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Medical Forum / Diseases and Disorders / Breast Cancer / November 2003

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Do people tell you about other people whom have died from cancer?

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Richard Faulkner - 16 Nov 2003 23:48 GMT
Hi,

Over the past few months, Janet has become increasingly upset by people,
seemingly in all innocence, who tell her about their friend, or mum, or
friend of a friend, who had cancer, went into remission, but it came
back 5 years, or 10 years, or 15 years later, and they died.

Today, a lady who we like, who is 80 years old, and who is terminally
ill with bladder cancer, told Janet that "once you have had cancer cells
in your body, you can never get rid of them, and they WILL come back. It
is a matter of when, not if".

This woman is the sprightliest, cheeriest 80 year old you could ever
wish to meet. She also used to be a nurse at Christies Hospital,
(presumably quite some time ago). She is a lovely lady and I am sure
that she would not intentionally want to frighten Janet.

This has really worried Janet, even though rationally, it seems more
sensible to believe the statistics which say that most people survive
breast cancer these days.

So.....

How do you deal with people who insist on telling you things you neither
want, nor need, to hear, about people who have died of cancer?
particularly when you  obviously cannot identify who is going to do it
in advance, and therefore warn them off.

Also, how true can it be that once you have had cancer cells, they will
always come back - and how can I reassure Janet that this ladys' opinion
is wrong, and out of date?

Many Thanks

Signature

Richard Faulkner

WDW1972 - 17 Nov 2003 02:26 GMT
>How do you deal with people who insist on telling you things you neither
>want, nor need, to hear, about people who have died of cancer?
[quoted text clipped - 4 lines]
>always come back - and how can I reassure Janet that this ladys' opinion
>is wrong, and out of date?

I simply ignore them.  As for the older lady - I've heard that if you don't die
of old age or something else, eventually everyone will end up with cancer.
That might be what she's thinking.  I figure if I die from cancer when I'm in
my late 80's or 90's....I don't have anything to complain about ;-)  I'm
certainly not going to stop and worry about it now (at age 45) or start picking
out a coffin!  

Sue - DivaofDVC   aka WDW1972
DVC '97   OKW, Beach Club, Vero Beach, & Hilton Head
Katie - 19 Nov 2003 01:23 GMT
If I had to vote on "best answer" to Richard's e-mail, I would definitely
pick yours- it brightened my day.  As one who is coping with the beast
(breast cancer) I can use all the lightening up there is out there!  And, of
course, you made a very valid point wrt the old age.  Thanks!!!
Kate

> >How do you deal with people who insist on telling you things you neither
> >want, nor need, to hear, about people who have died of cancer?
[quoted text clipped - 14 lines]
> Sue - DivaofDVC   aka WDW1972
> DVC '97   OKW, Beach Club, Vero Beach, & Hilton Head
Tony Lima - 17 Nov 2003 04:41 GMT
>Hi,
>
>Over the past few months, Janet has become increasingly upset by people,
>seemingly in all innocence, who tell her about their friend, or mum, or
>friend of a friend, who had cancer, went into remission, but it came
>back 5 years, or 10 years, or 15 years later, and they died.

[snip]

Richard, I've faced this problem a few times with friends of
my wife.  If they're also friends of mine I make it a point
to let them know that I'm trying to maintain a positive
mental outlook around the house and would appreciate their
help.  If they're mainly friends of Gloria's I stay out of
it but let Gloria know her friends are wrong.

Keep reminding yourself that statistics and group averages
only apply to the whole group and tell you very little (if
anything) about individual cases.  Hope this helps a little.
- Tony

P.S. If the folks making the comment are mainly friends of
mine I don't hesitate to ask them to please refrain in the
future.

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Tim Jackson - 17 Nov 2003 09:26 GMT
It seemed to me that as I approached 50, death came into my life.  Prior to
my wife's illness I had hardly encountered serious illness among my
acquaintances.  Then a year after my wife died, my best friend died (bowel
cancer), and my wife's best friend's mother in law died (breast cancer), and
it seems that everyone was telling me about their friends and relatives who
had or had died of cancer.

Did I want to know?  Of course not, but I'm afraid it comes with the turf.
Just the same as everyone wanted to tell my Russian wife whenever there was
a documentary about Russia on the television.  "Yes" she said,  "I've been
there, I've seen it."

I'm sorry I can't be more helpful, but I think it is another of the things
you have to learn to cope with.  Think of it as part of growing up.

As to your 80 year old, I would say  that not only is she right but I would
go one step further and say you don't even need the cancer cells.  I doubt
if there is an 80-year-old on the planet who has not got some sort of cancer
going on, slowly and quietly in the background, that they never know of.
For all of us it is not a matter of "if" we will die but "when", and the
same applies to cancer, the only way we escape it is to die of something
else first.

So there is no need for her words to frighten Janet unless she thought she
was immortal, and I am sure she did not mean to frighten her.

We use words like "survive", "cure", "save" loosely, as if once cured of
cancer we can avoid it happening again, as if a life once saved will never
be lost.  Unlike say, measles, cancer can come to all of us at any time,
whether we have had it before or not.  And those of us who have had it once,
quite apart from possible metastasis, have demonstrated a probable
propensity for producing cancers and so are at higher risk of getting it
again just for that reason.

Tim Jackson

> Hi,
>
[quoted text clipped - 32 lines]
> --
> Richard Faulkner
Kaye301 - 18 Nov 2003 08:52 GMT
<< How do you deal with people who insist on telling you things you neither
want, nor need, to hear, about people who have died of cancer?
particularly when you  obviously cannot identify who is going to do it
in advance, and therefore warn them off.>>

Hmm, that's a tough one and my response is emotionally not always the best.  i
don't have the nerve to tell them that is not what i want to be hearing---at
least most of them.  Generally, I listen politely and internally discredit
them.  There is so much they don't know.  Generally, the people who have said
these things are not those with the highest SQ or EQ (social quotient or
emotional quotient) and have their own emotional baggage--at least the ones
that I have encountered.  
I can't recall the exact figures--but if I remember correctly about 200,000
are dx'd with breast cancer each year (in the U.S., I think--but could be wrong
about that) and about 46,000 to 50,000 die from breast cancer each year.
However, the %age of those who are not surviving is decreasing, meaning that
those more recently dx'd generally have an improved chance for longer term
remission.
My husband used to do cancer research.  His feelings are that once someone has
enough cancer cells in their body for cancer to be dx'd then there are always
or at least almost always some remaining cancer cells or the propensity for
your body to creat more since the mutation is there.  From what I gather those
who have the best chance for cure are those whose cancer was discovered in its
earliest stages.
However, that does not mean a bleak or even negative outlook for others.
Researchers are working on how to extend remission for different cancers.  
Hopefully that will include breast cancer.
I wish I had some constructive answers  but each of us is different along those
lines.  What has helped me is being proactive--which includes finding out as
much as I can about b.c.  Other things that have helped have been me is being
involved in related, positive activities--i.e. doing the Susan G. Komen 3-day
breast cancer walk as well as participating in the American Cancer Society's
'Relay for Life."
Richard Faulkner - 19 Nov 2003 01:40 GMT
><< How do you deal with people who insist on telling you things you neither
>want, nor need, to hear, about people who have died of cancer?
[quoted text clipped - 8 lines]
>emotional quotient) and have their own emotional baggage--at least the ones
>that I have encountered.

It remains a tough one. Thanks to those who have replied. I guess there
is no easy answer.

Janet listens like you do, then gets annoyed, and rants after the event.
She usually commits to tearing a strip of the next person to do it - but
doesnt.

Where can she go to hear tales of women who have had breast cancer and
lived to 100 - or 70, or 80 ??

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Richard Faulkner

Tony Lima - 19 Nov 2003 03:38 GMT
>Where can she go to hear tales of women who have had breast cancer and
>lived to 100 - or 70, or 80 ??

Here.  There are also cancer support groups in most cities
and suburbs.  However, I'd advise attending a couple of
meetings before she makes a commitment to a particular
group.

There's a magazine called "Coping With Cancer" that tells
many of the stories you want to hear.  Give it a try.  Best
luck. - Tony

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Kaye301 - 19 Nov 2003 03:49 GMT
Richard wrote << Where can she go to hear tales of women who have had breast
cancer and
lived to 100 - or 70, or 80 ??>>

I met several on the 3-day walk who were long-term survivors.  My aunt is a 22
year survivor.  My friends mother (who is now deceased) was close to a 40 year
survivor.  
Kaye301 - 19 Nov 2003 03:53 GMT
Richard I had another thought re (Richard wrote << Where can she go to hear
tales of women who have had breast cancer and
lived to 100 - or 70, or 80 ??>>)

What helped me was watching the TV biography of the Lance Armstrong story.
That gave me the impetus to sign up for the Susan G. Komen breast cancer 3-day.
Another thing that helped me was the book, KITCHEN TABLE WISDOM, by Rachel
Komen.  Now, believe me--and am sure you may be able to surmise from the many
posts re my fears, that I still think breast cancer sucks and am concerned
about what is happening to me.  I write about it here when it happens.  I am
able to forget--most times--when I feel good.  Getting involved in other things
helps, but all the stuff that I have done online has helped even more.  Perhaps
it would help Janet if she started writing here or to another online support
group?
Lbucc - 19 Nov 2003 12:50 GMT
Richard wrote:

>Where can she go to hear tales of women who have had breast cancer and
>lived to 100 - or 70, or 80 ??

Right here.  My mother was diagnosed 17 years ago.  She had a lumpectomy and
radiation and will celebrate her 81st birthday in February.  I'm 7 years out
from diagnosis myself.

...lisa
A. P. Thorsen - 19 Nov 2003 15:25 GMT
> Richard wrote:
>
[quoted text clipped - 4 lines]
> radiation and will celebrate her 81st birthday in February.  I'm 7 years out
> from diagnosis myself.

My aunt and her daughter were both diagnosed around the same time, now
over 9 years ago.  Aunt's now in her 70s, and cousin just over 50.

My local support group has several participants who go back to the
founding of the group, around 12 years ago, or longer.  Most of them
were in their 30s when diagnosed, and the usual expectation is for young
women's BC to be more aggressive.

One woman on my BC survivors rowing team is 17 years out at age 58.
Another, though only 5 years out, was diagnosed at about age 35 as stage
4 (non-local lymph node involvement) and is now NED (!) after two bone
marrow transplants.  A third, age 50, is 5 years out from a stage 3
diagnosis and also NED.

I'm only at 3 years myself (following a stage 3 diagnosis), but hopeful
. . . despite losing my mother (at age 82) to BC.

Ann T.
Remove 'dontsendspam' from address to reply by email
Barb - 19 Nov 2003 21:28 GMT
">
> Where can she go to hear tales of women who have had breast cancer and
> lived to 100 - or 70, or 80 ??

Hi Richard,
I don't qualify for the 70-80 year ld thing, but I am now a 20 year
survivor.  I was 35 at the time of my diagnosis.  I am thankful daily that I
have been in reasonably good health since then.

Wishing your wife many, many years of good health too.

Barb
Richard Faulkner - 19 Nov 2003 21:42 GMT
>">
>> Where can she go to hear tales of women who have had breast cancer and
[quoted text clipped - 8 lines]
>
>Barb

Thanks again to all. I hope there will be more reports of long life
after BC.

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Richard Faulkner

Jim Van Nuland - 22 Nov 2003 10:12 GMT
> Hi,

> Over the past few months, Janet has become increasingly upset by people,
> seemingly in all innocence, who tell her about their friend, or mum, or
> friend of a friend, who had cancer, went into remission, but it came
> back 5 years, or 10 years, or 15 years later, and they died.

 I had the opposite experience, a rather amazing thing.

 I'd been in the surgical waiting room; my wife was undergoing a
lumpectomy.  The surgeon came in, and said it looked malignant.  

 As he left, another "sitter" piped up.  He'd heard what I'd been told,
and said "What you need now is some case histories.  My mother had breast
cancer 14 years ago, and is healthy as a racehorse!"

 What an upper!  JUST what I needed to hear!  

> How do you deal with people who insist on telling you things you neither
> want, nor need, to hear, about people who have died of cancer?

 I stop them immediatly, and tell them that I want to hear only GOOD
news.  They usually walk away looking shocked.  

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Jim Van Nuland, San Jose (California) Astronomical Association

 
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