> Hi, I'm Eva. I'm 56 years old. I have an enormous tumor in my right breast
> (8 cm, or something like 5 inches). I am having chemo to shrink it before I
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> Would *really* hate to lose my hair and the tumor gets *bigger* instead of
> smaller. Ha ha.
> Like you I also had a huge tumor, 8cm x 10cm x 3cm. Mine did not show up on
> mammograms or ultrasound so I did not have chemo beforehand to help shrink
> it.
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I had a perfectly normal mammogram in July 2003. In April 2004 I first
noticed a large lump, but I did not immediately seek medical attention
because I knew that large painful lumps that suddenly appear are usually not
cancer.
Usually. Usually. Usually. Usually.
By June, when I finally got around to seeing the doctor, it had gotten this
big, and quite painful, and the doctor, a breast specialist with a very good
reputation, said she'd never seen breast cancer follow a course like this in
a woman my age. In fact, before getting the biopsy results she and her
partner both suspected I had a sarcoma, a malignant tumor of the connective
tissue, rather than actual breast cancer.
This is the way breast cancer behaves in women in their 30s, the doctors
said. They've never before seen it behave this way in a post-menopausal
woman. They couldn't offer any explanation as to why this would happen, and
I am terrified that I have some kind of crazy malignancy, like one of these
"superbug" viruses, that will not respond to chemo and that will kill me no
matter what anyone does.
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>....Mine is also a recurrence. first diagnosed in 2000. I had a bi-lateral
> mastectomy at the beginning of June.
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Oh, I'm sorry. I hope you are healing well. I feel like I wish I'd opted
to have the surgery first, even though having the chemo first is what the
doctors recommended and it seemed reasonable at the time. I want this thing
out of my body!
----------------
>.... I am one week out of my first chemo. I
> am on 6 cycles of FEC. What are you on?
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I haven't learned the jargon yet, so I don't know what FEC is, but I'm
taking "C&A" (?) every two weeks. I can't remember how many times I will
have it. Maybe 8? I'm very overwhelmed by all the information that was
thrown at me.
------------------
> Will keep you in my thoughts and prayers,
-----------------
Thank you very much, Liz. I certainly hope all the best for you.
Eva
Jayashree Iyer - 29 Jul 2004 16:34 GMT
Eva,
if it helps, our doctors told us that chemo before surgery is helpful
in large tumours because it reduces the size of the tumour and makes
surgery less complicated and less painful. It also hasnt proven to
cause any increase in long term fatality, i.e. it dosent mean that
anyone is going to die sooner just because they didnt have surgery
first.
Please feel free to email me if you have any concerns. I am definitely
not as experienced as most of the others here,but that dosent mean I
cant try :)
Jayashree
Eva - 30 Jul 2004 12:38 GMT
> Eva,
> if it helps, our doctors told us that chemo before surgery is helpful
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> anyone is going to die sooner just because they didnt have surgery
> first.
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Yes, this is exactly what I was told too.
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> Please feel free to email me if you have any concerns. I am definitely
> not as experienced as most of the others here,but that dosent mean I
> cant try :)
------------
Au contraire, you've been *very* helpful to me.
Eva
Tim Jackson - 29 Jul 2004 19:32 GMT
> I had a perfectly normal mammogram in July 2003. In April 2004 I first
> noticed a large lump, but I did not immediately seek medical attention
> because I knew that large painful lumps that suddenly appear are usually not
> cancer.
>
> Usually. Usually. Usually. Usually.
Usually indeed. My wife also had a large and painful tumour. It did not
however appear suddenly like yours, but developed gradually. It did not
feel like a lump, more like a swelling. It took her doctor a long time to
admit it was cancer, or even order a mammogram. She was about 46 when it
started.
Tim Jackson
Eva - 30 Jul 2004 12:36 GMT
> > I had a perfectly normal mammogram in July 2003. In April 2004 I first
> > noticed a large lump, but I did not immediately seek medical attention
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> admit it was cancer, or even order a mammogram. She was about 46 when it
> started.
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OTOH, when I called my GYN and reported the large painful lump, he did not
even want to see me first, he got on the phone and told me he was sending me
directly to a breast specialist. I was surprised, but it certainly turned
out to be the right move.
I didn't even have another mammogram. I had a sonogram, which showed the
size and solidity of the mass, and then a core biopsy.
Just taking a guess that in this case the malpractice-lawsuit-driven US
healthcare system may have worked in my favor.
Oh, incidentally, I wasn't sure if this was a lump or a swelling either, at
first; and the doctors said it didn't feel like a typical "rock-hard breast
cancer" to them. That was one reason why they postulated I had a sarcoma at
first.
Eva
Tim Jackson - 30 Jul 2004 16:30 GMT
> > > I had a perfectly normal mammogram in July 2003. In April 2004 I first
> > > noticed a large lump, but I did not immediately seek medical attention
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> cancer" to them. That was one reason why they postulated I had a sarcoma at
> first.
My wife's doctor could politely be called an arrogant cow. She wouldn't
deviate from her initial diagnosis of mastitis and wouldn't even re-examine
when the problem persisted and further symptoms developed, but suggested my
wife increase her bra size to accommodate the swelling!. It turned out to
be a multi-focal cancer, that's why it didn't feel hard. My wife didn't
want to go for a second opinion because it would have meant seeing a male
doctor. The situation only changed when her doctor went on holiday and a
new junior member of the practice (also female) saw her.
Tim
Eva - 31 Jul 2004 01:29 GMT
> My wife's doctor could politely be called an arrogant cow. She wouldn't
> deviate from her initial diagnosis of mastitis and wouldn't even re-examine
[quoted text clipped - 4 lines]
> doctor. The situation only changed when her doctor went on holiday and a
> new junior member of the practice (also female) saw her.
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Oh my God, I'm so sorry.
Eva