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Medical Forum / Diseases and Disorders / Breast Cancer / June 2007doxil
Have anyone of you taken that chemo and got blisters in the mouth? If you have what do you do for them. My duaghter is afraid it the shingles in the mouth, is that possible. > Have anyone of you taken that chemo and got blisters in the mouth? If > you have what do you do for them. My duaghter is afraid it the shingles > in the mouth, is that possible. Mouth blisters and sores are pretty common reactions to chemo. Our doctor didn't have anything better to offer than regular over-the-counter mouth ulcer treatments. However do ask your doctor. Tim Jackson >Have anyone of you taken that chemo and got blisters in the mouth? If >you have what do you do for them. My duaghter is afraid it the shingles >in the mouth, is that possible. I was given Difflam Oral rinse for mouth ulcers during chemotherapy and it was very effective. However I live in the UK, and it may be called something else in the States. You can read about it here http://tinyurl.com/2c38ju and here http://tinyurl.com/2x9x2t Its principal ingredient seems to be benzydamine hydrochloride. I hope that informations helps you find something.  Signature"It's easier to get forgiveness than permission." Rear Admiral "Amazing" Grace Hopper My daughter had to go to just a plain milatary dr, not her oncologist. All they gave he for the blisters, was Malox, and told her she will get plenty more. She is so hungy, ate yougart for breakfast, but it came back up. She had to fight, in order to just see this dr who was on call. I asked, couldn't she go on her own to anothere, she said not unless referred by a military dr. Hi Louanne, Couldn't she call her oncologist? The group where I go has Nurse Practioners and Physician Assistants take these kind of phone calls since the mouth blisters are kind of routine with chemotherapy. She should ask the next time she is in to see the oncologist what she specifically needs to do when she has a side effect. Some oncologists also provide their patients with their email address for patients to ask questions. I hope the Malox helps. It's actually one of the ingredients in something called "magic swizzle" which is often given to chemo patients to swish with. I can't remember the other two ingredients but can find out if you like. Give your daughter our regards and best wishes. Tammy > My daughter had to go to just a plain milatary dr, not her oncologist. > All they gave he for the blisters, was Malox, and told her she will get > plenty more. She is so hungy, ate yougart for breakfast, but it came > back up. She had to fight, in order to just see this dr who was on call. > I asked, couldn't she go on her own to anothere, she said not unless > referred by a military dr. I recall when I was getting my chemos, the nurse had me hold ice chips in my mouth. Has anyone heard of this? Apparently it worked because I never got any sores S.K. > Have anyone of you taken that chemo and got blisters in the mouth? If > you have what do you do for them. My duaghter is afraid it the shingles > in the mouth, is that possible. MY DAUGHTER CAN NEVER REACH HER MILITARY ONOCOLOGIST. SHE GETS A MACHINE, AND SHE IS SO OVER WORKED THAT IT DAYS TIL SHE CALLS BACK, IT TOOK ME TO DIAGNOSIS THE SHINGLES. YESTERDAY WHEN HER MOUTH GOT SORE, SHE CALLE AND THEY TOLD HER THE DID NOT KNOW WHERE HER DR WAS, THAT THEY HAVE DR ON CALL IF SHE WANTED HER. SO, THAT IS WHERE SHE GOT THE MOUTH RINSE, AND THIS DR CONFIRMED THE SHINGLES, WHICH HER ONCOLOGIST HAS NEVER SEEN. HOW CAN THEY PERSCRIBE WITH SEEING THE PATIENT. NOW, HER HB WANTED TO TAKE HER TO THE BEACH, BUT A FRIEND TOLD ME THAT HER DR TOLD HER THAT WHILE ON DOXIL, YOU ARE TO STAY OUT OF THE SUN. IF SO, WHY DON'T ALL DRS EXPLAIN THE TREATMENTS? SORRY ABOUT THE CAP, I AM SO USED TO USING THEM BECAUSE OF MY SIGHT, I FORGOT. > NOW, HER HB > WANTED TO TAKE HER TO THE BEACH, BUT A FRIEND TOLD ME THAT HER DR TOLD > HER THAT WHILE ON DOXIL, YOU ARE TO STAY OUT OF THE SUN. IF SO, WHY > DON'T ALL DRS EXPLAIN THE TREATMENTS? SORRY ABOUT THE CAP, I AM SO USED > TO USING THEM BECAUSE OF MY SIGHT, I FORGOT. Yes, it's a good idea to keep out of the sun while on chemo. Doctors unfortunately often forget to explain the 'trivial' everyday facts, they are too busy concentrating on the disease. They don't deal with the treatments on that level, they see prescriptions and symptoms and test reports, they don't see the actual mechanics of treatment on a daily basis, so it tends not to be at the forefront of their minds. The people to ask about this sort of thing are the nurses. They tend to be a lot more knowledgeable about the practicalities because they are there at the sharp end when the treatments are being administered. Also they tend to have more time to spend talking to the patient. Don't worry about the capitals, I'm sure everyone will understand. The analogy with shouting is sort of appropriate. "Why are you shouting on the newsgroup?" "Because I'm a bit deaf in the eyes." Tim > MY DAUGHTER CAN NEVER REACH HER MILITARY ONOCOLOGIST. SHE GETS A > MACHINE, AND SHE IS SO OVER WORKED THAT IT DAYS TIL SHE CALLS BACK, IT [quoted text clipped - 7 lines] > DON'T ALL DRS EXPLAIN THE TREATMENTS? SORRY ABOUT THE CAP, I AM SO USED > TO USING THEM BECAUSE OF MY SIGHT, I FORGOT. Have you tried calling your congressman, I think this is terrible that your daughter has gotten this treatment. Here is a link for mouth sores. http://www.chemocare.com/managing/mouth_sores_due_to_chemotherapy.asp Did the hospital give her any information with the chemo? Alex My daughter complained to the dr's secretary about never being able to contact her dr. She must have told the dr, now Deb says, she used to hug her, now she ignores me and treats me like a number. My daughter is very timid, and does not want to be known as a complainer. I asked her if she could not request another oncologist. She said "What's the use, they would just pass the info to the new dr that she is a complainer." But really she is not. she only contacts her dr when I tell her things I find out here. Yes, I was given ice to suck on when I was given Taxotere and it seemed to help me at the time. After treatment I was given bi-carb to rinse my mouth if I had any ulcers. Mary E. >I recall when I was getting my chemos, the nurse had me hold ice chips in >my mouth. [quoted text clipped - 6 lines] >> you have what do you do for them. My duaghter is afraid it the shingles >> in the mouth, is that possible. |
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