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Medical Forum / Diseases and Disorders / Breast Cancer / April 2005

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hair loss

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Pamela Cook - 30 Mar 2005 10:59 GMT
Hi,
   Every-ones very quiet at the moment....It't three weeks tomorrow since
my 1st chemo (FEC)..and I have just started losing my hair...it's
everywhere...all on my jumper and loads in the brush....will have to clip it
I think...'cept my daughter-in law is in Spain at the moment, and she's the
one with the clippers !!!!    never mind...   going for chemo  no 2
tomorrow.....  Hope it's the same as the 1st... no side-effects.....
Fingers crossed  every-one Please........
                      good wishes to all
                               Pam xx
Jen - 30 Mar 2005 13:29 GMT
> Hi,
>    Every-ones very quiet at the moment....It't three weeks tomorrow since
[quoted text clipped - 8 lines]
>                       good wishes to all
>                                Pam xx

Hi Pam,
I had my second FEC on Monday last week it wasn't too bad felt slightly
sicker but not much. Will be thinking of you tomorrow.

My hair started falling out on day 15 after my first session so you've done
well! Maybe the hospital would have someone who can clip your hair for you?
I found it to be quite liberating to decide for myself when it was time to
start wearing my scarfs and hats.

Hope all goes well
Jenny x
Tim Jackson - 30 Mar 2005 14:32 GMT
> Hi,
>     Every-ones very quiet at the moment....It't three weeks tomorrow since
[quoted text clipped - 6 lines]
>                        good wishes to all
>                                 Pam xx

Don't know about Hull, but at the Christie Hospital (Manchester) there
is a hairdressing salon who clips your hair for free, also a wig
consultant.  Ask.

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Tim Jackson

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spndhsmony@aol.com - 02 Apr 2005 22:53 GMT
Im new here...and have been wondering
when my hair will start to fall out. I was told day 17. Im at day 12
now..and my hair is still firmly rooted. Can it fall out
over night? I have heard that the scalp tingles or hurts. Is that true?
I have two
wigs ready and waiting.
Thanks.
Tim Jackson - 03 Apr 2005 13:06 GMT
> Im new here...and have been wondering
> when my hair will start to fall out. I was told day 17. Im at day 12
[quoted text clipped - 3 lines]
> wigs ready and waiting.
> Thanks.

Usually sometime around the end of the second week.  What happens is it
become lose and starts to fall out in clumps when you brush or handle
it.  You might get some tenderness or tingling.  If  you hair is long
when it comes out then it can make a mess (hairbrush, shower drain etc.)
which can also be distressing, that's why it is recommended to cut it
short beforehand.

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Tim

Pamela Cook - 03 Apr 2005 15:45 GMT
> > Im new here...and have been wondering
> > when my hair will start to fall out. I was told day 17. Im at day 12
[quoted text clipped - 5 lines]
> >
>     Hi.
           I was told that it's the epirubicin that always causes hair
loss, the other chemo treatments don't always..A chemo nurse at Hull said
she'd only known one patient in 10 years not lose her hair with
epirubicin... So it depends which treatment you've had.... as i said in
previous post mine has started to fall out on day 20 but has only just
started to look bad (day 24)  so I'm now wearing a scarf.....does tingle a
bit, but not very much, at least thats what I've found... but every-ones
different..

                                 Good Luck,
                                    Pam xx
spndhsmony@aol.com - 03 Apr 2005 23:06 GMT
Thanks.
My chemo is cytonan and adriamycn.
The doc said I will lose my hair and so
did all the literature I have read. Im waiting
patiently. (ugh) My next treatment is on
4/11. I guess if I dont lose my hair by then the second (of 4)
treatments will do the trick.
Im not looking forward to being bald....It is an
outward sign of being sick. That is what I dread the most.
Pamela Cook - 04 Apr 2005 11:17 GMT
> Thanks.
> My chemo is cytonan and adriamycn.
[quoted text clipped - 5 lines]
> Im not looking forward to being bald....It is an
> outward sign of being sick. That is what I dread the most.

      Hi,
 No, look on it as an outward sign of getting better.....  Some women
choose to shave their heads.... The longer you keep it the less time you
will be bald....I've got 4 more treatments taking me up to the end of
june...Apparently they usually reccommend 6 sessions in the UK.....be proud
of who you are.... Could happen to any-one....

                                    hugs,
                                              Pa, xx
A. P. Thorsen - 04 Apr 2005 16:46 GMT
> Thanks.
> My chemo is cytonan and adriamycn.
[quoted text clipped - 5 lines]
> Im not looking forward to being bald....It is an
> outward sign of being sick. That is what I dread the most.

Yeah, I lost my hair on AC.  It was just about the time of the second
treatment, plus or minus a few days -- I don't remember for sure.  In my
case, there was absolutely no pain or tingling (which is not true for
everyone).

It happened over a few days:  At first, just a little more started
coming out in the brush/comb or shower,  then it started coming out more
easily.

Once it reached the point where I could readily pull out a handful
without it hurting at all -- which was kind of fun, in a twisted way
<grin> -- I shaved it off.

I liked Pamela's idea that losing your hair is a sign of getting better!
 Also, I have to say, there are some positive aspects.  Showering is
really quick!  (But I often joke that when I washed my face, I didn't
know where to stop.)  You probably won't have to shave your legs, if you
do that now.  At first, you kind of think that people will look at you
oddly, but mostly they don't.

I always recommend that women going through this try to scrape together
the money to get a cranial massage while bald, from a professional
massage therapist.  It feels really, really, good, and helps deal with
the stress of the situation, besides.  It just isn't the same once you
have hair again.

Despite some more joking comments above, I think I do understand where
you're coming from.  Cancer treatment is a rotten hobby, but you will
get through it one day at a time.   We're here anytime you want to "talk".

Take care,

Ann T.
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Mary Fisher - 04 Apr 2005 21:01 GMT
> At first, you kind of think that people will look at you oddly, but mostly
> they don't.

That's absolutely true in my experience (not chemo but shaving because of
brain surgery). I'd have been happy for people to look at me so that I could
brag about what terrible things I'd gone through but they never did. And I
had a great scar and staples to boot!

No horses bolted, no little children screamed and clung to parents (damn and
blast), it was a non-event.

I reckoned at the time that people are taught not to stare at unusual things
from an early age but now I think that they're so used to seeing bald
people, men, women, children, dogs, for whatever reason, that it's not a
novelty.

<sigh>

If you've got it, flaunt it! I did. They said they'd give me a wig. No
thanks. They said I could wear a scarf. No thanks. I enjoyed the feeling of
air on my head and there was always the hope that someone would ask about it
... As my hair grew is was lovely to feel it, to stroke it, to measure it.
When it was a few inches long it looked good, being all the same length I've
never achieved that since.

> Despite some more joking comments above, I think I do understand where
> you're coming from.  Cancer treatment is a rotten hobby, but you will get
> through it one day at a time.   We're here anytime you want to "talk".

That's true. And ignore my flippancy, while it's all true I do appreciate
that not everyone is as outgoing as I am. Just as well, really ... I don't
think I could bear to be with someone like me for more than a few days!

Mary
spndhsmony@aol.com - 07 Apr 2005 12:57 GMT
Thanks to all for your comments and suggestions. My hair has started to
come out.
Small amounts...but after my next treatment, on Monday 4/11...Im sure I
will be bald.
I do wear my hair very short, so I just figured I
will wait a few more days and see what happens. When it looks patchy I
will go to the wig shop and have them buzz me and fit my wigs properly.
I like the idea of seeing outward signs that the
chemo is working. Im just hoping that I have
a decent shaped skull! lol It is getting warmer here in NJ...so I dont
know how much patience I will have with my wigs.
Time will tell.
Phyllis
alex - 08 Apr 2005 00:13 GMT
For me hairloss was one of the worst, sounds like you on the road to be a
survivor.  Hope you aren't having any other side effects, Alex

> Thanks to all for your comments and suggestions. My hair has started to
> come out.
[quoted text clipped - 9 lines]
> Time will tell.
> Phyllis
Guess Who - 31 Mar 2005 04:51 GMT
Pam,
Just put a scarf around your head until the clippers come back. Hope your
second round was a easy as the first! Alex
 
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