is for young women's BC to be more aggressive.
One woman on my BC survivors rowing team is 17 years out at age 58. Another, though only 5 years out, was diagnosed at about age 35 as stage 4 (non-local lymph node involvement) and is now NED (!) after two bone marrow transplants. A third, age 50, is 5 years out from a stage 3 diagnosis and also NED.
I'm only at 3 years myself (following a stage 3 diagnosis), but hopeful . . . despite losing my mother (at age 82) to BC.
Ann T. Remove 'dontsendspam' from address to reply by email
Barb - 19 Nov 2003 21:28 GMT ">
> Where can she go to hear tales of women who have had breast cancer and > lived to 100 - or 70, or 80 ?? Hi Richard, I don't qualify for the 70-80 year ld thing, but I am now a 20 year survivor. I was 35 at the time of my diagnosis. I am thankful daily that I have been in reasonably good health since then.
Wishing your wife many, many years of good health too.
Barb
Richard Faulkner - 19 Nov 2003 21:42 GMT >"> >> Where can she go to hear tales of women who have had breast cancer and [quoted text clipped - 8 lines] > >Barb Thanks again to all. I hope there will be more reports of long life after BC.
 Signature Richard Faulkner
Jim Van Nuland - 22 Nov 2003 10:12 GMT > Hi,
> Over the past few months, Janet has become increasingly upset by people, > seemingly in all innocence, who tell her about their friend, or mum, or > friend of a friend, who had cancer, went into remission, but it came > back 5 years, or 10 years, or 15 years later, and they died. I had the opposite experience, a rather amazing thing.
I'd been in the surgical waiting room; my wife was undergoing a lumpectomy. The surgeon came in, and said it looked malignant.
As he left, another "sitter" piped up. He'd heard what I'd been told, and said "What you need now is some case histories. My mother had breast cancer 14 years ago, and is healthy as a racehorse!"
What an upper! JUST what I needed to hear!
> How do you deal with people who insist on telling you things you neither > want, nor need, to hear, about people who have died of cancer? I stop them immediatly, and tell them that I want to hear only GOOD news. They usually walk away looking shocked.
 Signature Jim Van Nuland, San Jose (California) Astronomical Association
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