Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Breast Cancer / April 2006

Tip: Looking for answers? Try searching our database.

hot flushes and reconstruction

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
didlems - 20 Apr 2006 20:20 GMT
Hi everyone,
have not posted for some time.dx'd Nov 2002, mastectomy then 7 mths chemo,
bc oestrogen neg. Personal life was upside down, husband unable to accept my
appearance or the bc dx,however we are still together... probably due to a
few  'scare recurrances' he finally has some sympathy for me !(am I being
harsh) ?
The reason I have surfaced is because of a recent   post concerning hot
flushes.Mine are still 'full on'. They started Feb 2003 just after chemo
began.I have tried accupuncture and chinese herbal tabs (this cost me over a
thousand pounds)then I tried Red Clover. Both did help a little but I am
still suffering. My temperature gets so high I feel I shall explode...then I
drip with sweat....everywhere !This is happening every hour.......no
joke.......I tried the Effexor in 2003, but did not like how they made me
feel.I am happy for any suggestions....
Also, a friend had reconstruction using skin and fat from her
stomach........I have been so impressed with her results that I now have an
appointment with the same surgoen in two weeks.Are there any post op ladies
out there who would care to share their experiences of this op with me....I
would be very grateful.
best wishes to all.
kathleen
lisa - 21 Apr 2006 13:13 GMT
Sounds like you're talking tram flap.  I had that done about seven
years ago and am fairly pleased with the result.  It doesn't look real
up close but is a fine placeholder so I don't have to wear a
prosthesis.  Under little lacy numbers it looks great (just in case
your worried about your DH and what he'd think).

Be aware that the surgery is not easy - I was on the operating table
for over 10 hours.  Recovery is even worse.  About the third day I
thought I was gonna die.  I had read that I would feel like I was hit
by a Mack truck and that description was not far off.  My sister is a
nurse.  She had seen films of the surgery and could not believe that I
was doing this.

If you haven't already, I wuld suggest grabbing a copy of Dr. Susan
Love's Breast Book.  It has pretty thorough descriptions of the surgery
and what to expect.

I commiserate with your hot flashes.  I've had them off and on
(currently on and happen about every 20 minutes) since my diagnosis 9
years ago.  Sheesh.  Will they ever stop?

I'd be happy to answer any questions you have.

Take care.
...lisa
alex - 22 Apr 2006 15:03 GMT
Kathleen
I had   a tram flap....1997, very please, when I go for mamogram, the techs
often like I had a mastectomy. The surgeons have improved their techiques
and the surgery now takes 4-5 hours with a mastectomy. I would check how
many trams the surgeon has performed ( the more the more proficent)....most
have photo book where you can view their results. Also if you are  a smoker
or diabetics this may not be the surgery for you.   Alex
Dvora L - 22 Apr 2006 22:56 GMT
Hi - Hope its Ok to ask  question about the flap reconstruction ?
Do the surgeons have to also reconstruct your belly ? or do a tummy tuck
type procedure ? I was wondering because my breasts are quite full and
would require lots of tissue ???
Also --- sorry it felt like a mac truck hit you --- did you feel like
that for long ?
Thanks in advance :-)

Be safe and well :-) .... Dvora
alex - 23 Apr 2006 16:19 GMT
Yes, very similar to a tummy tuck, it flattened my stomach, as far as the
fullness of  your breast, I opted to have a reduction on the other side
which I very pleased with. I had three procedures done, a mastectomy, tram
flap, and breast reduction done, I was in the operating room for 5 hours. I
was admitted on a Tuesday and home on Friday.
The only bad pain I had was the day after surgery. I had no to little pain
the first night, I later learned I had a long acting anesthetic injected at
the end of surgery. I was on a Morphine pump, but since I never asked for
the initial loading dose, the smaller doses didn't do much.
I asked for Percocet and I was fine. I remember going back to work in less
then a month, and starting chemo six weeks after.

I couldn't drive while using narcotics, and remember driving about a week
after surgery. I had a c section and the belly pain was similar.
What is most annoying where the drains, since you are not suppose to shower
with the drains in.

> Hi - Hope its Ok to ask  question about the flap reconstruction ?
> Do the surgeons have to also reconstruct your belly ? or do a tummy tuck
[quoted text clipped - 5 lines]
>
> Be safe and well :-) .... Dvora
Eva - 23 Apr 2006 16:45 GMT
I just want to add that if you've had previous abdominal surgeries a TRAM
flap is not recommended.  So I didn't have one.  Instead I had a latissimus
flap over an implant.  There are numerous methods of breast reconstruction.
One size doesn't fit all.  At first I was very disappointed that I couldn't
have a TRAM flap because other people I know have been very happy with it
and of course I liked the idea of getting a flatter stomach in the bargain,
but OTOH I have less scarring and I didn't have to have the other breast
"symmetrized."  I would say don't get your heart set on one option, listen
to what your doctor has to say and come to the right decision for you.

Eva
Dvora L - 23 Apr 2006 20:38 GMT
i did not know there were other options --
glad yours worked out well -
do you know why abdominal surgery rules out the flap -- i have had
several ---
thank you eva --

Be safe and well :-) .... Dvora
Dvora L - 23 Apr 2006 20:34 GMT
thank you so much alex --- that reduction sounds like it would be a good
idea that never occured to me ---
my daughter had a reduction done when she was 17yrs -- no illness tg -
but a huge improvement in self esteem and physical comfort ---
it was not covered by our insurance - so i did not ever do it for me --
lol - imagining at 60 - getting the body i always dreamed of --- wow --
sorry about all small letters and no capitals ---
i also have ms- multiple sclerosis - only one fingers working today --

Be safe and well :-) .... Dvora
alex - 24 Apr 2006 02:19 GMT
MS, they may not want a long operation, like a TRAM, but implants are
quicker and easier.  Abdominal surgery weakens the muscles since they have
been cut before. Imagine a piece of cloth, cut once and sew back together,
the cloth may not be as strong as initial piece was.
Alex
PS Great idea to bring your daughter with you best to have another set of
eyes and ears.
Dvora L - 24 Apr 2006 13:25 GMT
Thanks Alex :-)
I can see your points about why a tram would probably not be the best
option for me --
I have heard many conflicting stories about implants ???
I sure wish my daughter was here - should not have moved to Florida -
never realized how much I depended on her emotionally until she was so
far away -
LOL !
sure did take her for granted --- and I thought I was so independent
:-)

Be safe and well :-) .... Dvora
alex - 24 Apr 2006 22:52 GMT
> Be safe and well :-) .... Dvora

Don't be swayed by the internet,do some research on your own. Ask your
primary care doc what his opinion is since s/he has no vested interest other
that your best interest. If you go to the doc, perhaps you daughter could be
on the speaker phone. Alex
J - 24 Apr 2006 23:56 GMT
> I can see your points about why a tram would probably not be the best
> option for me --
[quoted text clipped - 4 lines]
> LOL !
>  sure did take her for granted --- and I thought I was so independent

Dvora,
A lady with MS here chose prophylactic double mastectomy - removal of the
other breast to ensure that recurrence would not occur in the other
breast. I think that way ensured she would not have to have another
surgery with anesthetic risks. But the surgeon left some breast tissue, in
case she decided to reconstruct later, which if I recall, she regrets.
Make sure you're clear on what you do or don't want and follow the best
advice about the cancer, from your cancer doctor (not a cosmetic surgeon)
to ensure your best chance of survival.

She also said that she'd found the perfect prosthesis; did not move
around, when she moved, was not uncomfortable and looked sharp even in
evening wear. If I have time later, I'll try to find the brand and model.

Send your daughter the FDA website
http://www.fda.gov/cdrh/breastimplants/indexbip.html
Under "Local complications" it says "Breast implants do not last a
lifetime. Some breast implants rupture/deflate 14  in the first few months
after being implanted and some deflate after several years. Others may
take 10 or more years to rupture/deflate."

The ones who've had problems are on another newsgroup. Recently two older
ladies posted.
One had had her implants for 26 years and had an mri because she was in
pain and both had ruptured.
She posted that removal cost $20,000. (in debt and was looking for
financial help).

The other is 72  with 30+ year implants. They are hard as rocks and
painful.She was trying to find a recommeded doctor to remove them. Here's
her posts http://tinyurl.com/qrq8r
The main message is implants don't necessarily last forever. Sure some
have no problems, some die with their implants and others have problems.

So if you delay the reconstruction surgery, you've got extra surgery (and
anesthetic risks) later and you would have to find out what's involved if
extra breast tissue is left vs none and deciding no reconstruction.
So much to that, whether the tissue has to be irradiated; how it's imaged
later to monitor.

Might be a good idea to send a copy of that book to your daughter, as
well, so she can do some reading and understand the options so she can
discuss them with you. It would also be nice if she could go with you to
take notes when you see the doctors.
J
alex - 25 Apr 2006 02:00 GMT
I am a bit confused, did you  complete your treatment or you just beginning?

The people who post here about implants are neither breast cancer or have
breast implants. I see on TV, women who have huge  implants for cosemetic
reasons by doctors who's ethics are in question.
If you live in the US, you will never have to pay for implants or the
following surgery , as long as you have insurance.

A breast center, has a plastic surgeon who works with the team.
lisa - 23 Apr 2006 17:00 GMT
Dvora,

I was really only in real pain was only the second and third day.  Even
though I had two previous c-sections, I had never experienced the gas
and constipation that came with this one.  It's the constipation that
was so painful.  I'll never laugh at an ex-lax commercial again!  I had
one percoset and it give me so many jitters that I threw the rest away.
Tylenol with codeine was just perfect.

In my case, they tunneled the tissue up the torso under the skin.  It
sounds like there might have been changes in procedures since I had it
done (seven years can provide lots of medical advancement), so the best
idea is to ask your doctor how s/he does the surgery.

...lisa
Dvora L - 23 Apr 2006 20:49 GMT
wow - tunneled tissue - did that work well for you -- i know the pain
meds have strange effects on your belly -- i can not take anything
except lowdose vicodin or extrastrength tylenol --
my doctors are very confusing to me right now ---
i have cognitive problems from multiple sclerosis --- my daughter will
come from another state as soon as school is out -
she will go with me to drs --
i did order a book this group has mentioned several times --- i think it
is called --
the breast book - by dr susan love -
that should at least get me familiar with the vocabulary ---
thanks for your help ---

Be safe and well :-) .... Dvora
Barb - 24 Apr 2006 22:06 GMT
Hi Kathleen,
My mastectomy surgery was in Nov. of 1983 and I had a year of CMF chemo
following.  The hot flashes started with the chemo and continued for a
number of years.  I then had a few years without them and they returned with
a vengeance and had been really miserable for probably 5 years (or more).
Don't know why they returned---maybe close to my age of natural menopause,
maybe the Evista I took for a few years.....Anyway, they have abated again,
thankfully!  They aren't entirely gone, but they happen less often lately.
Let's see, that would probably make between 15 and 19 years of hot flashes!
While they are no fun, I figured that they are an inconvenience I can live
with, since I'm still here and with no evidence of disease.

I had reconstruction when my chemo was completed.  Had a tissue expander and
a Becker implant of saline.  I am satisfied with it, although the weight
I've gained makes me a trifle lopsided  :-)  That's of my own doing, so I
can't really complain of that either, huh?

I hope your hot flashes don't last 15 years! And I also hope that you find
the reconstruction method that you are most comfortable with.  Best wishes
for good health.  Let us know what you decide about the reconstruction.

Barb
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.