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Medical Forum / Diseases and Disorders / Breast Cancer / October 2005

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Roll Call

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Tim Jackson - 03 Oct 2005 18:13 GMT
October again already.

We don't need any reminding about the "breast cancer" part of "breast
cancer awareness month", so lets concentrate on the "awareness" part and
get to know each other a bit better.

To start the ball rolling:

I'm a 54 year old freelance electronic engineer from north-west England.

My wife died of breast cancer in March 2000 about 3 years after a
painful and swollen breast was diagnosed as advanced multifocal cancer,
which after mastectomy, chemotherapy and radiation progressed to bone
mets.

I've been writing to this group ever since.

Our daughter was six at the time her mother died, and has now just
started at high school (which starts at age 11 in the UK), which she
thinks is great.

I provide the website   " www.cancersupporters.com "
which carries the FAQ for this news group and alt.support.cancer, also a
photo gallery and a "bio" space where contributors to
alt.support.cancer.breast can create their own mini-websites

Tim Jackson
lisa - 03 Oct 2005 18:42 GMT
I haven't done this for some time, so I guess I'll pop up now.

I'm a 52 year old software engineer who lives outside Boston.  I was
diagnosed when I was 43 - I cannot believe it's actually been almost 9
years!  A biopsy contained DCIS; a larger excision to get clear margins
contained a teensy malignant tumor.  I had a mastectomy.
Reconstruction (tram flap) came a year and a half later.

I come from a family riddled with breast cancer.  My mother's sister
died of it years ago; my mother was diagnosed 19 years ago, had a
lumpectomy and radiation, and is still going strong.  My sister is the
only female in the family who has not been diagnosed (and we're all
praying it doesn't happen).

I was pretty active in this newsgroup years ago, but work often gets in
the way these days so I mostly lurk.  If there's a poster who is
looking for information that I can provide or if there's some huckster
that really annoying, I pipe up.

...lisa
Pat from Apple Valley, CA - 04 Oct 2005 01:18 GMT
Well, I was first diagnosed in Jan of 2000. ( at age 59) Had lumpectomy,
4 A/Cs, 37 radiations and 4 Taxol treatments at that time. I didn't
respond to Tamoxifen as mine was only slightly positive for er
receptors. I was a stage 2B, Lobular Carcinoma.
    It reappeared again in May of 2004. Bone mets in the ribs and back and
spots to the liver. I was prescribed Arimidex this time with no results.
Did I mention that I had only slightly positive er receptors? I took
Arimedix until my CA27.29 reached 2400 and had a chance to change Ins
providers and change Oncologista. Since them I have been on 4 different
Chemos. Some have worked well for awhile in lowering the numbers,
others, like the Doxil I am currently on not doing anything. I will
change treatments again next week if the numbers continue to get bigger.
I am thinking af calling The City of Hope for a clinical trial

Phase II Study of Tandem Cycle Dose-Intense Chemotherapy of Mephalan and
Carboplatin, Thiotepa, and Cyclophosphamide (STMP V) followed by Helical
Tomotherapy for Stage IV Metastatic and Stage IIIB Inflammatory Breast
Cancer

Not sure about clinical trials. I don't know if I would qualify, and am
kind of afraid to call. the phone number is
877-482-4673. City of Hope is located in the city of Duarte (LA county)
in California.
    I read this group every day...
Pat from Apple Valley, CA....
cussot - 10 Oct 2005 03:52 GMT
I'm Cussot in BC, Canada, diagnosed at 42 years old in 1997. Had a
mastectomy, CMF chemo and rads for ER/PR negative, grade III 4 cm tumour,
negative lymph nodes. NED after 8 years and feeling pretty darn good. I
lurk mostly, but love reading the posts.
Barb - 03 Oct 2005 21:35 GMT
I'm Barb, a soon to be 57 year old wife, mom, grandma and kindergarten
teacher.  I was diagnosed almost 22 years ago with stage 2 bc.  I had a
right modified radical mastectomy, followed by a year of CMF chemo and then
reconstruction with a tissue expander and a saline implant.  I have been NED
since, although I had a recent (Summer) stereotactic biopsy for some areas
of punctate calcification.  Thankfully, all is well.  I have been
contributing to the group for a few years, but often can't comment on the
newer techniques and chemo drugs.  I appreciate the group---and feel like
it's not a complete day if I don't at least read posts.
alex - 03 Oct 2005 23:10 GMT
I guess I am the baby of the group here, I am 49, work as a RN, Diagnosed at
age 40, stage II had mastectomy with reconstruction, and 4 rounds of AC. I
live south of Boston. Things have been pretty quite here recently.
A. P. Thorsen - 04 Oct 2005 02:02 GMT
> I guess I am the baby of the group here, I am 49, work as a RN, Diagnosed at
> age 40, stage II had mastectomy with reconstruction, and 4 rounds of AC. I
> live south of Boston. Things have been pretty quite here recently.

Hey! I'm also 49!

Diagnosed at 44, in September, 2000, when an enlarged lymph node didn't
respond to antibiotics.  Uh-oh!

Bilateral mastectomies, one simple & one modified radical, no
reconstruction.  5 tumors in left breast (largest 3.1cm), 1 in right.
One node positive.  3 months AC, 3 months Taxol, both on 3-weeks
schedule.  33 radiation treatments.  Tamoxifen, later Arimidex.

I'm single (widow), a manager type in info technology (day job), and a
late blooming rower (since 2003, when I joined a breast cancer survivors
rowing team).

So far, NED.

Ann T.
Remove 'dontsendspam' from address to reply by email
Jackie - 20 Oct 2005 02:19 GMT
Guess I'm the baby now  :-)

I'm 48 & was dx'd with invasive lobular in 2002.  ER/PR+  Modified radical
on right side.
2 nodes positive.  Due to the fact I was so small to begin with my wound
couldn't
be closed & I developed a staph infection that carried on for 6 months.
Then had
4 treatments of A/C .  Then a profolactic of left breast. Also had
oopherectomy due to a bad
reaction to Tamoxifen. I'm still debating whether or not I should get a skin
graft done as
every kind of material that rubs against it sends me nerves wacky.

First ever in my family to have BC.  I live in Nova Scotia Canada

hugs
jackie

> > I guess I am the baby of the group here, I am 49, work as a RN, Diagnosed at
> > age 40, stage II had mastectomy with reconstruction, and 4 rounds of AC. I
[quoted text clipped - 18 lines]
> Ann T.
> Remove 'dontsendspam' from address to reply by email
bonehammer73@yahoo.com - 20 Oct 2005 10:13 GMT
> Guess I'm the baby now  :-)

Er, no ;-)
I forgot to put my age in my prevous message. I'm 32. Does this group
need a mascotte?

Chiara
marilyn@utrillo.ac - 20 Oct 2005 12:26 GMT
>Guess I'm the baby now  :-)
>
[quoted text clipped - 14 lines]
>hugs
>jackie

Hey, we're neighbours. I'm in New Brunswick

Marilyn
Jackie - 30 Oct 2005 06:40 GMT
Well hello there neighbour

hugs
jackie

> >Guess I'm the baby now  :-)
> >
[quoted text clipped - 18 lines]
>
> Marilyn
Eva - 20 Oct 2005 12:44 GMT
> Guess I'm the baby now  :-)
>
[quoted text clipped - 9 lines]
> graft done as
> every kind of material that rubs against it sends me nerves wacky.
----------
Wow, and I thought *I'd* been through hell!  I congratulate you for
surviving to post another day.

Eva
su-texas@webtv.net - 22 Oct 2005 09:37 GMT
Susan from Texas.

Took over a year and a half, to get testing & care for breast lump,
which was by then third-stage cancer.  

Have excellent insurance too, pays 100%. However, very flawed & failed
medical system here.

Had very bad reaction to Arimidex, but doc insisted I take it anyway for
about 18 months, which resulted in many additional health problems,
including sudden & severe acute lymphedema.

Docs refused to do testing to see why I was so sick after chemo & rads
in 2002. In June 2005, when I was almost dead, the ER determined I had
major CHF (congestive heart failure) due mostly to cancer drugs, esp.
Adriamycin.

There has been no testing to see why this drug harmed me so much, ....
so this shows that the docs & PHARMA companies don't care who they harm,
or why their drugs harm. They're a medical business/industry for $$$,
that's set up Not to care, .... to walk away & look away, as the bodies
fall behind them. And that does hurt.

I've seen three cardiologists, but can't get medical care for the CHF
yet (surgeries: pacemaker, defibrillator, etc.), ..... because of the
ongoing abuse & crimes, threats & assaults, robberies & burglaries,
.... & the public corruption (DA, Judges, JP, law enforcement, etc.)
which support & encourage it here in East Texas, ..... & the harm this
does.

I wouldn't recommend East Texas or West Louisiana, as a place to live or
seek medical care, .... due to the overwhelming levels of public
corruption, the crime rule. Basically, nothing good can survive here,
much less have any peace, safety, or prosper. It's a no-win situation &
place. Many people say they'd get out, move somewhere else, if they just
had the money, weren't so heavily in debt.

It would be nice to get the chance to focus on health care, for a
change, instead of self-protection & basic survival issues.

However, for right now, I have to keep focusing on self-protection &
survival issues.

Avoid East Texas & West Louisiana, if at all possible.  And I'd Not
recommend MD Anderson, nor the Baylor Breast Care Center at Methodist
Hospital in Houston, for breast cancer surgery or treatment.

Methodist Hospital seemed OK, but I'd get a surgeon & treatment Not
associated with Baylor or UT.

Susan, Su_Texas  my opinions
Debbie - 22 Oct 2005 12:05 GMT
| I've seen three cardiologists, but can't get medical care for the CHF
| yet (surgeries: pacemaker, defibrillator, etc.),

I might be wrong, but I didn't think that the medical care you list are
treatments for Congestive Heart Failure.  I was under the impression that
CHF was caused by fluid buildup and the treatment of choice was diuretics
(fluid pills).  Once the fluid dissipates, so does the CHF.

Debbie
su-texas@webtv.net - 22 Oct 2005 13:09 GMT
Hi Debbie,

It's major congestive heart failure, probably somewhat from injuries &
mostly from cancer meds. I don't believe that's build-up. It's sudden.

The first cardiologist said heart transplant, .... but pacemaker, etc.
first.

The second said pacemaker, defibrilator , L-VAD (?) in stomach.

The third said we'd start with medications, & move on to surgery from
there.

I've started the medications (July), but then the public corruption
(corrupt DA, judges, JP), crimes & abuse, burglaries & burning (my
birth-family), their harming of my pets took over, took priority. [They
did succeed in murdering my dogs this time, but not me, ..... although
they gave it a danged good try, & I'm very weak, traumatized, in shock.]

If they can harm me to death, before I get an accounting of the trust
funds, .... then they can get away with the crimes they've done
concerning it, & all the crimes they've done to cover it up & harm me.
I'm also still trying for an investigation into the public corruption
here, by the FBI.

When I can, I'll get back to seeking care for CHF.

In July, the cardiologist said the CHF is Very bad, & wanted me in
hospital immediately. He also said no exercise.

So far, I don't know that much about CHF, except that you can't breathe
or walk good, your chest really hurts, you cough & gag a lot, there's
nausea, & it's scary.

This kind of CHF (from cancer meds, poisons) is different from regular
CHF (build-ups & such, high blood pressure, diabetes).

Susan, Su_Texas  my opinions
Debbie - 22 Oct 2005 17:02 GMT
| So far, I don't know that much about CHF, except that you can't breathe
| or walk good, your chest really hurts, you cough & gag a lot, there's
| nausea, & it's scary.

CHF is scary, because you are literally drowning on the flid.  Whether
caused by medication or your bodily processes wearing down, it is still the
result of fluid buildup.  It doesn't take much time to build up enough to
cause difficulty.  Look at pneumonia patients with buildup in their lungs.
With CHF it is around the heart.  The breathing difficulties are caused by
the pressure on the outside of the lungs.  The heart symptoms are caused by
the increased work load on the heart to do its job and by the increased
pressure of the fluid around the around.  |
| This kind of CHF (from cancer meds, poisons) is different from regular
| CHF (build-ups & such, high blood pressure, diabetes).

At the level of symptoms there is no difference as to cause.  As to
treatments available?  I guess if the CHF is extensive then it can cause
damage to the heart to the extent that surgery may be necessary.  Also
research is creating more understanding and finding new treatments all the
time and I am certainly not up to speed enough to agree or disagree with
anything you have said in this regard.

My best wishes to you for getting your issues resolved to your satisfaction.

Debbie
J - 22 Oct 2005 12:50 GMT
> Docs refused to do testing to see why I was so sick after chemo & rads
> in 2002. In June 2005, when I was almost dead, the ER determined I had
> major CHF (congestive heart failure) due mostly to cancer drugs, esp.
> Adriamycin.

Hi Susan,
There's a Congestive Heart Failure and Cancer Treatments ACOR mail list here

http://www.acor.org/mailing.html?l=c
51 subscribers. I don't recall seeing it there before, but maybe it's been
around for some time.
I don't know, you'd have to ask them and compare notes on types of heart
failure and treatment, I guess.

> There has been no testing to see why this drug harmed me so much, ....

There's no need for testing. It's mentioned here
http://www.news-medical.net/?id=2919
Note the date. I did not have that information way back, when you and I had
exchanges.
And I'm not posting the full article to the group. Do with it as you wish.
It's up to each to find out the risks and benefits of treatment.
The way I see it, they did not have the information, that they do now.
In addition, if you'd not been treated, you may not be here now to vent
about your heart.

I found that article after a wife of a patient posted that he'd died of
heart failure.
She had an atuopsy done, because the cancer response was going well,  he was
fit and not "aged", so it was quite unexpected.

> [...]
> I've seen three cardiologists, but can't get medical care for the CHF
> yet (surgeries: pacemaker, defibrillator, etc.), .....

I don't have information about your type of heart failure.
My cat's treatment involved medications. It's a management issue.
I'm not sure there is surgery for your heart failure.

> I wouldn't recommend East Texas or West Louisiana, as a place to live or
> seek medical care, ..

I'm glad you survived the hurricane. I was watching where they expected it
to hit and was mighty worried about you (since the day before it hit, they'd
mentioned the border between West Louisiana and the eastern part of Texas),
so welcome back.
Hugs
J
Jackie - 30 Oct 2005 06:42 GMT
Hi Eva

I guess I just want to keep busy  :-)

hugs
jackie

> > Guess I'm the baby now  :-)
> >
[quoted text clipped - 15 lines]
>
> Eva
didlems - 03 Oct 2005 23:18 GMT
so, its that time again!!
hello to all, my name is kathleen, i had a radical mastectomy in Nov
2002,but it seems like yesterday and then followed seven months of ECMF
which took its toll on me, but I am now absolutely back on track .
I was very disturbed for a long time being oestrogen neg,no tamoxifen for
me,but i've mostly got over that now,mostly grrrrrrr !
For me, its just a must to come to this nwsgrp, people  share their stories
and I gain strength from that,so thankyou everyone.
kathleen

> October again already.
>
[quoted text clipped - 22 lines]
>
> Tim Jackson
Marsha - 04 Oct 2005 02:39 GMT
Hi I'm Marsha from Baltimore,MD.
I'm a 11 year survivor, and currently NED.  I was diagnosed with my first
mammogram. DCIS large area of microcalcificationsm, had a modified radical
mastectomy right side, 4 rounds of AC, followed by Tamoxifen 5 years.  Seems
like ages ago, I don't post that often but I'm here.  I'm registered Medical
Technologist (Clinical Lab Scientist for our folks across the big sea) So I
often chime in with responses about lab tests etc.

I'm also a lymphadema survivor as a result of the nodes removed.
If anybody needs help on either. Give me a holler.

Life is good

Marsha M
Eva - 04 Oct 2005 03:19 GMT
I am 57, was diagnosed with stage 3 bc in June '04.  Chemo, surgery,
radiation in that order.  Now taking Arimidex and weekly IV Herceptin.

That qualifies me to participate in this newsgroup but it's not who I am!

Eva
KD - 04 Oct 2005 07:59 GMT
I'm Karen, formerly from Michigan, now in Florida. In 2001 I developed
fast-growing cancer at the site of an injury that occurred Sept 12.  Had
lumpectomy  in November 2001 and nodes removed. None positive. Whipped
lymphoedema, but the chemo  nearly killed me by the third treatment.
Spent 10 days in hospital. white count down to  .4 (that is 'point' four)
abcesses and emergency surgery, two blood transfusions, you name it.    This
summer when I had my annual exams, they found another cancer at the site of
another injury in the opposite breast.  Had another lumpectomy. Was in the
process of moving so now have to find a new oncologist in central Florida.
There was no followup up north.  So, I thought I had better start lurking
around. I had for a while in 2001 and it was very helpful. Oh, I am 62 years
young, old, or ancient, depending on the day :)  And I don't think I ever
got over chemo brain....
> October again already.
>
[quoted text clipped - 22 lines]
>
> Tim Jackson
marilyn@utrillo.ac - 04 Oct 2005 11:24 GMT
I'm Marilyn, 58 years old. I had a lumpectomy in 2002, CMF chemo,
radiation, and now Arimidex.

I don't post much, but I read everything  and admire everyone who
posts here. It helps me so much to know that I am not the only person
here with chemo brain and breasts that are different sizes.
Gabriel - 04 Oct 2005 14:40 GMT
My wife is 63. She had intense itching in her left breast in April 2005,
especially, say, after a hot shower. Her left breast became swollen and
hard with inverted nipple (no lump at any time); her left arm became
swollen and puffy; and she started having pain at the top of her left
leg. After a visit to her doctor, immediate referral to hospital, and a
battery of tests including biopsies she was diagnosed as having hormone-
sensitive stage 4 breast cancer with bone metastases. It sounds to me
like inflammatory breast cancer, though there has not yet been a biopsy
to confirm this specific point.

She is on letrozole (hormone therapy),and lapatinib or placebo (clinical
trial). Analgesics as required; at the moment she is OK on paracetamol
(Tylenol), and prefers to take little, though she is advised to take
more to preempt pain rather than letting it start. Leg pain is somewhat
better; other problems (probably side effects) include easily damaged
and bleeding skin, and minor digestive problems. She has hot flushes.

She continues doing office work. She doesn't want to use the Internet in
any way about her condition, but knows that I do.

A message for other women without known breast cancer is to consider an
itching, lump-free, breast to be as much in need of immediate checking  
via biopsy as a lump. (Itching, hard swollen breast, orange-peel
appearance, inverted nipple.)

Best wishes,
Signature

Gabriel

Hoosier - 04 Oct 2005 15:11 GMT
I am 69 year old woman, stereotactic biopsy - DCIS - lumpectomy -
reexcision - MammoSite late 2004.  This Aug lumpectomy which was negative,
1/4 inch area of  incision still seeping fluid (getting mighty old) but it
is gradually getting better.  I also have rheumatoid arthritis and dealing
with knee and shoulder that need replacements (have hip, knee and shoulder
replaced on other side).  Feeling really down about all this, but realize
after reading some of the others' situations that I could be much worse.
PD
María - 04 Oct 2005 18:23 GMT
> October again already.
>
[quoted text clipped - 22 lines]
>
> Tim Jackson

I live in the home counties (UK) and work in London.  Diagnosed stage 1 last
year at 40.  Lumpectomy, decided not to go for chemo but had radio,
currently on Tamoxifen and Zoladex (tumour highly hormone sensitive).  I
have a short temper and a dark sense of humour.

I'm an employment adviser in a publicly funded advice centre.  I delight in
securing compensation for my clients from bad employers.

Heard of the "Bicentennial Man"?  Well, I'm pretty sure I'll be the
"Bimenopausal Woman" once the Zoladex runs out....

María
wizard10000@gmail.com - 05 Oct 2005 12:43 GMT
allan grossman here - my wife Deborah was dx with stage IV breast
cancer (5.5cm primary tumor, ER+, PR+, Her2+, 4/28 nodes positive, mets
to both lungs) in August 1999 and I've been a member (although recently
an infrequent poster) here since shortly after that.

We're currently doing our third round with the beast, having trounced
it soundly twice before.  Herceptin put Deborah in remission twice
before but this time she showed some disease progression while on
straight Herceptin with Arimidex (and Zoladex to keep her ovaries shut
down), so Dr. Smiley (yes, our oncologist's name really is Smiley)
added Navelbine back into the mix and her CEA and CA 15-3 are slowly
declining once again.  Life is good  ;-)

Dr. Smiley has said we're gonna stay on the Navelbine/Herceptin thing
for as long as it works, and I think the next treatment for us will
probably be Abraxane - at least that's the way the doc is leaning.

But for now, life is good.  Deborah is still in some discomfort from
when the needle slipped out of the port in her chest and deposited a
whole pile of Navelbine under her skin instead of into a vein - there's
been some internal scarring and a fair bit of pain, but at least we got
to use the port again last Wednesday for the first time in weeks.

Deborah's got a hell of a case of lymphedema on her surgical side - her
upper arm is about as big around as my thigh and I'm not a small person
- but we've pretty much learned to live with that side effect.

Anyway, as I said, life is good - and we're living proof that there is
life after a stage IV diagnosis.  The girl's still got some fight left
in her  ;-)
alex - 06 Oct 2005 00:21 GMT
Glad to hear you are doing well, regards to Deborah!
> allan grossman here - my wife Deborah was dx with stage IV breast
> cancer (5.5cm primary tumor, ER+, PR+, Her2+, 4/28 nodes positive, mets
[quoted text clipped - 26 lines]
> life after a stage IV diagnosis.  The girl's still got some fight left
> in her  ;-)
Barb - 06 Oct 2005 01:45 GMT
So glad you did Roll Call.  Have been thinking of Deborah and wondering how
things are going.   Good to hear that the chemo is doing it's thing.  Hope
that the infiltration clears sooner rather than later and that you continue
to read and post.  Give my regards to Deborah too.

Barb
Lowell - 06 Oct 2005 01:54 GMT
Hi, I'm Lowell, hubby of Thelma (72) who fought BC back in 1990; chemo,
radiation then Tamoxafin for 5 years. Developed recurrence in 2003 with mets
to brain, tumors, lungs and bone. (Seems like cancer was never really
eliminated.) More radiation; to throat and brain tumors. Currently on
monthly infusions of Zometa to strengthen bone and Femara to limit estrogen.
She has lost 50 lbs., now at 115. Recently has had weekly Procrit injections
to up hemoglobin count. Has gotten weak to the point that she doesn't feel
safe driving anymore. Lately her joints and leg muscles are giving her
considerable pain. She counters with Advil and aspirin. We wonder what's
next. . .

She isn't computer savvy, but doesn't mine my lurking about the BC sites for
any input that we may find helpful.

Thanks to everyone for your help, encouragement and wisdom.  Lowell in
eastern PA.

> October again already.
>
[quoted text clipped - 3 lines]
>
> To start the ball rolling:
Annie - 09 Oct 2005 11:35 GMT
> October again already.
>
[quoted text clipped - 23 lines]
>
> Tim Jackson

Hi Annie here from Northwest Ohio. Married 32 years, 3 kids, 9
grandchildren. I'm 55 years old [56 is not far off].
I'm the "domestic engineer" around here. I've been coming here almost 6
years now. WoW! time flys when you're having fun, huh? These people in
this group have been just absolutely fantastic to me. They've been here
for me during some very rough times. This group most nights have been
my sane minds in a sea of fear. Thanks so much to all of you and you
know who you are...You're GREAT people.

And now without further ado..Annie's Story/Saga
Original dx was 4/99 IDC Stage 1. lumpectomy. CMF 6 months. 33 Rads.
Recur in 11/02. MRM with recon. Lat flap/saline implant. 6 months
chemo. 4 rounds of AC and additionally 4 rounds of Taxotere. Treatment
completed 6/03.
Have had a couple of scares in the last couple of years or so, but
those were straightened out once we found someone that knew what he was
doing. ;-)

Doing well and hope to stay that way. I've not posted here all that
often lately, but I do pop in most every night to read and see what
everybody's doing.
We're pretty much trying to get back on our feet here. My MIL died
1/18/05 uterine cancer to lungs [held on for 2+ years/lots of
chemo/rads].
My father passed away on February 6, 2005.
And then Gene's uncle passed away the day after my father.
The good news is I just had my annual mammogram,followed up with an
appt with the breast cancer surgeon/specialist and everything is fine.
He does an ultrasound and breast exam when I see him. That's what I
call my "peace of mind" visit.
I was kidding with the gal that did my mammogram "you'd better be
smiling when you come back in here, this year has s*ucked so far"
And she was indeed smiling from ear to ear..and that was GREAT news.
Sorry for rattling on, I've got a bad habit of doing that [right Tim?
hee hee]
Take care there everyone and God bless each and everyone of you.
annie
Greta - 10 Oct 2005 22:11 GMT
Hi, I'm Greta - posted a lot at the time of my DX in August 2004 and
appreciated the support and advice. My Oct. Bone Scan showed no new visible
tumors (original on Iliac a bit larger).
However the recent CAT Scan showed an "8mm density of focus of enhancement
near the dome of the liver, with surrounding vascular blush ...suspicious of
malignancy" - not good news at all!
I will be having an MRI to confirm next week.
The hardest thing I struggle with is that all one's life (I'm no spring
chicken) one is used to getting better after illness but this takes such an
about face in attitude.
I was hoping for 5 years from DX.
Thank you all for the good "work" that you do.
Greta
piper1963@blueyonder.co.uk - 10 Oct 2005 23:05 GMT
Rachel here, Bristol UK. Long time lurker after the wonderful support
of this group following diagnosis in 1998, at he age of 34. Currently
NED, 7 years after lumpectomy, chemo & radiotherapy for a Stage 1,
Grade 3 tumour.

Thanks for reminding us about roll call Tim. Nice to meet you all
again.

> October again already.
>
[quoted text clipped - 23 lines]
>
> Tim Jackson
Jo - 12 Oct 2005 08:27 GMT
Hi, I am Jo from Sydney Australia and I still lurk.  Post very infrequently.
Dx June 1992 with 3 cm negative tumour, 1 lymph node involved.  Lumpectomy,
radiotherapy and CMF chemo over a six month period.  I was 46 when dx and
have just celebrated my 60th birthday.  I now have 5 grandchildren and my
2nd son gets married in Fiji in 3 weeks so hopefully I will see a couple
more.  Hugs to everyone in the group.
> October again already.
>
[quoted text clipped - 22 lines]
>
> Tim Jackson
Michele - 16 Oct 2005 08:49 GMT
Hi, from Paris, France. I'm new here and lurking regularly and feeling less
alone. I am a 51 year old stay at home mother of 3, flown the nest wonderful
children. My husband flew the nest a year and a half ago too with another
women....got bored, he said. I had a lumpectomy on the 21st of july 2005 and
am half way through radiation. Tamoxifen is the next step. I'm a little
scared about all the side effects I read about here and there. I'm not
menopaused yet and have to go out into the real world and look for a job,
for the first time in my life. I have never been sick and worry that
medication side effects will make it more difficult for me to concentrate on
working and earning money. I am afraid of getting and feeling old too fast,
of physical degradation and weight gain and all other superficial physical
changes that will make it more difficult for me to start an outside
"career". I am grateful that social security here takes complete charge of
me and feel for all the Americans whose treatment depends on their
pocketbooks. I also envy (with warmth and no bad feelings) all the women
whose men post here and those who are supported by men who stick by them and
convince them that they are not diminished and are still women.
Thank-you for the introductions, its a pleasure to meet you all.
Michele

> October again already.
>
[quoted text clipped - 23 lines]
>
> Tim Jackson
Nana23 - 18 Oct 2005 03:08 GMT
Hi, I guess I should say hello too. I'm "Nana" and have 3 wonderful
grandchildren, two terrific children, and a husband.

My breast cancer was removed (mastectomy) nearly 3 years ago now. I did the
chemotherapy, but not radiation. The cancer was ER+ and large and invasive
but not, thank god, in my lymph nodes. Last year I had the other breast
removed, just in case.

It has taken me these nearly 3 years to recover my mental balance, I guess.
Now I'm looking more positively on life, and enjoying living day to day, and
trying to put cancer to the back of my mind.

I live in Ontario, Canada
Nana
bonehammer73@yahoo.com - 18 Oct 2005 09:52 GMT
Hi from Italy.
I've been mostly lurking since last year, when I was diagnosed with a
t2n0m0, Grade 3 ductal carcinoma.
I got a quadrantectomy with sentinel lymph nodes, EC + CMF chemo
treatment, and 25 radiotherapy sittings. Surgery went peachy, and I was
able to work during most of the treatments.
A week ago I've started developing pain all around the scar and under
the armpit. It was the first anniversary of surgery, so we joked a
little about the 'Morgul scalpel' but it hasn't subsided and I'm
starting to get worried. The breast is tender, too, but has been that
way since the radio treatment.
I've got my annual control on the 15th of November, and all the exams
are under way, so I'm gonna know soon which is which.

All the best
Chiara
 
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