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Medical Forum / Diseases and Disorders / Breast Cancer / December 2006

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Follow-up scans?

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Eva - 24 Dec 2006 03:51 GMT
Also, people hear I had my 6-month follow-up visit and they ask me "So how
were your scans?"  I suppose they mean PET scans, like the one I had before
starting chemo.  The oncologist told me routine scanning is not recommended
for asymptomatic patients, but people seem surprised that I am not going to
be regularly scanned.  What is your experience?

Thanx Eva
Tim Jackson - 24 Dec 2006 11:54 GMT
> Also, people hear I had my 6-month follow-up visit and they ask me "So how
> were your scans?"  I suppose they mean PET scans, like the one I had before
[quoted text clipped - 3 lines]
>
> Thanx Eva

If you had a clear scan (CAT/PET/whatever) after surgery and there is no
other cause for concern then regular scans (to screen for mets.) are not
generally considered helpful.  Although I dare say some of the better
funded medical schemes will happily do it if the patient asks.  It might
also be recommended for a minority of patients at high risk of recurrence.

There is a lot of radiation dose in a PET scan or bone scan, rather less
in a CAT, and doing them regularly to everyone who ever had bc surgery
will cause more cancers than it detects.

There is also the question of what you would do with the information
should there be a positive result.  The rate of false positives is quite
high, most of us have some sort of benign lumps and bumps internally
that the scan will detect, which can be confused with cancers.

In the unlikely event that a distant recurrence is detected, in most
cases no treatment will be recommended until it becomes symptomatic
anyway.  This used to be standard procedure, but since the advent of
Herceptin and its ilk, there is a minority of patients (like Allan's
Deborah) who can be effectively treated at this stage to hold the
disease in abeyance for some time.

Tim Jackson
Alex - 24 Dec 2006 15:37 GMT
Eva...
here is a link to ACOR .

They support what Tim says but I agree with you about that if I was
having a recurrence I would want to know.
http://www.asco.org/ASCO/Downloads/Cancer%20Policy%20and%20Clinical%20Affairs/Cl
inical%20Affairs%20(derivative%20products)/Breast%20Surveillance%20Flow%20Sheet.
pdf


http://www.asco.org/portal/site/ASCO/menuitem.56bbfed7341ace64e7cba5b4320041a0/?
vgnextoid=0372cfa67145f010VgnVCM100000ed730ad1RCRD


Lots of good information on the ACOR site including lectures.

I know how you feel my  primary care doc of over 20+ years is giving up
his practice.....

Alex
> > Also, people hear I had my 6-month follow-up visit and they ask me "So how
> > were your scans?"  I suppose they mean PET scans, like the one I had before
[quoted text clipped - 27 lines]
>
> Tim Jackson
A.P. Thorsen - 24 Dec 2006 16:55 GMT
> Also, people hear I had my 6-month follow-up visit and they ask me "So how
> were your scans?"  I suppose they mean PET scans, like the one I had
[quoted text clipped - 4 lines]
> to
> be regularly scanned.  What is your experience?

Same.  I've had a number of scans over the last few years (bone scan, CAT,
MRI) when I had symptoms (back pain, persistent morning headaches, etc.).
All of the symptoms turned out to be routine causes, but they always jump
right to the scan for certain symptom sets, to rule out mets.  (I had quite
locally advanced BC, which may make a difference -- the primaries were
sufficiently extensive, and my BC discovered due to an enlarged lymph node,
so that I think my surgeon was surprised at the results of a pre-treatment
bone scan (clear).)

Every once in a while, one of the oncos has decided I should have a lung
x-ray "just because" (i.e., no symptoms), and my gyno does abdominal
ultrasounds and (owwie) endometrial biopsies regularly (because of the risk
of gynecological cancers in women who've had BC, plus elevated cervical
cancer risk in those who've taken Tamoxifen . . . and I have a history of
occasional spotty bleeding, besides).

They do blood tests every year - CBC/liver, no markers.   That and the gyno
stuff are the only routine scan/test stuff.

Like Tim said, they'll usually only treat mets if symptomatic, and there's
risk involved in scans, so why do them?  That seems scary at first, but not
so bad once you've been out of treatment for a while <g>.

The friends who ask you may be asking because (1) they don't have any
experience and only know what they read in magazines, which is often goofy;
or (2) they have experience with other types of cancer, where the practice
guidelines may be different.

Deep breath, don't worry -- if you're feeling good, odds are excellent that
you're fine.

Happy holidays,

Ann T.
Barb - 24 Dec 2006 20:47 GMT
My diagnosis and treatment was more than 23 years ago, so I'm sure my
protocol is "old hat", but I had follow up bone scans, chest x-rays,
mammograms.

Barb

> Also, people hear I had my 6-month follow-up visit and they ask me "So how
> were your scans?"  I suppose they mean PET scans, like the one I had
[quoted text clipped - 6 lines]
>
> Thanx Eva
 
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