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Medical Forum / Diseases and Disorders / Breast Cancer / February 2005

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The unlikely breast cancer patient - men with breast cancer (xpost)

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J - 23 Feb 2005 19:09 GMT
http://www.cnn.com/2005/HEALTH/02/22/male.breast.cancer/
Men, as well as women, afflicted with disease
Wednesday, February 23, 2005 Posted: 1:27 PM EST (1827 GMT)
Nine years after his diagnosis, Bob Riter now works to raise public
awareness about breast cancer.
(CNN) -- Bob Riter speaks to breast cancer patients, usually women, about
something they can relate to -- his own experience with the disease.

After a 1996 diagnosis, and treatment, Riter, 49, is in remission and
working at the Ithaca Breast Cancer Alliance in Ithaca, New York, as the
associate director.

"Lots of people have heard talks and things about breast cancer over the
last decade, and sometimes by being a guy with breast cancer, it's a
different twist that catches their attention," Riter says. "It makes them,
I think, more receptive to the whole conversation."

Arguably, little attention is paid to breast cancer among men, partly
because of the low incidence in the population coupled with the assumption
that it's not a male disease.

The American Cancer Society estimates that in 2005, 1,690 men in the
United States will be diagnosed with breast cancer (compared to 211,240
women likely to be diagnosed). Of those, roughly 460 will die from the
disease.

But while the rates may differ, breast cancers among men and women are
nearly identical, including in terms of detection and treatment.

"It turns out that breast cancer is really the same disease in men and
women," says Riter. "Under the microscope, you can't tell the difference."

<read the rest> including

Combating assumptions

Apart from the challenges of physically overcoming breast cancer, some
male patients struggle with the disease's psychological baggage.

"A lot of guys with breast cancer go underground. They think of it as a
women's disease and they're embarrassed about it, or they're ashamed of
it," Riter says.

But with a glint of hope, he adds that more men willingly talking about
it.

And Riter is doing his part, putting the disease in the spotlight for men
and women alike.

"I really like to go to national breast cancer meetings," he says,
"because a lot of people know that men get breast cancer in theory, but
until you have a face to associate with it, it's fairly abstract. And so
I'm sort of that face."

Another support resource - ACOR mail lists
http://www.acor.org/mailing.html?l=m

MaleBC - A Male Breast Cancer Discussion List
(42 subscribers)
Mary Fisher - 23 Feb 2005 20:26 GMT
> http://www.cnn.com/2005/HEALTH/02/22/male.breast.cancer/
> Men, as well as women, afflicted with disease
[quoted text clipped - 3 lines]
> (CNN) -- Bob Riter speaks to breast cancer patients, usually women, about
> something they can relate to -- his own experience with the disease.

We've had men with bc on this group and I've known some in real life. They
haven't struggled with the disease's psychological baggage.

I don't doubt that some do, in the same way as some women do.

Perhaps I'm being naive or perhaps I've only known intelligent men but I
haven't got the impression that it's any more of a problem for men than it
is for women - ...

Discuss!

Mary
J - 23 Feb 2005 21:24 GMT
> "J" <virtual@privacy.net> wrote in message
> > http://www.cnn.com/2005/HEALTH/02/22/male.breast.cancer/
[quoted text clipped - 15 lines]
>
> Discuss!

Is that an order? <g>
For many years, orchiectomy (removal of the testes) was used to reduce hormones
in the man?s body. Now, men are more often treated with various anti-hormonal
drugs. Dealing with the side-effects of chemotherapy is the same as in females.
The use of tamoxifen causes hot flashes and reduces the sex drive.

More men present with later stage disease than women because of the lack of
screening programs.

For 40 years it has been known that, in a substantial portion of men with
advanced breast cancer, surgery to remove the testes (orchiectomy) can cause
tumors to shrink, metastases to clear up, and symptoms to disappear, for
periods lasting from months to years. More recently, similar results have been
achieved by removal of the adrenal glands (adrenalectomy) and the pituitary
gland (hypophysectomy).  Orchiectomy, or surgical castration, is usually the
initial ablative procedure because it produces a high response rate with few
surgical complications. Men who respond to orchiectomy as well as those who
fail to do so may respond subsequently to either adrenalectomy or
hypophysectomy, and these operations can be used sequentially.

One large review established that orchiectomy produced tumor regression in
two-thirds of the men treated; the median response lasted 22 months.
Adrenalectomy led to a response in three-fourths of the patients, which lasted
for a median period of 26 months. Hypophysectomy succeeded in more than half of
the men, with responses lasting for a median duration of 20 months.12 These
therapies not only produced tumor regression and relief of symptoms, but they
also lengthened the responders' survival.,.

The above are compilations from two separate web pages.
So Mary, if there are late stage male survivors out there (who previously had
the orchiectomy), I would think that the sex drive and/or orchiectomy issues
would be psychological issues that they might not wish to discuss in the
company of mostly women here. Or if there are those disagnosed late with bc,
requiring or choosing the orchiectomy, they might prefer discussing such with
other males.

I also have many friends, male and female, who have Lupus, thought to be a
woman's disease. The males read messages, but stay in the background mostly.
There's also thought to be a hormonal connection with that disease. In
addition, one male that I email with, feels that his "knees have been cut off
from under him" (feels less valuable to society"), because he is too sick to
work. He has had to switch from role as the provider of the family to
"house-husband, carer of the young kids" while she had to go back to work to
ensure ongoing health insurance coverage and income. Many/some males seem to
have more difficulty with those issues.

Hence, why, in part, I provided another source of support for males with BC.

Good enough?
J
Mary Fisher - 23 Feb 2005 22:08 GMT
>> Perhaps I'm being naive or perhaps I've only known intelligent men but I
>> haven't got the impression that it's any more of a problem for men than
[quoted text clipped - 4 lines]
>
> Is that an order? <g>

:-)

> More men present with later stage disease than women because of the lack
> of
> screening programs.

Yes and that's sad but it is relatively rare in men and there are limits on
resources ... :-(

...

> So Mary, if there are late stage male survivors out there (who previously
> had
> the orchiectomy), I would think that the sex drive and/or orchiectomy
> issues
> would be psychological issues that they might not wish to discuss in the
> company of mostly women here.

The men I've personally known haven't had orchiectomy, and they've all been
my sort of age. It seems fairly common for sex drive in men to decrease as
they age so it might not be an issue with every man on tamoxifen, it also
might be regarded as a small price to pay for life ...

> Or if there are those disagnosed late with bc,
> requiring or choosing the orchiectomy, they might prefer discussing such
> with
> other males.

Of course.

> I also have many friends, male and female, who have Lupus, thought to be a
> woman's disease. The males read messages, but stay in the background
[quoted text clipped - 10 lines]
> to
> have more difficulty with those issues.

Indeed they do, although at least here in UK it doesn't seem to be as
important an issue as in earlier years.

I know that when My husband took early retirement because of his health (an
unidentified neurological condition which was unrelated to his manhood) he
too felt guilty and not valuable and more. It took some time to persuade him
that I'd rather be a poor wife than and kind of widow. He's perfectly at
ease now and in fact enjoys his enforced leisure. Not that he has much ...

> Hence, why, in part, I provided another source of support for males with
> BC.

Quite right too. But I was picking on just one aspect. I'm as human as the
next man, despite rumours to the contrary.

> Good enough?

How could I possibly say not?

<VBG>
 
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