>> New York Times:
>> Balancing Painful Swelling With a Desire to Exercise
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> In my experience the medics who deal with cancer know little and care
> less about lymphedema.
That may be your experience but it's not true of all medics.
Nobody knows everything and I've been disappointed about what a couple of bc
doctors-in-training told me - but I put them right!
> Prior to my wife's MRM the subject did not
> arise, and I didn't know of it because my research had been focused on
> types of cancer, treatments and where to get the best.
And that could be the same for bc doctors.
> After the
> surgery the surgeon, a very well known and respected fellow, said "Oh
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> times a week and a personal trainer, with whom she lifts what she can
> which is a lot more than 5lbs, twice a week.
That's fine but if you'd ignored the 'conventional wisdom' and things had
gone wrong would you have been so cock-a-hoop?
> She wears a compression
> sleeve when she does weights and when she flies and so far, three years
> on, she is fine.
I never, ever wear a compression sleeve, my lymphoedema clinic supplied me
with some but they're too painful (heck, I can't even bear a bp cuff on my
GOOD arm!)
> She is, however, extremely careful to avoid injury to
> the arm in jeopardy and when she gets a minor scratch or scrape we are
> there immediately with the antibacterial treatment.
I'm not careful about that at all and only once (very shortly after the
surgery) did I use anything on a quite major scrape on a site where there
are chickens and goats wandering freely.
We're all different.
> I don't know what
> causes lymphedema in one person and not in another but I have to
> believe that a reasonably active life style is a help rather than
> otherwise.
That might be true of one person and not another, to use your words.
We're all different. That includes medics. It's not fair to make judgemental
statements about a whole section of humanity.
Not wanting to change my lifestyle after my surgery in 1998 I didn't. I
still do the gardening, I still share in erecting a very heavy tent several
times a year, I still lift and carry heavy chests. I've no idea of the
actual weights of these things but they're far, far heavier than 5lbs. If I
damage myself that's my lookout, not the medics'.
But in fact they've been very supportive, they say that there's obviously no
increase of my lymphoedema (it's monitored) and that if I prefer to be happy
doing what I do rather than sit around being bored, that's up to me. That's
what I think too. That's what I think Ann T thinks too.
I do practise manual lymph drainage though, which I'm sure helps my
condition. Here in my city we have a specialist lympho clinic which
encourages an aggressive approach to dealing with lymphoedema and it works!
Exercise of any kind and to any degree is not banned, rather we take control
of our own condition.
Mary