I had a weird reaction this past weekend. I was calmly sitting at a table at
an outdoor restaurant. The weather was comfortable--in the 70's. It was
shaded--no sun--since the fog had not yet lifted. I was looking at the menu
when my vision began to get weird. I was getting all these white
patches--irregular or almost flower-shaped. I was getting weaker--almost felt
as if I weren't getting enough air while exhaling. I think I was on verge of
passing out--but not blacking out--"whiting out" or fading out. I was not
anxious but felt almost spacey and as if I were almost in a float-like state.
I also felt slight lower abdominal discomfort and slight nausea. I was
conscious. I spoke with the waiter. I was first to be asked for my order and
asked if he could ask someone else and I told others that I wasn't feeling well
at the moment. We were with family whom we hadn't seen for a year. My
husband's cousin's wife said she thought they were "losing me." I am guessing
that she meant that I was going to pass out or something.
I later thought it might be a reaction to the diuretic pills I had taken. I
hadn't taken them for a few months but this was 3rd time I was taking thm in
past 2 days. I used to take them regularly but was told to do it only once in
a while for a day or two at a time. I was also taking a different kind.
They had switched the type I was using--and this was an old one of a different
shape (diamond-shaped). I took one and then another 2-halves along with
potassium.
I thought I might possibly be dehydrated although had none of the symptoms of
such. I wasn't hungry because I had had a croissant and cup of tea an hour
and a half earlier. It was so weird. I was kind of tired, although not
overwhelmingly so, but more so than usual for the rest of the day.
I put a call into my dr. the next day (MOnday) and he wanted me to come in. He
said it might be neurological. However, after he heard my symptoms he said he
thought it was a vaso-vagal response. I have no idea but am not sure how he
could determine that without any testing having been done at the time. Even if
related to that I am wondering what might have triggered it.
I guess it makes me a little uneasy 'cause it triggers memories of what
happened to my dad. 6 mos. before he had a fatal heart attack he kept passing
out. However, his face always got all red first. Still, this incident makes
me a bit uneasy. What if it happened while driving? I am hoping it may have
just been medication related but now wonder if any further testing should have
been done?
louisejoi - 05 Aug 2004 18:14 GMT
> I had a weird reaction this past weekend. I was calmly sitting at a table at
> an outdoor restaurant. The weather was comfortable--in the 70's. It was
[quoted text clipped - 32 lines]
> just been medication related but now wonder if any further testing should have
> been done?
Any diabetes related issues? Does diabetes run in your family? This could
have been reactive hypoglycemia. Some folks who go on to have diabetes have
hypoglycemic (low blood sugar) episodes, which this may have been. You
might want to ask for a test for diabetes. Good luck.

Signature
Best wishes,
Louise (who lurks here because of high risk for breast cancer...just
finished 5 years of tamoxifen!)
Type 2 diabetic since 2000
Controlling by exercise and diet
Kaye301 - 05 Aug 2004 18:15 GMT
<< Any diabetes related issues? Does diabetes run in your family? This could
have been reactive hypoglycemia. >><BR><BR>
Hmm interesting thought--never occurred to me and dr. didn't suggest it.
Alex - 05 Aug 2004 18:31 GMT
Kaye,
I don't know what to say! If I forget to take my celebrex, I remember
by early after noon when I am in discomfort. I don't know whatelse to
say you left me speakless. Hugs...alex
Barb - 06 Aug 2004 14:47 GMT
Hello Kaye,
I'm so sorry you are experiencing these things.....can't even imagine how
disconcerting it must be, when you hold concerns that aren't being directly
addressed by your physician(s). I hope that it's something benign and
totally treatable, or better yet---that it never happens again.
Hugs,
Barb
Kaye301 - 06 Aug 2004 20:51 GMT
<< I hope that it's something benign and
totally treatable, or better yet---that it never happens again.
Hugs,
Barb >><BR><BR>
Thanks, Barb
It's not only me. I received an email from a poster who has same health care
plan as we. She is finding some of the same things go on in how they are
maintaining her records. I think my post also mentioned that of another woman
with bc who went outside for a 2nd opinion re brain mets. When she went to
pick up her scans--most but not all couldn't be located. All she had were
reports. So, she really was not able to get an adequate '2nd' opinion. All
the dr. did was not disagree with what was being done. Welcome to managed
care!
Pat from Apple Valley, CA - 06 Aug 2004 23:17 GMT
Kaye Wrote:
I think you are right. My suggestion is your share that with the
newsgroup -- which, would help others to take notice of their records as
well.
Here is the post
Kaye,
I too, have had severe back pain. Enough, one time, to send me to
emergency in an ambulance. The back spasms made it impossible to get out
of bed and I could breath only in gasps between spasms. It had been the
second episode of the spasms. The first one, was in the lower back, it
was the worst pain I have ever had until the second one, the ER trip
pain was in the shoulderblade part of the back. I have had 3 back exrays
in the last 2 months. First one found better than usual calcium for my
age and nothing to report. Second one found arthritic activity in the
lower back. The third one found bone spurs in the lower back. As you
might remember I had to change Ins Companies the first of July. The new
Onc. said the back pain was probably bone mets in the back. I did have a
bone scan earlier and had mets in the fronts of three ribs and in the
back of the head. One of the ribs actually hurts all the way around
right now. The extreme pain is gone, but after I stand for a while I can
feel them trying to return. Thank G-D for Vicodan..
Then you were talking about the Records. I went to the records dept.
to get my records to take to the new Oncologist. One of them was for a
Ct scan. Supposedly for me. It had my name, almost. No middle initial
was used. It was the very one my Onc read to me, at my last visit with
him, about a questionable area in the pelvic area. It also said I had
been admitted to the hospital on a certain date, which I had not, and
that it had been done on a different date than mine, and that I was born
in 1916, which I was born in 1941. They insisted it was mine as it
referenced a ct done in January, which I did have. But as you said what
kind of record keeping is this? It may be mine but it just as well might
not be..Who knows...
I guess I am talking about all three of your posts. I too had
Lobular and now my mets are looking like bone spurs. Same as you. I get
an MRI of the back tomorrow. I hope something can be settled. But Kaye
do you have mets? I don't remember you actually saying you did.
All in all, as I have switched to Kaiser I am finding it refreshing
that I am getting things done as quickly as I have. In the first 34 days
with them I have had an exray of back, met my Onc, met my PCP, had CT
scan getting an MRI Fri.and starting chemo next Tue.. That is the bad
part. I had been given Arimidex for the high Tumer marker, Old Onc let
it ride, tho the markers rose alot. New Onc said, "Well no sense taking
the Arimidex obviously it isn't working"..Chemo is my only choice. I
will be getting Taxotere. They have risen to 2140, or so. As you stated
some Dr's have ordered tests while the markers are still in the one
hundreds not wait until the 2100's like mine did. Mine gave me the same
load of bulls--t. Treat for 3 years or wait 1 year and treat 2 years
with the same end result.. Lots of hope that gives us right? This new
one at least didn't try to feed me that line, yet... Well It sounds like
we have several of the same symptoms, Tho I don't have lymphedema..I
hope you get the treatment you need. You deserve to get the best as do I...
I am taking Celebrex, but just 1 a day. Are you taking more????
Isn't it terribly hard on your stomach?
Good Luck, I will continue to read your posts on Alt. BC...Pat from
Apple Valley, CA...
PS: Kaye I have not been tested for HER as far as I know. But I will
inquire. I did have a PET scan when the numbers started to go up last
year, but non since. Also what is poly-chemo?
Guess Who - 06 Aug 2004 23:39 GMT
Hey Pat,
Glad to hear your pain is under control. I am understanding your new
insurance Kaiser is much better than your former HMO. It is scary how your
medical records were kept. Kaiser is a HMO Too? I guess there is managed
care and "Managed Care" .
Thanks for posting, Alex
Kaye301 - 07 Aug 2004 03:10 GMT
Alex wrote: << Kaiser is much better than your former HMO. It is scary how your
medical records were kept. Kaiser is a HMO Too? I guess there is managed
care and "Managed Care" . >><BR><BR>
In some ways Kaiser is exceptionally good. It is or was a non-profit HMO. At
the same time, it isn't 'perfect,' and as Pat indicated--Kaiser was the
facility who managed to be unable to locate needed records,
Pat from Apple Valley, CA - 07 Aug 2004 22:32 GMT
>Alex wrote: << Kaiser is much better than your former HMO. It is scary how your
>medical records were kept. Kaiser is a HMO Too? I guess there is managed
[quoted text clipped - 4 lines]
>facility who managed to be unable to locate needed records,
>
No it was NOT Kaiser who couldn't find the right scan it was my old HMO.
I was trying to get my old papers for my NEW kaiser Doctors. Pat
Kaye301 - 08 Aug 2004 02:06 GMT
<< No it was NOT Kaiser who couldn't find the right scan it was my old
HMO. I was trying to get my old papers for my NEW kaiser Doctors. Pat</tt>
>><BR><BR>
Oops, sorry for the mistake. It's good to hear that it wasn't Kaiser. They
have a fairly decent system in place--at least for patients, initially. They
seem to do more initial testing than most. Also, they seem to have very
well-trained nurses doing chemo so one doesn't have to get a port, necessarily.
In addition they seem to know how to control nausea.
I am just a little concerned about the inconsistencies in report findings,
scanning techniques, and interpretation of symptoms--'not calling a spade a
spade' which I think is done in order to delay treatment. That is not
consistent with latest findings re. b.c. However, it seems to be the standard
protocol for women with breast cancer--'cause there are way too many of us and
the best of treatment would further impact a troubled health care system. Look
how aids impacted the system. 'They' aren't about to let that happen with
breast cancer. GRRRRR.....
Pat from Apple Valley, CA - 06 Aug 2004 23:29 GMT
>I had a weird reaction this past weekend. I was calmly sitting at a table at
>an outdoor restaurant. The weather was comfortable--in the 70's. It was
[quoted text clipped - 33 lines]
>been done?
>
Kaye,
You know this exact thing happened to me also. This is getting
weird..I had gone into the kitchen and got suddenly very disoriented and
had to grab the counter to steady myself..I must have looked pretty
strange as my DH, who never notices anything, asked what had happened to
me. Only happened once, tho...Pat from Apple Valley, CA
Kaye301 - 07 Aug 2004 03:08 GMT
Pat wrote: << This is getting
weird..I had gone into the kitchen and got suddenly very disoriented and
had to grab the counter to steady myself..I must have looked pretty
strange as my DH, who never notices anything, asked what had happened to
me. >><BR><BR>
Pat, call your pcp and oncologist to share. They might want to further
explore.
Pat from Apple Valley, CA - 07 Aug 2004 22:33 GMT
>Pat wrote: << This is getting
>weird..I had gone into the kitchen and got suddenly very disoriented and
[quoted text clipped - 5 lines]
>explore.
>
Well It only happened the one time. I am thinking I just moved too
fast...Pat