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Medical Forum / Diseases and Disorders / Breast Cancer / February 2005

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What would have helped during radiotherapy/radiation treatment?

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DaviesUK - 02 Feb 2005 16:48 GMT
What would have helped during radiotherapy/radiation treatment?

I found this group extremely helpful and supporting 3 years ago when I had a
recurrence of breast cancer, and now I'm hoping to put together a piece on what
those being treated for cancer would like as support and help from the people
around them.

I feel that friends and family often would like to help but don't know what to
do, what would *really* be appreciated. I've looked at the FAQ (thanks, Tim)
and I'd like any other suggestions.

Steph

Please remove -NO-SPAM from the address to reply :-)
Mary Fisher - 02 Feb 2005 17:47 GMT
> What would have helped during radiotherapy/radiation treatment?

The trouble with these questions is that we don't - well, at least I
didn't - know what questions to ask until things came up. I'd had a huge
amount explained to me before and during all treatments and if I had any
special (and usually very specific to my case) questions they were answered
as I asked them.

To save your time and mine I make the same reply to all your other topics.

During radiotherapy only once did I feel that I hadn't had as full a reply
as I'd hoped for from technicians and wrote to to a higher authority. I was
invited to talk to the senior manager personally, in a dedicated interview,
and was treated with great courtesy and kindness. My most detailed questions
were answered verbally and in writing and it was very gratifying.

That was in the Yorkshire Cancer Centre, Cookridge, Leeds.

Mary
Stephi - 02 Feb 2005 19:05 GMT
What I really meant was,  what could your family and friends have done? For
instance, if your friends had organised a rota so someone could go with you
each day for radiotherapy? (I always went alone - I had radiotherapy 17
years ago the first time, then again 3 years ago, so I knew what was going
to happen, but it would still have been good to have a companion.)

Or someone to do the ironing, because RT is really tiring. That kind of
thing - what people could offer as a support.

Thanks,

Steph

>> What would have helped during radiotherapy/radiation treatment?
>>
[quoted text clipped - 16 lines]
>
> Mary
Mary Fisher - 02 Feb 2005 22:20 GMT
> What I really meant was,  what could your family and friends have done?
> For instance, if your friends had organised a rota so someone could go
> with you each day for radiotherapy? (I always went alone - I had
> radiotherapy 17 years ago the first time, then again 3 years ago, so I
> knew what was going to happen, but it would still have been good to have a
> companion.)

Spouse went with me once but that meant that two people's time were being
used. I preferred not to have company so that he could get on with other
things.

> Or someone to do the ironing, because RT is really tiring.

He would have done if I'd needed it. If I'd been alone the ironing would not
have been done - and so what?

I was one of the minority for whom it had no effect on my fatigue levels.
That's despite being 'advised' that whatever else happened I'd be tired out.

That was the sort of advice I could have done without, it meant that I
planned things to do while sitting down and they're still not done.

Because we're all so different, our cancers are different and we respond
differently to different treatments it's very difficult to give appropriate
advice as to what to expect ancd how to cope with it. Sufficient unto the
day ... I dealt with things as they cropped up and, for me, that worked.

I did ask lots of questions in the ward, eventually the sister dumped Susan
Love's Breast Book on my belly and told me to read it. I did. That was the
best advice I ever had.

Mary
That kind of
> thing - what people could offer as a support.
>
[quoted text clipped - 23 lines]
>>
>> Mary
 
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