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Medical Forum / Diseases and Disorders / Breast Cancer / July 2005Ghost Sensations
I heard a story from a person today about a woman who had a mastectomy. He related that she claimed to have ghost sensations during arousal, and would start to fondle her "breasts", in a fashion similar to a paraplegic scratching and itchy ghost limb. I don't know whether or not he was being boorish, or whether he actually had such a friend. However, I had such a friend, but she died surprisingly shortly after her mastectomy, and I cannot not ask her. I hope, then, that no one finds my question off colour, but I am curious about this plausible concept. Though, I wonder if the stimulation is of ghost breasts, or if instead it is that the body's erogenous zones are fairly influenced by one another, and/or enhanced by the brain's machinations during erotic events. >I heard a story from a person today about a woman who had a mastectomy. He >related that she claimed to have ghost sensations during arousal, and would [quoted text clipped - 10 lines] > fairly influenced by one another, and/or enhanced by the brain's > machinations during erotic events. I've often wondered about that too, I wouldn't have expected a phantom breast to beany different from a phantom limb. The nervous system certainly has some strange effects on the body, my husband has a neurological condition which causes some VERY unreal - and sometimes distressing - sensations in his lower right quarter. And since my axilla surgery I have itchings which won't respond to scratching. When you accept that they aren't real it's easier to cope with. Frustrating though! Mary >>I heard a story from a person today about a woman who had a mastectomy. He >>related that she claimed to have ghost sensations during arousal > > I've often wondered about that too, I wouldn't have expected a phantom > breast to beany different from a phantom limb. I have to admit that I wonder whether OP is a troll, and/or fishing for kink. (Um, forgive me if I'm wrong about that, Michael, but why exactly is it that you'd like to talk with us about our erotic breast sensations, or our erotic sensations in lack-of-breast?) There is copious info on the web about phantom breast pain after mastectomy. (Google some set of words like "phantom breast pain mastectomy" for many links.) Other (non-pain) sensations don't seem as widely reported (or maybe just not as google-able), but it seems possible. Ann T. Remove 'dontsendspam' from address to reply by email >>>I heard a story from a person today about a woman who had a mastectomy. >>>He related that she claimed to have ghost sensations during arousal [quoted text clipped - 6 lines] > is it that you'd like to talk with us about our erotic breast sensations, > or our erotic sensations in lack-of-breast?) I wondered too but in my experience the best solution for dealing with a troll is to talk intelligently, that floors 'em. We shall see :-) Mary Sorry for the long absence, but I've been away on business. > I have to admit that I wonder whether OP is a troll, and/or fishing for > kink. Who or what is "OP"? No. While I personally prefer relaxing in t-shirts to push-ups, pumps, and mascara, there is enough kink in my life without looking. Though, sex is part of why I ask. I will probably meet another lass whose been afflicted, and not having learned from the first experience (or lack of), I think I should learn now. I am a bit embarrassed that I hadn't thought to ask her, but she seemed totally recovered, and we had so much other fun to have. > (Um, forgive me if I'm wrong about that, Michael, but why exactly > is it that you'd like to talk with us about our erotic breast > sensations, or our erotic sensations in lack-of-breast?) Who could be better? I actually noted two things observing your news group: 1) very broad topics of conversation, and 2) not many trollers. So, what better place to find the information to debate the boor who originally raised this to my attention? Who better than survivors and their friends to convey that knowledge? I also hate ignorance, and like to go to the source for knowledge. I hate taboos, secrets, shame, guilt, etc. (BTW, anyone seen "Kinsey"?) > There is copious info on the web about phantom breast pain after > mastectomy. Through the usual swill that arrives when one googles for any body part, I found plenty, but nothing about pleasure, erotic or otherwise. However, aside from usenetgirl "alex", I still lack a more detailed understanding of what might be involved. While usenetgirl mentioned "sensations", this is not necessarily to say "erotic". The only knowledge I have is to the contrary. I knew a girl who had a lumpectomy. Afterward, she lost enough sensation that she had little interest, outside visual, of me fondling her breasts. This is breast cancer support group, since you don't have a geninue interest in breast cancer, I am not going to respond to any more of your questions. > Sorry for the long absence, but I've been away on business. > >> I have to admit that I wonder whether OP is a troll, and/or fishing >> for kink. > > Who or what is "OP"? "Original Poster", i.e. -- as you inferred -- you. > No. While I personally prefer relaxing in t-shirts to push-ups, pumps, > and mascara, there is enough kink in my life without looking. Since you've beem good enough to patiently explain your motivations, Michael, please accept my apologies for my initial skepticism. Rarely, but every once in a while, we *do* get a troll -- and I consider them particularly low life forms -- who seems to have a twisted focus on our "mutilation". Unfortunately, I still can't offer you any more concrete information, having never heard (in a real-life support group, or here) of the sort of thing you describe. I certainly have never experienced anything like it. I would think that the mechanisms in the brain/nervous system that give rise to phantom pain, might also be capable of other phantom sensations in other cases. I think phantom pain is fairly rare, other sensations might be even more so, so I don't know that you'll get much of substance, even here. Ann T. Remove 'dontsendspam' from address to reply by email > Since you've beem good enough to patiently explain your motivations, > Michael, please accept my apologies for my initial skepticism. I do not need an apology, since I know what you have been through. While I confess to some hesitation about my own inquiry, I've learned from surviving my own ordeals that I need to have faith in my own sincere curiosity. > Rarely, but every once in a while, we *do* get a troll Yes, this has stoked a new curiosity. How have you avoided trolls? You do not appear to be a moderated group. And that impresses me most, that you are very organized, in a social sense. I do not have breast cancer, but I almost want to stay here for support! You have a fine group. I am strangely ashamed to admit that I'm not turned on by those scars. I wish that I were more accepting of the scar tissue. I've dealt with it (swallowed my awkwardness); and, I actually am turned on by some scars, but not many surgical ones. My sense of justice and sympathy leave me feeling a bit uneven at surgical scars, especially those that society-- and many even more open minded persons-- consider symbolic: knee surgery on an athlete, radical mastectomy on a woman, etc. The irony is too diabolical. That makes a nice segue for my other reactions to postings in this group. I am quite sensitive to the fact that I may not be welcome by all, or even most, but I am quite moved by the bewilderment of those who have been ostracized by family members. In case I am unwanted, or simply to unabashed, I will not post further responses unless I am solicited, but I want those confused souls to know that I understand... both sides. > I certainly have never experienced anything like it. We should probably pursue this privately, since I understand I may have encroached on some individuals' sanctity. I am only responding publicly to this to acknowledge your open-mindedness and courage. > I would think that the mechanisms in the brain/nervous system that give > rise to phantom pain, might also be capable of other phantom sensations > in other cases. I think phantom pain is fairly rare, other sensations > might be even more so, so I don't know that you'll get much of > substance, even here. You are a good person. If you'll allow, I would like to love you as much as I can through this medium. Michael, as far as I'm concerned you're welcome to participate - you may learn something about relationships as well as about breast cancer. Be aware that not everyone may feel the same as I do but this is a public group. What's going on here is life - nothing more. I think the folks in this group have a common bond - sometimes one or more of us is angry, sometimes we might be scared witless, sometimes looking for information that someone else may be able to provide. I've seen a few folks come here trying to get their jollies and normally they don't last long. We're not prudes by any stretch of the imagination and you'll occasionally see a bit of ribald humor here - a lot of the time it's coming from me and all the women just roll their eyes, pat me on the head and wait for me to be distracted by something shiny ;-) We've had many discussions on sexuality in this group and will probably have many more in the years to come - but the girls here are pretty good at sniffing out who really wants to know something and who's typing with one hand. You've got to admit that it's understandable if a few people raise their shields when a a first-time poster asks an intimacy question. It's a difficult subject. Anyway, welcome. > Michael, as far as I'm concerned you're welcome to participate Thanks for that. > ... looking for information that someone else may be able to provide. Certainly my motivation was to learn, but as there is no immediate need for the knowledge, I cannot hold my self interest above someone's discomfort. Even if a vast majority of you encouraged me to stay, unless my presence were helpful, I couldn't actively remain. > We've had many discussions on sexuality in this group I'm actually surprised my query hasn't already been answered. There are groups for sufferers of AIDS and herpes to both get support and find lovers they won't need to worry about. I think from what I've read, this group could use a bit of that. Too many lovers shunning the scars, or the fear of "contagious cancer", or the effects of the symbolic loss, yada yada yada. I can understand anger and frustration, but I don't think fear has any place in love. And if something pleasurable can continue to come from something that was physically lost, then I think there should be a quest to find it. Even if I drop this topic, you guys should figure this out. If not for yourselves, for someone after me who could immediately make use of the knowledge. > ... typing with one hand. Only because the other is propping up my head. I started back to work in January, while my joy turned 3 and got boy hormones. It's exhausting, but I want him to grow up in a an open world. He should have all knowledge at his disposal, and I hope I can raise him to make good use of it. >> I certainly have never experienced anything like it. > > We should probably pursue this privately, since I understand I may have > encroached on some individuals' sanctity. I am only responding publicly > to this to acknowledge your open-mindedness and courage. Well, I'm not sure there's really anything to pursue -- sensations in imaginary body parts are not really a subject of interest for me. Anything that can't be said in public, can go without being said, I think. >> I would think that the mechanisms in the brain/nervous system that >> give rise to phantom pain, might also be capable of other phantom [quoted text clipped - 4 lines] > You are a good person. If you'll allow, I would like to love you as much > as I can through this medium. Though I appreciate the thought, I'm enough of a Luddite that eLove is not really on my wavelength. I enjoy and value my virtual friendships in this group a great deal, but prefer to give priority for one-on-one time to non-virtual friends. Nowadays, I've got sufficient of those to keep me satisfyingly busy. And you'd find me *quite* prickly from close up, I assure you. <G> Ann T. Remove 'dontsendspam' from address to reply by email I'll respond here rather than privately, since I agree with what you stated. However, I'm afraid even this response detracts from this group, no? > Well, I'm not sure there's really anything to pursue That was actually a self serving suggestion. You're response suggested an openness that I hoped could be productive: first-hand knowledge, willingness to discuss, etc. The suggestion that it be private was more from an awareness that I may have bothered some folks. > ... imaginary body parts are not really a subject of interest for me. You're lucky, since EVERYTHING is an interest to me. When I was young and had energy, that was great. It made me wonderful. Now, so much stuff flows through my head, and nothing sticks anymore. > Anything that can't be said in public, can go without being said, I think. On that we completely agree, barring offenses of course. My freedoms may not encroach on another's, yet that's an awfully fine line sometimes. > Though I appreciate the thought, I'm enough of a Luddite that eLove is > not really on my wavelength. (Much chuckling ensues) I've never thought of myself as a an e-love person. I found this observation amusing. The love that I offer is of gratefulness for the momentary understanding you seemed to have of me, and the love is of solidarity and support for survivors of all kinds. I've been told by almost every friend I've had that I love too quickly. They say so because I can be so sincere in my love so quickly that they feel defensive for me or cheated by me. Trust me, no e-love. And I could find reasons to dislike you just as quickly. But then, I have no trouble loving and disliking simultaneously. Even if Bush did something particularly poignant, I think I could love him a smidge. Love is like my way of saying "thank you for your nobility, in whatever measure you show it". > And you'd find me *quite* prickly from close up, I assure you. I have a good deal of first hand experience, have witnessed many times more, and have imagined magnitudes beyond that. I fear nothing. I've lead a long life, and if I found you prickly it would only be from lack of much recent exposure: my once marvelously soft callouses are now tender blisters. When in nursing school I can remember being taught after mastectomy phantom pain and sensation occur. >>I heard a story from a person today about a woman who had a mastectomy. He >>related that she claimed to have ghost sensations during arousal, and [quoted text clipped - 23 lines] > > Mary |
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