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Medical Forum / Diseases and Disorders / Breast Cancer / July 2005FAO Su-Texas: your website
I've just visited it for the first time. The list of not recommended professionals is amazingly long - I doubt that even in my long life I've ever seen as many. Are there any who ARE recommended? If not, why do you still consult them? You certainly do have an interesting life. Mary *sits down with popcorn and waits* ;-) > *sits down with popcorn and waits* > > ;-) Would you like a choc ice during the interval? Mary Sure. Want some of my popcorn? ;-) > Sure. Want some of my popcorn? > > ;-) I thought you'd never ask. But I can't wait until the interval ... mind if I sit next to you? Mary You're more than welcome to, Mary - but since you and Bea have labeled me a deviate are you sure you want to be seen with me? ;-) > You're more than welcome to, Mary - but since you and Bea have labeled > me a deviate are you sure you want to be seen with me? > > ;-) Oh yes - if Deborah allows. And I'll take a picture of you serenading me ... Mary I'm sure she'd be amused - let me move this sheep so there's a little more room. One more thing - I can't sing, Mary. But the sheep can. ;-) > I'm sure she'd be amused - let me move this sheep so there's a little > more room. > > One more thing - I can't sing, Mary. That's alright, I'm deaf. > But the sheep can. Bah! Not that I was thinking of voice serending ... Mary Count me in...What's wrong with pal-ing around with a deviate once in a while? Makes life interesting. Being good ain't no fun.. Okay, now shove over and make room for me and don't eat all the popcorn before I get there. I hope I make it before the interval is over. I really hate coming in in the middle of something. lol! And please if you would, make sure you've got some diabetic snacks set aside for me. ;-) Take care there/God bless annie > Count me in...What's wrong with pal-ing around with a deviate once in a > while? I never thought of you as a deviate! > Makes life interesting. Being good ain't no fun.. That's true - since I grew up - well, old - I'm discovering that! > Okay, now shove over and make room for me and don't eat all the popcorn > before I get there. I hope you don't have a big bum, Allan and I take up a lot of space ... > I hope I make it before the interval is over. I really hate coming in > in the middle of something. lol! We'll tell you what you missed, don't worry. But not much is happening so far. > And please if you would, make sure you've got some diabetic snacks set > aside for me. ;-) <sigh> Some folks can be so-o-o demanding! OK, since I have a daughter in law and two grandchildren who are insulin dependent I keep a selection of suitable vittles. Hurry up though! Mary > I hope I make it before the interval is over. I really hate coming in > in the middle of something. lol! I think the second half will be starting soon... Mary >> I hope I make it before the interval is over. I really hate coming in >> in the middle of something. lol! > >I think the second half will be starting soon... > >Mary I love you guys. Marilyn >I think the second half will be starting soon... I figure any second now. So sorry to hear your brain doesn't work, Mary. ;-)  Signatureallan we don't see things as they are, we see them as we are. -- Anais Nin >>I think the second half will be starting soon... > [quoted text clipped - 3 lines] > > ;-) Oh don't worry your pretty little head about it, Allan, I get most things right. It wasn't my fault. The programme wasn't accurate, that's all. Can't rely on anything these days ... And you've eaten all the popcorn. Shall we call it a day and come back for the firework display? Mary >Oh don't worry your pretty little head about it, Allan, I get most things >right. [quoted text clipped - 4 lines] >And you've eaten all the popcorn. Shall we call it a day and come back for >the firework display? Sorry about the popcorn for breakfast thing - Deborah is out of town and that's what happens when I'm unsupervised ;-) Signatureallan we don't see things as they are, we see them as we are. -- Anais Nin >>Oh don't worry your pretty little head about it, Allan, I get most things >>right. [quoted text clipped - 7 lines] > Sorry about the popcorn for breakfast thing - Deborah is out of town > and that's what happens when I'm unsupervised ;-) Shh - don't mention breakfast - we're just good friends, I don't care what the milkman says! Mary Who's been wanting to use that line for forty years! >Sorry about the popcorn for breakfast thing > Deborah is out of town and that's what > happens when I'm unsupervised ;-) >allan Ok, let me get this straight. I am spending my valuable time asking for and receiving helpful information from two of this site's most useful and favorite posters. Except, Allan, cannot be left "unsupervised" and Mary (bless her heart) has had some type of lobotomy?? Boy! You guys are fantastic dealing with only half a deck! BTW, I have had brain surgery too but I found it improved my intelligence. It certainly has improved my "sense of humor".<g Have a great "whatever works for you" day everyone! Bea > >Sorry about the popcorn for breakfast thing >> Deborah is out of town and that's what [quoted text clipped - 7 lines] > Mary (bless her heart) has had some type of lobotomy?? Boy! You guys > are fantastic dealing with only half a deck! LOL! It wasn't a lobotomy, it was a craniotomy to remove a meningioma (a benign tumour growing on the lining of my brain). It improved everything immediately I woke, the problem had been that it was causing pressure on the 'good' part of my brain, which resulted in not functioning properly. It grew gradually over years so until I had a dramatic seizure there were no investigations and even then nothing could be found until I said the word 'tumour' (without knowing why) and being put through a scan to 'make me happy'. Then this great thing showed up. My family said that they opened my skull, found two lumps and removed the smaller one but they think that the wrong one was chucked away ... Families, huh? who'd have 'em? > BTW, I have had brain > surgery too but I found it improved my intelligence. It certainly has > improved my "sense of humor".<g Sadly, it didn't improve my intelligence and left me with slight dysphasia and the loss of some of the more interesting symptoms I had. But if it hadn't been removed I wouldn't be here. Some you win ... What was yours? > Have a great "whatever works for you" day everyone! DON'T TELL ME WHAT KIND OF DAY TO HAVE! Been wanting to use that line for years! As for Allan and unsupervised popcorn ... <sigh> ain't that just like men? Mary >Sadly, it didn't improve my intelligence and left > me with slight dysphasia and the loss of some > of the more interesting symptoms I had. But if > it hadn't been removed I wouldn't be here. > Some you win ... Goodness, Mary, please accept my apologies. I didn't really think you had a lobotomy. I should know better than to kid about brain surgery no matter why it was performed. I am just so grateful they found the tumour and you are able to still be with us. >What was yours? Mine was a case of my doctor not believing me when I went in tears to him complaining of this horrible headache I had at the base of my head which lasted for weeks. He said it was just nerves and anxiety but I cried so much, he finally relented and sent me for an MRI. Before he got the results of the MRI, when I was showering one day soon after the visit, I was hit with something which felt like a shot to my head. I screamed for hubby and told him to call 911 that I feared I was dying. All I can say is the Emergency people almost put wings on the ambulence speeding me to the hospital and they had the neurosurgeon waiting. It was a Cerebral Aneurysm. For weeks while I lay unconscious, my family did not know if I would live or die or be crippled etc. I think you would have appreciated what happened when I awoke. All these doctors watching over me to see if I could talk or walk and all I could say was "Would you people move, I have to go to the toilet!" I got out of bed and walked on my own to the toilet. It was like a scene from a Frankenstein movie "She Walks!, "She can Talk". It's a miracle!! Well I did not even need their physical therapy because I was too stupid (thank goodness) to understand what I had survived and I used my vocal and other facilities as I normally would. They had to implant a VP Shunt in my head but the neurosurgeon said it was a small price to pay for my life. It was about a year after surviving that, that I was diaganosed with bc. I am sharing this because I hope Su-Texas knows that many of us have had to survive terrible medical illnesses. I live in one of the states she is so upset with but all I can say is when push came to shove, my doctors were at my side day and night and I owe my very life to the skills of my neurosurgeon. He said he rarely gets to see someone survive what happened to me with no side effects so it was a great experience for him. And yes, I stayed with the doctor who misjudged my headaches. He is not a bad doctor, only human and humans do make bad judgement calls at times (even doctors). So I am glad neithere one of us had to have a "lobodomy" Mary.<g Thank you for understanding. Bea > >Sadly, it didn't improve my intelligence and left >> me with slight dysphasia and the loss of some [quoted text clipped - 6 lines] > matter why it was performed. I am just so grateful they found the > tumour and you are able to still be with us. Oh, no apologies necessary! I love talking about it :-) In fact, if you're not careful I'll do it again. And again. And again. And tell you about how the neurologist said that there was no evidence of tumour and how our health service sucks and ... No, a) I can't be bothered and b) it's not true! >>What was yours? > [quoted text clipped - 8 lines] > speeding me to the hospital and they had the neurosurgeon waiting. It > was a Cerebral Aneurysm. That's bad! > For weeks while I lay unconscious, my family > did not know if I would live or die or be crippled etc. > > I think you would have appreciated what happened when I awoke. All > these doctors watching over me to see if I could talk or walk No-one was watching over me! The surgeon did come later and I thought he was the anaesthetist and he removed his cap and I recognised him and called him by his name, I think that was good enough for him. > and all I > could say was "Would you people move, I have to go to the toilet!" I > got out of bed and walked on my own to the toilet. I couldn't have done that! I had tubes going into or coming out of every orifice known to woman - and some. I reckon that if they found a spare tube they made a hole for it. I had a glass flask collecting the drainage from the back of my skull too ... there was no way I could have picked up my bed and walked. Mind you, with a catheter I didn't need to ... > It was like a scene > from a Frankenstein movie "She Walks!, "She can Talk". It's a > miracle!! LOL! > Well I did not even need their physical therapy because I was > too stupid (thank goodness) to understand what I had survived and I used > my vocal and other facilities as I normally would. So did I > They had to implant > a VP Shunt in my head but the neurosurgeon said it was a small price to > pay for my life. That's true. I can't blame any neurologist for not diagnosing my tumour, they did every test known to medical science. But they're not magicians. And I never had any head aches- well, a bit of an ache about two inches OUTSIDE my head at the other side from the tumour :-) > I am sharing this because I hope Su-Texas knows that many of us have had > to survive terrible medical illnesses. I live in one of the states she > is so upset with but all I can say is when push came to shove, my > doctors were at my side day and night and I owe my very life to the > skills of my neurosurgeon. Me too. And I'll be grateful for the rest of it, not just for my life but for my sanity. Such as it is. > He said he rarely gets to see someone > survive what happened to me with no side effects so it was a great > experience for him. And yes, I stayed with the doctor who misjudged my > headaches. He is not a bad doctor, only human and humans do make bad > judgement calls at times (even doctors). Absolutely. The man - and woman - who never made a mistake never made anything. My tumour was relatively simple, it 'shelled out' as soon as my skull was opened. The surgeon said he did such operations about every two weeks (our local neurosurgical ward covers the whole of the north east of England) so it was routine. He did say that brain surgery was never without risk but, I thought, nor is driving, I drove to the hospital (for the last time for 18 months) with no qualms. We have to put ourselves in the hands of the experts, we must trust them. The alternative isn't worth contemplating. > So I am glad neithere one of us had to have a "lobodomy" Mary.<g Thank > you for understanding. Seriously, my experiences with that and with breast cancer have given me an insight into a lot of human conditions. I still don't suffer fools gladly although I give them more chance than heretofore. I subscribe to an epilepsy group because of my experience, lobotomy has a good record in alleviating many distressing conditions. It's not the ghastly process the meeja has led people to believe. Thanks, Mary >Ok, let me get this straight. I am spending my valuable time asking for >and receiving helpful information from two of this site's most useful [quoted text clipped - 3 lines] >surgery too but I found it improved my intelligence. It certainly has >improved my "sense of humor".<g I don't know many men who can be left unsupervised, Bea. I will say that I did not cause injury to myself or to my wife's cat with things that fly and/or explode this Fourth of July holiday. Deborah spends most weekends at her parents' summer cottage on Lake Michigan this time of year. During those times I can stay up late, take naps, refrain from shaving, eat food I'm not supposed to, watch stupid action movies, scratch myself, refuse to wear shoes and generally have a grand time on my own. Let's see. Yesterday my day looked something like this: 6:00am: Cat woke me up, dammit. She's pretty insistent. 6:15am: Maybe I'd better let the cat out. Head downstairs to feed cat and let her outside. 6:20am: Cat doesn't come downstairs because the creature got disgusted and went back to sleep. Go back upstairs, grab the sleeping cat and put it outside for waking me up. 6:25am: Microwave a cup of two-day-old coffee. 6:30am: Check email and do other geeky things with computers. 10:00am: Hungry. Put hat on so I don't have to comb hair and go to Taco Bell for breakfast. Get a bag of tacos and hot sauce. Now that's good eatin'! 10:10am: Eat at computer. Ignore cat begging for a handout. 11:00am: Nap. 12:30pm: Get up, do more Internet stuff. Play video games. 3:00pm: Oh, yeah. Deborah asked me to fix the flagpole mount on the side of the house for 4th of July. Grab cordless drill and a handful of screws and make short work of the job. Does it occur to me to put the flag out when I'm finished? No. 3:15pm: Chat with Internet friends. 7:00pm: Hungry again. Go to Mom and Pop store for steak. 1.5 pounds should be enough, right? Also get potato salad and a pint of Haagen-Dazs bananas foster flavor ice cream. 7:15pm: Fire up the grill. Cook steak. 7:30pm: Dinner. No vegetables required. No potato salad required either. 7:45pm: Wash dish and knife and fork. Turn on TV. 8:00pm: Cool. X-Men 2 is on. Haven't seen that. Settle in with Haagen-Dazs and ignore cat who thinks it's entitled to some of my ice cream. Eat straight from carton because I don't want to make any more dishes. 10:00pm: Kill Bill vol 1 is on and I haven't seen it. Great, gory movie. midnight: Sleepytime. ;-) Signatureallan we don't see things as they are, we see them as we are. -- Anais Nin >>Ok, let me get this straight. I am spending my valuable time asking for >>and receiving helpful information from two of this site's most useful [quoted text clipped - 5 lines] > > I don't know many men who can be left unsupervised, Bea. ... snip unsavoury stuff ... Bea, do we really want to be associated with such a reprobate? Mary >Bea, do we really want to be associated with > such a reprobate? >Mary I think he needs us, Mary. After reading his schedule, he is lucky Deborah returned!<g BTW, doesn't he know that on a "Heart Healthy Diet" one is only supposed to eat 6 oz. of meat a day? What's with the 1.5 lb. steak!? He better hope Deborah doesn't take a peak at this site and see what Mighty Mouse is doing while his lovely Minnie Mouse is away.<g Bea > >Bea, do we really want to be associated with >> such a reprobate? [quoted text clipped - 5 lines] > one is only supposed to eat 6 oz. of meat a day? What's with the 1.5 > lb. steak!? He's a Big Man, he also needs to keep up his strength to cope with other women ... > He better hope Deborah doesn't take a peak at this site and > see what Mighty Mouse is doing while his lovely Minnie Mouse is away.<g Oh, she's not daft, she knows! Mary > Bea Of course she knows ;-) She'd rather I remain barefoot, uncombed and eating steak and ice cream than take a handful of plastic and head down to the local electronics store ;-) BTW - I did good this weekend. I wanted a new entertainment center thingie to house the ever-increasing number of audio and video components, went to the store and had one picked out, only to have it dawn on me that I probably shouldn't purchase a piece of furniture without spousal buy-in, then I got scared and went home. When I talked to Deborah that evening I mentioned how proud I was of myself for *not* buying furniture without her and suggested we go look at the thing together. We did yesterday morning and now there's a brand new entertainment center thingie in the living room ;-) Deborah and I have several agreements about stuff like this - I don't pick out clothing for her and she doesn't select computer hardware for me. She can, however, pick out clothes for me since I don't seem to be able to do it for myself. The idea that I probably shouldn't buy furniture without showing it to her first just means I'm still trainable ;-) > Of course she knows ;-) > [quoted text clipped - 19 lines] > furniture without showing it to her first just means I'm still > trainable ;-) > Of course she knows ;-) Sorry about the false send, I was temporarily dumbfounded ... don't worry, I'm back to normal now. Or perhaps, you can't win 'em all, I'm back to normal now. > She'd rather I remain barefoot, uncombed and eating steak and ice cream > than take a handful of plastic and head down to the local electronics > store ;-) Of course. > BTW - I did good this weekend. I wanted a new entertainment center > thingie to house the ever-increasing number of audio and video > components, went to the store and had one picked out, only to have it > dawn on me that I probably shouldn't purchase a piece of furniture > without spousal buy-in, A close shave! > then I got scared and went home. Have another ice-cream. > When I talked to Deborah that evening I mentioned how proud I was of > myself for *not* buying furniture without her and suggested we go look > at the thing together. We did yesterday morning and now there's a > brand new entertainment center thingie in the living room ;-) It's always a good idea to get them to agree. Better still to make them think it's their idea. That's my ruse. Not that I often want to buy anything but if I want something doing ... > Deborah and I have several agreements about stuff like this - I don't > pick out clothing for her and she doesn't select computer hardware for > me. She can, however, pick out clothes for me since I don't seem to be > able to do it for myself. ? It wasn't necessary to say that. > The idea that I probably shouldn't buy > furniture without showing it to her first just means I'm still > trainable ;-) She's a good wife. Spouse doesn't buy clothes for me either. Nor do I ... I'm permanently in a state of out-of-datedness. I'm glad your back under the wing, you can save the scratching for next time :-) Mary > Spouse doesn't buy clothes for me either. Nor do I ... I'm permanently in a > state of out-of-datedness. Me too. I normally get new clothes at Christmas, Father's Day, my birthday and when something gets worn out - I do pick out my own neckties, though. Since I'm a bit of a hermit I really don't have to impress anyone other than myself (and I'm rather easily entertained). I did used to enjoy taking my youngest son to the mall, though. He'd get all decked out to impress the girls and I'd wear shorts, flip-flops and tank tops and made sure I stuck close to him ;-) >> Spouse doesn't buy clothes for me either. Nor do I ... I'm permanently in >> a >> state of out-of-datedness. > > Me too. I normally get new clothes at Christmas, Father's Day, my > birthday and when something gets worn out Good Heavens! A minimum of three times a year? I did buy three pairs of ... er ... something a couple of years ago ... > - I do pick out my own > neckties, though. I've always picked out my own neckties. > Since I'm a bit of a hermit I really don't have to impress anyone other > than myself (and I'm rather easily entertained). I did used to enjoy > taking my youngest son to the mall, though. He'd get all decked out to > impress the girls and I'd wear shorts, flip-flops and tank tops and > made sure I stuck close to him ;-) Yes. Well, they deserve it. They embarrass us enough! Our 'children' and grandchildren have accepted that they'll never change us. Since they'd object to being changed why do they want to influence us? I'm sending you a picture of some of us. Mary That's pretty much my typical day substituting chick flicks for the action flicks, chocolate for the steak, and emptying the dehumidifer for fixing the flagpole. Marilyn <g> > That's pretty much my typical day substituting chick flicks for the > action flicks, chocolate for the steak, and emptying the dehumidifer > for fixing the flagpole. LOL! My days are nothing like that. No tv or video, no dehumidifier, no flagpole, little chocolate, the chickens run in the garden (no meat on them) and half a cow in the freezer. I don't think I have a typical day ... apart from getting up (a variable feast), having breakfast (Grape Nuts and milk), preparing and having lunch, preparing and having dinner and going to bed (again variable). The bits in between are very different. Mary Then we're kindred spirits, Marilyn ;-) From: mary.fisher@zetnet.co.uk (Mary Fisher) I've just visited it for the first time. The list of not recommended professionals is amazingly long - I doubt that even in my long life I've ever seen as many. Are there any who ARE recommended? If not, why do you still consult them? You certainly do have an interesting life. Mary ==========================="You certainly do have an interesting life." So far, it's been a very busy & unfortunate life, which I'm ever-hopeful will change for the better. I'd Not recommend being born into a family of primary sociopaths with $$$ & power, but we have little choice in that. I'm a very hard worker, as you can tell partly, by the number of docs I consulted, ..... after I was severely injured, & then repeatedly refused medical care. I saw many more docs than that, but the ones who got on the Not Recommended page, were "special". They stood out. Since I was tortured & abused from birth, & know an awful lot about it, up close & personal, ..... I never understood why so many people acted so cold & cruel (determinedly-dumb & dastardly) about severe abuse situations, ...... or why they wanted to join in & enforce the abuse, act ugly, gang-bang, get off on it, smirk & snicker, ..... why so many people stayed so primitive & undeveloped morally. Because I kept trying for abuse counseling, I finally found some in mid- to late 1997, & got some answers, ..... mostly from a retired abuse investigator, who used to work for Adult Protective Services, ...... & who was a talk group member. I learned about the basic flaws & failings in human nature, the ever-warring good & bad sides, the definition of evil & such, ..... that psych care is mostly harm-filled cr*p for $$$ (& a perversion of a "science" that could have meant something, made a positive difference), ..... He also encouraged me to learn to write, to express what I'd been through, thought & felt, & he read & complimented what I wrote. He was a turning point, & made a huge difference in my life. I've tried to pass on his gift, to others. (((John))) --------------------------------- "Are there any who ARE recommended?" Usually, I find good tests & testing, recommend that, and explain why. You can phone or email these companies (gsdl, fonar, companies for MRI or CAT machines), ..... & they can tell you the doctors or hospitals in your area, who have & use their products. In my area, I point people to the best doctors I know. If I were to list these docs publicly, then I'm concerned that the other docs would run them out of town. This is common here. I also list the tests that people can ask their own docs for, ..... the tests I wish I'd known to ask for. This empowers the patient to get better care. [And it can reduce the costs, of the unnecessary & ineffective testing which some docs want to do over & over, probably to churn accounts for $$$.] Knowledge is power. Many people are using the internet to post what they've learned from experience. What I'm doing is not unusual. Susan, Su_Texas my opinions > I'm a very hard worker, as you can tell partly, by the number of docs I consulted, ..... after I was severely injured, & then repeatedly refused medical care. > I saw many more docs than that, but the ones who got on the Not Recommended page, were "special". They stood out. It must have been extremely hard work recording all the names. ..... > He also encouraged me to learn to write, to express what I'd been through, thought & felt, & he read & complimented what I wrote. So HE's responsible for what you post? > (((John))) --------------------------------- "Are there any who ARE recommended?" > Usually, I find good tests & testing, recommend that, and explain why. > You can phone or email these companies (gsdl, fonar, companies for MRI or CAT machines), ..... & they can tell you the doctors or hospitals in your area, who have & use their products. Not in UK, we're usually stuck with the first we're assigned to. There's little choice, we can ask to see someone else but most of the time we're happy with who's treating us. > In my area, I point people to the best doctors I know. > If I were to list these docs publicly, then I'm concerned that the other docs would run them out of town. This is common here. Do you hve evidence for that? > Many people are using the internet to post what they've learned from experience. What I'm doing is not unusual. I've not seen anything like it ... Mary |
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