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Medical Forum / Diseases and Disorders / Breast Cancer / June 2005Difficulties Breathing, Congestion
Chronic Sinus Infection and/or Bronchitis, which infects & re-infects lungs, stomach, etc.? Recently, I've had extreme difficulties breathing, & can barely stand, walk or move around now. For many months, the docs have tried one antibiotic after another, so far without good results. The last try was also with cortisone. Thursday, I learned about (not from the doc), asked for & got a nebulizer (?) machine to use at home, ..... but I'm going to need much more than that! ---------------- In Jan 1998, I was severely injured (head to toe, esp. spine, .... from hitting pavement & sliding in a fall, due to ongoing unsafe conditions at a shopping mall), which started constant drainage. This resulted in chronic acute bronchitis. In Oct. 2000, I survived an assault at the local ETMC ER, which resulted in dislocated C1 disc with brain collapsing on it. This increased the drainage. In 2002, I went through chemo & rads for cancer, & the Arimidex, which can damage stuff. ---------------- I've read about & tried everything I can, to try to help control the drainage some & the negative effects of it, so I can to keep going, .... but my air is now cut off. Even using the nebulizer, I get short gasps, which get less & less. ----------------- Monday, I'm going to ask the docs if there is a suction machine for the congestion. Or any other machines that might help. I'm going to ask for another heart test to check for damage from the cancer treatments. I'm going to ask for a scooter to get around until things get better. I have dogs to feed & care for, as well as myself, .... lawsuits to bring, .... & a very predatory & sadistic birth-family to fight off & back, each time they attack. I can't afford to be this sick & weak. ---------------- What should I ask the docs? Why is this happening? What's wrong? Why the congestion, pressure, shortness of breath? Why can't I breathe? [Why don't the docs have a clue what's wrong?!] Why do they just prescribe antibiotics which don't work, as my condition has obviously gotten extremely bad, critical. Why are the docs so danged slow, & so reluctant to offer explanations or options, when they can see there's something seriously wrong, a life & death type situation? Why?! Why is medical care so danged lacking? Susan, Su_Texas my opinions When the doc listens to my lungs, he says "wheezing". When I try to lie down for a while, there are weird sounds in my chest, like rattling, gurgling, whimpering(?), as I struggle very hard to breathe. I need to find some kind of medical care, that can help with this. Susan, Su_Texas my opinions > When the doc listens to my lungs, he says "wheezing". That would indicate bronchospasm. The smallest of airways in the bronchial tree have muscles around them that can decrease the size. That usually maes it harder to get air out than toget it in, and you hear a high-pitched sound as the air gets out through the narower space. > When I try to lie down for a while, there are weird sounds in my chest, > like rattling, gurgling, whimpering(?), as I struggle very hard to > breathe. Those noises indicate mucous and/or pus accumulating in the airways. The combination of inflammation of the airways (bronchitis) and wheezing is called asthmatic bronchitis. Unlike simple asthma (which is not so simple), this is thought to depend on chemicals made by microorganisms in the lung, not external allergens (e.g., pollen) or irritants (e.g., a variety of industrial chemicals). > I need to find some kind of medical care, that can help with this. There are a number of medicines that can be used in combination. It is expensive, of course. Antibiotics intermittently will help control infection when it flares up. Short-acting adrenalin-like drugs, such as albuterol, may relieve the spasm for a while. Corticosteroids (cortisone-like drugs) will decrease the inflammation that results. Because this group of drugs has some potent undesireable side effects, it is best when possible to take them as an inhaled dose rather than as pills. That delivers a higher concentration of the medicine to the lungs without overdosing the rest of the body. Sometimes, however, oral medicines like prednisone are needed in the therapeutic mix. These are slow to help with an attack and must therefore be taken on a regular basis to prevent attacks. Leukotriene inhibitors like Singulair and Accolate (zaphirlukast and montelukast in some order) may help decrease the frequency and/or severity of attacks. Long-acting adrenalin-like drugs are also available as inhalers. These prevent, rather than break attacks. A combination of a corticosteroid and long-acting adrenergic drug is sold under the brand namne Advair, and is an excellent drug. A drug called cromolyn sodium prevents certain white cells from releasing histamine, and is a preventive medicine. It works well, but will not usually solve the problem byu itself. More or less the sme types drugs are availabe for nasal allergies. In addition, antihistamines often help that a lot. There is even a nasal spray, Astelin, that is an antihistamine. Of course, if you have known allergies, you should try to avoid them. Bare floors and no pets are good ways to start. If there are tasks, like perhaps vacuuming or lawn mowing, wearing a mask may help. A gauze mask is not a very effective filter, but the paper masks used in surgery and sold in lumber ards will often help prevent problems if worn during the tasks. > Susan, Su_Texas my opinions >I need to find some kind of medical care, that > can help with this. >Susan, Su_Texas my opinions Su- please don't take this as an insult but, IMO, you, like many of us, are a doctor's worse nightmare. Unfortunately, from my experience, they are able to treat it if they can see it on an xray or some test points it out to them but if what you have does not fit the normal pattern, they seem to have a tendency to just give drugs and fluff you off. What you seem to need with all your problems is a good diagnostic team of doctors experienced in many fields who can check you out with all the medications you are taking and see if any of your other medical problems, meds, or lifestyle are triggering off these new congestion problems you have. Is there any hospital available in your area which does such diagnostic tests with a team of doctors? That would be a lot easier on you than having to go from one to the other in your condition. I know you love your dogs but have you told your doctors you are a caretaker of animals? Could any of your congestion problems be caused by some allergy you have acquired due to the animals? I know you might say, you had the dogs before you got this new congestion but maybe your system was not as weak as it is now and you were able to handle animals without a problem. I would be sure to let them know about the dogs and what type they are. This could take a lot of detective work on your part like checking out your living quarters and new foods you may be eating. The doctors won't do this for you. You need to feed them the helpful information they need so they can try to figure out what the cause is. Doctors just don't seem to have the time any more to be diagnosticians. Just my opinion and I do hope you can find the help you need soon. Bea WHAT'S THIS GOT TO DO WITH BREAST CANCER From: burglar_of_turds@yahoo.com (J) WHAT'S THIS GOT TO DO WITH BREAST CANCER ======================== I have breast cancer, J. You don't. I had some bad experiences with the cancer treatments, & have many health problems, partly as a result of that. This is a place where women with breast cancer ask for advice & support, .... ask if someone's had similar experiences & what they did about it. If you can't handle the heat, & want to continue insulting women with cancer, & giving bad & harmful advice (as you've done to me in the past), ..... then get lost, troll. Susan, Su_Texas my opinions > From: burglar_of_turds@yahoo.com (J) > [quoted text clipped - 5 lines] > > [...].... then get lost, troll. You got that part right, Susan. Burt's a troll http://tinyurl.com/d6476 Whenever you see burglar_of_turds@yahoo.com, that's him. J > From: burglar_of_turds@yahoo.com (J) > [quoted text clipped - 15 lines] > > Susan, Su_Texas my opinions Susan, I had three bouts of bronchitis with asthma while undergoing radiation, and after treatments ended. My doctor said radiation weakens the immune system. The last bout was in March, and I took Amoxicillin, but it did not clear up. A doctor then gave me Z-Pack and an inhaler, and it cleared up in about a week. I have been fine since then, but it took about 3 months to get over it. Sometimes it takes several antibiotics to find the right one. I hope this information will be helpful. Joan Congestive Heart Failure At an ER yesterday, which I barely managed to get to in another city (kept having to pull off road & collapse), ..... I was diagnosed as having congestive heart failure. At the ER, I begged & pleaded & gasped, struggling desperately to hold on, ..... to get them to test for & find what's wrong. The ERs have refused to do so, since Jan. 1998. ------------- Yesterday morning, the docs, including my cancer doc (oncologist), refused to see or help me, even though it was an emergency. I couldn't breathe. [One GP said he'd see me at 11 AM (but that I'd have to sit & wait for an opening then, which I could not do), ..... but that it would be best to go to local ER. The local ER (ETMC) is referred to here as "the death trap", so I wasn't going there.] Most ERs here are death traps, dangerous, ..... & places to be avoided at all costs. So it was a major betrayal that no doc would help or refer me, or intercede for me yesterday, & I had to go to an ER. Usually the docs game plan seems to be, to act as determinedly dumb & dastardly as possible, to say/do/advise the wrong things, to delay & cost you the most $$$ possible, until you suffer to death horribly, in the most traumatic & terrifying ways. It's the Medical Industry (govt, corporate & PHARMA run), NOT medical care. ----------------- It's also dangerous to go to an ER alone here. I was assaulted by an ER doc [Raymond J0rdan] in Oct. 2000 at the local ER. He seemed to get off on it, to enjoy doing harm, doing serious harm. He dislocated my C1 disc, & the brain is now collapsing on it. He looked surprised afterwards, probably that this hadn't killed me. He was/is a DO, not an MD. The nurses just stand there & watch, & then refuse to testify later. It's a major betrayal, but also typical of basic/primitive human nature. Since many ERs here hire rotate-a-docs, ..... that is, any doc whom a service can recruit (from all over Texas & from neighboring states), & bring in to work a shift at an ER, ..... the ERs are very dangerous. It was difficult to go to an ER yesterday, & try to beg & negotiate for help. -------------- Yesterday morning, I phoned a pulmonary specialist I'd seen a few months back, & his workers told me to go to the Good Shepherd ER & ask for him to come. This does help to get care at ERs, if they think you can get a specialist there, ..... that is, if the ER docs refuse to or can't test & diagnose. So, when the ER doc seemed reluctant, & said that he probably wouldn't find what the other docs couldn't, ..... I'd ask him again to call in the specialist. And I'd remind him, that it (the specialist, the testing & diagnosis) needed to be called/ordered before 5 PM, .... or the specialist might not come, & testing not get done. I'd remind him that I was in such bad shape, I probably couldn't make it back to Longview again. Whatever, ..... it worked. I got some testing & a diagnosis this time. ------------------ It seems that this (CHF) is what has been wrong, since I fell (hit pavement & slid) in Jan. 1998, ..... but the docs refused to see or diagnose it, & they called it acute chronic bronchitis, recurring sinus infections, gastrointestinal distress, etc. CHF must be extremely difficult to see or diagnose, .... since hundreds of doctors, including those at the universities in Texas & Louisiana, have kept missing it since Jan. 1998. I was also put through surgeries & cancer treatments (2001 through 2003), while in congestive heart failure. The docs have sold me a lot of PHARMA cr*p over the years, INSTEAD OF diagnosing what I had & selling me what I needed. They've stood back & watched me suffer & beg. And they've smirked. -------------------- I've extremely little faith or confidence in doctors, & believe we need our rights back so we can sue them for the harm they're knowingly doing, for the harm-filled cr*p they're constantly pushing & selling us. I do have renewed hope, now that I know what it wrong. ---------------- CHF must be common, because of the number of people who post about the symptoms of it on the internet, ..... but they (& I) don't know what it is, & the docs don't tell us. The docs can sell a lot of pharma drugs & do a lot of further damage, by not telling us about CHF. Susan, Su_Texas my opinions > Congestive Heart Failure <snip> > I've extremely little faith or confidence in doctors, Well, Sue, if you don't trust them I suggest that you stop seeking advice from them and look at alternative treatments. But, please, consider what your posts might be doing to other, frightened women who are new to this group. This newsgroup is alt.SUPPORT.cancer.breast, people come to seek positive advice, to gain comfort or, by using their good experiences to give support both to newly diagnosed people and to those whose condition is progressing. We really don't need a constant barrage of criticism of the people most of us do trust - and want to trust. They are the doctors of all kinds who have done their best to heal our bodies and spirits and, in most cases, succeed. Doctors aren't magicians and of course there are mistakes made sometimes - the wo/man who never made a mistake never made anything. Most of us, though, want to trust our doctors, most of us do and most of us - even if our diagnosis is less than we'd like - stay positive and make the most of our lives. I know that I owe my life to two skilled surgeons and their teams. I owe much of my well-being to a series of supportive GPs and their practices. I can't be unique. Also, we've been inspired on this group by some magnificent women who have advised, cheered, amused us even when they've eventually died. We're saddened by their loss but privileged to have known them. We don't want or need to hear medical care damned. If you're not happy with your care don't have it but please, please, don't discourage others. Mary > Congestive Heart Failure > > At an ER yesterday, which I barely managed to get to in another city > (kept having to pull off road & collapse), ..... I was diagnosed as > having congestive heart failure. ------------ Had you been taking Herceptin? Eva Had you been taking Herceptin? ============= No. Never. Susan, Su_Texas > Congestive Heart Failure > [quoted text clipped - 6 lines] > > The ERs have refused to do so, since Jan. 1998. Susan, here is a link I found from the American Heart Association that has lots of information and is encouraging. It describes treatment options: http://circ.ahajournals.org/cgi/content/full/104/18/e89 Joan > ------------- > [quoted text clipped - 102 lines] > > Susan, Su_Texas my opinions CHF is usually very easy to diagnosis via chest xray. http://www.americanheart.org/presenter.jhtml?identifier=330 Sorry to hear about your new diagnosis. I don't know if this is related to your breast cancer. Alex > Congestive Heart Failure > [quoted text clipped - 113 lines] > > Susan, Su_Texas my opinions I saw a cardiologist today, & got an echocardiogram. It's major heart failure. Some more tests will be done, then it's probably defibrilator?(restarts heart?) or heart transplant, or just meds while I wait for a heart donor. This super sux! -------------------- Had I been told about all the dangers, probable harm done, ongoing expenses, pain & suffering, ..... ongoing major wastes of time, resources, & effort, ...... before I went through the regular govt-regulated cancer cr*p-care, ..... then I'd probably have opted out of it, & tried something else. There has to be something better than this total BS, and the extreme lack of quality medical testing & care afterwards. Maybe it looks better on the oncologist's reports, to say "the cancer patient died after successfully completing chemo & rads", ..... rather than say "the cancer treatments were worse than the cancer could have been", & caused heart failure & multiple other serious health problems, which killed the patient? ------------------- The cardiologist thinks that the cancer treatments are responsible for destroying my heart. I think that the injuries of Jan. 1998, damaged my heart, ..... & that the chemo treatments (esp. Arimidex), did more damage. Cancer care has proved a major betrayal of trust. --------------- It's been like pulling teeth, to get any testing & diagnosis of the severe difficulties breathing, which has now proved to be congestive heart failure, ..... & to get to see a cardiologist. I had an echocardiogram done earlier today (7:30 AM) in Longview, but the results never came in, so we had to do another one locally, late this afternoon. Nothing works right here! It's a constant battle to get anything done, esp. concerning health care. --------------- Avoid Texas & Louisiana when seeking health care. The quality controls/etc. are NOT enforced here. [The Texas State Board of Medical Examiners, like most other govt agencies here, is a bad joke.] The laws have been set-up/rigged, so you can't sue the bad docs, hospitals & such, regardless. Susan, Su_Texas my opinions Sure does!! Seems like one physical problem should be the limit for a person. Good luck! > I saw a cardiologist today, & got an echocardiogram. > [quoted text clipped - 58 lines] > > Susan, Su_Texas my opinions > I saw a cardiologist today, & got an echocardiogram. > [quoted text clipped - 27 lines] > The cardiologist thinks that the cancer treatments are responsible for > destroying my heart. -------- Adriamycin? Eva Adriamycin? ============ I think it was that & Taxol, but I'd have to go back & check the Google archives. However, the chemo seemed as nothing, when compared to the severe adverse effects of Arimidex. Arimidex super-inflamed my whole body, itching, burning, hurting (pain beyond belief), .... I couldn't stand up without collapsing, couldn't breathe, couldn't walk & function (usually had to keep trying all day, to be able to get up & do anything) ..... super-bad chemically-induced depression, which got worse when I tried to move around & do things. Arimidex went to every injury & super-reinflamed them, plus it went to most of the uninjured parts & super-inflamed them too. It weakened just about everything, so that when I tried to walk, it would injure the muscles & such in my foot, ankle, leg, .... my wrist, hand, fingers would get very sore & inflamed. For me, Arimidex was a nightmare. After about 18 months, the Arimidex caused sudden acute lymphedema, .... which condition lessened a great deal once I stopped taking Arimidex. After it swelled, the arm was so painful, itching, burning, ..... that I would react on a primitive level with "cut it off", "gnaw it off", anything, "just get it off", .... & have to stop myself. It was that bad. Shortly after that, despite the doc's warnings & his constant strong denials ["It is Not the Arimidex."], I stopped taking Arimidex. I learned that much of the damage done by Armidex, is not reversible. It destroys most normal feelings in the body. I was very concerned that these side effects had not been reported, until the oncologist smirked & said (finally admitted), ..... that the adverse reactions I was having, were normal with Arimidex, that they were common. ?! -------------------- The docs just meet & know us for a short while, but their relationship with the PHARMA companies (& their expensive & harm-filled drugs) goes on & on. At the Cancer Center in Longview, there's a room devoted to this, to the PHARMA experiments, ..... which I did NOT choose to be a part of, but was (Arimidex). ------------------- It will be interesting to learn which cancer drug is the most responsible for causing the major heart failure. Susan, Su_Texas my opinions Avoid Texas & Louisiana The best I can remember, Baylor College of Medicine in Houston, is heavily involved in using/testing Arimidex, ..... so they'll push it regardless, no matter how much harm it's doing. ----------------- Avoid Universities It's best to avoid the universities (medical schools) if at all possible, when seeking medical care, ...... mostly because of their special interests (PHARMA grant money for the school, students & professors), ...... their over-pushing of whatever experimental drugs they're paid to, ...... & their use of students (the un- or under-skilled) as doctors. Many doctors can't do a semi-decent job of medical care, much less students. And at Parkland/Aston/SWMed in Dallas, they basically let their students run wild, ..... run some clinics, such a Spine & Joint, without adult/teacher supervision. ?! The profs would rather be elsewhere. It's shocking how bad (a total waste of time & $$$, how lacking & harmful) the medical care at universities can be. I can't see how Parkland could get a good rating anywhere, esp. not in Best Hospitals. ?! It's a charity hospital in Dallas, that's run as such. The area & bldgs are quite dangerous, esp. riding the elevators. No quality care for patients who do have money or good insurance. It's one lie, meanness & run-around after another, while you get no medical care for years. And they do NOT care about complaints. ----------------- Since Medicare & other insurance companies have agreed to pay docs, no matter how bad, inferior, or lacking the care, ...... there's no quality control. For the most part, you can't convince the insurance Not to pay. This needs to be changed. The laws which prevent us from suing the docs, & which limit damages, also need to be changed. There needs to be some accountability, for the major misconduct, fraud & harm being done by the doctors, universities, hospitals. ----------------- Since the Breast Clinic at Methodist Hospital in Houston, is run by the Baylor College of Medicine there, ..... it's Not going to be a good place for info or help. M D Anderson was worse. LSU (a charity hospital) much, much worse. ---------------- What I was told, is that Baylor/Methodist & MDA work on the same projects for the PHARMA companies, so there's not much difference in the two, ..... except that people with good insurance or with money, choose Methodist. Both places have proved losers. Avoid Texas & Louisiana if at all possible, when seeking health care. ---------------- Political Fraud & Graft/Greed When politicians want to waste taxpayer money in large amounts, then they'll hire their buddies to build something, usually badly, ..... such as the unnecessary bombing out & then "rebuilding" (ain't gonna happen) of Iraq, ...... such as the building & promotion of the huge Texas Medical Center in Houston, ..... such as the building of rehabilitation centers around Texas, which are basically holding-cells for the injured, rather than places to get testing, diagnosis & good care, ..... such as building schools. Just because MDA or any other place is billed as "good" by the media (by another university), ..... does Not make it so. Susan, Su_Texas my opinions PS Some Justice Please! At this point, I feel very angry & hurt, very badly betrayed by the MDs & their ongoing BS, their lies, cons, swindles. I think the oncologists should be force-ted their own poisons, then put in stocks on the public square for people to spit at, throw things at, pee on, jeer. They deserve no respect, no rewards, for the harm they're doing. They deserve only the worse. And I'm hoping & praying, they get it, both in this life & the next. May they suffer horribly, fester & rot in their own vile/bile. May the spirits of those they've horribly harmed & murdered, haunt them for the rest of their days, ..... & be waiting to grab & rip their sorry souls apart in the most painful of ways, at their moment of death, ..... to torture & punish them for all eternity & beyond. May these hellish, lying, thieving vermin (docs) from hell, never know one moment's peace. May they face only justice without mercy. > Adriamycin? > [quoted text clipped - 5 lines] > However, the chemo seemed as nothing, when compared to the severe > adverse effects of Arimidex. <snip> > It will be interesting to learn which cancer drug is the most > responsible for causing the major heart failure. ----------- Well, Adriamycin a/k/a doxirubicin is *known* to be "cardiotoxic." Unlike you, I was warned of this before I started taking it. So is Herceptin, which is why I first asked you about that. My oncologist is very careful about this and keeps checking me and sending me for tests whenever I am taking these drugs. When you mentioned the words "heart transplant," that's when I thought of Adria, because I have read stories of women needing heart transplants years after taking it. In fact, one of those stories was posted here last year, it was from the NY Times IIRC and was about a Christian couple whose marriage vows were being severely tested by the aftereffects of the wife's breast cancer treatment. I'm not being sarcastic here, Susan, but do you ever read the "patient information" brochure or look it up on rxlist.com before you take a drug? Even though, as I said, my oncologist conscientiously warns me about possible side effects, I still take the time to look everything up before I ingest it. Eva I'm not being sarcastic here, Susan, but do you ever read the "patient information" brochure or look it up on rxlist.com before you take a drug? Even though, as I said, my oncologist conscientiously warns me about possible side effects, I still take the time to look everything up before I ingest it. ===================================== Every drug has a long list of bad side effects, to which the docs counter: "Trust me. I'm a doctor. I know what I'm doing. That (bad) stuff rarely happens." It was super-stupid of me to trust the cancer docs, but after years of working so hard to get the docs to acknowledge & test the large lump, ... of then being diagnosed with third-stage breast cancer, ..... of going through the breast surgery, long & exhausting drives to Houston, the botched port-a-cath surgery, ..... trying to survive the constant crimes, abuse, & meanness in this god-forsaken area of East Texas, ..... it's difficult to make decisions, esp. when confronted by the entrenched Medical Industry & all their cr*p. Hopefully others can learn from what I've been through. It's very important that the insurance companies start paying for alternative cancer treatments, ...... since the MDs are still mostly offering only harm-filed cr*p. We also need a source of information, about where some legitimate cancer care might be, ..... because we're surely not getting it from the govt, media, or MDs. Yes, it was super, dumb-a*s stupid of me, to trust the cancer docs, to trust any MD. Dumb beyond belief. Susan, Su_Texas my opinions Oncologists = Murderers Among Us i think it's important to confront sadistic low-life murderers, & to call them what they are, what they've proven to be: "Murderers! Predators! Thieves! Scum!" For breast cancer treatments, the doctors are pushing unproven harm-filled cr*p. So far, they don't seem to have a clue in treating breast cancer. And since they're making a lot of money on selling cr*p, they don't intend to get a clue. There are NO tests to show whether their treatments work or not. None. But these very-expensive & overly-toxic treatments have been proven to cause a lot of damage, suffering & death. Oncologists refuse to test, to see how bad the damage is, which they've chosen to do, ..... chosen to cause those clients who were foolish, naive or desperate enough, to trust them & the Medical Industry, & pay for some legitimate help (help which they'll never get). At this point, I doubt I could have a lower opinion of oncologists & their poisons, both chemical & personal. They are these mostly-political flim-flam sales-things from hell, who lie, con & manipulate. Sub-human monsters, ghouls, the most vile of human vermin. It's important we be able to sue their sorry a*ses, for the rest of their harm-filled, scum-sucking skank-ho little lives, ..... whatever shadows & sewers they scurry into, lurk & hide. I pray they suffer & rot in the most horrible & horrifying of ways, both in this life & the next, for the harm they knowingly do, ..... for the lives & families, the hopes, dreams & promise they deliberately destroy. May they face only justice without mercy, & never (ever!) know one moment's peace. We've been BETRAYED by the Medical Industy. May they suffer & rot! Susan, Su_Texas my opinions > I'm not being sarcastic here, Susan, but do you ever read the "patient > information" brochure or look it up on rxlist.com before you take a [quoted text clipped - 9 lines] > counter: "Trust me. I'm a doctor. I know what I'm doing. That (bad) > stuff rarely happens." -------------- Not in New York, they don't. Eva Oncologists: Liars, Thieves & Thugs The docs also say: "You're third stage. You don't have a chance. However, if you do everything I say, trust me completely, then you'll have a good chance of surviving." ?! It didn't make sense. Usually, they refuse to answer questions, & keep saying: "Trust me, or you'll get no care." & "I'll answer questions, & we'll do things your way, later." A lie. It's total BS. ----------------- I think the PHARMA companies target the corrupt (no legal rights, safety or protection), impoverished, under-educated, blind-faith-type, BibleBelt states & communities like Texas & Louisiana, ...... for their drug trials & whatever harm they intend to do, ..... as well as bad/corrupt politicians like Bush, targeting these same people & areas, to use for his hate & harm others, murder & destroy campaigns. This is a bad area, where people are too easily manipulated (emotionally), used & controlled by the very worst of people/politicians/preachers. In the past, I had a great deal of hope, in helping to change this. But now, ..... ------------------ On the phone to LSU, when you're put on hold, ..... there are recordings playing, & the constant pushing of drug trials, of experimental drugs. It's sad. It's virtually impossible to get legitimate medical care here, because the universities/etc are so intent on pushing this harm-filled cr*p for PHARMA $$$ & grants. In doing so, they completely overlook health care, that is, anything that seems logical, practical, reasonable, right. ----------------- No matter how bad Arimidex is, no matter how harmful, .... I doubt that Baylor College of Medicine, Methodist Hospital, or M D Anderson, can be convinced to explore something/anything else for breast cancer, for the next few years. When I was there, Baylor was heavily invested in the sh*t-drug Arimidex, regardless. They refused to hear it was bad, refused to hear of adverse side effects, refused to consider or offer any other treatment option but estrogen blockers, esp. Arimidex. They couldn't have acted more determinedly dumb or dastardly about it. Susan, Su_Texas my opinions PS One thing about the docs here, is that many treat patients with contempt & dislike, ..... & like we're extremely stupid, deserving of harm & being robbed. And they dictate to us. It's a bad & harmful mindset. >Arimidex super-inflamed my whole body, itching, burning, hurting (pain >beyond belief), .... I couldn't stand up without collapsing, couldn't [quoted text clipped - 13 lines] >After about 18 months, the Arimidex caused sudden acute lymphedema, .... >which condition lessened a great deal once I stopped taking Arimidex. Su-Texas, could you not have switched to Tamoxifen rather than remain bedridden for 18 months? I do know two people who had side-effects from Arimidex, one decided to take Tamoxifen, and the other decided to take neither. To the best of my knowledge they are still doing well. Marilyn Marilyn wrote: Su-Texas, could you not have switched to Tamoxifen rather than remain bedridden for 18 months? I do know two people who had side-effects from Arimidex, one decided to take Tamoxifen, and the other decided to take neither. To the best of my knowledge they are still doing well. ============== The doc refused to switch me, until the very end, & the other estrogen-blocker-stuff had similar bad effects. Susan, Su_Texas my opinions > I saw a cardiologist today, & got an echocardiogram. > [quoted text clipped - 5 lines] > > This super sux! Susan, I'm so sorry to hear that you've gotten such devastating news. You sound strong & determined, despite facing yet another great challenge. My heart goes out to you. Sending positive thoughts your way, Ann T. Remove 'dontsendspam' from address to reply by email > Chronic Sinus Infection and/or Bronchitis, which infects & re-infects > lungs, stomach, etc.? --------- I just heard a story about someone who thought they had a chronic sinus infection but it turned out to be a malignant tumor which was inoperable because it was so close to the optic nerve. I think they said it was being treated with radiation. Unfortunately I can't remember any other details. Eva > I can't afford to be this sick & weak. Disease has no respect for circumstances, indeed it tends to exploit the weak and injured and old. The poor get sick a whole lot more than the rich. It doesn't care what you can afford. > ---------------- > [quoted text clipped - 6 lines] > Why do they just prescribe antibiotics which don't work, as my condition > has obviously gotten extremely bad, critical. What else can they do by way of a cure? If it isn't a bacterial infection, what is it? If it is a bacterial infection then they have to try to find an antibiotic that works against it. Unfortunately a lot of infections are resistant against common antibiotics, simply because they are that, common, and we tend to overuse them. So they have to keep trying different ones. The only other things they can do are basically palliative, they could give you oxygen if your breathing is so badly compromised that it is life threatening. They could try steroids to reduce the inflammation in the short term. I don't know, I'm not a doctor and I only know about cancer. > Why are the docs so danged slow, & so reluctant to offer explanations or > options, when they can see there's something seriously wrong, a life & > death type situation? Why?! I guess they don't know what is going on. A bunch of symptoms doesn't always lead to an obvious diagnosis, especially when the situation is complicated by co-morbidities, i.e. more than one problem at a time. Usually the diagnostic process consists of making a guess and trying a treatment, then revising the diagnosis in the light of response (or lack of) to treatment. > Why is medical care so danged lacking? Partly because doctors are humans, not gods (whatever some surgeons might think), and partly because medical science does not have an answer to every human ailment. If you see the object of medicine as being to keep you alive, then it has a guaranteed 100% failure rate. Tim Jackson "Tim Jackson" <tim@tim-jackson.co.uk> wrote in message news:42abfcfb$0$41925$ed2619ec@ptn-nntp- >> Why is medical care so danged lacking? >> > Partly because doctors are humans, not gods (whatever some surgeons might > think), and partly because medical science does not have an answer to > every human ailment. If you see the object of medicine as being to keep > you alive, then it has a guaranteed 100% failure rate. What's more, if a patient doesn't trust the available medical care there's no point in taking advantage of it :-( Mary > Tim Jackson |
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