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Medical Forum / Diseases and Disorders / Breast Cancer / May 2005

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shaving my head in support

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JP - 21 Apr 2005 10:27 GMT
Hello all,

My mother was recently diagnosed with stage 4 breast cancer.  
As there is so little I can do to support her I thought I would shave my
head as a small show of solidarity.
I would like some of your opinions on this.  Would you appreciate this type
of show of support or are you just indifferent?

As a pleasant side effect, she let me cut her hair.  Not shaved but short
enough to not make a mess when it falls out.  I am a 42 year old man.  
People make fun of me, in a friendly way, for being clumsy and generally
rough.  One of the most treasured and intimate moments of my life.  I put
out a tip jar for amusement.

Thank you in advance.  God Bless

JP
Eva - 21 Apr 2005 12:23 GMT
> Hello all,
>
[quoted text clipped - 11 lines]
>
> Thank you in advance.  God Bless
----------
I think it's wonderful that you want to make a visible gesture to show your
support, but shaving your head won't really help, since you're a guy and
guys shave their heads all the time!  How about going on a cancer walk or
making a substantial donation to a cancer-support organization instead?

JUST MY OPINION!  Eva
Mary Fisher - 21 Apr 2005 12:28 GMT
>> Hello all,
>>
[quoted text clipped - 17 lines]
> support, but shaving your head won't really help, since you're a guy and
> guys shave their heads all the time!

That was my reaction too, I'm glad you said it.

> How about going on a cancer walk or
> making a substantial donation to a cancer-support organization instead?

That wouldn't show solidarity with his mother though, I assume she's
having/hadchemo.

Why not persuade her women friends to shave their heads?

Mary

> JUST MY OPINION!  Eva
alex - 22 Apr 2005 02:11 GMT
I agree a man shaving his head does not have the same impact. Bracklet is a
good idea,though....how is your mother doing? Alex
JP - 23 Apr 2005 01:10 GMT
> I agree a man shaving his head does not have the same impact. Bracklet
> is a good idea,though....how is your mother doing? Alex

she is well.  

she has broken at least 3 ribs.  she had a comprssion fracture in her t-11
vertabrea.  they did surgery and fixed it.  

most of her treatment has been pain management.  her doctors took a very
aggressive tact and o.d'ed her on the cocktail of methodone, oxycodone and
a patch.  (fenadol?)

in the process of diagnosing she went in for a mri.  she was given ativan
as a mild sedative.  she had a nasty reaction to of some sort.  it didn't
get documented.  her next mri came up and her technician/ dr. gave her a
double dose.  she was dillusional insane.  i didn't get to see her for a
day or two, my being a truck driver.  when i did she was in bed, moaning in
pain.  "help me.  will someone please help me?  where are my kids?"  we
were right there.  she advised me not to come because they were taking
hostages. and her mouth was bloodied, scabbed fron the chemo.  probably the
most traumatic experience of my life.  

she is better now and back to living from her divine spirit.  she has moved
to a nursing home and loves it.

JP
Eva - 23 Apr 2005 02:27 GMT
> most of her treatment has been pain management.  her doctors took a very
> aggressive tact and o.d'ed her on the cocktail of methodone, oxycodone and
> a patch.  (fenadol?)
----------
Probably fentanyl.  In the US its brand name is the Duragesic Patch.

Eva
Tim Jackson - 23 Apr 2005 10:33 GMT
>>most of her treatment has been pain management.  her doctors took a very
>>aggressive tact and o.d'ed her on the cocktail of methodone, oxycodone and
[quoted text clipped - 4 lines]
>
> Eva

Yes, we used those too, same brand in the UK.  They had just come out at
the time.  We found it very powerful with much less side effects than
morphine.

The story of her becoming delusional is horrible, but familiar.  I found
that sort of thing probably the worst part of caring for my wife, for a
time she became convinced that I was conspiring with the doctors and
nurses to murder her.  It is difficult to love someone who is constantly
attacking you.

Signature

Tim Jackson

JP - 23 Apr 2005 01:11 GMT
> I agree a man shaving his head does not have the same impact. Bracklet
> is a good idea,though....how is your mother doing? Alex

btw a bracelet is a good idea
JP - 23 Apr 2005 00:58 GMT
>>> Hello all,
>>>
[quoted text clipped - 29 lines]
>
> Why not persuade her women friends to shave their heads?

now that would be a hard sell.  i don't even think i could get my sisters
to do it.

> Mary
>>
>> JUST MY OPINION!  Eva
Mary Fisher - 23 Apr 2005 09:00 GMT
"JP" <jaskme@nospamwowway.com> wrote in message

>> Why not persuade her women friends to shave their heads?
>
> now that would be a hard sell.  i don't even think i could get my sisters
> to do it.

I would but I don't have sisters. I'd do it for a friendor one of my
daughters or daughters in law or grand daughters.

It's no big deal, I had it done when I had brain surgery. I wanted to do it
again to mark the 10th anniversary but my hairdresser wouldn't. I stopped
going to her. A grandson said, long afterwards, that he'd have done it, then
a son did, I'll have to think of another good reason.

In fact it's liberating, all that messy hair and hair care stuff gone - only
for a short time though :-(  It feels good, free, cool, seeing and stroking
the new hair is lovely.

I remember a local primary school where one of the children had chemo and
lost her hair. The child's whole class had a buzz so that she didn't stand
out. It was fun for them and a moving lesson to others.

Mary

>> Mary
>>>
>>> JUST MY OPINION!  Eva
JP - 23 Apr 2005 00:56 GMT
>> Hello all,
>>
[quoted text clipped - 21 lines]
>
> JUST MY OPINION!  Eva

You know when I first asked mom what she thought her first response was,
"What will it change?"

I want to walk in the Detroit "Race for the Cure"
Mary Fisher - 23 Apr 2005 09:01 GMT
"JP" <jaskme@nospamwowway.com> wrote in message >>

> You know when I first asked mom what she thought her first response was,
> "What will it change?"
>
> I want to walk in the Detroit "Race for the Cure"

What will that change?

Mary
Chris - 24 Apr 2005 17:56 GMT
It could change a lot. I read a promising scientific article the other
day that specified that the research had been supported in part by the
Susan G. Komen Foundation. The only way us Stage IV people are going to
live as long as we want to (and that includes any of you unlucky enough
to join us in the future) is through scientific research. The more we
support it, the more hope we can have.

For that, I thank you JP.

Chris

> "JP" <jaskme@nospamwowway.com> wrote in message >>
> >
[quoted text clipped - 6 lines]
>
> Mary
Mary Fisher - 24 Apr 2005 21:46 GMT
> It could change a lot.

Sorry, but how?

If it's by raising money, that can be done by having a sponsored shave! One
of our sons did that and raised a lot of money for the charity of my choice
and I didn't even have chemo!

Walking in the 'Race for the Cure' won't change an individual's immediate
case nor even give support to that individual.

The future for the general is in research (as is the treatment we've been
given). The present for the specific is in supporting those we know in
whatever way we can. That could be by sharing the experience of being bald
for a time. It would make me laugh and I'd know it would be done with love
and thought and, perhaps, not a little sacrifice..

Mary

> I read a promising scientific article the other
> day that specified that the research had been supported in part by the
[quoted text clipped - 18 lines]
>>
>> Mary
Tim Jackson - 24 Apr 2005 22:40 GMT
>>>"JP" <jaskme@nospamwowway.com> wrote in message >>
>>>
[quoted text clipped - 9 lines]
>
> Sorry, but how?

I think the object is to draw attention to the cause and so embarrass
more of the general public into contributing towards research and care.

I've no idea whether this is a sensible business model or just "seems
like a good idea".  On the other hand it enables a lot of people to feel
that they are "doing something about it".

Signature

Tim Jackson

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A. P. Thorsen - 25 Apr 2005 17:01 GMT
>>>> "JP" <jaskme@nospamwowway.com> wrote in message >>
>>>>
[quoted text clipped - 12 lines]
> like a good idea".  On the other hand it enables a lot of people to feel
> that they are "doing something about it".

Well, these things raise -massive- amounts of money that support
research and other BC-related programs in the U.S.  There are several
programs that I believe are nation-wide:  the Susan G. Komen Breast
Cancer Foundation's "Race for the Cure", the Avon 3-day walks, the
American Cancer Society's "Making Strides Against Breast Cancer" and
"Relay for Life" (the latter supports programs related to all types of
cancer).

Yeah, I suppose it plays on guilt or embarassment to fund-raise (and
certainly exploits friendships for fund-raising purposes, as
participants usually collect pledges from others when they participate).
 And Mary's right, it isn't a -individual- form of support.

But I have to admit, when I can personally guilt-trip friends &
co-workers into contributing maybe $1500 annually via these kinds of
vehicles, I guess I do feel like this constitutes a tiny bit of "doing
something about it".  It doesn't substitute for individual support or
volunteerism, it's just another dimension.

The "Race for the Cure" I walked in yesterday (in a driving snowstorm,
thanks to Spring in Michigan!) brought out around 3,000 people in our
mid-sized city, and raised over $145,000.  Of course, some of this goes
for administrative or fund-raising costs, but usually a small fraction
-- not dissimilar from what happens in government-funded programs.

In the U.S., this type of private fund-raising adds a lot, on top of
government funding for cancer research, detection, and support programs.
 So, it's a big deal here.

I sense some skepticism from our friends in the U.K. <G>, though.  Maybe
this is one of those things that doesn't translate cross-culturally,
despite the fact that we all speak English <g>?

Ann T.
Remove 'dontsendspam' from address to reply by email
Mary Fisher - 25 Apr 2005 20:51 GMT
"A. P. Thorsen" <apt77dontsendspam@hotmail.com> wrote in message news:d4j497

> I sense some skepticism from our friends in the U.K. <G>, though.

No, ann, but there are more ways of killing - or reviving - the cat ...

>  Maybe this is one of those things that doesn't translate
> cross-culturally, despite the fact that we all speak English <g>?

Huh???

:-))))))))))))))))))))0

Mary

> Ann T.
> Remove 'dontsendspam' from address to reply by email
Tim Jackson - 27 Apr 2005 09:15 GMT
> In the U.S., this type of private fund-raising adds a lot, on top of
> government funding for cancer research, detection, and support programs.
[quoted text clipped - 3 lines]
> this is one of those things that doesn't translate cross-culturally,
> despite the fact that we all speak English <g>?

Could be, such things aren't nearly so high-profile here.  We have the
London Marathon of course, which raises a lot of money for all sorts of
charities, but that's really the only one in national view.  There are
local fun-runs and the like of course, but these are pretty small beer
by comparison.

If I sound skeptical it is because I really don't know.  I think there
is a cultural difference here, and I suspect Brits are rather less
willing to contribute in this way.  I've always felt that there is a
difference in emphasis between the American team and the British
individual that pervades a lot of our cultural differences.  Big
organised "everyone pull together" events are not the British strong
point.  I think we spell team with in I in it. :-)

Tim
Mary Fisher - 27 Apr 2005 09:51 GMT
>> In the U.S., this type of private fund-raising adds a lot, on top of
>> government funding for cancer research, detection, and support programs.
[quoted text clipped - 17 lines]
> together" events are not the British strong point.  I think we spell team
> with in I in it. :-)

The I stands for Individual giving. Small (as well as large) personal
donations, made spontaneously without the persuasion of supporting events (I
choose my words carefully), amount to huge sums.

Mary

Mary

> Tim
Chris - 27 Apr 2005 18:41 GMT
And so does JP's effort as well. Let us all respect individuals and
their routes toward contributing. I feel that this whole discussion
started with you dissing JP's efforts when we should have been a more
supportive and encouraging discussion.

Chris

> The I stands for Individual giving. Small (as well as large) personal
> donations, made spontaneously without the persuasion of supporting events (I
[quoted text clipped - 3 lines]
>
> Mary
Mary Fisher - 27 Apr 2005 22:05 GMT
> And so does JP's effort as well. Let us all respect individuals and
> their routes toward contributing. I feel that this whole discussion
[quoted text clipped - 11 lines]
>>
>> Mary
JP - 03 May 2005 22:50 GMT
> And so does JP's effort as well. Let us all respect individuals and
> their routes toward contributing. I feel that this whole discussion
[quoted text clipped - 10 lines]
>>
>> Mary

thank you chris.

i suppose it did/ does make me feel like i did a little something to show
mom i'm on her side.  as if she needed the reminder.<g>

i do sometimes feel so frikkin helpless.  i have my family to support and
i have a career that requires long hours, i'm a truck driver.  i don't
have time to really dedicate myself to anything.  plainly i love my mom.  
i see her and help her when i can.  for now it'll have to be enough.

JP
Chris - 26 Apr 2005 01:29 GMT
> > It could change a lot.
>
> Sorry, but how?

HOPE, Mary, it is all about the hope. Scientific progress is going to be
the answer to those of us with Stage IV. Right now, we have a death
sentence. JP can either be the scientist or fund the scientist. I don't
much care which or how he, or you, or the rest of us, do it.


Chris

> If it's by raising money, that can be done by having a sponsored shave! One
> of our sons did that and raised a lot of money for the charity of my choice
[quoted text clipped - 10 lines]
>
> Mary
Mary Fisher - 26 Apr 2005 12:12 GMT
"Chris" <none@example.com> wrote in message news:none-

>> > It could change a lot.
>>
[quoted text clipped - 4 lines]
> sentence. JP can either be the scientist or fund the scientist. I don't
> much care which or how he, or you, or the rest of us, do it.

Chris, I don't like saying this but we're ALL under a death sentence, it
begins at conception.

I'm grateful for the medical research which has saved - i.e. extended - my
life at least twice (and to which I donate all my public speaking fees
because of my gratitude) but does any of us want to go on for ever? And if
not, when do we stop and how would we choose to die?

And is either realistic? Will it ever happen? If it does, we're going to get
pretty crowded and needing more resources than we do now and Earth is
already stretched to provide our extravagant lifestyles.

Mary

> Chris
>
[quoted text clipped - 16 lines]
>>
>> Mary
Chris - 26 Apr 2005 13:13 GMT
You make your own choice then, Mary. I would like to live a whole lot
longer. I am 38 years old. My son is 5. I would like a whole lot more
time on this planet.

Chris

> "Chris" <none@example.com> wrote in message news:none-
>
[quoted text clipped - 41 lines]
> >>
> >> Mary
Mary Fisher - 26 Apr 2005 17:00 GMT
> You make your own choice then, Mary. I would like to live a whole lot
> longer. I am 38 years old. My son is 5. I would like a whole lot more
> time on this planet.

So would I. But the fact is that some of us will die before others. It
always has happened and it always will, I suspect. If a magic bullet is
developed which ensures immortality for everyone we'll get so crowded that
death will be a mandatory process, I believe. It will never be the right
time for everyone ...

And the most dangerous thing I do is get in a car.

Mary
JP - 03 May 2005 22:44 GMT
>> It could change a lot.
>
[quoted text clipped - 37 lines]
>>>
>>> Mary

in case you wanted to see

before----http://www.ponkey.com/shared_photos/before.JPG

and after----http://www.ponkey.com/shared_photos/after.JPG

wanna hear something funny?  mom's chemo was called off the other day.  
her body responded to it so well they're stoppping it and continuing on
with hormone and maybe radiation.  her hair never fell out and likely
won't.  i think i'm leaving mine alone.  i'm kinda getting to like it.

mom's coming home from the nursing home saturday.  with her "turtle
shell" back brace.  it'll be a month to the day when she went to the
hospital.
JP - 03 May 2005 22:57 GMT
> It could change a lot. I read a promising scientific article the other
> day that specified that the research had been supported in part by the
[quoted text clipped - 17 lines]
>>
>> Mary

in case you were curious
http://www.ponkey.com/shared_photos/before.JPG

http://www.ponkey.com/shared_photos/after.JPG
Mary Fisher - 04 May 2005 10:28 GMT
"JP" <jaskme@nospamwowway.com> wrote in message

> in case you were curious
> http://www.ponkey.com/shared_photos/before.JPG
>
> http://www.ponkey.com/shared_photos/after.JPG

You left the beard!

Nice pics though ... :-))))))))))

Mary
Chris - 21 Apr 2005 16:42 GMT
I think this is really about whether your mother would find it
supportive or not. I, personally, did not care if my husband shaved his
head. I think it is very different for a woman to be without hair than a
man.

On the other hand, if this is about you making a statement about breast
cancer, you might get more mileage with a breast cancer bracelet (like
the yellow Lance Armstrong, but pink, of course). I think people would
be more likely to ask you about that (and then hopefully be supportive,
support breast cancer in general, etc.) than if you shaved your head. I
could be wrong though.

What is most helpful, I suspect, is that you are there for your mother
and thinking about how to be supportive and helpful of her. Cutting her
hair sounds nice. Having stage 4 breast cancer is a marathon, not a
sprint. Regular contact, making her some meals and otherwise pitching in
when she is tired, going to decision making appointments, etc, all
really add up. That stuff if important and loving long after all the
hair grows back.

Chris
Stage 4 since diagnosis in 2001

> Hello all,
>
[quoted text clipped - 13 lines]
>
> JP
Pamela Cook - 21 Apr 2005 18:53 GMT
<Xns963F378A0919Aaskmenospamwowway@216.196.97.142>,

> > Hello all,
> >
[quoted text clipped - 13 lines]
> >
> > JP

        Hi,
           would like to echo what everyone else has said.... I have
suggested that my friends (women, cos as you say lots of men choose to shave
their heads)  but have had no takers as of yet...surprise, surprise...Don't
think I would relish the thought, if roles reversed...not the most
flattering  style.....and it won't do any physical good...Nice gesture tho,
JP    Hope your mum gets on OK.....Just being there and helping her with
jobs when she's tired would be appreciated, I'm sure...
                JMHO    Pam xx
allan grossman - 22 Apr 2005 02:15 GMT
I agree with everyone else.

I told my wife I was shaving my head and she asked me if I'd lost my
mind  ;-)

My advice is to support Mum as best you can, and spend a little time
contributing time to the breast cancer community, either locally or on
the Internet.  Everyone has at least a story to share.

BTW - my wife Deborah's Stage IV diagnosis was in 1999 and she's
currently in remission for the second time.  Life is good.

Signature

allan

we don't see things as they are, we see them as we are.
-- Anais Nin

alex - 22 Apr 2005 22:07 GMT
Allan,
Did you wife ever get her dental implants? I am only asking since  I am
going to get one. Alex

>I agree with everyone else.
>
[quoted text clipped - 7 lines]
> BTW - my wife Deborah's Stage IV diagnosis was in 1999 and she's
> currently in remission for the second time.  Life is good.
allan grossman - 23 Apr 2005 00:27 GMT
>Allan,
>Did you wife ever get her dental implants? I am only asking since  I am
>going to get one. Alex

Nope.  When they extracted her teeth there wasn't enough bone left in
her jaw for a full set of implants, so she decided if she still had to
wear one plate she might as well wear two.

Good luck, Alex  ;-)

Signature

allan

we don't see things as they are, we see them as we are.
-- Anais Nin

JP - 23 Apr 2005 01:21 GMT
thank you all.  

http://www.pinkribbonshop.com  is where i'm ordering mine.

JP
 
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