Deborah is in the hospital now, recovering from a bout of cellulitis
that started in her lymphedemic arm and moved into her chest.
Turns out we did everything wrong before she went to the hospital.
When Deborah woke up yesterday morning she said her arm hurt and was a
bit red, warm and swollen more than usual. She decided to try manual
lymph drainage to relieve some of the discomfort - then did 45 minutes
on her electric pump and put her sleeve and glove on after that.
By 2pm she was in considerable pain and went down to see Dr. Smiley
(nice thing about Dr. Smiley is if it's an emergency you can pretty
much walk in). He took one look, ordered morphine and IV antibiotics
and had her admitted.
She's still a bit under the weather but things are getting better -
her temperature is back to normal and if everything goes well she'll
come home tomorrow or Sunday.
This was our first experience with cellulitis so I thought I'd share
what we've learned with everyone else.
First, if your lymphedemic arm gets hot, red and is more uncomfortable
than usual, get thyself to a hospital. Do not pass go, do not collect
$200.
Next, if you suspect cellulitis don't do manual lymph drainage, use a
lymphedema pump or wear compression garments until your oncologist
says it's okay to do so. Pushing infected fluid from your arm into
your chest is apparently a lousy idea.
We're gonna be a bit more careful from now on.
cheers -
allan

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we don't see things as they are, we see them as we are.
-- Anais Nin
A. P. Thorsen - 08 Oct 2004 22:07 GMT
> Deborah is in the hospital now, recovering from a bout of cellulitis
> that started in her lymphedemic arm and moved into her chest.
. . .
> We're gonna be a bit more careful from now on.
Oh dear! I'm glad things are on the upswing, but sorry you've had to go
through this.
It's so like you to think of how your experience can benefit us, even as
you're in the throes of the thing.
Best wishes to you, and well-wishes to Deborah!
Ann T.
Remove 'dontsendspam' from address to reply by email
allan grossman - 09 Oct 2004 01:43 GMT
>Oh dear! I'm glad things are on the upswing, but sorry you've had to go
>through this.
[quoted text clipped - 3 lines]
>
>Best wishes to you, and well-wishes to Deborah!
Thanks, Ann - Deborah is off morphine this evening and on Vicodin for
pain so things are looking up ;-)
She's getting IV antibiotics q8h and last night the needle slipped out
of her port while she was sleeping and deposited about 200ml of fluid
under her skin so until that gets absorbed her port is useless - there
isn't a needle long enough to reach the damn thing now :-(
They're applying heat to the area to help speed things up a little so
maybe they can use the port tomorrow and take the needle out of her
arm. All in all she's in good spirits and wants to come home, but
they think now it'll probably be Sunday or later before she can do
that.
hugs to all -
allan

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we don't see things as they are, we see them as we are.
-- Anais Nin
Guess Who - 09 Oct 2004 01:04 GMT
Your doctor smiley sounds alright in my book, her arm should be feeling fine
within 24-48 hours, Give Deborah our regards and thanks for the tip.
> Deborah is in the hospital now, recovering from a bout of cellulitis
> that started in her lymphedemic arm and moved into her chest.
[quoted text clipped - 31 lines]
>
> allan
Barb - 09 Oct 2004 12:44 GMT
Hello Allan,
Please add my best wishes for Deborah's recovery. I'm so sorry she (and
you) have had this happen. Sounds like things are improving if she's gotten
rid of the morphine. Wishing continued and steady improvement!
Barb
*Annie* - 09 Oct 2004 23:55 GMT
Allan...
Please know my thoughts and prayers are with you both. I'm so sorry to
hear that this has happened. I hope that as you're reading this that Deb
is home already, and sitting right beside you. Please give her my gest
wishes for a very speedy recovery. Again, I'm very sorry she's had to go
through this....
Take care there/God bless you both
annie
Ultimately.....we know deeply that the other side of every fear is a
freedom.
"Courage"...is *fear* that has said it's prayers.
allan grossman - 10 Oct 2004 14:27 GMT
>Please know my thoughts and prayers are with you both. I'm so sorry to
>hear that this has happened. I hope that as you're reading this that Deb
>is home already, and sitting right beside you. Please give her my gest
>wishes for a very speedy recovery. Again, I'm very sorry she's had to go
>through this....
>Take care there/God bless you both
Your kind thoughts must have worked, annie - she came home yesterday
;-)
The trip home wasn't completely uneventful, though. Dr. Smiley was
off for the weekend and a guy named Dr. Shen released Deborah from the
hospital with a script for oral antibiotics. I drop the script off at
the corner drugstore and take Deborah home to get her settled in.
After about half an hour I head back to the corner drugstore to pick
up the script and the pharmacy tech tells me the pharmacist wants to
speak to me - so the pharmacist calls me over to his little window and
tells me it says in his records that Deborah is allergic to
penicillin.
When I confirm this the pharmacist tells me the antibiotic she's been
prescribed is contraindicated for people with a penicillin allergy. I
ask him to hold the script and head home and call Dr. Shen's service.
I explain to the doc that my wife is allergic to penicillin and that
the pharmacist had flagged the prescription. Dr. Shen asked me if I
would look up the phone number to the pharmacy (he was on the road)
and said he'd call in a new script.
When we got everything straightened out I decided the pharmacist was
my new best friend, thanked him profusely and went on my way. I still
don't understand how Dr. Shen could miss a penicillin allergy when
Deborah was wearing a yellow band with the allergy clearly listed on
it while she was in the hospital. If it wasn't for the pharmacist's
sharp eyes (or the sharp eyes of the computer he used) I'm pretty sure
Deborah would have landed back in the hospital.
Anyway, I'm still a bit unhappy with the state of medical care in our
town. In one two-day stay we had three errors that just shouldn't
have happened. Two were infusion errors (note to self: Don't allow
IV meds when the patient is sleeping) and one was what I'd thing was a
fairly serious prescription error.
After the incident where my FIL received two days of Heparin he didn't
need I'm beginning to see these people need to be watched pretty
closely.
Oh, well. At least she's home now and in a few days she'll be right
as rain ;-)
hugs to all -
allan

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we don't see things as they are, we see them as we are.
-- Anais Nin
Guess Who - 10 Oct 2004 15:05 GMT
It is pretty scary, my dad when he was alive had Parkinson disease, he had
surgery and was sent to rehab, I asked if he was taking his medications for
Parkinson's disease. Then he started to fall every day, broke ribs etc, the
doc at the rehab stated he was dying from prostate cancer. I called his
Primary care doc, who stated get him to an oncologist ASAP, which we did,
the oncologist went over the medication list, He was not getting his
Parkinson medication, he restarted the medication and never fell again ( he
lived 3 more years to age 91)
Alex
Kaye301 - 12 Oct 2004 03:12 GMT
Allan! I just read what happened and am so sorry Deborah went through all
this. No fun! And very scarey! I am glad that she is better and back home.
Any idea what caused the flare up? Was this the first time she had a problem
with cellulitis? I had another ? but just erased and can't remember what I
wrote--more later, gotta run but glad she is doing better.
allan grossman - 12 Oct 2004 23:01 GMT
>Allan! I just read what happened and am so sorry Deborah went through all
>this. No fun! And very scarey! I am glad that she is better and back home.
>Any idea what caused the flare up? Was this the first time she had a problem
>with cellulitis? I had another ? but just erased and can't remember what I
>wrote--more later, gotta run but glad she is doing better.
Google ate my first response, Kaye - I'm at home now with a proper
newsreader ;-)
This was our first experience with cellulitis. Could have been
anything - a cut, scratch, who knows? Deborah thinks she may have
caused this herself by using an exfoliant on her affected arm - but
I'd have never thought of something like that.
hugs -
allan

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we don't see things as they are, we see them as we are.
-- Anais Nin
Kaye301 - 13 Oct 2004 16:21 GMT
<< Deborah thinks she may have
caused this herself by using an exfoliant on her affected arm - but
I'd have never thought of something like that.
>><BR><BR>
Interesting. That's good to know. I probably shouldn't but even with
lymphedema I shave with a hand razor. However, I want to preface it by saying
I use a brand new one every time and do it as lightly as possible. I have
never cut myself with a new hand razor (although suppose there is a first for
anything), and I shave only rarely--once every 3 to 6 months (i.e. if wearing a
bathing suit). I thought the feeling of the electric razor was awful and could
be just as harmful to that arm as a new razor could. Anyway, after I shave
that arm, I do other areas and then toss the razor.
I am glad Deborah is doing well now. {{{Hugs}}} to both of you
JLMA115 - 31 Oct 2004 06:59 GMT
>I shave only rarely--once every 3 to 6 months
I do the same. It seems that because the surgeon took all my lymph nodes as
well as most of the other tissue and muscle in the axillary region during
mastectomy, hair does not grow very often. Surgery must have gotten most of
the hair follicles in this region. There are only a few stray ones
occasionally. Using a brand new razor each time is really a great and
practical idea. It is difficult to get that area properly de-haired with an
electric razor because the shape of the axilla is so changed from the effects
of surgery.
Janice A.
Stage IV Metastatic Breast CA
*Annie* - 09 Oct 2004 23:57 GMT
note to self: re-read before you hit send...
;-( ahhhh, typos don'tcha just love 'em.
God bless/Take care annie
Ultimately.....we know deeply that the other side of every fear is a
freedom.
"Courage"...is *fear* that has said it's prayers.
Mary Fisher - 12 Oct 2004 21:21 GMT
> Deborah is in the hospital now, recovering from a bout of cellulitis
> that started in her lymphedemic arm and moved into her chest.
[quoted text clipped - 31 lines]
>
> allan
Thanks for that, Allan, it's the first time I've heard of that prticulr
experience.
Love to both of you,
Mary