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Medical Forum / Diseases and Disorders / Breast Cancer / October 2003

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Life expectancy

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Richard Faulkner - 27 Sep 2003 05:23 GMT
I am trying to put some thoughts on paper for Janet and the following is
a paragraph from them:

"This bit might not read too well, but you ask me to talk to you and,
one thought that crosses my mind is that we could live your life as
though you are free and will live forever, or we could live it as though
you had less time, or we could live it as though both could happen. At
the moment, whilst I know you are scared, (terrified even), I like the
sound of the former. If the worst thing happened, perhaps that would be
the time to live as though you have less time. It wouldnt mean that you
stopped worrying, but......."

I want to go on to say something which relates to statistics and which
suggests that, if the worst happened - i.e. the cancer became terminal
in some way, there is almost certainly 2 years, or 3 years, or 6 months,
or whatever, before the end. Is there anywhere which provides these
sorts of life expectancies, either in general, or if specific things
happen e.g. bone, lung, liver or whatever? I guess I am trying to say
that it's not over till it's over.

I think you will get my drift.

Many Thanks

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Richard Faulkner

Tim Jackson - 27 Sep 2003 12:15 GMT
I don't think there is an easy answer, you can't predict outcome from the
location of mets, except that bone tends to be slower.  But you can say, as
you do, that mets are likely to be detected at least six months before they
kill you, you may have ten years or more, but most people survive a couple
of years or so.  I don't think anyone has managed to come up with a way of
predicting who will last longer.  For example my wife was diagnosed with
bone mets in March 1999 and died exactly one year later.  Catharine, well
known contributor to this group, was diagnosed with a more advanced similar
condition in 2000 and is still with us and going strong over three years
later.  You just can't tell.

As to how to live your life, a diagnosis of cancer brings you up short and
rearranges your priorities.  Putting a big part of your income into that
retirement fund suddenly doesn't look so clever any more.  If she does find
herself on the slippery slope of terminal illness, then there may not be
much time to enjoy any of those things that you "really wanted to do
someday", as for perhaps half of the survival time her mobility is likely to
be restricted, treatments and symptoms will eat into the quality of life.
In terms of activity holidays and such things that need to be planned well
in advance, "doing it now" seems more sensible.

There is still as always a balance to be struck, you don't want to be taken
by surprise by a sudden decline leaving things undone, but you don't want to
live your life waiting for the other shoe to drop or to look back and
realise that you spent the last ten years waiting to die.

Tim Jackson

> I am trying to put some thoughts on paper for Janet and the following is
> a paragraph from them:
[quoted text clipped - 22 lines]
> --
> Richard Faulkner
Richard Faulkner - 27 Sep 2003 15:55 GMT
Thanks for that Tim. I know there isnt a cut and dried answer, but you
put it extremely well. Exactly what I was looking for.

Thanks again

Richard

>As to how to live your life, a diagnosis of cancer brings you up short and
>rearranges your priorities.  Putting a big part of your income into that
[quoted text clipped - 12 lines]
>
>Tim Jackson

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Richard Faulkner

Jackie - 27 Sep 2003 17:23 GMT
I understand that everyone is different.  But there was a lady doing chemo
at the same time I was doing it.  She had had bone mets since the 1980's and
was still going strong, able to work, etc.  That was so encouraging to me
and I thought maybe it would be an encouragement to others.  I do not know
what regimen she was on or any other details about her.

Jackie S.
> I don't think there is an easy answer, you can't predict outcome from the
> location of mets, except that bone tends to be slower.  But you can say, as
[quoted text clipped - 50 lines]
> > --
> > Richard Faulkner
Catharine Honeyman - 28 Sep 2003 03:32 GMT
> Catharine, well known contributor to this group, was diagnosed with a
> more advanced similar condition in 2000 and is still with us and going
> strong over three years later.

It's because I was fat and evil.  I'm not fat anymore, but I'm still evil.
a) When you're fat, cachexia takes longer to hurt you.  b)  Only the good
die young, and I just turned 40.  AHA ha ha ha ha ha I will now live
forever, a saggy baggy androgynous-looking person who will lurk in the
background until 2057, laughing wickedly all the while. (Not able to walk,
but still sneering at trolls and certain others from my anti-gravity bed.)
(By 2040 I expect there to be a computer that is actually comfortable to
use in bed.)

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Aloha,
Catharine

titubant sed non decidunt wiblia

Alexandra Koffman - 28 Sep 2003 03:45 GMT
Happy belated Birthday!
Hope you find a comfortable mattress.
Alex

> > Catharine, well known contributor to this group, was diagnosed with a
> > more advanced similar condition in 2000 and is still with us and going
[quoted text clipped - 14 lines]
>
> titubant sed non decidunt wiblia
Glenfiddich - 28 Sep 2003 04:23 GMT
...
>It's because I was fat and evil.  I'm not fat anymore, but I'm still evil.
>a) When you're fat, cachexia takes longer to hurt you.  b)  Only the good
[quoted text clipped - 4 lines]
>(By 2040 I expect there to be a computer that is actually comfortable to
>use in bed.)

By 2040, I'd want there to be a comfortable bed
that actually IS a computer.
Mary Fisher - 28 Sep 2003 11:22 GMT
> > Catharine, well known contributor to this group, was diagnosed with a
> > more advanced similar condition in 2000 and is still with us and going
> > strong over three years later.
>
> It's because I was fat and evil.  I'm not fat anymore, but I'm still evil.

I'm relieved to hear that!

Still thinking daily of you.

Mary
Cathy Emerson - 28 Sep 2003 00:21 GMT
I have liver mets and I live my life in the short term.  Have to.
That's all I have. I am spending my retirement accounts and having a
great time doing it.  I am creating memories for my son instead of
leaving him with money he would blow.  We've had some great trips.  I
just can't plan very far ahead since I don't know if I'll be on or off
chemo.
Cathy
madiba - 08 Oct 2003 14:46 GMT
> I want to go on to say something which relates to statistics and which
> suggests that, if the worst happened - i.e. the cancer became terminal
[quoted text clipped - 3 lines]
> happen e.g. bone, lung, liver or whatever? I guess I am trying to say
> that it's not over till it's over.
As Tim mentioned location does play a role, ie its over quicker with
brain mets than bone mets, lung and liver mets being somewhere between
those two.

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madiba

Richard Faulkner - 08 Oct 2003 18:51 GMT
>> I want to go on to say something which relates to statistics and which
>> suggests that, if the worst happened - i.e. the cancer became terminal
[quoted text clipped - 3 lines]
>> happen e.g. bone, lung, liver or whatever? I guess I am trying to say
>> that it's not over till it's over.

>As Tim mentioned location does play a role, ie its over quicker with
>brain mets than bone mets, lung and liver mets being somewhere between
>those two.

Thanks for that. I guess I'm conscious of what you are saying -
particularly after Holby City last night <g>

It would be good to be able to say that, in general, people have a
couple of years to sort out their affairs, say goodbye, and do the
things they always wanted to, but didnt dare blow the money.

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Richard Faulkner

 
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