Suzanne,
I'm sorry I can't offer information on your eye diagnosis, but I can
certainly symphatize with you when it comes to eye problems. I have had
terrible double vision (vertical diplopia) since cataract surgery last
Dec 22nd and it's been a constant hinderance since. Doc said removing
dense cataract from other eye would solve problem, but of course it
didn't. Found out it's eye muscle damage from the anesthetic injection
and will require surgery--maybe several--to try to realign my vision
again. I've had to keep one eyeglass lens occluded so I use only one eye
since 12-22. This situation has nothing at all to do with my cancer, but
it has moved up to No. 1 in terms of doc. appts and worry about upcoming
eye surgeries.

I learned a lot from going to Google.com and searching for info just
starting with the simple terms, then one bit of info leads to another. I
imagine you've tried this. Maybe even searching your chemo regime and
eye problems, but this may not have anything to do with cancer
treatments. I've never heard of your diagnosis either so I hope your
doctor will be more forthcoming and answer your questions patiently. I
hate it when docs give us the brush off like it's not important that we,
the patient with the condition, don't need complete understanding of
what we are dealing with. I hope there will be a treatment that will
improve your vision. Right now I can very much relate to vision
problems.

Kathie