Medical Forum / Diseases and Disorders / Breast Cancer / May 2006
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kilikini - 22 May 2006 14:08 GMT I'm going on Thursday for my initial consult with my surgeon. I'm so scared. My "friend" is on its way and as a result is causing my breasts to swell and I'm experiencing pain from the tumor to my nerves. It's like a toothache to my armpit.
I want this lump gone. I'm miserable.
Just lookin' to hear survivor stories and, yes, I'm looking for empathy because this doesn't run in my family and I'm scared. I don't have anyone to talk to.
On a good note....... I have no insurance, no dependents, my husband works, I don't, we're really poor (but above poverty level at $15,000 USD a year!?) and I got a new funding program started for women in my age (38) bracket through the American Breast Cancer Society. I'm getting some funding! Hopefully my phone calls and 3 weeks of hard work can help someone else get funding as well.
Anyway, just wanted to say "hi". I'm here, and I'm scared.
kili
A. P. Thorsen - 22 May 2006 14:50 GMT Hi, Kili,
Welcome to the group - I'm so sorry you have need to join us, but it's a good group of folks.
Some comments interspersed below.
> I'm going on Thursday for my initial consult with my surgeon. I'm so > scared. My "friend" is on its way and as a result is causing my breasts to
> swell and I'm experiencing pain from the tumor to my nerves. It's like a > toothache to my armpit. > > I want this lump gone. I'm miserable. I'm not clear what point you're at in diagnosis/treatment: Are you going to the surgeon for a diagnostic biopsy, or has your lump been confirmed as breast cancer already?
> Just lookin' to hear survivor stories and, yes, I'm looking for empathy > because this doesn't run in my family and I'm scared. I don't have anyone
> to talk to. I'm a 5+ year survivor of stage III breast cancer, which was discovered because of an enlarged lymph node (yes, the node did have BC in it, as well as five tumors in my left breast and one in the right).
Breast cancer treatment is a crummy hobby, but it's do-able, on a "one day at a time" basis. It's normal to be scared, depressed, etc., sometimes along the route.
Are there any breast cancer support groups in your area, or does the American Cancer Society have a "Reach to Recovery" program locally? Both of those are good ways to find someone to talk to who understands, in addition to this group.
> Anyway, just wanted to say "hi". I'm here, and I'm scared. This tough stuff, but obviously you're strong (look what you've achieved on the funding front already) -- you can handle this.
Sending positive thoughts your way,
Ann T. Remove 'dontsendspam' from address to reply by email
kilikini - 22 May 2006 19:07 GMT > Hi, Kili, > [quoted text clipped - 23 lines] > because of an enlarged lymph node (yes, the node did have BC in it, as > well as five tumors in my left breast and one in the right). Congratulations! I haven't been fully diagnosed yet; I'm going for my biopsy on Thursday, but I've been told it's very probable for cancer.
> Breast cancer treatment is a crummy hobby, but it's do-able, on a "one > day at a time" basis. It's normal to be scared, depressed, etc., [quoted text clipped - 11 lines] > > Sending positive thoughts your way, Thanks, Ann. I'm really scared. I'm just looking for some....... advice........... but that's not the right word......... I just want to hear some stories to prepare myself.
Thank you,
kili
A. P. Thorsen - 22 May 2006 19:51 GMT Hi, Kili,
> I haven't been fully diagnosed yet; I'm going for my > biopsy on Thursday, but I've been told it's very probable for cancer. Well, overall, most biopsies turn out not to be cancer -- something like 80% are benign, if I recall correctly. Still, I have to admit, if it "looks like cancer" vs. "looks suspicious", it's it's probable that your odds are someon
> Thanks, Ann. I'm really scared. I'm just looking for some....... > advice........... but that's not the right word......... I just want to > hear some stories to prepare myself. We've all got our own stories - it's suprising how different everyone is. I never did the "why me" phase, either. And I don't think my diagnosis made me numb . . . I think I was already numb!
My diagnosis came at the end of what had been a bad couple of years - husband died at 45 of esophageal cancer; both parents-in-law died; my 83 y/o father (previously completely independent right down to driving & doing his own taxes) fell & was blinded. I was diagnosed right about the time I was moving him out of rehab into assisted living, as he could no longer live alone. Telling him about my diagnosis was difficult -- my mother had died of BC a few years before.
So, my first reaction at diagnosis was more like "OK, so this is what's next. Sigh."
If you're interested in stories, you might want to check out this group's web site, generously hosted by Tim Jackson, at:
http://www.cancersupporters.com/ascb.html
The "bios" links will take you to many stories from those who now or have in the past participated in this group.
Personally, while I was sicker than average on chemo, I thought that it wasn't as bad as TV & magazine/newspaper storied would've led me to believe.
So, don't panic. Even if you do turn out to have BC, you can get through this. Lots of people have broken the trail ahead of you, and many of them are here to give you advice, or let you vent, as you may need it.
You'll keep us posted, won't you, regardless of how things turn out with your biopsy? Pretty regularly, women who've worried about their biopsies come back to tell us that it turned out not to be BC, which we love to hear. And, if the news isn't as good, perhaps we can help in some way.
Sending positive thoughts & wishes,
Ann T. Remove 'dontsendspam' from address to reply by email
kilikini - 22 May 2006 20:33 GMT > Hi, Kili, > [quoted text clipped - 52 lines] > Ann T. > Remove 'dontsendspam' from address to reply by email What a wonderful and encouraging post, Ann. I thank you and I will keep you up-to-date. God bless you (even though I'm not really into all that religious stuff). :~)
kili
Mary Fisher - 22 May 2006 21:10 GMT > Thanks, Ann. I'm really scared. I'm just looking for some....... > advice........... but that's not the right word......... I just want to > hear some stories to prepare myself. The problem is that nobody else's stories will be the same as yours. There are several different kinds of bc, many different kinds of patient and different stages and sites of the condition. Only a fool would give you advice based on their own experience.
It makes it very interesting :-)
Stick around and tell us the results. You'll have something to add to the interest of everyone hear and the body of knowledge.
Mary
kilikini - 22 May 2006 21:33 GMT > > Thanks, Ann. I'm really scared. I'm just looking for some....... > > advice........... but that's not the right word......... I just want to [quoted text clipped - 11 lines] > > Mary Thank you, Mary. I appreciate your input.
kili
alex - 23 May 2006 01:24 GMT >> Hi, Kili, >> [quoted text clipped - 21 lines] >> > because this doesn't run in my family and I'm scared. I don't have >> anyone
> Thanks, Ann. I'm really scared. I'm just looking for some....... > advice........... but that's not the right word......... I just want to [quoted text clipped - 3 lines] > > kili I was diagnosed at age 40 ( no family history), I am alive and well. My biggest health issue this year was having my screening colonoscopy. Waiting is very taxing. One suggestion go to the book store and buy the book by Susan Love MD, here is her web site http://www.susanlovemd.com/.
As Anne said most biopsies are neg. Hoping yours is. The biopsy, I had a core biopsy done under ultrasound, physically very easy. Waiting is the pits, and you have every right to be scared. Alex
lisa - 22 May 2006 18:33 GMT kili,
I can give you two survival stories. My mom was diagnosed 19 years ago. She had a lumpectomy and radiation and is still alive and kicking at 83.
I was diagnosed 9 years ago (yes, it seems like this runs in the family). They saw a suspicious spot on my mammogram, did a biopsy and found DCIS. In order to get clean margins, they did a second biopsy. Surprise! A teensy malignant tumor. I had a mastectomy but no chemo or radiation since the only cancer in any of the removed tissue was in that second biopsy.
It is a scary time. For many of us, it's the first time that we actually face our mortality. I went numb for a whole year following diagnosis. I always say that people thought I was so brave. Not true. I wasn't really there.
You've come to a great place. People here have had just about every possible experience with this disease and are very open and willing to discuss anything. We're also pretty good at listening to rants when things get you down.
Good for you getting a funding program started! It's wonderful to see someone take a proactive approach rather than letting the system dictate the possibilities.
I wish you all the best. Take care. ...lisa
kilikini - 22 May 2006 19:04 GMT > kili, > [quoted text clipped - 26 lines] > Take care. > ...lisa Thanks, Lisa. I guess I'm at the numb point as well. I just can't believe it, but I'm NOT asking the proverbial "why me". It's got to happen to someone, right?
As of now, I'm just looking to talk to people. I would have never thought groups were therapy in the past, but I can see it now. Success stories, biopsy stories, chemo stories........ I'd love to hear them.
I think a little knowledge is best in this situation.
Thanks, all.....
kili
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