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Medical Forum / Diseases and Disorders / Breast Cancer / January 2006

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Teddy - 08 Jan 2006 13:26 GMT
My arm swells slightly and becomes very painful so that it is very
difficult to turn a key or open a door or dress, etc. This lasts no more
than 2 days, then is slightly sore a few more days, then disappears. The
weird thing is it keeps moving around. It's never in a joint so
arthritis doesn't seem likely but it does show up after heavy lifting
but not always. The drs. seem baffled. It started in my upper arm about
where ppl punch others and has been about 2 inches above my wrist on
each arm and in my side.  Drs. have guessed arthritis, tenndonitis,
shingles, etc. I'm guessing lymphedema.  I had a mastectomy March of
2004 with reconstruction in Oct. 2004 and an implant on the other side
'to balance things'. Anyone heard of this before?
lymphedemapeople@gmail.com - 08 Jan 2006 18:43 GMT
Hi Teddy

It is my belief that what you are experiencing is the beginning of
lymphedema. This is based on what you shared and that it just doesn't
sound like either arthritis or tendonitis.

Here are some symptoms of arm lymphedema:

A feeling of tightness around the arm on the area that was treated for
cancer,
Decreased flexibility in a hand, elbow, wrist, fingers, or leg,
Difficulty fitting into clothing,
Tight fit of a ring, wristwatch, bracelet, or shoe,
Weakness, pain, aching or heaviness in the arm, legs, or feet,
Skin that looks shiny, has fewer folds, and feels stiff or taut,
A dull ache in the affected limb,
A feeling of tightness in the skin of the affected limb,
Difficulty moving a limb or bending at a joint because of swelling and
skin tightness,
Pitting (small indentations left on the skin after pressing on the
swollen area)

These pages can also give you some info and many resource links for arm
lymphedema:

Arm Lymphedema
http://www.lymphedemapeople.com/thesite/arm_lymphedema.htm

Lymphedema and Breast Cancer
http://www.lymphedemapeople.com/thesite/lymphedema_and_breast_cancer.htm

Wish you the best!!!!
Pat O'Connor
Lymphedema People
http://www.lymphedemapeople.com
Tim Jackson - 09 Jan 2006 13:21 GMT
> Hi Teddy
>
> It is my belief that what you are experiencing is the beginning of
> lymphedema. This is based on what you shared and that it just doesn't
> sound like either arthritis or tendonitis.

It certainly sounds rather that way, but the hypersensitivity described
doesn't really fit the bill, that sounds more neurological.  More as if
perhaps there was an inflammation in the axilla which was affecting both
the lymph system and the nerves.

But I'm not a doctor and I wouldn't like to second-guess one on the
basis of a brief description. This sounds like an atypical presentation
to me, and I would recommend pushing the doctor for further
investigation if it persists.  Meanwhile it would not hurt to take the
usual precautions recommended for lymphedema.

Tim Jackson
Teddy - 09 Jan 2006 14:35 GMT
Thanks for the information-altho it is scary. I do like to be well
informed so I know what I should do for myself. This morning I woke up
with sharp pain in my other arm.
Teddy - 19 Jan 2006 14:40 GMT
i was sent to a rhuematologist by my GP. It seems I have beginning
Rheumatoid Arthritis probably brought on by the mastectomy.  I was given
a shot in my right arm above the wrist and in my shoulder where the most
frequent pain hits and 2 rxs that cost $50 each even with my Blue Cross
medicare rx discount plan. All my pain is gone except for my right knee
that feels on fire when I try to kneel.  Thanks for your input.
Tim Jackson - 19 Jan 2006 15:19 GMT
> i was sent to a rhuematologist by my GP. It seems I have beginning
> Rheumatoid Arthritis probably brought on by the mastectomy.  I was given
> a shot in my right arm above the wrist and in my shoulder where the most
> frequent pain hits and 2 rxs that cost $50 each even with my Blue Cross
> medicare rx discount plan. All my pain is gone except for my right knee
> that feels on fire when I try to kneel.  Thanks for your input.

Would that have been a steroid such as dexamethosone?

That sounds hopeful, not that anyone wants Rheumatoid Arthritis, but
it's probably more manageable than lymphedema.

Glad to hear you have a diagnosis anyway.

Tim Jackson
Teddy - 26 Jan 2006 13:39 GMT
The shots were some kind of steroid and lidocaine.  He also gave me rxs
for Mobic 7.5 mg 2x a day and Prevacid 30 mg once a day.  
 
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